Ellie
@madknittrsteaparty.bsky.social
Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🇺🇦
Pinned
Ellie
@madknittrsteaparty.bsky.social
· Jul 23
To my followers- I am sorry I can't donate to Gaza accounts at this time. I am disabled, unable to work, & spend much of my life in bed.
Please continue to follow me.
To UK government- we're watching a genocide in real time & you do nothing. This is unbearable. I'm ashamed of my government.
Please continue to follow me.
To UK government- we're watching a genocide in real time & you do nothing. This is unbearable. I'm ashamed of my government.
Reposted by Ellie
Headline on The World at One just now:
"Sir Keir Starmer has denied putting the Labour Party before the country by ending the two-child benefit cap".
Can we please go back to reporting the actual news, not someone's partisan take on it?
"Sir Keir Starmer has denied putting the Labour Party before the country by ending the two-child benefit cap".
Can we please go back to reporting the actual news, not someone's partisan take on it?
November 27, 2025 at 1:11 PM
Headline on The World at One just now:
"Sir Keir Starmer has denied putting the Labour Party before the country by ending the two-child benefit cap".
Can we please go back to reporting the actual news, not someone's partisan take on it?
"Sir Keir Starmer has denied putting the Labour Party before the country by ending the two-child benefit cap".
Can we please go back to reporting the actual news, not someone's partisan take on it?
Reposted by Ellie
November 27, 2025 at 3:04 PM
Reposted by Ellie
25 years ago, London lost a bright, caring 10-year-old boy to an act of senseless violence.
The Damilola Taylor Trust continues to transform young lives for the better and has turned unimaginable heartbreak into an enduring legacy for young people across our city.
The Damilola Taylor Trust continues to transform young lives for the better and has turned unimaginable heartbreak into an enduring legacy for young people across our city.
‘Enduring’ legacy of Damilola Taylor hailed 25 years on from killing
Family of tragic Damilola, 10, join forces with Sir Mark Rowley and Sir Sadiq Khan to fight knife crime across London
www.standard.co.uk
November 27, 2025 at 11:04 AM
25 years ago, London lost a bright, caring 10-year-old boy to an act of senseless violence.
The Damilola Taylor Trust continues to transform young lives for the better and has turned unimaginable heartbreak into an enduring legacy for young people across our city.
The Damilola Taylor Trust continues to transform young lives for the better and has turned unimaginable heartbreak into an enduring legacy for young people across our city.
Reposted by Ellie
he certainly did not word it this way or mention cancer. Now I am extremely anxious, ruminating around this possibility, unable to think about anything else. I have no follow up to my procedure or support now I navigate what I can/can’t eat. I’m very scared & had an all round awful experience. /7
November 27, 2025 at 9:11 AM
he certainly did not word it this way or mention cancer. Now I am extremely anxious, ruminating around this possibility, unable to think about anything else. I have no follow up to my procedure or support now I navigate what I can/can’t eat. I’m very scared & had an all round awful experience. /7
Reposted by Ellie
Only to reveal her own bigotry about it later and push this conversation that was clearly upsetting me. The next worse thing she did was word that my gallbladder was enlarged so it got sent to a lab for routine testing, also looking for cancer. When I spoke to the surgeon also that day… /6
November 27, 2025 at 9:05 AM
Only to reveal her own bigotry about it later and push this conversation that was clearly upsetting me. The next worse thing she did was word that my gallbladder was enlarged so it got sent to a lab for routine testing, also looking for cancer. When I spoke to the surgeon also that day… /6
Reposted by Ellie
The machine monitoring me in my hospital bed kept showing bradycardia, an irregular pulse & very slow breathing which was never addressed. The worst thing was that when I was at my most vulnerable waking from the anaesthesia I thought she was trustable with my past trauma and major life problems /5
November 27, 2025 at 9:00 AM
The machine monitoring me in my hospital bed kept showing bradycardia, an irregular pulse & very slow breathing which was never addressed. The worst thing was that when I was at my most vulnerable waking from the anaesthesia I thought she was trustable with my past trauma and major life problems /5
