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a2gemma.bsky.social
Ella B. (we/she/her)
@a2gemma.bsky.social
91 followers 75 following 580 posts
My body hurts and I’m mad at the government.

#spoonie #chronicpain #chronicillness
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a2gemma.bsky.social
Happy holidays!

#spoonie #chronicpain #chronicillness #spooniehumor
December 7, 2025 at 6:28 PM
a2gemma.bsky.social
#spoonie #chronicpain #chronicillness #spooniehumor #anxiety #depression #seasonalaffectivedisorder
A meme featuring Commander Data in a yellow and black Starfleet uniform from Star Trek: The Next Generation, standing on a spaceship bridge. The top text reads: “When your doctor asks you if you’re still suffering from anxiety and depression.” The bottom text, attributed to the character, says: “My condition does not alter with the passage of time, Commander.”
December 7, 2025 at 3:15 PM
a2gemma.bsky.social
I don’t know if I could be that cruel to another human being.

I’d prefer that they be afflicted and have to appeal to their peers for help/answers so they could really understand how dehumanizing it is to be chronically ill or in endless pain.

#spoonie #chronicpain #chronicillness
вий Chronic Illness Humor CUP @chronicillness.bsky.social The Purge but instead of killing people for 24 hours we get to talk to doctors the way they talk to us MyBodylsTryingToKillMe.com
December 6, 2025 at 11:52 PM
a2gemma.bsky.social
We laugh so we don’t cry!

#spoonie #chronicpain #chronicillness #spooniehumor
Could you imagine if MyChart did an end-of-year wrapped list like: -cried 65 times in appointments -picked up 11 new diagnoses -confused doctor 123 times -made 345 jokes about her illness -caused 3 doctors to quit -refused to try yoga 15 times MyBodylsTryingToKillMe.com
December 6, 2025 at 11:21 PM
a2gemma.bsky.social
The new leg brace they want me to wear due to my achilles tendon avulsion.

I don’t think it’s gonna happen. The sensation of wearing it makes me want to claw my way out of my body.

The ortho said he intended something simpler. 🤷🏻‍♀️

#spoonie #chronicpain #chronicillness
Pink orthopedic leg brace with four Velcro straps, held by a hand wearing a gray wrist support.
December 6, 2025 at 2:53 AM
a2gemma.bsky.social
Six doctor’s appointments this week. Six. SIX.

I feel like I ran a god damned marathon. 😣

Spoonie life, amirite?

#spoonie #chronicpain #chronicillness
December 6, 2025 at 1:24 AM
a2gemma.bsky.social
I’ve heard this before, that the “normal” amount of pain is ZERO. My brain just can’t grok that.

I can’t recall a single day of my life without pain. 🙁

I hope in my next life I get to be on the side of the zeroes.

#spoonie #chronicpain #chronicillness
cuntess-carmilla Follow This deserves its own post: The normal level of daily pain for an able- bodied person is ZERO, without needing to take pain medication, not even off-the- counter meds. Not a little, definitely not enough to be "distracting but tolerable" with or without Tylenol. ZERO. (I'm shocked too every time I remember that the norm is to live pain free unless something happened to you, I know.) If your baseline of unmedicated daily pain is above zero, you're dealing with chronic pain and you need to come to terms with that reality. cuntess-carmilla Follow Babes, chronic pain is defined as pain that lasts over 3 months. That's it. Including pain that goes away but then inevitably returns. It doesn't have to be 100% persistent. Stop scrutinizing and minimizing your own pain so much. It's not gonna help you OR the "actually" disabled/ill people you seem to think you'll offend by acknowledging your own suffering.
December 4, 2025 at 4:54 PM
a2gemma.bsky.social
And this is why I will spend Thanksgiving alone, giving thanks that I am alone rather than tolerating the toxic slop I grew up in.
IT'S OKAY TO CUT OFF TOXIC FAMILY FOR YOUR QUIN WELL BEING
November 26, 2025 at 5:21 PM
a2gemma.bsky.social
Thanks, Body.
existennialmemes = Feb 18, 2024 Me: Hey, can we get some stuff done today? My Body: Can't. We need that energy for Pain. Me: Ok, but what if, Instead, we did Tasks? My Body: Let's compromise and do More Pain. Me: That is not a — My Body: More Pain it is! Good talk.
November 26, 2025 at 5:15 PM
a2gemma.bsky.social
So demure. So modest.
Close-up of an orange tabby cat with white fur on the chest and around the mouth. The cat has green eyes and is looking slightly downward and to the side. Its ears are upright, and fine whiskers are visible.
November 26, 2025 at 12:16 PM
a2gemma.bsky.social
So the Pain Clinic rejected my doctor’s referral because I’m seeing someone in PM&R. Can someone explain to me why those two things are mutually exclusive?

I just feel so…defeated…and tired.

#spoonie #chronicpain #chronicillness
November 23, 2025 at 6:50 PM
a2gemma.bsky.social
#spoonie #chronicpain #chronicillness #spooniehumor
"I can't treat you, or give you any pain medication because that's not my field. But, I'm going to refer you to five other Doctors Who won't help you either"
November 23, 2025 at 12:52 AM
a2gemma.bsky.social
Started PT (again) for my hip and t’s legit destroying me. 😭

I’m not suicidal, I just don’t know how much longer I can do this.

I have an appointment with a surgeon in a different health system on December 5th. I’m **really** hoping he’ll do the surgery. 🤞🏻

#spoonie #chronicpain #chronicillness
THE REALITY OF CHRONIC ILLNESS IS NOT KNOWING IF I WILL WAKE UP IN DEBILITATING PAIN OR IF I WILL BE FUNCTIONAL THAT DAY. EVERY DAY FOR THE REST OF MY LIFE eitsachronicthing-
November 22, 2025 at 10:41 PM
a2gemma.bsky.social
I feel this in my bones.

