Lightnews — Scholar-powered news

Steven Kapp @drstevenkapp.bsky.social · 4d

Nominations for public members of the Interagency Autism Coordinating Committee are through Monday. This is an important opportunity for U.S. citizens to influence national autism policy; we need good research and advocacy that advance needs of autistic people www.federalregister.gov/documents/20...

National Institute of Mental Health, Interagency Autism Coordinating Committee Call for Committee Membership Nominations

The Office of the Secretary of the Department of Health and Human Services (HHS) is seeking nominations of individuals to serve as non-federal public members on the Interagency Autism Coordinating Com...

www.federalregister.gov

1

Reposted by Steven Kapp

Thinking Person's Guide to Autism @thinkingautism.com · 13d

“Autistic ppl are a natural part of the human experience & society needs to affirm the value of ppl—even with significant disabilities. I don’t think eugenics is ethical or warranted in science or research.” @drstevenkapp.bsky.social to @juliametraux.bsky.social:
www.motherjones.com/politics/202...

Disgust, horror, and "elimination": Trump and RFK Jr.'s eugenicist autism conference

The most striking omission from Monday's White House pageant: autistic people.

www.motherjones.com

1 36 110

Steven Kapp @drstevenkapp.bsky.social · 15d

The U.S. powers-that-be still want us to die or vanish into hyper-compliance that makes us more vulnerable to victimization: blogs.exeter.ac.uk/exploringdia...

blogs.exeter.ac.uk

2 6

Steven Kapp @drstevenkapp.bsky.social · 15d

...and being so traditional relationship-normed-obsessed to think "the human race cannot survive without being married" link.springer.com/article/10.1... as having "beaten autism"... 3/

Social Function and Communication in Optimal Outcome Children and Adolescents with an Autism History on Structured Test Measures - Journal of Autism and Developmental Disorders

Youth who lose their ASD diagnosis may have subtle social and communication difficulties. We examined social and communication functioning in 44 high-functioning autism (HFA), 34 optimal outcome (OO) and 34 typically developing (TD) youth. Results indicated that OO participants had no autism communication symptoms, no pragmatic language deficits, and were judged as likable as TD peers. Some group differences were found: OO youth had less insight into social relationships and poorer friendship descriptions than TD youth. OO participants had attention, self-control, and immaturity difficulties that may impact social abilities. However, OO participants were most engaged, friendliest, warmest, and most approachable. Overall, OO participants had no social and communicative impairments, although some exhibited mild social difficulties that often accompany attentional problems.

link.springer.com

1 2

Steven Kapp @drstevenkapp.bsky.social · 15d

...normalization such as the U.S.'s 2010s celebration of he "friendliest" "and most approachable" children shoving their hands in their pockets rather than hand-flapping, being constantly monitored and lectured by parents about their particular social norms... 2/
www.nytimes.com/2014/08/03/m...

The Kids Who Beat Autism (Published 2014)

www.nytimes.com

1 3

Steven Kapp @drstevenkapp.bsky.social · 15d

Interviewed by @juliametraux.bsky.social for @motherjones.com.
Ableist misinformation will lead to harm of pregnant people and more eugenics, abuse, and services destruction against autistic people. We are descending to new depths, but lately I also think about old-fashioned normalization... 1/

1 8 23

Steven Kapp @drstevenkapp.bsky.social · 16d

This just in: sex causes autism.
www.frontiersin.org/journals/int...

Frontiers | Sensory–movement underpinnings of lifelong neurodivergence: getting a grip on autism

While the autism diagnosis emphasizes “deficits” in social communication, the article advances that sensory–movement differences underpin autism through a re...

www.frontiersin.org

2 11

Steven Kapp @drstevenkapp.bsky.social · 19d

Papers related to my talk include a critique of "profound autism" and functioning labels:
www.mdpi.com/2227-7102/13...

The strengths of speech divergence: onlinelibrary.wiley.com/doi/full/10....

and Sensory–movement underpinnings of lifelong neurodivergence:
www.frontiersin.org/journals/int... 2/

This link will take you to a page that’s not on LinkedIn

lnkd.in

2 6

Steven Kapp @drstevenkapp.bsky.social · 19d

Tomorrow at 11am-1 pm ET/4-6 pm BST I'll present to Autism National Committee "Challenging the ‘Profound Autism’ Label: How Severity Scores and IQ Tests Obscure the Strengths of Nonspeaking Autistics"

Registration is free but required in advance, at autcom.org or via us02web.zoom.us/webinar/regi...

Home

The homepage for AutCom

autcom.org

1 3 12

Reposted by Steven Kapp

MSc Psychology and Learning Disability @uoppald.bsky.social · 20d

Hi! We are a part-time (can work alongside) online ("live" *options*; costs the same in/outside the UK, can study from everywhere) MSc course on learning/intellectual disability, autism, and neurodiversity. Students have own tutor. We are recruiting for this term:
www.port.ac.uk/study/course...

4 8

Steven Kapp @drstevenkapp.bsky.social · 20d

Proud to teach on the MSc in Psychology and Learning Disability. @uoppald.bsky.social! It’s part-time & online, so students may meet in person for 1st time at graduation as below.

