Melissa Mazur
@phillyphile215.bsky.social
920 followers 1.3K following 1.1K posts
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
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phillyphile215.bsky.social
Glad to see you are looking into this issue—especially now with people continuing to get Long COVID & ME each day and LC becoming the leading chronic condition among children. We are learning so much about how viruses can hijack the immune system for their own purposes in real time …
Map of the US with different colored symbols representing the following statistics:
1.7 million - cancer
1.2 million - HIV
1 million - multiple sclerosis 
16.3 million - Long Covid
 
Graphic from this CNBC story from 2022: https://m.youtube.com/watch?v=RMzoCNPctuo&dp_isNewTab=1&dp_referrer=other&dp_allowFirstVideo=1
Reposted by Melissa Mazur
jimsciutto.bsky.social
Breaking: A federal judge has granted a temporary restraining order blocking the deployment of National Guard troops in the state of Illinois for 14 days.
Reposted by Melissa Mazur
apnews.com
Pope Leo XIV has blasted how wealthy people live in a “bubble of comfort and luxury” while the poor suffer. In his first teaching document Thursday, Leo confirms that he is in perfect lockstep with Pope Francis on matters of social injustice.
Pope Leo blasts economy that marginalizes poor while wealthy live in bubble of luxury
Pope Leo XIV has blasted how wealthy people live in a “bubble of comfort and luxury” while the poor suffer.
bit.ly
Reposted by Melissa Mazur
juliametraux.bsky.social
Yes. Social media is how I've made friends with other chronically ill people.
conradhackett.bsky.social
Has anything great happened in your life because of social media?
Reposted by Melissa Mazur
diatoma.bsky.social
Still dreaming Jon Stewart will look into Wessely’s malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com
Reposted by Melissa Mazur
diatoma.bsky.social
Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
I’ve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social
Reposted by Melissa Mazur
Reposted by Melissa Mazur
diatoma.bsky.social
Gracias for your voice & clarity, querido @georgemonbiot.bsky.social. Any thoughts on why it’s so hard to get more people to care about #GreatestMEdicalScandal? At @johnvsjonvsme.bsky.social we’ve been trying to get @weeklyshowpodcast.bsky.social @lastweektonight.com to cover it.
www.johnvsjon.com
Reposted by Melissa Mazur
nerdjpg.com
Turns out having a welfare state and a hoarding capitalist class isn’t actually sustainable
unusual whales @unusual_whales
X.com
Germany has proposed raising the retirement age to 73 to prevent the collapse of the pension system, per Reuters
Reposted by Melissa Mazur
phillyphile215.bsky.social
Sounds like something @lastweektonight.com should be covering 👀 (Check out JohnVsJon.com for more)
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
Reposted by Melissa Mazur
emilyesfraser.bsky.social
Important thread on the #GreatestMEdicalScandal of the 21st century
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
phillyphile215.bsky.social
No worries. I think they blocked me though (not the other way around). I have hardly anyone blocked on here and if it’s the thread I’m thinking of (which I now can’t see) it’s disappointing that this is their response, given what I had to say. Kinda proved my point 🤷‍♀️
Reposted by Melissa Mazur
chantzy.bsky.social
When leaders say "there are more important things to focus on" than the current pandemic, they are saying that there are more important things to focus on than brain injury, organ damage, long term disability in kids, immune dysfunction etc - and that sounds totally absurd if you think about it
phillyphile215.bsky.social
to do that. Micromobility will not work (and is expensive/not easy to procure).
phillyphile215.bsky.social
An exception for people who need it without extensive paperwork. A multimodal space. As someone with mobility issues that relapse and remit there are times where I (& others w/ Long COVID, ME, POTS) need to lie down to be transported & car is the most accessible way…
phillyphile215.bsky.social
Ensuring that every citizen including those with criminal records have a right to vote. And so many other things that could really ensure democracy is preserved and are effective.
phillyphile215.bsky.social
(so more workers can vote), thinking about how to provide childcare so more workers can vote, campaign finance reform (bc so much money spent on campaigns than fixing the things people need), etc. Going out long before election season to ASK non-voters why they don’t vote and what they care about…
phillyphile215.bsky.social
Maybe. I guess I just haven’t seen these mailers move the needle for anyone I know. And if we are going to have time/money/resources spent on these initiatives shouldn’t it be effective? I’d much rather it be spent on things like: work to make Election Day a holiday…
phillyphile215.bsky.social
Your starred part was not a part of the discussion. It was framed as a binary without an exception. Pushing back on this sort of narrative as someone affected by it is not vitriol.
Reposted by Melissa Mazur
phillyphile215.bsky.social
“Presumably the candidates know what will appeal to their voters.” How has this strategy been working out for Democrats in recent years?
Reposted by Melissa Mazur
emilyesfraser.bsky.social
Lolsob at the person who decided my neuroimmune disease is fake because they didn’t want to mask for me anymore
jenka.bsky.social
I learned this term yesterday and my life will never be the same.
"Solution Aversion": Denying a problem when you do not like the solution.
phillyphile215.bsky.social
Do you really want access? Or do you just want control? Maybe ask yourself that. Cause what you just proposed doesn’t sound like you care about what is actually accessible for everyone. You just want to tell them what you think they deserve.
phillyphile215.bsky.social
😖 so frustrating. I am curious to hear this story though. If we want a democracy and to engage voters (especially young ones), we can’t dismiss what they have to say