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evahaa.bsky.social
@evahaa.bsky.social
18 followers 35 following 1 posts
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ninasteinkopf.bsky.social
Stor takk til alle som har lest. Her kommer siste del; Håp for fremtiden?

melivet.com/2025/05/18/m...
ME-pasienters brukermedvirkning – del 15 – Håp for fremtiden?
Ledelsen i Kompetansetjenesten for CFS/ME og deres meningsfeller har omtalt pasientgruppen i negative ordelag i mange år.[1]-[2] 16. mai 2025 hadde den danske avisen Dagens Medicin et oppslag om at…
melivet.com
May 18, 2025 at 10:55 AM
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putrinolab.bsky.social
Again for those in the back:
👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning

Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential”

Thanks to @RobWust for this incredible work.

www.medrxiv.org/content/10.1...
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
Patients with long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suffer from a reduced exercise capacity, skeletal muscle abnormalities and post-exertional malaise (PEM), where...
www.medrxiv.org
May 7, 2025 at 7:30 AM
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putrinolab.bsky.social
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has

www.bmj.com/content/389/...

1/
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...
www.bmj.com
May 15, 2025 at 8:34 AM
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tophepahle.bsky.social
For at oljefondet skal kunne hjelpe fremtidige generasjoner nordmenn er det først greit å sørge for at det faktisk kommer til å *eksistere* noen fremtidige generasjoner nordmenn. Det er ikke ofte den pragmatiske løsningen også er den moralsk riktige. Åpne lommeboka og gå foran for Ukraina nå, Norge.
March 4, 2025 at 6:08 AM
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dbdant.bsky.social
March 2, 2025 at 2:30 PM
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batemanhornecenter.bsky.social
Cognitive impairment in ME/CFS can include: ➡️ Slower reaction times ➡️ Memory & focus issues ➡️ Difficulty processing info
Cognitive impairment can worsen with PEM & orthostatic stress.
Learn more 🎥: loom.ly/ouYbrjA
#MECFS #InvisibleIllness #MECFS101 @openmedf.bsky.social
Light peach background with black writing at the top that says, "What is Cognitive Impairment?" Lower and to the left is copy that says, "People with ME/CFS experience slowed information processing, trouble finding words, and low cognitive stamina. Often, this worsens when in PEM." Next to this copy is a cartoon image of a woman with her hands to the sides of her head. Her expression shows that she may be overwhelmed or frustrated because she doesn't understand.
February 24, 2025 at 6:18 PM
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auschwitzmemorial.bsky.social
Auschwitz was at the end of a long process. It did not start from gas chambers.

This hatred was gradually developed by humans. From ideas, words, stereotypes & prejudice through legal exclusion, dehumanization & escalating violence... to systematic and industrial murder.

Auschwitz took time.
A bird's-eye view of a former Auschwitz II-Birkenau camp showing a wide dirt pathway flanked by parallel rows of barbed-wire fences. Groups of visitors walk along the path, surrounded by the remnants of brick structures and barracks, now reduced to foundations. Green grass contrasts with the somber history of the site, as the path leads toward a guard tower in the distance.
January 27, 2025 at 10:00 AM
Reposted
bmhughes.bsky.social
Italian researchers have identified a distinct molecular signature in children’s blood, suggesting that #LongCovid has clear biological markers

Not only raises possibility of yes/no diagnostic tests, but also kills the bogus 'debate' about the physical basis of LC

Promising for #pwME too???
AI-Powered Blood Test Shows Promise for Diagnosing Long Covid in Children
A collaborative study identifies unique blood plasma biomarkers in pediatric Long Covid patients using AI, achieving a 93% diagnostic accuracy. The test could transform care by enabling definitive dia...
www.technologynetworks.com
January 24, 2025 at 7:38 PM
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hildabast.bsky.social
I never thought a day would come when I would write a post this critical about the Cochrane Collaboration. But today was that day:

absolutelymaybe.plos.org/2025/01/24/w...

#mecfs
When Journal, Scientific Society, and Community Values Clash - Absolutely Maybe
A process I’ve been involved with at a journal recently exploded. It was meant to resolve a controversy about a publication, not…
absolutelymaybe.plos.org
January 24, 2025 at 5:17 AM
Reposted
batemanhornecenter.bsky.social
Patients with PEM benefit more from pacing & energy conservation than exercise-focused treatments. This video covers tools like symptom-based pacing, task analysis, & HRV tracking to manage symptoms.
🎥 Watch here: bit.ly/4aq7Uvm
#PEM #Pacing #ChronicIllness
Pacing for PEM/PESE
Patients who have post-exertional malaise (PEM/PESE) generally benefit more from pacing and energy conservation than exercise-focused treatments. Pacing for PEM/PESE involves managing exertion to stay under the threshold that causes increased symptoms or post-exertional malaise. While pacing is not a cure for PEM/PESE, it is an effective management strategy. Pacing and energy conservation approaches need to be individualized for each patient. This video covers how therapy providers can use biofeedback pacing, task analysis, activity logs, and heart rate variability tracking to assist patients with pacing to reduce their symptoms. Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen. This video was made possible by the OMF-funded Medical Education Resource Center (MERC) at BHC, our generous donors, and viewers like you.
bit.ly
January 23, 2025 at 4:09 PM
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jefftiedrich.bsky.social
from today's post —
link is here: bit.ly/40HSX4w
January 22, 2025 at 6:37 PM
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goatsfoot.bsky.social
"Excuse me?! Did you just call me a Nazi?"
January 21, 2025 at 3:13 AM
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csapidus.bsky.social
January 22, 2025 at 11:14 AM
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beate.bsky.social
Under 2. vk var enkelte prester, biskoper og kirker viktige i motstandskampen. De var også svært provoserende for nazistene, som lenge forsøkte å fremstå med "Gott mit ums". Ikke så ulikt christofascistgjengen i USA nå, hvor Trump blir sett på som frelser.
gregsargent.bsky.social Greg Sargent @gregsargent.bsky.social · Jan 22
Trump exploded in fury at Bishop Marian Budde on Truth Social a little after midnight, calling her a "hater."

As we argue on today's pod, there is nothing MAGA despises more than appeals to common decency and humanity.

newrepublic.com/article/1905...
January 22, 2025 at 1:58 PM
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ninasteinkopf.bsky.social
Ifølge forskere ved det amerikanske National Institutes of Health (NIH) er forekomsten av ME/CFS nå 15 ganger høyere enn før pandemien.
www.nettavisen.no/nyheter/dram...
Dramatiske korona-funn: – Store mørketall
Ifølge den nye studien er forekomsten av ME og utmattelsessyndrom 15 ganger høyere enn før pandemien.
www.nettavisen.no
January 21, 2025 at 7:30 AM
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mesnag.bsky.social
Fantastisk!
January 1, 2025 at 11:21 PM