Hippymum
@hippymum.bsky.social
Happily married. Fighting to get through one day at a time. 42 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
I just nominated MEACTION UK movementforgood.com/index.php?cn...
I just nominated a charity to win £1,000. You can nominate your favourite too.
I just nominated a charity to win £1,000..
movementforgood.com
December 9, 2025 at 10:45 PM
I just nominated MEACTION UK movementforgood.com/index.php?cn...
Reposted by Hippymum
The horrendous situation that Sarah Boothby found herself in as her daughter lay dying is still being faced by parents, usually mothers, around the UK.
ow.ly/nlhv50WCEp4
#MyalgicEncephalomyelitis #VerySevereME
ow.ly/nlhv50WCEp4
#MyalgicEncephalomyelitis #VerySevereME
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
ow.ly
August 12, 2025 at 10:16 AM
The horrendous situation that Sarah Boothby found herself in as her daughter lay dying is still being faced by parents, usually mothers, around the UK.
ow.ly/nlhv50WCEp4
#MyalgicEncephalomyelitis #VerySevereME
ow.ly/nlhv50WCEp4
#MyalgicEncephalomyelitis #VerySevereME
Reposted by Hippymum
We are delighted that MEAction UK has officially become an independent, registered UK charity. This marks a new chapter in our journey to secure better recognition, research and support for people with ME in the UK.
#CharityAnnouncement #MyalgicEncephalomyelitis
#CharityAnnouncement #MyalgicEncephalomyelitis
December 9, 2025 at 12:04 PM
We are delighted that MEAction UK has officially become an independent, registered UK charity. This marks a new chapter in our journey to secure better recognition, research and support for people with ME in the UK.
#CharityAnnouncement #MyalgicEncephalomyelitis
#CharityAnnouncement #MyalgicEncephalomyelitis
M.E./C.F.S is lifelong. Stop harmful reassessments. Recognise it under the Severe
ConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
ConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
December 9, 2025 at 12:52 AM
M.E./C.F.S is lifelong. Stop harmful reassessments. Recognise it under the Severe
ConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
ConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
M.E./C.F.S is lifelong. Stop harmful reassessments. Recognise it under the Severe
ConConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
ConConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
December 9, 2025 at 12:52 AM
M.E./C.F.S is lifelong. Stop harmful reassessments. Recognise it under the Severe
ConConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
ConConditionsCriteria @DWPgovuk @stephenctimms @patmcfaddenmp
#SCCforME
Reposted by Hippymum
Appalling 🚨💙
December 6, 2025 at 9:53 AM
Appalling 🚨💙
I signed this petition to tell Barclays to cut ties with JBS — one of the world’s worst offenders for animal suffering and environmental destruction. Will you do the same? action.worldanimalprotection.org.uk/tell-barclay...
Tell Barclays to stop funding animal cruelty
Barclays is the UK’s biggest investor in factory farming, using their customers’ money to pour billions into JBS, the world’s largest meat producer and one of the worst offenders for animal cruelty an...
action.worldanimalprotection.org.uk
December 6, 2025 at 1:43 PM
I signed this petition to tell Barclays to cut ties with JBS — one of the world’s worst offenders for animal suffering and environmental destruction. Will you do the same? action.worldanimalprotection.org.uk/tell-barclay...
Reposted by Hippymum
LOCOME Project: Major #ME and #LongCOVID Genetics Findings Announced. Today we are excited to share landmark new findings from the LOCOME project.
www.medrxiv.org/content/10.6...
@precisionlife.bsky.social
www.medrxiv.org/content/10.6...
@precisionlife.bsky.social
Identification of Novel Reproducible Combinatorial Genetic Risk Factors for Myalgic Encephalomyelitis in the DecodeME Patient Cohort and Commonalities with Long COVID
Background: Myalgic encephalomyelitis (also known as ME/CFS or simply ME) has severely impacted the lives of tens of millions of people globally, but the disease currently has no accurate diagnostic t...
www.medrxiv.org
December 4, 2025 at 9:14 AM
LOCOME Project: Major #ME and #LongCOVID Genetics Findings Announced. Today we are excited to share landmark new findings from the LOCOME project.
www.medrxiv.org/content/10.6...
@precisionlife.bsky.social
www.medrxiv.org/content/10.6...
@precisionlife.bsky.social
Reposted by Hippymum
New myalgic encephalomyelitis (ME, also known as ME/CFS) genetics study reveals 250+ core genes, shared mechanisms with long COVID, and dozens of drug repurposing opportunities. This would not have been possible without the thousands of people with ME who contributed their data.
Thank you.
Thank you.
December 4, 2025 at 8:00 AM
New myalgic encephalomyelitis (ME, also known as ME/CFS) genetics study reveals 250+ core genes, shared mechanisms with long COVID, and dozens of drug repurposing opportunities. This would not have been possible without the thousands of people with ME who contributed their data.
Thank you.
Thank you.
Reposted by Hippymum
(1/4) 🧬 @precisionlife.bsky.social has released exciting results from the LOCOME project
Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.
Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.