Reposted by Ellie
and complaining I was about to faint. All she kept saying was basically… go home, I need this bed for someone else, I’m not doing anything more for you. You can have more pain relief and anti-sickness medication only if you agree to leave. She upset me so much I was pushed to anger and tears /4
November 27, 2025 at 8:58 AM
and complaining I was about to faint. All she kept saying was basically… go home, I need this bed for someone else, I’m not doing anything more for you. You can have more pain relief and anti-sickness medication only if you agree to leave. She upset me so much I was pushed to anger and tears /4
Reposted by Ellie
How I was treated by the nurses was appalling. Gently mocked for showing clear signs of fatigue and treated like I was choosing to doss about in the hospital bed after a general anaesthetic and surgical removal for fun. I was bullied by a nurse which pressured me to leave whilst I was pre-nausea /3
November 27, 2025 at 8:53 AM
How I was treated by the nurses was appalling. Gently mocked for showing clear signs of fatigue and treated like I was choosing to doss about in the hospital bed after a general anaesthetic and surgical removal for fun. I was bullied by a nurse which pressured me to leave whilst I was pre-nausea /3
Reposted by Ellie
This is on top of the misery caused by M.E, POTS, low heart ejection fraction, HEDS and orthostatic hypotension. The most disabling of these being M.E. EVERY damn time i got asked what my other health conditions were they wrote them all down EXCEPT M.E. /2
November 27, 2025 at 8:49 AM
This is on top of the misery caused by M.E, POTS, low heart ejection fraction, HEDS and orthostatic hypotension. The most disabling of these being M.E. EVERY damn time i got asked what my other health conditions were they wrote them all down EXCEPT M.E. /2
It is not enough to give children a warm meal because they are hungry. Ministers must justify it by reassuring critics they have not gone “soft on welfare”. Compassion, it seems, comes with a footnote.
“No one can pretend they didn’t know the harm it was causing.
Politicians – both those with a blue or a red rosette – let it continue anyway.”
My col. on the end of the two child benefit limit (and a climate that means even feeding toddlers gets a backlash). www.theguardian.com/commentisfre...
Politicians – both those with a blue or a red rosette – let it continue anyway.”
My col. on the end of the two child benefit limit (and a climate that means even feeding toddlers gets a backlash). www.theguardian.com/commentisfre...
The two-child limit is abolished at last. Watch out for the narrative that will follow | Frances Ryan
The right is already in a frenzy about the migrant groups it thinks will benefit – and the budget contained other trade-offs, says Guardian columnist Frances Ryan
www.theguardian.com
November 27, 2025 at 10:52 AM
It is not enough to give children a warm meal because they are hungry. Ministers must justify it by reassuring critics they have not gone “soft on welfare”. Compassion, it seems, comes with a footnote.
Reposted by Ellie
“No one can pretend they didn’t know the harm it was causing.
Politicians – both those with a blue or a red rosette – let it continue anyway.”
My col. on the end of the two child benefit limit (and a climate that means even feeding toddlers gets a backlash). www.theguardian.com/commentisfre...
Politicians – both those with a blue or a red rosette – let it continue anyway.”
My col. on the end of the two child benefit limit (and a climate that means even feeding toddlers gets a backlash). www.theguardian.com/commentisfre...
The two-child limit is abolished at last. Watch out for the narrative that will follow | Frances Ryan
The right is already in a frenzy about the migrant groups it thinks will benefit – and the budget contained other trade-offs, says Guardian columnist Frances Ryan
www.theguardian.com
November 27, 2025 at 9:51 AM
“No one can pretend they didn’t know the harm it was causing.
Politicians – both those with a blue or a red rosette – let it continue anyway.”
My col. on the end of the two child benefit limit (and a climate that means even feeding toddlers gets a backlash). www.theguardian.com/commentisfre...
Politicians – both those with a blue or a red rosette – let it continue anyway.”
