@dd9675.bsky.social
🦋❤️ 🦋
#chronicillnes
#lupus

Lupus is lupusing today! I dealt with lots of pain at work but with prednisone, tylenol, and smile. Resting now.

Community question … how do you deal with those flares with sharp joint pain?

Thanks and be well!
September 4, 2025 at 10:20 PM
#ChronicIllness
#Lupus

Besides the physical pain, there’s very real emotional pain, anxiety, and depression that comes with not knowing the next time you may have a flare or dealing with the aftermath of a previous one.

Accepting a new normal is hard. Don’t be ashamed to get help.
March 30, 2025 at 1:10 PM
Reposted
There is no alternative but giving up, and what kind of option is that? #ChronicIllness #MGWarrior
February 19, 2025 at 12:10 AM
#ChronicIllness
#Lupus

The cold and joint pain are not a fun combination.

Anyway, if you’re anywhere with freezing temperatures, I pray that you have a way to stay warm.
January 22, 2025 at 3:02 AM
#ChronicIllness
#Lupus

Lots of feelings today about a lot of different things.

Navigating and balancing spiraling thoughts about life and stuff with brain fog is not what I anticipated doing today.

Anyway, when I get like this journaling or reading helps.

Lord, give me strength 💜🦋
January 20, 2025 at 2:27 PM
#ChronicIllness
#Lupus

I don’t know who needs to hear this, but you are not lazy or unmotivated!

You are functioning at the level that your body can at the present moment.

If you have a chronic illness and/or pain, getting rest is not bad.

Please take care of yourself today! 🦋
January 16, 2025 at 10:19 AM
#ChronicIllness
#Lupus

Does anyone have a routine for remembering to take medication while working or on the commute?
January 14, 2025 at 11:49 PM
#ChronicIllnesz
#Lupus

Insomnia and lupus are like peanut butter and jelly but not in a good way.

Sweet dreams Warriors!

I hope we can get some real quality sleep.
January 8, 2025 at 2:56 AM
#ChronicIllness
#Lupus

I decided to go back to the Vegan lifestyle. This will be my 3rd time.

Any recommendations, suggestions, or advice from others that are on plant based diet for health reasons?
January 4, 2025 at 3:36 AM
#ChrinicIllness
#Lupus

One of the best things I did since getting diagnosed with Lupus was to get counseling for my own mental health.

I was dealing with guilt, anxiety, depression, and a sense of failure for things that are out of my control. I still struggle but I’m glad I reached out for help.
December 30, 2024 at 3:37 PM
#ChroniIllness
#Lupus

Merry Christmas!

I pray that you all have less pain and suffering today.

I’m spending the day remembering God’s blessings.

I hope that everyone gets rest and doesn’t overdo it today. Remember, it’s okay to say no sometimes.
December 25, 2024 at 12:30 PM
#ChronicIllness
#Lupus

Sometimes, I get frustrated with myself because I can’t do some of the things or be like the way I was before I was sick. Then I remember that I’m a survivor and I’m strong and I’m enough. Chronic pain sucks but I don’t.
December 23, 2024 at 4:17 PM
#ChronicIllness
#Lupus
I woke up, was able to function at work, and was pain free for the majority of the day. I’m winning 🏆.
December 19, 2024 at 10:34 PM
#ChronicIllness
#Lupus

I’m exhausted. It’s a deep tired.

Not sure if it’s all the lupus meds or stress or both.

Any other lupus warriors or other that deal with chronic illnesses have chronic fatigue? What helps?
December 17, 2024 at 2:57 AM
First post.

I’m pretty private and an introvert and usually just read and reply casually, but I like the vibe here.

Have a great day everyone!
December 3, 2024 at 11:58 AM