Jerneja Terčon
jernejatercon.bsky.social
Jerneja Terčon
@jernejatercon.bsky.social
NEURODIVERGENT (ND), wife and mother of 3 ND children.
PhD, SEN clinician - Community Health Centre Domžale, Slovenia, EU;
founder of EXCEPTIONAL.UR Society, ND resercher with lived experience; ISRA-DCD Country Rep; A-Rep in AIMS-2-TRIALS.
Pinned
Your Pack #2
exceptional-ur-izjemen-si.org
Never give up! Your ND is here to teach you something, change your view of the world and add something unique, unforgettable to your life.
Find your pack! Find people who understand what you’re going through, and who have walked on the same path as you.
IZJEMEN.SI
Izjemen.SI / Exceptional.UR
exceptional-ur-izjemen-si.org
Reposted by Jerneja Terčon
"Many people with food sensory issues experience ridicule for simply expressing their needs & honoring their own preferences … You do not have to understand why someone does not want to eat a certain food to respect their choices." @dramypsyd.rmh-therapy.com:

www.psychologytoday.com/us/blog/neur...
Sensory Sensitivities and Food
Many neurodivergent people struggle with consuming adequate calories and nutrition due to sensory sensitivities. Learn tips to cope from Matthew Broberg-Moffitt, author and chef.
www.psychologytoday.com
June 7, 2025 at 8:19 PM
Reposted by Jerneja Terčon
"I was told by clinicians that I’m ‘too empathetic’ to be autistic. That invalidating, alienating experience shaped my research: I want to better understand why nonautistic people assume there’s an empathy deficit.” -Sarah Foster

news.utdallas.edu/health-medic... #autism #neurodiversity
May 29, 2025 at 5:21 AM
Reposted by Jerneja Terčon
More #Autistic researchers than ever at #INSAR2025! #AutINSAR
If you want to be a serious autism researcher, then you need to seriously pay attention to what autistic people want from research. #AutINSAR #INSAR2025

> @juliametraux.bsky.social @thetransmitter.bsky.social @autismsciencefd.bsky.social @statnews.com @ericmgarcia.bsky.social @autisticadvocacy.org
In case you missed it: #AutINSAR is a much-needed discussion between autistic people, autism researchers, family members, and professionals about priorities in autism research. This year it happened during #INSAR2025. Recap at TPGA:

thinkingautismguide.com/2025/05/what... #autism #neurodiversity
May 27, 2025 at 3:56 AM
Reposted by Jerneja Terčon
Reposted by Jerneja Terčon
Autistic voices wanted! Join our online workshop on 29 May (6–8pm) to share your lived experience and help shape research on housing, environment & mental health in neurodivergent families.
Sign up: email me at [email protected], or scan the QR code below!
#AutRes
May 13, 2025 at 4:04 PM
Reposted by Jerneja Terčon
Our paper: "Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium" has been published in Open Research Europe. open-research-europe.ec.europa.eu/articles/5-120 1/4
open-research-europe.ec.europa.eu
May 6, 2025 at 10:38 AM
Reposted by Jerneja Terčon
Some reflections on being part of @aims2trials.bsky.social Autism Representatives over the past 6 years and an exciting new paper led by my friend & colleague @teresadelbianco.bsky.social
www.linkedin.com/posts/mary-d...
Examining Neurodiversity and Inclusion in Neuroscience Research Networks:… | Mary Doherty
My involvement with the AIMS-2-Trials research consortium has been such a rollercoaster over the past 6 years. One of the most interesting aspects of the project has been the shift from autistic peopl...
www.linkedin.com
May 9, 2025 at 6:16 PM
Reposted by Jerneja Terčon
Epistemic injustice... being autistic means one’s credibility and capacity to relate an accurate account of one’s own experience is often questioned. How can I be a doctor if I am autistic? Conversely, how can I be autistic if I am a doctor?
www.thelancet.com/journals/lan...
My autistic meltdown: the impact of autistic sensory needs
As an autistic adult, even the word meltdown is humiliating. A shameful part of my past, no longer relevant to a senior doctor, or so I would like to think. And yet the reality is different. Some 2 ye...
www.thelancet.com
April 18, 2025 at 11:55 AM
Reposted by Jerneja Terčon
My autistic meltdown: the impact of autistic sensory needs - The Lancet www.thelancet.com/journals/lan...