My col. on the end of the two child benefit limit (and a climate that means even feeding toddlers gets a backlash). www.theguardian.com/commentisfre...
Reposted by Ellie
I got a gallbladder removal done on the NHS yesterday, which they made me wait YEARS for as the problem got worse and worse, I fell underweight and had to have the most restrictive diet, ENORMOUS/regular pain and it eventually went infected. I feel like this wait stole a part of my life 🥺 /1
November 27, 2025 at 8:46 AM
I got a gallbladder removal done on the NHS yesterday, which they made me wait YEARS for as the problem got worse and worse, I fell underweight and had to have the most restrictive diet, ENORMOUS/regular pain and it eventually went infected. I feel like this wait stole a part of my life 🥺 /1
Reposted by Ellie
I honestly feel us vulnerables need some sort of a buddy system so we aren't left alone with NHS staff. This is despicable.
I got a gallbladder removal done on the NHS yesterday, which they made me wait YEARS for as the problem got worse and worse, I fell underweight and had to have the most restrictive diet, ENORMOUS/regular pain and it eventually went infected. I feel like this wait stole a part of my life 🥺 /1
November 27, 2025 at 10:17 AM
I honestly feel us vulnerables need some sort of a buddy system so we aren't left alone with NHS staff. This is despicable.
November 27, 2025 at 10:44 AM
Reposted by Ellie
🎄 6 days to go until the start of our @biggive.bsky.social Christmas Challenge!
We are the only UK charity providing direct services, including healthcare, to people with ME of all ages – our services have been described as a ‘lifeline’.
We are the only UK charity providing direct services, including healthcare, to people with ME of all ages – our services have been described as a ‘lifeline’.
November 26, 2025 at 2:00 PM
🎄 6 days to go until the start of our @biggive.bsky.social Christmas Challenge!
We are the only UK charity providing direct services, including healthcare, to people with ME of all ages – our services have been described as a ‘lifeline’.
We are the only UK charity providing direct services, including healthcare, to people with ME of all ages – our services have been described as a ‘lifeline’.
Reposted by Ellie
If you are eligible for the mobility component of PIP, you can spend *your own money* topping that up to have a great accessible car. Critics should ask: Why are you against this? What it is about disabled people that makes you believe it’s wrong to have nice things they paid for themselves?
November 26, 2025 at 1:22 PM
If you are eligible for the mobility component of PIP, you can spend *your own money* topping that up to have a great accessible car. Critics should ask: Why are you against this? What it is about disabled people that makes you believe it’s wrong to have nice things they paid for themselves?
Reposted by Ellie
“The Motability scheme was set up to protect the most vulnerable. Not to subsidise the lease on a Mercedes Benz,” Reeves says.
Misleading and nasty in equal measure.
Misleading and nasty in equal measure.
November 26, 2025 at 1:15 PM
“The Motability scheme was set up to protect the most vulnerable. Not to subsidise the lease on a Mercedes Benz,” Reeves says.
Misleading and nasty in equal measure.
Misleading and nasty in equal measure.
Reposted by Ellie
Tapestry created by women of the Otomi people of central Altiplano (Mexican Plateau) region of Mexico #womensart
November 17, 2025 at 6:11 AM
Tapestry created by women of the Otomi people of central Altiplano (Mexican Plateau) region of Mexico #womensart
Reposted by Ellie
Disabled people who claim disability benefits, are just as eligible to that money as state pensioners who claim that benefit.
Both are and should be seen as entitlements for anyone who qualifies.
Both are and should be seen as entitlements for anyone who qualifies.
November 26, 2025 at 10:57 AM
Disabled people who claim disability benefits, are just as eligible to that money as state pensioners who claim that benefit.
Both are and should be seen as entitlements for anyone who qualifies.
Both are and should be seen as entitlements for anyone who qualifies.
Reposted by Ellie
I think AI might have been a bit... overhyped.
It's just Clippy on steroids and even more annoying.
It's just Clippy on steroids and even more annoying.
