Melissa Mazur
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phillyphile215.bsky.social
Melissa Mazur
@phillyphile215.bsky.social
930 followers 1.3K following 1.1K posts
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
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phillyphile215.bsky.social
Melissa Mazur @phillyphile215.bsky.social · Jun 29
Glad to see you are looking into this issue—especially now with people continuing to get Long COVID & ME each day and LC becoming the leading chronic condition among children. We are learning so much about how viruses can hijack the immune system for their own purposes in real time …
Map of the US with different colored symbols representing the following statistics: 1.7 million - cancer 1.2 million - HIV 1 million - multiple sclerosis 16.3 million - Long Covid Graphic from this CNBC story from 2022: https://m.youtube.com/watch?v=RMzoCNPctuo&dp_isNewTab=1&dp_referrer=other&dp_allowFirstVideo=1
Reposted by Melissa Mazur
vashetc.bsky.social
Because of the ice raids, I haven’t been able to find a caregiver through medicaid since June. For three days a week I have to hire one from a company, and it cost $39.50 an hour. I owe $898 from my last bill and I’m struggling. If youd like to donate I would appreciate it ❤️
Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland
Hello everyone, My name is Victoria and thank you for checking out my gofundme.… Vee Copeland needs your support for Critical Healthcare Support for Victoria
www.gofundme.com
November 23, 2025 at 6:02 PM
Reposted by Melissa Mazur
tiffanymuller.bsky.social
From climate change to cost of living, it all comes back to corruption. That’s why at @endcitizensunited.bsky.social, we’re committed to ending Big Money in politics.
No lie: Democrats want to take back the majority with this one easy trick
More House Democrats are embracing anti-corruption campaigns.
www.nationaljournal.com
November 25, 2025 at 11:22 PM
Reposted by Melissa Mazur
vashetc.bsky.social
My advice. If you’re referencing COVID at a specific time point, just say that. You can acknowledge theres still a crises while saying “at the beginning stages of the pandemic” or “during the federal emergency order”… just be specific.
November 25, 2025 at 8:01 PM
Reposted by Melissa Mazur
vashetc.bsky.social
I posted on LinkedIn how people need to talk about COVID in the present tense. it’s doing numbers. One comment however, asked (genuinely) how to speak about specific time points as there are distinct differences (agree) between the past when there was an “emergency” & now non emergency (disagree)
November 25, 2025 at 8:01 PM
Reposted by Melissa Mazur
vashetc.bsky.social
Explaining to folks why saying “COVID lockdown” feels ableist and carceral
November 25, 2025 at 9:52 PM
Reposted by Melissa Mazur
exceedhergrasp1.bsky.social
Not knowing about PEM is proof positive you don't know IACCs.

Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
November 21, 2025 at 3:56 PM
phillyphile215.bsky.social
Please share with people with #LongCOVID in your life. It would be incredible to hit 1000 in the next week! (They are already over 700 since this post!)
julialmv.bsky.social Julia MV @julialmv.bsky.social · 5d
We are up to 688 LoCITT participants!

If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.

We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 24, 2025 at 8:47 PM
Reposted by Melissa Mazur
erictopol.bsky.social
We've enrolled more than 700 participants (of 1,000 planned) in 3 weeks to a randomized trial for treatment of #LongCovid
scripps.edu Scripps Research @scripps.edu · 5d
Founder and director of the Scripps Research Translational Institute, @erictopol.bsky.social, and Julia Moore Vogel, co–principal investigator of the Long COVID Treatment Trial, were featured in @wired.com, sharing insights on a nationwide study testing GLP-1s for long COVID.
Weight-Loss Drug Zepbound Is Being Tested as a Treatment for Long Covid
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of long Covid.
ow.ly
November 23, 2025 at 7:09 PM
Reposted by Melissa Mazur
l0stsect0r.bsky.social
life is a dumpster fire, but im not alone
-alice wong

#alicewong is a fighter

be like alice @teamaoc.bsky.social

www.theguardian.com/society/2025...
MacArthur genius Alice Wong on resistance in the new year: ‘Life is a dumpster fire, but I’m not alone’
The activist and ‘disabled oracle’ reflects on a moment that changed her life – and why she finds solace in sci-fi
www.theguardian.com
January 2, 2025 at 3:26 PM
Reposted by Melissa Mazur
spooniethreads.bsky.social
"Life is a dumpster fire, but I'm not alone." In her latest interview, disability advocate Alice Wong reflects on activism, resilience, and finding hope in sci-fi.
www.theguardian.com/society/2025...
#AliceWong #DisabilityAdvocate #MacArthurFellow #SciFiInspiration #Activism #Resilience #Community
Disability advocate Alice Wong on resistance in the new year: ‘Life is a dumpster fire, but I’m not alone’
The activist, who received a 2024 MacArthur ‘genius’ grant, reflects on a moment that changed her life – and why she finds hope in sci-fi
www.theguardian.com
January 3, 2025 at 4:12 PM
Reposted by Melissa Mazur
bellinissima.bsky.social
COVID Isn’t Going Anywhere. Masking Up Could Save My Life.

Disability Visibility is a column on being disabled in a nondisabled world.

www.teenvogue.com/story/covid-...

#AliceWong #DisabilityVisibility
COVID Isn’t Going Anywhere. Masking Up Could Save My Life.
"When I am in public spaces and see most people unmasked, I feel like an expendable burden not worth saving."
www.teenvogue.com
May 17, 2025 at 3:48 AM
Reposted by Melissa Mazur
piecesofamber.cryptoanarchy.network
Oof. Feeling the first part hard.