It’s not too late to apply for this term, although next week is induction week & teaching week after, so act quickly!

A subset of MSc Psychology and Learning Disability graduates celebrating their degree on the Portsmouth Guildhall steps, with current and past course leaders Jo Nye and Axelle Philippon and Neurodiversity Studies coordinator Steven Kapp joining them in the festivities.

1 10

Steven Kapp @drstevenkapp.bsky.social · 20d

The refs in order:
Kapp, 2022: researchportal.port.ac.uk/en/publicati...
Kapp & Ne'eman, 2020: link.springer.com/chapter/10.1...
Kapp, 2020: link.springer.com/chapter/10.1...
Kapp et al., 2013: researchportal.port.ac.uk/en/publicati...
Kapp, 2013 (pp 104-113):
autisticadvocacy.org/wp-content/u...

Models of helping and coping with autism

researchportal.port.ac.uk

5

Steven Kapp @drstevenkapp.bsky.social · 20d

Neurodiversity movement is in creative tension w/ medical model & psychiatry (Kapp & Ne'eman, 2020), not opposite them (Kapp, 2020; Kapp et al., 2013; Kapp, 2013).
The Coalition of Autism Scientists (of which I am part) further illustrates common ground amid these tensions, against antivax+ nonsense

1 1 4

Steven Kapp @drstevenkapp.bsky.social · 20d

Someone who practiced medicine w/o a license, chemically castrating autistics, has access to vaccination data despite a lack of scientific background & skill. The antivax+ movement belongs to moral model & falsely blames parents for their decisions (Kapp, 2022).
www.medpagetoday.com/publichealth...

Controversial RFK Jr. Advisor Has Access to Private Info in CDC Vax Database

David Geier can remotely access identifiable data from the old Vaccine Safety Datalink

www.medpagetoday.com

1 1

Steven Kapp @drstevenkapp.bsky.social · 20d

Ppl hardly self-identify lightly. They experience hardship & tend to be more distressed & have more unmet support needs than many formally diagnosed autistic ppl:
osf.io/preprints/ps...
Being disabled is a legitimate part of human experience; many autistics are struggling (not only b/c of society).

OSF

osf.io

1 2

Reposted by Steven Kapp

Institute of Psychiatry, Psychology & Neuroscience @kingsioppn.bsky.social · Aug 29

NEW #AUTISM RESEARCH (@gavrobstew.bsky.social + @proffrancescahappe.bsky.social): Nearly 90% of middle-aged and older #autistic adults are undiagnosed in the UK; autistic adults are facing higher rates of mental and physical health conditions as they age

www.kcl.ac.uk/news/up-to-9...

Around 90% of middle-aged and older autistic adults are undiagnosed in the UK, new review finds

89 to 97 per cent of autistic adults aged 40+ years are undiagnosed in the UK, according to the largest review of its kind. The review indicated that middle-aged and older autistic adults are facing h...

www.kcl.ac.uk

3 17 32

Reposted by Steven Kapp

Eric Michael Garcia @ericmgarcia.bsky.social · Aug 25

If you are an #Autism researcher who has had their federal research grant from NIH/HHS on autism canceled, I'd like to speak with you. My signal is Emgarcia.85 #AutismSky

2 58 100

Steven Kapp @drstevenkapp.bsky.social · Aug 19

Jiedi Lei is hiring 3 postodcs (2 yrs w/ opp. to renew) to join a new @oxforduni.bsky.social project to develop a strengths-based assessment toolkit for neurodivergent children & youth. Apps due Sept 3 at 12 pm.
my.corehr.com/pls/uoxrecru... Early Years x 2
my.corehr.com/pls/uoxrecru... Adolescence

'

my.corehr.com

3 4

Reposted by Steven Kapp

Sue Fletcher-Watson @suereviews.bsky.social · Aug 17

the latest special issue in @journalautism.bsky.social is out!

The Social Model in Autism Research

guest edited by @jopavlopoulou.bsky.social @dramypearson.bsky.social Hanna Bertilsdotter-Rosqvist plus @kbottemabeutel.bsky.social from the permanent editor team

journals.sagepub.com/toc/auta/29/...

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

2 18 36

Reposted by Steven Kapp

Autistic Parents UK @autisticparentsuk.bsky.social · Aug 5

💻Live Q&A - Autism, Gender and Queerness

🗓️Tuesday 12th August at 7.30pm.

With @tanyaadkin.bsky.social and @kmunday.bsky.social

#ActuallyAutistic
1/6

Autistic Parents UK. Live Q&A. Autism, Gender and Queerness. Tanya Adkin & Katie Munday. Tuesday 12th August at 7.30pm.

1 1 1

Reposted by Steven Kapp

Thinking Person's Guide to Autism @thinkingautism.com · Aug 3

"The autism diagnosis is based on accts by largely non-autistic ppl, yet only autistic ppl possess the expertise of direct lived experience, & many autistic ppl demonstrate enhanced scientifically based understanding of autism as well." @drstevenkapp.bsky.social:

www.frontiersin.org/journals/int...