The Real McCoy
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
Pinned
The Real McCoy
@rippermd41.bsky.social
· Nov 10
New followers here’s an intro on me and what I post about:
I have #SevereMECFS and am housebound. (It sucks)
I have an MD, but don’t practice medicine. Other health problems took me out during residency. (Seriously, my life follows Murphy’s Law)
I have #SevereMECFS and am housebound. (It sucks)
I have an MD, but don’t practice medicine. Other health problems took me out during residency. (Seriously, my life follows Murphy’s Law)
Reposted by The Real McCoy
Heath Howard enters the chat
running for the seat now held by Jeanne Shaheen
Those of you following along at home have heard me scream about how Jeanne and Mags Hassan have been 25% of the problem w/ key votes 2025
Heath is an Autistic guy w/ a disability who seems to be a real one doing the work
running for the seat now held by Jeanne Shaheen
Those of you following along at home have heard me scream about how Jeanne and Mags Hassan have been 25% of the problem w/ key votes 2025
Heath is an Autistic guy w/ a disability who seems to be a real one doing the work
ICE is not making our communities safer.
What will make them safer?
•Universal Healthcare 🩺
•Affordable Housing 🏡
•Wages People Can Live On 💵
•Due Process for All ⚖️
#NHPolitics #NH01
What will make them safer?
•Universal Healthcare 🩺
•Affordable Housing 🏡
•Wages People Can Live On 💵
•Due Process for All ⚖️
#NHPolitics #NH01
January 10, 2026 at 4:35 AM
Heath Howard enters the chat
running for the seat now held by Jeanne Shaheen
Those of you following along at home have heard me scream about how Jeanne and Mags Hassan have been 25% of the problem w/ key votes 2025
Heath is an Autistic guy w/ a disability who seems to be a real one doing the work
running for the seat now held by Jeanne Shaheen
Those of you following along at home have heard me scream about how Jeanne and Mags Hassan have been 25% of the problem w/ key votes 2025
Heath is an Autistic guy w/ a disability who seems to be a real one doing the work
Nothing like getting ready for in-person doctor’s appt with #MECFS
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Im Having A Lot Fun This Is Really Fun For Me Dan Levy GIF
Alt: GIF of Dan Levy in Schitt’s Creek saying “I’m having a lot of fun.
media.tenor.com
January 5, 2026 at 5:18 PM
Nothing like getting ready for in-person doctor’s appt with #MECFS
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Reposted by The Real McCoy
#pwLC #pwME #NEISVoid @lccampaign.bsky.social founder @meighanstone.bsky.social needs our help! She’s had a recent housing emergency/mold exposure—causing unforeseen expenses/health issues. More info here.👇 Please help if you can and share with anyone you know who can assist. gofund.me/6bd94d22d
Donate to Keep LC Campaign Founder Housed and Medically Stable, organized by Melissa Mazur
Friends, Long COVID Campaign Founder Meighan Stone needs our help!
… Melissa Mazur needs your support for Keep LC Campaign Founder Housed and Medically Stable
gofund.me
January 4, 2026 at 11:47 PM
#pwLC #pwME #NEISVoid @lccampaign.bsky.social founder @meighanstone.bsky.social needs our help! She’s had a recent housing emergency/mold exposure—causing unforeseen expenses/health issues. More info here.👇 Please help if you can and share with anyone you know who can assist. gofund.me/6bd94d22d
Reposted by The Real McCoy
Urgent last request to help us meet our fundraising goal at @thesicktimes.org! Help be a part of independent journalism on Long COVID.
All donations and shares are greatly appreciated 🙏🏼😷
All donations and shares are greatly appreciated 🙏🏼😷
We need your help 🚨
Today is the last day to contribute to our end-of-year fundraiser, and we’re $16,000 short of our goal. No donation is too small. Can you help us continue to report on the Long COVID crisis?
