Vicky van der Togt
@vickyvdtogt.bsky.social
Facilitator | Researcher | Advocate
Author of The Long Covid Symptom Diary, now available in EN, FR, DE, NL & ES! - www.ddxpublishing.com
Author of The Long Covid Symptom Diary, now available in EN, FR, DE, NL & ES! - www.ddxpublishing.com
Reposted by Vicky van der Togt
We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood.
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
November 6, 2025 at 1:01 PM
We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood.
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
This week, the Long Covid Symptom Diary was published in French, with the help of @longcovidbelgium.bsky.social
The French version of the diary, titled 'Journal de bord des Symptômes du Covid Long' is now available in all Amazon stores worldwide.
The French version of the diary, titled 'Journal de bord des Symptômes du Covid Long' is now available in all Amazon stores worldwide.
October 31, 2025 at 1:26 PM
This week, the Long Covid Symptom Diary was published in French, with the help of @longcovidbelgium.bsky.social
The French version of the diary, titled 'Journal de bord des Symptômes du Covid Long' is now available in all Amazon stores worldwide.
The French version of the diary, titled 'Journal de bord des Symptômes du Covid Long' is now available in all Amazon stores worldwide.
I recently discussed my book, the Long Covid Symptom Diary, with Gez Medinger, for his educative, long-running YouTube series on everything #LongCovid.
🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary
Watch it here: youtu.be/VCkh1WRiaAk?...
🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary
Watch it here: youtu.be/VCkh1WRiaAk?...
Why Old School is Best | The Long Covid Symptom Diary
YouTube video by Gez Medinger
youtu.be
July 21, 2025 at 3:06 PM
I recently discussed my book, the Long Covid Symptom Diary, with Gez Medinger, for his educative, long-running YouTube series on everything #LongCovid.
🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary
Watch it here: youtu.be/VCkh1WRiaAk?...
🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary
Watch it here: youtu.be/VCkh1WRiaAk?...
Reposted by Vicky van der Togt
www.theguardian.com/society/2025...
Ondine did such a huge job to get recognition for all with Long Covid👇
Ondine did such a huge job to get recognition for all with Long Covid👇
Ondine Sherwood obituary
Other lives: Founder of a group campaigning for the recognition of Long Covid
www.theguardian.com
June 19, 2025 at 4:40 AM
www.theguardian.com/society/2025...
Ondine did such a huge job to get recognition for all with Long Covid👇
Ondine did such a huge job to get recognition for all with Long Covid👇
Reposted by Vicky van der Togt
This April, the world has one more chance to finalize a pandemic accord that could shape global health security for decades. But we can’t just plan for a next pandemic. We must also reckon with this one.
But recovery is still missing from the draft accord.
🧵
But recovery is still missing from the draft accord.
🧵
Why we need a pandemic treaty now
The consequences of failing to strike a deal extend well beyond how the world will grapple with health emergencies
www.telegraph.co.uk
April 7, 2025 at 8:43 AM
This April, the world has one more chance to finalize a pandemic accord that could shape global health security for decades. But we can’t just plan for a next pandemic. We must also reckon with this one.
But recovery is still missing from the draft accord.
🧵
But recovery is still missing from the draft accord.
🧵
Navigating the current political situation in the United States while working remotely for a US-based research-focused organization from the Netherlands is a bit of a nightmare, to put it mildly..
👀
👀
April 1, 2025 at 12:55 PM
Navigating the current political situation in the United States while working remotely for a US-based research-focused organization from the Netherlands is a bit of a nightmare, to put it mildly..
👀
👀
Last Thursday, I gave a presentation for the Engagement & Inclusion focal area at CWTS | Leiden University about Patient and Public Involvement (PPI) in research, and the topic of accessibility in research overall.
March 30, 2025 at 11:46 AM
Last Thursday, I gave a presentation for the Engagement & Inclusion focal area at CWTS | Leiden University about Patient and Public Involvement (PPI) in research, and the topic of accessibility in research overall.
Reposted by Vicky van der Togt
As mentioned before, the Long Covid Symptom Diary is created by and for patients, and this includes the translations of the book.
I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
March 15, 2025 at 1:12 PM
As mentioned before, the Long Covid Symptom Diary is created by and for patients, and this includes the translations of the book.
I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
Reposted by Vicky van der Togt
🫴 For every Spanish edition of the diary sold, €1 will be donated to Long Covid associations supporting Spanish-speaking communities.
March 15, 2025 at 1:12 PM
🫴 For every Spanish edition of the diary sold, €1 will be donated to Long Covid associations supporting Spanish-speaking communities.
On this #LongCovidAwarenessDay, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.
March 15, 2025 at 2:20 PM
On this #LongCovidAwarenessDay, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.