From Crip Class by Gabrielle Peters

#CurrentlyReading #DisabilityIntimacy #AliceWong #CripClass #GabriellePeters #books #reading #BookSky
Black text on white background. Transcribed text: I tell myself I need to shut up and stop sharing, and yet talking out loud is my only intimacy and connection with the world, and sometimes a connection to someone who is similarly threatened, not aided by the saviors of the system. Alice Wong Disability Intimacy: Essays on Love, Care, and Desire
July 11, 2025 at 3:58 AM
Reposted by Melissa Mazur
saimarie.bsky.social
Alice Wong is a Chinese American activist and founder of the Disability Visibility Project. Born with SMA, she fights for access, media inclusion, and justice for disabled people of color. Her work uplifts voices too often erased.
#AliceWong #DisabilityPrideMonth #AccessIsLove
July 23, 2025 at 5:23 AM
Reposted by Melissa Mazur
communicationfirst.bsky.social
Our Advisory Council Member #AliceWong appeared on a #Radiolab episode called #Voice! Listen for her amazing insights and a shoutout to CommunicationFIRST (1:00:48): lnk.to/rlab. Alice starts speaking at 00:32:47 and 00:58:45. Transcript here: lnk.to/rlabt.

@sfdirewolf.bsky.social

📷 Photo…

(1/2)
[Image: Alice Wong in her wheelchair with a tracheostomy at her neck connected to a ventilator. A smiling Alice wears a pink plaid shirt and pink pants, and her AAC device is mounted in front of her.]
October 10, 2025 at 4:49 PM
Reposted by Melissa Mazur
sciencenews.bsky.social
People use glue guns to fix lots of things. Now researchers have modified one to help fix broken bones. https://www.snexplores.org/article/glue-gun-heal-broken-bones?utm_source=hootsuite&utm_medium=bluesky&utm_campaign=snesnsocial
A modified glue gun squirts a material to help heal broken bones
The handheld printer might someday apply bone-repair patches directly onto fractures — complete with antibiotics to prevent infection.
www.snexplores.org
November 13, 2025 at 4:35 PM
Reposted by Melissa Mazur
publiccitizen.bsky.social
Wasting a COUPLE OF BILLION of taxpayer dollars on a silly name change for a department that’s already bloated, wasteful, & can’t pass an audit is a fitting symbol of the Trump administration.
November 13, 2025 at 4:35 PM
Reposted by Melissa Mazur
kyledcheney.bsky.social
NEW: Jeffrey Epstein said in emails that he had been advising the Russian government on how to deal with Donald Trump, one of several cases in which he wielded his connections to try to influence the course of foreign affairs. w @nahaltoosi

www.politico.com/news/2025/11...
November 12, 2025 at 8:43 PM
Reposted by Melissa Mazur
publiccitizen.bsky.social
Reacting to the newly revealed messages where sex predator Jeffrey Epstein says Trump “knew about the girls” and had “spent hours” at his house with one of the victims, the White House is decrying “selectively released emails.”

Well then, easy fix: Release the damn Epstein files in full!
November 12, 2025 at 8:07 PM
Reposted by Melissa Mazur
broadwaybabyto.bsky.social
ICE agents in Chicago violently detain a non verbal autistic man for being “non compliant”

He couldn’t “comply” because of his disability…they don’t care

This is not the first time they’ve gone after a disabled person

They target the most vulnerable because it’s an easy way to meet their quota
November 8, 2025 at 8:15 AM
Reposted by Melissa Mazur
adambonica.bsky.social
Did you know gov shutdowns aren’t in the Constitution, any law, or Court ruling?
They exist because of a 1980 OLC memo—a lawyer’s opinion that everyone just went along with. Before 1980, funding gaps didn’t cause shutdowns.

What one memo created, another can undo. How the next D admin can undo it:
Why America’s Government Shutdowns Exist and How to End Them
One Legal Memo Created The Shutdown Era. Another Can End It.
open.substack.com
November 7, 2025 at 9:03 PM
Reposted by Melissa Mazur
coachfinstock.bsky.social
Pope said 6-7
richraho.bsky.social Rich Raho @richraho.bsky.social · 18d
While details are unknown, Leo’s call for Cardinals to gather in Rome Jan 6-7 for Extraordinary Consistory is significant. Jan 6 marks end of Jubilee Year. Francis nor Benedict called zero such meetings. JP2 convened 6 Extraordinary Consistories; the first in 1979 to discuss his upcoming trip to US.
November 8, 2025 at 7:41 PM
Reposted by Melissa Mazur
julialmv.bsky.social
For more info and to enroll check out our website:
longcovid.scripps.edu/locitt-t/?ut...

And/or attend our webinar tomorrow (11/5); registration is required:
scrippsresearch.zoom.us/webinar/regi...
November 4, 2025 at 3:11 PM
phillyphile215.bsky.social
If your response to someone asking you about how C19/LC affect a topic you are presenting on is “we don’t have much research on C19/LC” please stop, admit you just don’t know the answer, and actively learn about C19 and its chronic effects.

Because 5+ years in we do know A LOT. You just don’t.
November 6, 2025 at 7:59 PM
phillyphile215.bsky.social
If you’ve been following the latest research on C19 and its effects, you’ll know this is actually a good thing 👀
November 6, 2025 at 7:56 PM
Reposted by Melissa Mazur
dickzoutman.bsky.social
www.nature.com/articles/d41...
COVID-19 is spreading again — how serious is it and what are the symptoms?
Limited COVID-19 surveillance data are hampering vaccination and health strategies, researchers say.
www.nature.com
November 6, 2025 at 2:57 PM