Donate here: the-sick-times.fundjournalism.org/donate/
Today is the last day to contribute to our end-of-year fundraiser, and we’re $16,000 short of our goal. No donation is too small. Can you help us continue to report on the Long COVID crisis?
Donate here: the-sick-times.fundjournalism.org/donate/
Join | The Sick Times
The Sick Times is supported by people like you. Support The Sick Times today.
the-sick-times.fundjournalism.org
December 31, 2025 at 8:00 PM
Urgent last request to help us meet our fundraising goal at @thesicktimes.org! Help be a part of independent journalism on Long COVID.
All donations and shares are greatly appreciated 🙏🏼😷
All donations and shares are greatly appreciated 🙏🏼😷
Reposted by The Real McCoy
Statement Re: OU Discrimination Investigation
Today, my client, Mel Curth, submitted her appeal of the University's Institutional Equity Office finding that she engaged in arbitrary and capricious grading of a student's assignment in violation of that student's religious liberty.
Today, my client, Mel Curth, submitted her appeal of the University's Institutional Equity Office finding that she engaged in arbitrary and capricious grading of a student's assignment in violation of that student's religious liberty.
December 30, 2025 at 4:36 PM
Statement Re: OU Discrimination Investigation
Today, my client, Mel Curth, submitted her appeal of the University's Institutional Equity Office finding that she engaged in arbitrary and capricious grading of a student's assignment in violation of that student's religious liberty.
Today, my client, Mel Curth, submitted her appeal of the University's Institutional Equity Office finding that she engaged in arbitrary and capricious grading of a student's assignment in violation of that student's religious liberty.
Reposted by The Real McCoy
Wrote about how disappointing it is that Jon Stewart punched down on people masking at @motherjones.com, when people should mind their own business and leave mask wearers be. www.motherjones.com/politics/202...
Hey Jon Stewart, jokes about wearing masks aren't funny
Critics of the Daily Show host say he's a hypocrite.
www.motherjones.com
December 29, 2025 at 6:54 PM
Wrote about how disappointing it is that Jon Stewart punched down on people masking at @motherjones.com, when people should mind their own business and leave mask wearers be. www.motherjones.com/politics/202...
Reposted by The Real McCoy
December 26, 2025 at 10:09 PM
In case you missed it Canada changed their citizenship laws recently.
If you have Canadian ancestry you may be eligible for citizenship by descent.
I need to look into it some more but this is amazing.
immigration.ca/claiming-can...
If you have Canadian ancestry you may be eligible for citizenship by descent.
I need to look into it some more but this is amazing.
immigration.ca/claiming-can...
Claiming Canadian Citizenship by Descent Under Canada’s New Citizenship Act Bill C-3 - Canada Immigration and Visa Information. Canadian Immigration Services and Free Online Evaluation.
Learn how Canada’s new Bill C-3 restores citizenship by descent, removes the first-generation limit, and allows multigenerational claims for those born abroad.
immigration.ca
December 23, 2025 at 3:28 AM
In case you missed it Canada changed their citizenship laws recently.
If you have Canadian ancestry you may be eligible for citizenship by descent.
I need to look into it some more but this is amazing.
immigration.ca/claiming-can...
If you have Canadian ancestry you may be eligible for citizenship by descent.
I need to look into it some more but this is amazing.
immigration.ca/claiming-can...
Reposted by The Real McCoy
March 31, 2020:
December 22, 2025 at 12:42 AM
March 31, 2020:
Reposted by The Real McCoy
Telehealth is vital for people with #LongCOVID. Don’t let it disappear
thesicktimes.org/2025/12/19/t...
This article explains why telehealth (remote/virtual healthcare) is needed by patients with Long Covid,ME/CFS, & other chronic illnesses & lists some advocacy actions for Canada & the US
#MEcfs
thesicktimes.org/2025/12/19/t...
