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tuttleturtle

@tuttleturtle.bsky.social

270 followers 330 following 1.4K posts

I'm that person who taught introductory abstract algebra to the people you refused to show multiplication saying they were "too disabled" disabled queer trans aac user. eternally exhausted they/them

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tuttleturtle @tuttleturtle.bsky.social · Apr 12

About Tuttle In One Sentence:
I have a cat named Erdős who I am training as my medical alert cat using ASL because he prefers sign over my AAC voice.

Attached is my fundraiser for my service dog! I'd appreciate any support. I can help people in non-financial ways but I'm on SSI and money is hard.

tuttleturtle @tuttleturtle.bsky.social · Apr 12

Doing my monthly (I think I lost track oops) share of my service dog fundraiser now with photo of my SDIT!

Image description of photo in link: A brindle dog with black mask sitting, looking up at the camera in a face that reminds me of a happy seal. She's wearing a red vest.

givebutter.com/nhEnw1

Help Tuttle get a Service Dog

By J M Animal Training and Rescue Inc

givebutter.com

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Reposted by tuttleturtle

mcc @dryad.technology · 8d

Is any of this "offensive"? No, but it's instructive. Notice the people blurting "waffles!" above aren't internet randos, like the reply gals that got Jay so upset to start with. They're operators of startups and journalists who were published in the economist, like, last week.

They're an ingroup.

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mcc @dryad.technology · 8d

The function of the waffles joke is an in-group signifier. Singal, Graber, and Oppiliappan are showing in-group solidarity; they're all in on a joke. The joke is they have institutional power, and you don't, and they feel contempt for you, that you still want to have opinions about how power's used.

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brainfrog👩‍🦼🫁 @brainfrog.bsky.social · 9d

As someone who has hypoxic brain damage from respiratory failure; the way a lot of you conflate any kind of brain injury and/or neurodivergence with immorality really fucking sucks.

Disability doesn't cause fascism. Colonialism, capitalism and white supremacy do.

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Emily Paige Ballou @epballou.bsky.social · 9d

You're telling ME and a lot of other people to deny our own disabilities, and not to bother seeing ourselves in kids like yours, and frankly, MY life would be worse and less sustainable if I did that.

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Emily Paige Ballou @epballou.bsky.social · 9d

...but you're trying to cut US off from the knowledge and experiences of kids like yours.

And I have learned AT LEAST as much about my own disability from autistic people w/ support needs much higher than mine, as I have from people whose lives look more like mine superficially.

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tuttleturtle @tuttleturtle.bsky.social · 8d

SPECIFICALLY:
1. This is for dealing with a severe mast cell reaction but the benefits being great enough that its worth pre-med/post-med and flaring for months

2. I also have adrenal insufficiency

3. I am not new to the idea of pre-medicating, but need to be continuing to improve my protocol

tuttleturtle @tuttleturtle.bsky.social · 8d

People with #MCAS who have knowledge about pre-medication protocols what are things I might be overlooking if modifying mine? I forgot to talk to my allergist about dealing with reworking my pre-med protocol and he's real bad about replying to the patient portal.

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tuttleturtle @tuttleturtle.bsky.social · 19d

of course the news at the hospital was on blah blah tylenol causes autism as well just to make it worse

tuttleturtle @tuttleturtle.bsky.social · 19d

fun times in spending all day dealing with medical malpractice because of the med pro being an anti-masker

/splat

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rahaeli @rahaeli.bsky.social · 26d

But the key elements of the "polite request for reassessment" are:

1. Remind the doctor of your specific Weird;
2. Identify the link between your Weird and the symptoms;
3. Provide a (brief!) summary of why you think they should pay more attention to the thing they're ignoring;

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Kingfisher & Wombat @tkingfisher.com · 29d

Sedation dentistry is no longer weird. Phone cameras are really good. The price of solar panels has dropped by tens of thousands. Southern white rhinos, giant pandas, Arabian oryx and Stellar sea lions are no longer endangered.

And, I can testify, modern cancer treatments are fucking amazing.

Molly Knight @mollyknight.bsky.social · Sep 11

Please give me an unironic list of things that have gotten better over the last ten years because I’m spiraling.

I’ll start: you can buy an enormous TV from Costco for like $100 bucks now.

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tuttleturtle @tuttleturtle.bsky.social · Sep 9

paywalled but slate.com/technology/2...

seriously can we stop demonizing cortisol, its necessary to survive.

It’s an Essential Part of Your Body. It’s Also Health TikTokkers’ Worst Nightmare. How Did We Get Here?

I wish a $184 weighted pillow could cure me.

slate.com

Reposted by tuttleturtle

Kelsey Atherton @atherton.bsky.social · Sep 5

I have more in common with any and every immigrant than I do with any billionaire and the fix to social security (which the undocumented pay into and cannot draw from) is to remove the wage cap on paying into it, clean simple beneficial restributive and doesn't make second-class non-citizens.