December 4, 2025 at 8:26 AM
(1/4) 🧬 @precisionlife.bsky.social has released exciting results from the LOCOME project
Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.
Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.
Royal Mail was sold off under the pretext of keeping stamp prices down. First-class stamp prices have DOUBLED in just the last four years. Ofcom is consulting on stamp pricing. Demand they bring Royal Mail into public ownership. @we_ownit weownit.org.uk/act-now/end-...
End the Royal Mail privatisation experiment now
Ofcom is consulting on stamp prices. It is time to demand that they end Royal Mail privatisation.
weownit.org.uk
December 4, 2025 at 10:55 AM
Royal Mail was sold off under the pretext of keeping stamp prices down. First-class stamp prices have DOUBLED in just the last four years. Ofcom is consulting on stamp pricing. Demand they bring Royal Mail into public ownership. @we_ownit weownit.org.uk/act-now/end-...
Reposted by Hippymum
Nice! Matching gift opportunity for an org that has helped people with Long COVID , not just ME/CFS.
Hey, folks! #MEAction has a 3x match for #GivingTuesday: your gift will TRIPLE if you donate today!
We need to be here to keep doing the work most important to our disability community.
Donate & share
And read the thread to learn more about what we can do together ⬇️
✨ www.meaction.net/donate ✨
We need to be here to keep doing the work most important to our disability community.
Donate & share
And read the thread to learn more about what we can do together ⬇️
✨ www.meaction.net/donate ✨
December 2, 2025 at 7:30 PM
Nice! Matching gift opportunity for an org that has helped people with Long COVID , not just ME/CFS.
My most-used words in 2025 were:
1. "sign" (37×)
2. "petition" (34×)
3. "signed" (16×)
4. "join" (12×)
5. "stop" (12×)
See which words you used the most here: anisota.net/harvest
1. "sign" (37×)
2. "petition" (34×)
3. "signed" (16×)
4. "join" (12×)
5. "stop" (12×)
See which words you used the most here: anisota.net/harvest
Anisota's Annual Bluesky Harvest 2025
A recap of your year on Bluesky. Discover patterns, connections, and insights from your journey in the ATmosphere.
anisota.net
December 3, 2025 at 3:05 AM
My most-used words in 2025 were:
1. "sign" (37×)
2. "petition" (34×)
3. "signed" (16×)
4. "join" (12×)
5. "stop" (12×)
See which words you used the most here: anisota.net/harvest
1. "sign" (37×)
2. "petition" (34×)
3. "signed" (16×)
4. "join" (12×)
5. "stop" (12×)
See which words you used the most here: anisota.net/harvest
Reposted by Hippymum
Hey, folks! #MEAction has a 3x match for #GivingTuesday: your gift will TRIPLE if you donate today!
We need to be here to keep doing the work most important to our disability community.
Donate & share
And read the thread to learn more about what we can do together ⬇️
✨ www.meaction.net/donate ✨
We need to be here to keep doing the work most important to our disability community.
Donate & share
And read the thread to learn more about what we can do together ⬇️
✨ www.meaction.net/donate ✨
December 2, 2025 at 4:39 PM
Hey, folks! #MEAction has a 3x match for #GivingTuesday: your gift will TRIPLE if you donate today!
We need to be here to keep doing the work most important to our disability community.
Donate & share
And read the thread to learn more about what we can do together ⬇️
✨ www.meaction.net/donate ✨
We need to be here to keep doing the work most important to our disability community.
Donate & share
And read the thread to learn more about what we can do together ⬇️
✨ www.meaction.net/donate ✨
I just donated to this campaign, please support their good cause by making a donation. donate.biggive.org/campaign/a05...
The Ehlers-Danlos Society – Big Give
The Ehlers-Danlos Society advances research, education, and care for those with EDS and HSD worldwide—striving for a future where everyone has access to the right treatment and support, at the right t...
donate.biggive.org
December 3, 2025 at 2:58 AM
I just donated to this campaign, please support their good cause by making a donation. donate.biggive.org/campaign/a05...
Reposted by Hippymum
BBC: ''I want to live my life': Fibromyalgia sufferers being failed by NHS'
'People suffering from the chronic pain condition fibromyalgia are being failed by the NHS, according to new research which found patients were waiting years for diagnosis...'
www.bbc.com/news/article...
'People suffering from the chronic pain condition fibromyalgia are being failed by the NHS, according to new research which found patients were waiting years for diagnosis...'
www.bbc.com/news/article...
'I want to live my life': Fibromyalgia sufferers being failed by NHS
Researchers and patients are calling for the NHS to overhaul its care of fibromyalgia patients.
www.bbc.com
November 28, 2025 at 6:17 PM
BBC: ''I want to live my life': Fibromyalgia sufferers being failed by NHS'
'People suffering from the chronic pain condition fibromyalgia are being failed by the NHS, according to new research which found patients were waiting years for diagnosis...'
www.bbc.com/news/article...
'People suffering from the chronic pain condition fibromyalgia are being failed by the NHS, according to new research which found patients were waiting years for diagnosis...'
www.bbc.com/news/article...