November 26, 2025 at 11:07 AM
I think AI might have been a bit... overhyped.
It's just Clippy on steroids and even more annoying.
It's just Clippy on steroids and even more annoying.
Reposted by Ellie
Not only did Brexit not provide any extra money for the NHS - as liar-in-chief Boris Johnson promised - but Brexit is impoverishing the UK each year by an amount of money not far off the annual NHS budget.
Thanks Farage.
Thanks Farage.
November 26, 2025 at 10:48 AM
Not only did Brexit not provide any extra money for the NHS - as liar-in-chief Boris Johnson promised - but Brexit is impoverishing the UK each year by an amount of money not far off the annual NHS budget.
Thanks Farage.
Thanks Farage.
Reposted by Ellie
The 50 wealthiest families own more wealth than the bottom 50% of the population.
How can this Labour Government say this is a "cost of living" budget and refuse to tax the rich?
They care about protecting power and wealth. And cost of living is a buzz phrase for them. Dire.
How can this Labour Government say this is a "cost of living" budget and refuse to tax the rich?
They care about protecting power and wealth. And cost of living is a buzz phrase for them. Dire.
November 26, 2025 at 12:16 PM
The 50 wealthiest families own more wealth than the bottom 50% of the population.
How can this Labour Government say this is a "cost of living" budget and refuse to tax the rich?
They care about protecting power and wealth. And cost of living is a buzz phrase for them. Dire.
How can this Labour Government say this is a "cost of living" budget and refuse to tax the rich?
They care about protecting power and wealth. And cost of living is a buzz phrase for them. Dire.
Reposted by Ellie
So often doctors, researchers, and the media miss this 👇
They flatten post-exertional malaise (PEM) into one symptom: fatigue.
My neurologist did this. Rather than argue I decided to count.
I had over ❗️50 ❗️new or worsened symptoms during my last major PEM.
They flatten post-exertional malaise (PEM) into one symptom: fatigue.
My neurologist did this. Rather than argue I decided to count.
I had over ❗️50 ❗️new or worsened symptoms during my last major PEM.
PEM is not a single symptom; it's a pathological state in which response to exertion is shock-like: drops in BP, drops in oxygenation, drops in HR, drops in temp, transient drops in cognitive ability.
And doing exercise more, or harder, or more often does not alter the nature of the response.
And doing exercise more, or harder, or more often does not alter the nature of the response.
November 22, 2025 at 2:14 AM
So often doctors, researchers, and the media miss this 👇
They flatten post-exertional malaise (PEM) into one symptom: fatigue.
My neurologist did this. Rather than argue I decided to count.
I had over ❗️50 ❗️new or worsened symptoms during my last major PEM.
They flatten post-exertional malaise (PEM) into one symptom: fatigue.
My neurologist did this. Rather than argue I decided to count.
I had over ❗️50 ❗️new or worsened symptoms during my last major PEM.
Reposted by Ellie
Highlights from a 2006 BBC Inside Out segment about 20 yr old Claire Wade, bedbound with severe ME. She fell ill at 10 and lost her entire teenage years to the illness. She spent the last 6 yrs confined to bed, with only letters & emails to connect her to the outside world.
November 26, 2025 at 7:00 AM
Highlights from a 2006 BBC Inside Out segment about 20 yr old Claire Wade, bedbound with severe ME. She fell ill at 10 and lost her entire teenage years to the illness. She spent the last 6 yrs confined to bed, with only letters & emails to connect her to the outside world.
Reposted by Ellie
Do you have a local fox ? Please share your photos in the comments , or using #FoxOfTheDay !
Thank you to @sarahvallance3 for today's #FoxOfTheDay .
Thank you to @sarahvallance3 for today's #FoxOfTheDay .
November 26, 2025 at 7:01 AM
Do you have a local fox ? Please share your photos in the comments , or using #FoxOfTheDay !
Thank you to @sarahvallance3 for today's #FoxOfTheDay .
Thank you to @sarahvallance3 for today's #FoxOfTheDay .