This article explains why telehealth (remote/virtual healthcare) is needed by patients with Long Covid,ME/CFS, & other chronic illnesses & lists some advocacy actions for Canada & the US
#MEcfs
Telehealth is vital for people with Long COVID. Don’t let it disappear. - The Sick Times
Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
thesicktimes.org
December 21, 2025 at 10:37 PM
Telehealth is vital for people with #LongCOVID. Don’t let it disappear
thesicktimes.org/2025/12/19/t...
This article explains why telehealth (remote/virtual healthcare) is needed by patients with Long Covid,ME/CFS, & other chronic illnesses & lists some advocacy actions for Canada & the US
#MEcfs
thesicktimes.org/2025/12/19/t...
This article explains why telehealth (remote/virtual healthcare) is needed by patients with Long Covid,ME/CFS, & other chronic illnesses & lists some advocacy actions for Canada & the US
#MEcfs
Reposted by The Real McCoy
#NEISvoid Letterboxd squad: have you rated Unrest yet?
There’s some pretty frustrating ableism in the reviews that’s dragging the score down. I’d love to boost it to encourage other Letterboxd viewers to check it out!
There’s some pretty frustrating ableism in the reviews that’s dragging the score down. I’d love to boost it to encourage other Letterboxd viewers to check it out!
December 21, 2025 at 6:37 AM
#NEISvoid Letterboxd squad: have you rated Unrest yet?
There’s some pretty frustrating ableism in the reviews that’s dragging the score down. I’d love to boost it to encourage other Letterboxd viewers to check it out!
There’s some pretty frustrating ableism in the reviews that’s dragging the score down. I’d love to boost it to encourage other Letterboxd viewers to check it out!
Reposted by The Real McCoy
This hurts my heart because some parents would risk having a dead kid due to believing that's better than having an autistic kid.
(No, vaccines don't lead to people being autistic but that's why some people aren't get their kids vaccinated).
(No, vaccines don't lead to people being autistic but that's why some people aren't get their kids vaccinated).
BREAKING: RFKJr directs that the US instantly stop recommending all vaccinations for children. www.washingtonpost.com/health/2025/...
Under RFK Jr., U.S. plans to stop recommending most vaccines, defer to doctors
The plan, which is not finalized, suggests children get fewer shots and shifts to a model telling parents to consult doctors to make their own vaccine choices.
www.washingtonpost.com
December 20, 2025 at 12:21 AM
This hurts my heart because some parents would risk having a dead kid due to believing that's better than having an autistic kid.
(No, vaccines don't lead to people being autistic but that's why some people aren't get their kids vaccinated).
(No, vaccines don't lead to people being autistic but that's why some people aren't get their kids vaccinated).
Reposted by The Real McCoy
Congratulations to everyone who wrote an op-ed about how he just wants americans to eat better
BREAKING: RFKJr directs that the US instantly stop recommending all vaccinations for children. www.washingtonpost.com/health/2025/...
Under RFK Jr., U.S. plans to stop recommending most vaccines, defer to doctors
The plan, which is not finalized, suggests children get fewer shots and shifts to a model telling parents to consult doctors to make their own vaccine choices.
www.washingtonpost.com
December 19, 2025 at 11:56 PM
Congratulations to everyone who wrote an op-ed about how he just wants americans to eat better
Reposted by The Real McCoy
Unfortunately I am super not interested in leading it but “Civics for Long Covid” would be an immensely valuable teach-in.
December 19, 2025 at 8:42 PM
Unfortunately I am super not interested in leading it but “Civics for Long Covid” would be an immensely valuable teach-in.
Reposted by The Real McCoy
If any journalist wants to talk to a trans man with a PhD in Human Genomics who was trained in labs that studied the evolution of sex, I'm right here
Or just keep platforming Republicans who have a 5th grade understanding of biology so they get more trans people killed, sure 🤷🏻♂️
Or just keep platforming Republicans who have a 5th grade understanding of biology so they get more trans people killed, sure 🤷🏻♂️
December 18, 2025 at 5:27 PM
If any journalist wants to talk to a trans man with a PhD in Human Genomics who was trained in labs that studied the evolution of sex, I'm right here
Or just keep platforming Republicans who have a 5th grade understanding of biology so they get more trans people killed, sure 🤷🏻♂️
Or just keep platforming Republicans who have a 5th grade understanding of biology so they get more trans people killed, sure 🤷🏻♂️
Having #MECFS is a nightmare.