En este #LongCovidAwarenessDay, me complace anunciar la publicación de la versión en español de The Long Covid Symptom Diary:
Diario de Síntomas de #CovidPersistente 🇪🇸
Diario de Síntomas de #CovidPersistente 🇪🇸
On this #LongCovidAwarenessDay, we are excited to announce the publication of the Spanish version of The Long Covid Diary, Diario de Síntomas de #CovidPersistente 🇪🇸
March 15, 2025 at 1:16 PM
En este #LongCovidAwarenessDay, me complace anunciar la publicación de la versión en español de The Long Covid Symptom Diary:
Diario de Síntomas de #CovidPersistente 🇪🇸
Diario de Síntomas de #CovidPersistente 🇪🇸
On this #LongCovidAwarenessDay, we are excited to announce the publication of the Spanish version of The Long Covid Diary, Diario de Síntomas de #CovidPersistente 🇪🇸
March 15, 2025 at 1:12 PM
On this #LongCovidAwarenessDay, we are excited to announce the publication of the Spanish version of The Long Covid Diary, Diario de Síntomas de #CovidPersistente 🇪🇸
Due to the passing of my dear friend Ondine, I’ve decided to cancel my participation in the 'Confronting Injustice Through Open Science' conference.
I was looking forward to speaking at the conference, but right now, taking the time to grieve with loved ones is more important 💔
I was looking forward to speaking at the conference, but right now, taking the time to grieve with loved ones is more important 💔
March 12, 2025 at 1:36 PM
Due to the passing of my dear friend Ondine, I’ve decided to cancel my participation in the 'Confronting Injustice Through Open Science' conference.
I was looking forward to speaking at the conference, but right now, taking the time to grieve with loved ones is more important 💔
I was looking forward to speaking at the conference, but right now, taking the time to grieve with loved ones is more important 💔
Reposted by Vicky van der Togt
We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Longcovidsos.org/post/ondine-sherwood
Longcovidsos.org/post/ondine-sherwood
March 12, 2025 at 11:57 AM
We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Longcovidsos.org/post/ondine-sherwood
Longcovidsos.org/post/ondine-sherwood
The #LongCovid Symptom Diary was created to support patients in tracking all aspects of their disease, and this includes keeping track of the use of medication, supplements, and treatments.
March 10, 2025 at 7:18 PM
The #LongCovid Symptom Diary was created to support patients in tracking all aspects of their disease, and this includes keeping track of the use of medication, supplements, and treatments.
Will you join us at the 'Confronting Injustice Through Open Science' conference this Thursday?
You can either join in person (free) or online!
I'll be speaking about my approach to doing research on the panel 'How to place marginalized forms of knowledge production in the center'.
You can either join in person (free) or online!
I'll be speaking about my approach to doing research on the panel 'How to place marginalized forms of knowledge production in the center'.
At the upcoming conference 'Confronting Injustice Through Open Science', I’ll be speaking about this on the panel "How to place marginalized forms of knowledge production in the center?"
March 10, 2025 at 7:08 PM
Will you join us at the 'Confronting Injustice Through Open Science' conference this Thursday?
You can either join in person (free) or online!
I'll be speaking about my approach to doing research on the panel 'How to place marginalized forms of knowledge production in the center'.
You can either join in person (free) or online!
I'll be speaking about my approach to doing research on the panel 'How to place marginalized forms of knowledge production in the center'.
Reposted by Vicky van der Togt
For years, I have worked to improve care, research, and support for people with Long Covid.
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
ddxpublishing.com
March 1, 2025 at 4:30 PM
For years, I have worked to improve care, research, and support for people with Long Covid.
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
For years, I have worked to improve care, research, and support for people with Long Covid.
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
ddxpublishing.com
March 1, 2025 at 4:30 PM
For years, I have worked to improve care, research, and support for people with Long Covid.
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
Now, I am introducing a project that brings all of this work together into a practical tool:
The Long Covid Symptom Diary
Reposted by Vicky van der Togt
I’m looking forward to sharing my perspective on what needs to change and learning from others working in this space.
If you’re interested in these topics, I’d love for you to join.
The event is free to attend, both in person at Vrije Universiteit Amsterdam (@vuamsterdam.bsky.social) and online.
If you’re interested in these topics, I’d love for you to join.
The event is free to attend, both in person at Vrije Universiteit Amsterdam (@vuamsterdam.bsky.social) and online.
February 26, 2025 at 9:59 PM
I’m looking forward to sharing my perspective on what needs to change and learning from others working in this space.
If you’re interested in these topics, I’d love for you to join.
The event is free to attend, both in person at Vrije Universiteit Amsterdam (@vuamsterdam.bsky.social) and online.
If you’re interested in these topics, I’d love for you to join.
The event is free to attend, both in person at Vrije Universiteit Amsterdam (@vuamsterdam.bsky.social) and online.
I’ve spent the past few years working on the topics of accessibility and inclusion, particularly in the context of patient-informed Long Covid studies and community-driven advocacy.
🧵
🧵
Confronting injustice through Open Science
Centering justice, equity, and decolonial approaches in research.
www.eventbrite.co.uk
February 26, 2025 at 9:59 PM
I’ve spent the past few years working on the topics of accessibility and inclusion, particularly in the context of patient-informed Long Covid studies and community-driven advocacy.
