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fndportal.bsky.social
FND Portal
@fndportal.bsky.social
1.6K followers 1.1K following 1.3K posts
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
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Reposted by FND Portal
nicolechung.bsky.social
Nicole Chung @nicolechung.bsky.social · 13h
Young lives cut short on an unimaginable scale: the 18,457 children on Gaza’s list of war dead
Every name on a list compiled by health authorities in Gaza of the child victims of Israel’s offensive
www.theguardian.com
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 14h
A whole article that’s at least partially about FND, with FND in the title, and yet without a single quote from a person with FND or a specialist who studies it.

Would the Sick Times find this appropriate for any other condition?

Why are we not worthy of representation?
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 14h
Sorry that that’s the case! Hope you’re able to take some time to support your recovery at the right speed for you. ❤️
Reposted by FND Portal
fndireland.bsky.social
FND Ireland @fndireland.bsky.social · 9d
📢 Delighted to have Emma Jane Bane speak at our first #FNDIreland Conference on 'Occupational Therapy Approaches to Management in Functional Neurological Disorder'. Scan the QR code to book.💚🧡
@sjhdublin.bsky.social @aotinews.bsky.social @fndportal.bsky.social @efna.net #FND #FNDConference
Image description: A white and green poster for the FND Ireland Conference speakers. The text reads: "Meet Our Speakers: Emma Jane Bane, Senior Occupational Therapist, St James’s Hospital. Emma Jane developed a strong interest in Functional Neurological Disorder (FND) in her previous role at the National Hospital for Neurology and Neurosurgery at Queen’s Square, London. She is currently completing her Masters degree in Neurology at the RCSI which includes research in FND. Emma Jane is a committee member at FND Ireland and a member of the FND AHP Network, supporting interdisciplinary collaboration in the management of FND. FND Ireland Conference 2025 Date: Saturday 18th October, Location: Maldron Hotel Tallaght, Dublin." There is a headshot photo of Emma Jane in the top left of the poster. She is a person with dark hair and is wearing a maroon scrub top with a navy lanyard. There is a QR code to book tickets to the conference in the bottom left of the poster.
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 14h
Thank you! I’m feeling better, so looks like it helped 😃
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 14h
I’m not loving this
npr.org
NPR @npr.org · 14h
A national survey of students, teachers and parents shines a light on how the AI revolution is playing out in schools – including when it comes to bullying and a community's trust in schools. n.pr/46OAc16
1 in 5 high schoolers has had a romantic AI relationship, or knows someone who has
A national survey of students, teachers and parents shines a light on how the AI revolution is playing out in schools – including when it comes to bullying and a community's trust in schools.
n.pr
Reposted by FND Portal
drjanetscott.bsky.social
Janet Scott @drjanetscott.bsky.social · 1d
Functional Neurological Disorder is a condition where the nervous system doesn’t function properly despite no structural damage. Key quotes:
“Because there is no damage to the nervous system, you have the potential to get better.”
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 2d
Same thing we do every night, Pinky
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 2d
I’m back! And starting to catch up.

Recovering nicely and spent a little time with the palm trees
A view of a swimming pool with swaying palm trees around the edges
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 11d
Hi friends. I’m sick with a viral thing (travel always gets me somehow, despite masking).

Hope to be back soon. Time to go kick this thing and sleep as much as possible.