I am so angry about this.
But I can’t be angry because that emotional exertion could trigger post-exertional malaise (PEM).
And I can’t use any coping strategies like going for a run because they all require physical or cognitive exertion.
I am so angry about this.
But I can’t be angry because that emotional exertion could trigger post-exertional malaise (PEM).
And I can’t use any coping strategies like going for a run because they all require physical or cognitive exertion.
This is horrifying.
As a parent of a kid that falls under the trans umbrella, I honestly don’t know what to say right now.
This will kill kids.
This goes against good science.
The claims RFK Jr et al are making about gender affirming care are as real as “vaccines cause autism.”
As a parent of a kid that falls under the trans umbrella, I honestly don’t know what to say right now.
This will kill kids.
This goes against good science.
The claims RFK Jr et al are making about gender affirming care are as real as “vaccines cause autism.”
RFK Jr. is claiming that gender affirming care violates the Hippocratic oath to do no harm...
etc.
etc.
December 18, 2025 at 7:40 PM
Having #MECFS is a nightmare.
I am so angry about this.
But I can’t be angry because that emotional exertion could trigger post-exertional malaise (PEM).
And I can’t use any coping strategies like going for a run because they all require physical or cognitive exertion.
I am so angry about this.
But I can’t be angry because that emotional exertion could trigger post-exertional malaise (PEM).
And I can’t use any coping strategies like going for a run because they all require physical or cognitive exertion.
Reposted by The Real McCoy
Folks need to examine philosophically why it is that—in the span of just a couple of years—the leaders of the American Democratic, Canadian Liberal & British Labour Parties have all gone all in on assisred suicide (while making healthcsre harder to attain) www.cityandstateny.com/policy/2025/...
December 17, 2025 at 6:17 AM
Folks need to examine philosophically why it is that—in the span of just a couple of years—the leaders of the American Democratic, Canadian Liberal & British Labour Parties have all gone all in on assisred suicide (while making healthcsre harder to attain) www.cityandstateny.com/policy/2025/...
Reposted by The Real McCoy
Cis people really have no idea how it feels to watch a regime hold a press conference to admit, on camera, the pogrom against trans people they've been waging for 11 months is not only real, but they're going to double down on genocide and try to wipe out all the children first.
December 18, 2025 at 5:27 PM
Cis people really have no idea how it feels to watch a regime hold a press conference to admit, on camera, the pogrom against trans people they've been waging for 11 months is not only real, but they're going to double down on genocide and try to wipe out all the children first.
Reposted by The Real McCoy
Congratulations, those of you who decided to platform fringe voices and create a climate of fear and hate out of ignorance because those voices insisted a non-problem was a problem. They're now on an HHS stage trying to ruin children's lives. You will live with the harm you have done forever.
December 18, 2025 at 5:19 PM
Congratulations, those of you who decided to platform fringe voices and create a climate of fear and hate out of ignorance because those voices insisted a non-problem was a problem. They're now on an HHS stage trying to ruin children's lives. You will live with the harm you have done forever.
Reposted by The Real McCoy
“it’s reasonable to ask questions about trans girls in sports” was always intended to mainstream transphobia.
It’s absurd that people fell for it. Democrats are constantly letting oppressors set the terms of debate instead of just saying “no, fuck you.”
It’s absurd that people fell for it. Democrats are constantly letting oppressors set the terms of debate instead of just saying “no, fuck you.”
December 18, 2025 at 2:12 PM
“it’s reasonable to ask questions about trans girls in sports” was always intended to mainstream transphobia.
It’s absurd that people fell for it. Democrats are constantly letting oppressors set the terms of debate instead of just saying “no, fuck you.”
