Ed
edohotog.bsky.social
Ed
@edohotog.bsky.social
Travelling around GB
Sadly speaking out will ruin his career watch the gutter press in the coming days
January 30, 2026 at 6:35 PM
Let’s hope so. A diagnosis is so needed so many people suffer knowing something is wrong and different health specialists can’t agree what the person is suffering from.
#LewyBodyDementia
January 30, 2026 at 6:31 PM
Reposted by Ed
If you recognise these symptoms in yourself or someone you know, contact your GP. Admiral nurses are specialist dementia nurses who are on hand: 0800 888 6678 or email [email protected]

#worldlewybodyday #lbaw2026 #lewybodyawarenessweek #lewybodydementia #lewybodydementia
January 28, 2026 at 10:00 AM
Reposted by Ed
Donations from our tremendous supporters, whether from fundraising or bequests allow us to support scientists in their vital work. Without either of these groups, we would not be able to advance the lot of people with Lewy body dementia. Thank you.

#WorldLewyBodyDay #LBAW2026 #Lewybodydementia
January 28, 2026 at 12:15 PM
Reposted by Ed
When we posted these graphics explaining the differences between Lewy body dementia and Alzheimer's previously, they provoked a huge response. It may have been one of our most popular posts.

#worldlewybodyday #LBAW2026 #lewybodydementia #lewybodyawarenessweek #dementia #Connectthedots
January 28, 2026 at 1:01 PM
Reposted by Ed
Thank you to the MPs Debbie Abrahams, Liz Twist, Chi Onwurah, and Baroness Hayter who dropped into our reception to hear about Lewy body dementia from our ambassador Sylvia White, LBS CEO Jacqui Cannon, consultant old age psychiatrist Dr Paul Donaghy and consultant neurologist Professor Rimona Weil.
January 28, 2026 at 5:23 PM
Reposted by Ed
Every day on our social media pages, we see carers lifting each other up.

At the Lewy Body Society, we took over 1,000 calls last year from families of people with Lewy body dementia, listening and signposting carers to help and support.

#WorldLewyBodyDay #LBAW2026 #LewyBodyAwaresnessWeek #Carers
January 28, 2026 at 11:02 AM