🧵
🧵
Reposted by Vicky van der Togt
As the World Health Organization @who.int begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jeremy S Rossman and Vicky van der Togt
We're excited to announce our latest article, which has been published in @bmj.com: 'Recovery is missing in the pandemic treaty'
As the @who.int drafts its pandemic treaty, one critical aspect is missing: recovery.
As the @who.int drafts its pandemic treaty, one critical aspect is missing: recovery.
Recovery is missing in the pandemic treaty
As the World Health Organization begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jere...
www.bmj.com
December 27, 2024 at 12:24 AM
As the World Health Organization @who.int begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jeremy S Rossman and Vicky van der Togt
Reposted by Vicky van der Togt
Without addressing pandemic recovery, we risk ongoing societal harm and reduced readiness for future crises.
That's why recovery must be a central part of the treaty.
That's why recovery must be a central part of the treaty.
Recovery is missing in the pandemic treaty
As the World Health Organization begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jere...
www.bmj.com
December 23, 2024 at 4:37 PM
Without addressing pandemic recovery, we risk ongoing societal harm and reduced readiness for future crises.
That's why recovery must be a central part of the treaty.
That's why recovery must be a central part of the treaty.
A pandemic treaty that excludes recovery overlooks the essential process of addressing long-term impacts, rebuilding systems, and learning from past crises.
Recovery should, therefore, be a cornerstone of the pandemic treaty.
Read our latest article, published in @bmj.com 👇
Recovery should, therefore, be a cornerstone of the pandemic treaty.
Read our latest article, published in @bmj.com 👇
We're excited to announce our latest article, which has been published in @bmj.com: 'Recovery is missing in the pandemic treaty'
As the @who.int drafts its pandemic treaty, one critical aspect is missing: recovery.
As the @who.int drafts its pandemic treaty, one critical aspect is missing: recovery.
Recovery is missing in the pandemic treaty
As the World Health Organization begins a third year seeking consensus for the international treaty on pandemic prevention, preparedness, and response, there is a glaring omission—recovery, write Jere...
www.bmj.com
December 23, 2024 at 4:59 PM
A pandemic treaty that excludes recovery overlooks the essential process of addressing long-term impacts, rebuilding systems, and learning from past crises.
Recovery should, therefore, be a cornerstone of the pandemic treaty.
Read our latest article, published in @bmj.com 👇
Recovery should, therefore, be a cornerstone of the pandemic treaty.
Read our latest article, published in @bmj.com 👇
Good to see that this paper has been retracted, although it's unfortunate that it took this long.
In NL, @misterblok.bsky.social & I had to take legal steps (in 2021) to get the recommendation for the use of hydroxychloroquine as a treatment for #COVID-19 removed from government websites.
In NL, @misterblok.bsky.social & I had to take legal steps (in 2021) to get the recommendation for the use of hydroxychloroquine as a treatment for #COVID-19 removed from government websites.
Study retracted years after it set off an infamous COVID-19 treatment scandal
In 2020, then-President Donald Trump said he had been taking hydroxychloroquine to prevent a COVID-19 infection despite warnings over side effects.
eu.usatoday.com
December 18, 2024 at 3:37 PM
Good to see that this paper has been retracted, although it's unfortunate that it took this long.
In NL, @misterblok.bsky.social & I had to take legal steps (in 2021) to get the recommendation for the use of hydroxychloroquine as a treatment for #COVID-19 removed from government websites.
In NL, @misterblok.bsky.social & I had to take legal steps (in 2021) to get the recommendation for the use of hydroxychloroquine as a treatment for #COVID-19 removed from government websites.
Reposted by Vicky van der Togt
Here's our pitch in the Lancet (with @zalaly.bsky.social) on shifting the paradigm on infection-induced/associated NCDs.
www.thelancet.com/journals/lan...
"Governments must face the reality that some infections which are largely regarded as only acute cause a substantial burden of chronic illnesses"
www.thelancet.com/journals/lan...
"Governments must face the reality that some infections which are largely regarded as only acute cause a substantial burden of chronic illnesses"
Learning from long COVID: conceptualising action to tackle infection-associated non-communicable diseases
SARS-CoV-2—initially thought of as an acute respiratory virus—can lead to post-COVID-19
condition (also known as long COVID), a chronic multisystemic illness that develops
in some people who have been...
www.thelancet.com
November 7, 2024 at 2:18 PM
Here's our pitch in the Lancet (with @zalaly.bsky.social) on shifting the paradigm on infection-induced/associated NCDs.
www.thelancet.com/journals/lan...
"Governments must face the reality that some infections which are largely regarded as only acute cause a substantial burden of chronic illnesses"
www.thelancet.com/journals/lan...
"Governments must face the reality that some infections which are largely regarded as only acute cause a substantial burden of chronic illnesses"