Will you sign this petition from @gdcampaigns? We're calling for a pause on bus stops that put people with sight loss in harm's way. act.guidedogs.org.uk/page/180795/...
Halt hazardous bus stops
Will you sign our petition for safe bus travel? We're calling for a pause on dangerous bus stops that put people with sight loss in harm's way.
act.guidedogs.org.uk
November 29, 2025 at 12:00 PM
Will you sign this petition from @gdcampaigns? We're calling for a pause on bus stops that put people with sight loss in harm's way. act.guidedogs.org.uk/page/180795/...
I've just emailed DEFRA to make it clear that new regulation cannot fix our broken water system. Email now to demand publicly owned water: weownit.org.uk/act-now/emai...
Email DEFRA - regulation won't fix our broken water system
weownit.org.uk
November 29, 2025 at 10:20 AM
I've just emailed DEFRA to make it clear that new regulation cannot fix our broken water system. Email now to demand publicly owned water: weownit.org.uk/act-now/emai...
Mandate Defibrillators on All Trains UK - Sign the Petition! c.org/4C8PNjQ6tS via @UKChange
Sign the Petition
Mandate Defibrillators on All Trains UK
c.org
November 25, 2025 at 11:07 PM
Mandate Defibrillators on All Trains UK - Sign the Petition! c.org/4C8PNjQ6tS via @UKChange
Please join the fight to keep cash www.facebook.com/share/p/17o8...
Redirecting...
www.facebook.com
November 24, 2025 at 4:23 AM
Please join the fight to keep cash www.facebook.com/share/p/17o8...
Reposted by Hippymum
🤦@ukcovid-19inquiry.bsky.social 'Had a lockdown been imposed on or immediately after 16 Mar 2020, modelling has established that the number of deaths in England in the first wave up until 1 Jul 2020 would have been reduced by 48% – equating to around 23,000 fewer deaths.'
www.bmj.com/content/391/...
www.bmj.com/content/391/...
Covid inquiry: UK action was “too little, too late” and led to avoidable deaths, report finds
Boris Johnson’s government repeatedly did “too little, too late” in response to the covid pandemic and could have saved 23 000 lives in England if a lockdown had been imposed a week earlier, the UK Co...
www.bmj.com
November 22, 2025 at 12:18 PM
🤦@ukcovid-19inquiry.bsky.social 'Had a lockdown been imposed on or immediately after 16 Mar 2020, modelling has established that the number of deaths in England in the first wave up until 1 Jul 2020 would have been reduced by 48% – equating to around 23,000 fewer deaths.'
www.bmj.com/content/391/...
www.bmj.com/content/391/...
Reposted by Hippymum
#blueskyartshow
So #small but SO crucial to our world. Give it up for the #bees! 😊🐝🖤💛🌸
#flowers #bees #insects #flowerphotography #bloomscrolling #nature #NaturePhotography #gardening #gardens #beauty #hope #peace 🕊
So #small but SO crucial to our world. Give it up for the #bees! 😊🐝🖤💛🌸
#flowers #bees #insects #flowerphotography #bloomscrolling #nature #NaturePhotography #gardening #gardens #beauty #hope #peace 🕊
November 23, 2025 at 10:34 AM
#blueskyartshow
So #small but SO crucial to our world. Give it up for the #bees! 😊🐝🖤💛🌸
#flowers #bees #insects #flowerphotography #bloomscrolling #nature #NaturePhotography #gardening #gardens #beauty #hope #peace 🕊
So #small but SO crucial to our world. Give it up for the #bees! 😊🐝🖤💛🌸
#flowers #bees #insects #flowerphotography #bloomscrolling #nature #NaturePhotography #gardening #gardens #beauty #hope #peace 🕊
Reposted by Hippymum
Having Energy sold at cost would save the UK £1,000 per household and be a massive boon to the economy.
Instead you pay £30bn extra which goes almost entirely to people who don't live, pay tax or spend money in the UK.
Instead you pay £30bn extra which goes almost entirely to people who don't live, pay tax or spend money in the UK.
November 22, 2025 at 10:32 PM
Having Energy sold at cost would save the UK £1,000 per household and be a massive boon to the economy.
Instead you pay £30bn extra which goes almost entirely to people who don't live, pay tax or spend money in the UK.
Instead you pay £30bn extra which goes almost entirely to people who don't live, pay tax or spend money in the UK.
Reposted by Hippymum
www.theguardian.com/politics/202...
I want this man to be charged for ( at the very least ) misconduct in public office.
But being charged with democide is more appropriate.
I want this man to be charged for ( at the very least ) misconduct in public office.
But being charged with democide is more appropriate.
Boris Johnson took four days off as NHS warned Covid could ‘overwhelm’ system
Files show then PM was walking dog, riding motorbike and hosting guests as pandemic planning stalled in ‘lost month’
www.theguardian.com
November 22, 2025 at 5:51 PM
www.theguardian.com/politics/202...
I want this man to be charged for ( at the very least ) misconduct in public office.
But being charged with democide is more appropriate.
I want this man to be charged for ( at the very least ) misconduct in public office.
But being charged with democide is more appropriate.