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tuttleturtle @tuttleturtle.bsky.social · Sep 6

If you know you're sick and don't know why you're sick test for *all* the local tick born illnesses. It's worth the testing to see is this from a tick, especially with how climate change is rapidly increasing the rate of these.

Kate's Health Log @healthlog.kateviolette.com · Sep 6

Anyway, here is the first point of two reasons I sat down to write this thread:

1. If you suspect you may have Lyme, and have severe fatigue, make sure you get tested for babesia as well. If something other than babesia odocoilei comes back as negative, get tested specifically for b. odocoilei

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Leonard Pierce @leonardpierce.bsky.social · Sep 6

When they say "AI will replace doctors" they mean "Instead of a doctor, you will have a chatbot and like it and if you die it's your tough break". The rich will continue to have regular doctors

Hypervisible @hypervisible.blacksky.app · Sep 6

Oh.

ChatGPT Told a Man His Symptoms Were Fine, But Then He Saw a Real Doctor and Realized He Was Dying

A young Irish dad believed ChatGPT when it told him his severe sore throat wasn't cause for concern — until his stage-four cancer diagnosis.

futurism.com

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tuttleturtle @tuttleturtle.bsky.social · Sep 6

I definitely can't keep track of what things people are saying are the news things and what are the satire things

tuttleturtle @tuttleturtle.bsky.social · Sep 6

Sharing my service dog fundraiser again: givebutter.com/nhEnw1

She's doing incredibly well! It is always enjoyable to get texts about what she's working on and extra fun when I get to have her visit me to work on her getting to know me. I'm really looking forward to having a dog to help out!

Help Tuttle get a Service Dog

By J M Animal Training and Rescue Inc

givebutter.com

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Reposted by tuttleturtle

AshlEEEK ShoooOOOooo, our region's third most haunted body @ashleyshoo.bsky.social · Sep 6

Gerisuits and other age simulations are no better than disability simulations. They don’t have the outcomes they purport, and we could just, you know, listen to older and disabled people about their experiences and believe them?

pubmed.ncbi.nlm.nih.gov/28287757/

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tuttleturtle @tuttleturtle.bsky.social · Sep 6

The needing to message when they forget is always so annoying

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Seven Years in Quebec @dfeldman.org · Sep 4

SO MANY KIDS used to die

Improvements in sanitation and vaccines were big, but pasteurization had a big impact too

Pasteurization wasn't mandatory in the US until after WWII (exact year depends on the state)

Chart of childhood mortality ages 0-5, going from 450 per 1000 to close to 0 today

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tuttleturtle @tuttleturtle.bsky.social · Sep 6

Was told by a doctor today that the risks of me getting vaccinated is too high even with the protocols we've been doing :(

I hate trying to navigate how severe of reactions and how many problems from medicating is worth vaccinating when fewer and fewer people around me are vaccinated

Reposted by tuttleturtle

worm boy autism MPH @gosuperdonnie.bsky.social · Sep 6

this is not to say that analyses of VAERS data can’t be useful – but those analyses need to be conducted by people with training in immunology/biostatistics/epidemiology, published in reputable publications, & have evidence besides VAERS data to support them if they’re going to guide health policy.

worm boy autism MPH @gosuperdonnie.bsky.social · Sep 6

This is a known limitation of VAERS that HHS freely admits to! It is a limitation of all data collection that accepts unverified reports from the public. You simply cannot draw causal conclusions from VAERS data on its own because there’s no ability to prove vaccines caused the reported effects.

VAERS - FAQs

vaers.hhs.gov

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Seanan McGuire @seananmcguire.bsky.social · Aug 28

There is no route out of fascism that involves sacrificing the vulnerable. All that does is tell the fascists that we're willing to turn on each other for the illusion of safety.

Gwen Snyder is undead @gwensnyder.bsky.social · Aug 28

A lot of political influencers within the Atlantic/NYT orbit are very, very eager to sell us on the lie that we can get out of fascism by sacrificing trans people.

They will beat that drum even louder as the right weaponizes this tragedy.

They are liars now & they will be liars in the coming days.

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tuttleturtle @tuttleturtle.bsky.social · Aug 26

Truthfully I can't even get through this story because of how much it doesn't read like it is written like its about someone who has restraint/seclusion/institutionalization/etc/etc trauma.

Reposted by tuttleturtle

K.B. Spangler @kbspangler.com · Aug 25

“Stay angry, little Meg,” Mrs Whatsit whispered. “You will need all your anger now.”

"Okay I get that," Meg whispered back, "but I've been angry for over a decade straight and my arteries are basically solid carbon fiber at this point. Do I ever get a freakin' break?"

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