Great piece from @autisticdoctor.bsky.social on duality and how we are more than one thing.
My autistic meltdown: the impact of autistic sensory needs
As an autistic adult, even the word meltdown is humiliating. A shameful part of my past, no longer relevant to a senior doctor, or so I would like to think. And yet the reality is different. Some 2 ye...
www.thelancet.com
April 18, 2025 at 4:52 PM
Reposted by Jerneja Terčon
Learn what autistic people need to improve our lives by following the work of autistic researchers (again focusing on women because of underrepresentation):

Dr Mary Doherty @autisticdoctor.bsky.social , founder of Autistic Doctors International - e.g. www.thetransmitter.org/spectrum/wea...
Weaponized heterogeneity only harms the most vulnerable autistic people
Focusing on aspects of autistic experience that we all share may lead more quickly to our shared goal of improved outcomes for all autistic people.
www.thetransmitter.org
April 11, 2025 at 7:43 PM
Reposted by Jerneja Terčon
Just in case you missed it, last week's #CRAElecture is now available on YouTube:

Supporting nonspeaking autistic people's flourishing using collaborative cognitive science, with Vikram Jaswal

youtu.be/qnVs5u2S8bA
Supporting nonspeaking autistic people's flourishing, Vikram Jaswal (3rd April 2025)
CRAE's 2025 annual lecture - Supporting nonspeaking autistic people's flourishing using collaborative cognitive science, with Prof. Vikram Jaswal
youtu.be
April 11, 2025 at 8:08 AM
Reposted by Jerneja Terčon
"Think about your daily tasks. Even getting out of bed & getting ready for work requires you to follow a sequence of tasks, plan what to do next, prioritise things you have time for & manage yr time so you don’t get to work late." @itsemilykaty.bsky.social:

www.authenticallyemily.uk/blog/executi...
Executive (Dys)Functioning: What it is, its Relation to ADHD and Some Strategies — Authentically Emily
Executive functioning is how we plan, make decisions, follow steps and processes, focus our attention and balance different tasks. It incorporates a set of skills which help us to learn, work and comp...
www.authenticallyemily.uk
March 27, 2025 at 5:47 PM
My thoughts exactly... there is only one possible solution this week.
March 2, 2025 at 1:06 PM
Reposted by Jerneja Terčon
Also, Singer is a TERF. We stand with our trans loved ones and community members and against small-minded hatefulness.
A reminder that Judy Singer is NOT the originator of "neurodiversity": "While Singer published one early book chapter on the neurodiversity movement in 1999, she was only one of many working on theorising #neurodiversity, and certainly not the first."

journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
March 1, 2025 at 8:59 AM
Reposted by Jerneja Terčon
I have just registered for this event that I know will be informative and impactful. @craeioe.bsky.social
#nonspeaking #SEND #autism #CRAElecture
It is a delight to be able to announce our speaker for this year's #CRAElecture: the wonderful Dr Vikram Jaswal.

6pm (GMT) 3rd April

(It's a slightly longer webinar than our usual webinars, and later in the evening so hopefully more of you can join us)

bit.ly/CRAEJaswal
Supporting nonspeaking autistic people's flourishing
... using collaborative cognitive science. With Vikram Jaswal
bit.ly
February 20, 2025 at 8:20 AM
Reposted by Jerneja Terčon
Possibly the best AAC post of all time: If you or your autistic person use AAC [alternative communication], don't forget to enable descriptions of personal boundaries—because everyone should be able to say "stop" and "F*** off". From Mel Baggs, RIP:

ballastexistenz.wordpress.com/2012/06/25/c...
Communication page I used to handle that invasive woman I met.
It’s been quite some time since I posted my letter to the woman who accosted me on my way to the para transit van. But I wanted to update people on how I handled the situation when she approa…
ballastexistenz.wordpress.com
February 9, 2025 at 5:54 PM
Reposted by Jerneja Terčon
Some reasons late autism diagnoses happen: “If you were socialized as a girl, chances are your neurodivergence was ignored because you weren’t disruptive enough. If you’re BIPOC, your symptoms were likely dismissed or misdiagnosed.”