It’s absurd that people fell for it. Democrats are constantly letting oppressors set the terms of debate instead of just saying “no, fuck you.”
This is horrifying.
As a parent of a kid that falls under the trans umbrella, I honestly don’t know what to say right now.
This will kill kids.
This goes against good science.
The claims RFK Jr et al are making about gender affirming care are as real as “vaccines cause autism.”
As a parent of a kid that falls under the trans umbrella, I honestly don’t know what to say right now.
This will kill kids.
This goes against good science.
The claims RFK Jr et al are making about gender affirming care are as real as “vaccines cause autism.”
RFK Jr. is claiming that gender affirming care violates the Hippocratic oath to do no harm...
etc.
etc.
December 18, 2025 at 6:00 PM
This is horrifying.
As a parent of a kid that falls under the trans umbrella, I honestly don’t know what to say right now.
This will kill kids.
This goes against good science.
The claims RFK Jr et al are making about gender affirming care are as real as “vaccines cause autism.”
As a parent of a kid that falls under the trans umbrella, I honestly don’t know what to say right now.
This will kill kids.
This goes against good science.
The claims RFK Jr et al are making about gender affirming care are as real as “vaccines cause autism.”
Reposted by The Real McCoy
Anyone attempting any holiday baking? We have some great tips for those wanting to attempt to keep this holiday tradition - just modifying it as best you can for spoonies!
We share lots of helpful holiday tips here: https://ow.ly/8wVH50XLaCX
#pwME #Spoonie #MECFS #Holiday
We share lots of helpful holiday tips here: https://ow.ly/8wVH50XLaCX
#pwME #Spoonie #MECFS #Holiday
December 18, 2025 at 3:01 PM
Anyone attempting any holiday baking? We have some great tips for those wanting to attempt to keep this holiday tradition - just modifying it as best you can for spoonies!
We share lots of helpful holiday tips here: https://ow.ly/8wVH50XLaCX
#pwME #Spoonie #MECFS #Holiday
We share lots of helpful holiday tips here: https://ow.ly/8wVH50XLaCX
#pwME #Spoonie #MECFS #Holiday
Reposted by The Real McCoy
At today's talk, I touched on deception in activity management. Some-- often new to the field / to PEM-- will deceptively call their graded exercise program pacing.
Then, I stumbled across this from @sunsopeningband.bsky.social and it's actually worse. 🧪 🧵
bmjopen.bmj.com/content/15/1...
Then, I stumbled across this from @sunsopeningband.bsky.social and it's actually worse. 🧪 🧵
bmjopen.bmj.com/content/15/1...
Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation (PREFACER): a protocol for a randomised feasibility trial
Introduction Over 777 million COVID-19 infections have occurred globally, with data suggesting that 10%–20% of those infected develop Long COVID. Fatigue is one of the most common and disabling sympto...
bmjopen.bmj.com
December 17, 2025 at 8:01 PM
At today's talk, I touched on deception in activity management. Some-- often new to the field / to PEM-- will deceptively call their graded exercise program pacing.
Then, I stumbled across this from @sunsopeningband.bsky.social and it's actually worse. 🧪 🧵
bmjopen.bmj.com/content/15/1...
Then, I stumbled across this from @sunsopeningband.bsky.social and it's actually worse. 🧪 🧵
bmjopen.bmj.com/content/15/1...
Reposted by The Real McCoy
I agree with all this — sick leave is essential to a healthy society. While we’re working on that, though, we need to make it a general norm that if you MUST be around others while sick, you wear a mask (preferably a good one).
3/ Isolation is important but only works if people can afford it. Many people simply can’t stay home when sick. Without meaningful sick pay, asking people to isolate is unrealistic. Better financial support is essential to reduce transmission.
December 16, 2025 at 12:49 PM
I agree with all this — sick leave is essential to a healthy society. While we’re working on that, though, we need to make it a general norm that if you MUST be around others while sick, you wear a mask (preferably a good one).