See ya soon
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Reposted by FND Portal
sjshancoxli.liberalcurrents.com
Dr. Samantha Hancox-Li @sjshancoxli.liberalcurrents.com · 17d
for all people mock it wikipedia is genuinely one of the wonders of the modern world
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 17d
Thank you! 😅 perhaps inspiration for a new pub-based deliberative process for FNDS going forward
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 17d
Great to see this out, as well as all the deliberation that went into it! A hard-won consensus
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Reposted by FND Portal
fndireland.bsky.social
FND Ireland @fndireland.bsky.social · 17d
Positive proposal by ILAE to move away from “PNES” which is criticized as “psychogenic” & implies mind–body dualism. “Nonepileptic” only defines the diagnosis negatively. “FDS” improves consistency in clinical practice and research. Thanks @fndportal.bsky.social for highlighting this. 💚🧡
#FNDIreland
alancarson15.bsky.social
Alan Carson @alancarson15.bsky.social · 18d
onlinelibrary.wiley.com/doi/10.1111/...
Functional/dissociative seizures: Proposal for a new diagnostic label and definition by the ILAE task force
The acceptability and validity of the term
onlinelibrary.wiley.com
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 17d
Thanks for the review here - and I’ve been glad to be part of the conversation! Hope this is one of many steps in the right direction for folks with FDS ❤️
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 17d
Just found my notes from the day I got a call from the NIH’s Undiagnosed Disease Network, telling me I’d been accepted to the program and that they had a dx they’d like to test.

First time I’d ever heard of FND.

Written in my notebook for the intro neuroscience book (Bear et al) I was working thru
A notebook containing notes in the margin that say “Functional Neurological Disorder” after several incorrect spellings of the acronym
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 21d
Friends with functional seizures: please consider participating in this important study!

University of Sheffield researchers are working to develop a seizure severity measure for folks w FND seizures.

Details below - please share!

sheffieldpsychology.eu.qualtrics.com/jfe/form/SV_...
If you’ve been given a diagnosis of Functional / dissociative seizures (FDS) and have had a seizure in the last month, consider participating in this study. The flyer contains a scannable QR code to sign up.
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 21d
I’m back!
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 23d
Very well deserved. Looking forward to listening to this conversation! Dr Edwards has a lot of wisdom to offer.
Reposted by FND Portal
movedisorder.bsky.social
International Parkinson and Movement Disorder Society® @movedisorder.bsky.social · 23d
The 2025 Staney Fahn awardee, Prof. Mark Edwards, discusses his musings on interface disorders, such as FNDs, and what changes he believes need to take place in modern medicine to better treat these patients. https://loom.ly/izciuoE
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Reposted by FND Portal
velimalee.bsky.social
velimalee.bsky.social @velimalee.bsky.social · Sep 8
This is a study looking at the link between functional/ dissociative seizures and autism. The study looks at the experience of having both conditions

The link to the study is forms.gle/6MuVXva8CRdw...

If you are interested but have questions, please email [email protected]

#fnd
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · 29d
Thanks for the tag! Happy to share. 🙌
Reposted by FND Portal
fndireland.bsky.social
FND Ireland @fndireland.bsky.social · Sep 8
📢 Meet our Speakers at our #FNDIreland Conference!

Roisin Vance, Clinical Specialist Physiotherapist in Neurology will present 'Physiotherapy Approaches to Management in FND'. Join us on October 18th for this in person event on #FND. Scan to book.💚🧡
@fndportal.bsky.social @irishphysio.bsky.social
Image description: A white and green poster for the FND Ireland Conference speakers. The text reads: "Meet Our Speakers: Roisin Vance, Clinical Specialist Physiotherapist in Neurology in Beaumont Hospital. Roisin specialises in movement disorders with a special interest in Functional Neurological Disorder (FND). She is an honorary lecturer in RSCI school of physiotherapy and lectures at both undergraduate and postgraduate level in FND, Spasticity and Parkinson’s Disease. Roisin is an active committee member at FND Ireland and has research projects underway aimed at improving service provision to those with FND and improving FND education. FND Ireland Conference 2025 Date: Saturday 18th October, Location: Maldron Hotel Tallaght, Dublin." There is a headshot photo of Roisin in the top left of the poster. She is a person with brown hair and is wearing a white top with a blue lanyard. There is a QR code to book tickets to the conference in the bottom left of the poster.
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · Sep 7
Alrighty. Time to take a little time off to recharge. See ya soon friends 👋
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fndportal.bsky.social
FND Portal @fndportal.bsky.social · Sep 6
And will be interested to hear what you think!
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