www.psychologytoday.com/us/blog/wild... #neurodiversity #autism
Why Late Diagnoses Hit Different
Ever wondered why life always felt harder than it should? Discover the wild ride of late neurodivergent diagnosis—grief, relief, and finally, self-acceptance.
www.psychologytoday.com
February 12, 2025 at 1:27 PM
Reposted by Jerneja Terčon
My boss told me I didn't have empathy during an evaluation. That's when I decided to speak to someone and got diagnosed. Then realized my boss was/is an asshole for telling me that.
February 22, 2025 at 3:06 AM
Reposted by Jerneja Terčon
Autistic here, and most of my friends are also neurodivergent in some way. We're all weird together and it rocks. My friends are really cool and so am I!
Social skills programs tend to teach autistic people "that they have to become normal in order to have friends. It’s not true. There are a lot of autistic people who have friends without becoming remotely normal. Oddness and friendship are entirely compatible."

realsocialskills.org/2017/10/04/a...
Autistic people can have friends – Real Social Skills
realsocialskills.org
February 21, 2025 at 11:54 PM
Reposted by Jerneja Terčon
Last week's #CRAEwebinar is up on YouTube... in three versions. One in the original Japanese, one with overdubbing, and one with just the English translation.

bit.ly/CRAEwebinars

(Hopefully, we've sorted out the right captions too!)
Crae IOE - YouTube
The Centre for Research in Autism and Education (CRAE) is a unique initiative that has at its heart the ambition to improve the lives of autistic people and ...
bit.ly
February 22, 2025 at 10:00 AM
Reposted by Jerneja Terčon
To be more specific, parents of autistic kids should listen to autistic *wisdom*—because there are actually plenty of autistic people whom no one should listen to. #neurodiversity
Parents of autistic kids who refuse to listen to autistic people are like those Americans who don’t bother to learn local phrases when they travel, but somehow think they can be understood if they just speak English REALLY LOUD—and then get upset when the situation doesn’t improve. #neurodiversity
February 5, 2025 at 9:21 PM
Reposted by Jerneja Terčon
“Parents should be aware that […] there is sufficient reason to be believe that adverse events do occur when autistic people participate in ABA & the majority of research on ABA is produced by researchers who also provide ABA as a service." @kbottemabeutel.bsky.social:

www.salon.com/2025/02/05/a...
A controversial autism therapy is gaining prominence, but some say it hurts neurodiverse people
Applied Behavior Analysis is increasingly popular, but does it do more harm than good?
www.salon.com
February 6, 2025 at 11:40 PM
Reposted by Jerneja Terčon
“When environments are designed with neurodivergent people in mind — ensuring accessibility, inclusion and safety — it is likely to make those spaces more inclusive and supportive for all.”

insightplus.mja.com.au/2025/5/why-w... #neurodiversity #autism
Why we need more autistic leaders in medicine
Autistic doctors can bring unique perspectives and skillsets to leadership roles in health care, but
insightplus.mja.com.au
February 18, 2025 at 3:54 AM
Reposted by Jerneja Terčon
ABA IS ABUSE 🗣️🗣️🗣️🗣️ #actuallyautistic #autismacceptance
When we allow ABA therapists to “extinguish” flapping, echolalia, or other forms of autistic self-regulation to make a child appear less autistic—but without understanding why the child does these things—autistic kids perceive this as *irrational punishment*.

thinkingautismguide.com/2020/10/why-...
February 1, 2025 at 1:12 AM
Been there, done that! AD detox could be shattering. Done it a couple of times and never ever doing it again. It messed up my body and mind. Now I'm stuck with diabetes type 2 and poorer EF.
www.madinamerica.com/2025/01/anti...
Antidepressant Withdrawal Symptoms Linked to Life-Altering Consequences, New Study Shows
A new study reveals that withdrawal symptoms from antidepressants can last years, disrupting lives and relationships.
www.madinamerica.com
January 31, 2025 at 12:57 AM