#spoonie #chronicpain #chronicillness

https://www.threads.com/@iaskedtomytherapist/post/DRJV6Z7CKJS?xmt=AQF0XBfY96JCZVqc7ssCGcHNn599pb2YVunoTCNjpz6Ru6juf9l4iy1EXY9xwqYEe5WvSE82&slof=1
I Asked To My Therapist (@iaskedtomytherapist) on Threads
I told my therapist in a voice I barely recognized: “I’m not suicidal… I just keep wondering how much longer I can do this.” She didn’t freeze. She didn’t rush to reassure me. She just leaned in sli...
www.threads.com
November 17, 2025 at 10:51 PM
a2gemma.bsky.social
Radiologist thinks I might have an infection in my hip joint.

Super. The perfect thing to kickoff my week. 🙄

#spoonie #chronicpain #chronicillness
November 17, 2025 at 5:14 PM
a2gemma.bsky.social
Well, the ER trip wasn’t a total waste. I learned that Robaxin — with a Norco chaser — actually gives me some pain relief.

Whew.

I also got a greater trochanteric bursa injection this week. Fingers crossed, it will help, too.

#spoonie #chronicpain
November 15, 2025 at 9:40 PM
a2gemma.bsky.social
Currently ISO an orthopedic (hip) surgeon is SE Michigan who doesn’t use BMI as their sole disqualifier for surgery.

Any leads would be appreciated. Mine just told me to lose 100-150 lbs, which is patently ridiculous and highly unlikely to ever happen.

Thanks.

#spoonie #chronicpain
November 15, 2025 at 3:29 PM
a2gemma.bsky.social
Tee hee!

🏳️‍⚧️🏳️‍⚧️🏳️‍⚧️
Social media post reads: “Tomfoolery transitioned and now only does shenanigans.” Hashtag: #har har.
November 13, 2025 at 8:24 PM
a2gemma.bsky.social
Went to the ER and, as predicted, sat for hours, cried during the x-rays, and ultimately got no relief. No pain meds to help with the increased pain, just muscle relaxers to hopefully stop the spasms.

My body sucks.

Oh. And the pharmacy doesn’t open for 4 more hours. 🤬

#spoonie #chronicpain
November 8, 2025 at 11:02 AM
a2gemma.bsky.social
Exciting development with my hip. Now I’m getting muscle spasms that are worse than the “normal” pain.

I’ve been debating going to the ER, but know they’ll just leave me sitting for hours because no one takes pain seriously.

I hate my life.

#spoonie #chronicpain #chronicillness
November 8, 2025 at 1:06 AM
a2gemma.bsky.social
Word.

#spoonie #chronicpain #chronicillness
tavalen Follow disability advocacy went wrong when it became about inspiration porn and "differently abled" and savants. its incredible that that guy with no legs did a triathlon but your sister with no legs will not and she doesnt need prosthetics or five hour training days to deserve respect and compassion and accommodations. its incredible that that autistic guy can look at a city from a helicopter for an hour and then draw the entire detailed skyline from memory when he lands but your autistic friend cannot and they dont need to have a special Autism Power to deserve respect and compassion and accommodations. activism framed around "we are just as CAPABLE" means that when people genuinely are less capable they are left behind. activism framed around "we are just as WORTHY" is fundamental to radical compassion.
November 6, 2025 at 5:21 PM
a2gemma.bsky.social
Yet ANOTHER bad #Dexcom G6 sensor giving me garbage readings. WTF, Dexcom? If I gave myself as much insulin as the readings you’re giving would demand, I’d be in a god damned COMA!

#spoonie #chronicpain #chronicillness
November 6, 2025 at 1:40 PM
a2gemma.bsky.social
The opioid crisis is definitely real, but that doesn’t mean opioids and other pain control medications don’t have a legitimate role to play in patient care.

Without my pain meds my quality of life is ZERO. Even with pain meds I have days where it feels like I can’t go on.

#spoonie #chronicpain
Carlsberg. @Carlynotcarley Follow This is going to be a controversial one but I want to start a discussion about just how many chronically ill and disabled people are refused pain relief on the grounds of 'addiction. I've had receptionist say to me "oh you're just a drug addict". 15:25 • 15 Oct 25 • 6,996 Views
November 1, 2025 at 3:30 PM
a2gemma.bsky.social
In 2024, I went from making $170K/year to needing SNAP and Medicare in a mind-bogglingly short amount of time.

Trust me, it can happen to you, too.

#StartWithFood #SNAP #SNAPbenefits #SNAPSOS #FeedTheHungry #FoodIsABasicHumanRight #healthcareisahumanright #universalhealthcareforall
Cartoon of the a character resembling McDonald’s Hamburgler wearing a black mask, black hat, and black-and-white striped shirt, holding a tray of burgers. The character is making a shushing gesture with one finger over the lips. Text on the image says: 'REMEMBER, IF YOU SEE SOMEONE STEALING FOOD... NO YOU DIDN'T.'
October 30, 2025 at 11:21 PM
a2gemma.bsky.social
I’ve noticed a lot more strands of hair on my clothes and whatnot. I attributed it to it falling out due to stress. I was wrong. I just caught myself pulling on a handful of my hair as a pain distraction. Just what I need, one more problem. 🙄

#spoonie #chronicpain #chronicillness
October 26, 2025 at 1:05 PM