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kurumu.bsky.social
Kurumu 🏳️‍🌈💜🇭🇲
@kurumu.bsky.social
17 followers 27 following 8 posts
32, They/Them, Spoonie: IH(Idiopathic Hypersomnia with Long Sleep), Fibro, M.E/CFS, hEDS/HSD, POTS/IO, AuADHD; When not asleep I am normally playing video games or rolling around the internet. 🦌
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Reposted by Kurumu 🏳️‍🌈💜🇭🇲
chronicillness.bsky.social
#chronicillness #chronicillnesshumor #chronicillnessmeme #chronicillnessmemes #autoimmune #autoimmunememe #autoimmunehumor #spoonie #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonies #mecfs #longcovid #chronicillnessmemes #fibromeme
a picture of a bunch of Beakers from the Muppets in medical coats "My medical team arriving for their meeting on my plan of care"
April 4, 2024 at 8:39 PM
kurumu.bsky.social
Scientific Review that Finds CBD doesn't relieve chronic pain. #chronicpain #CBD #ChronicIllness #Spoonie www.jpain.org/article/S152...
April 4, 2024 at 8:31 AM
kurumu.bsky.social
Article about Scientific Review that Finds CBD doesn't relieve chronic pain. #chronicpain #CBD #ChronicIllness #Spoonie www.sciencealert.com/large-review...
April 4, 2024 at 8:30 AM
Reposted by Kurumu 🏳️‍🌈💜🇭🇲
moleyme.bsky.social
See this #chronicillness community with light sensitivity
bsky.app Bluesky @bsky.app · Feb 26
📢 App Version 1.69 is rolling out now (1/3)

We’ve improved dark mode and dim mode. Dim is now lighter, and dark’s contrast is now higher.

You can choose between these in your settings.
A screenshot showing the Dim mode in settings Settings + Add account Accessibility Require alt text before posting Appearance System Light Dark (selected) Dark theme Dim (selected) Dark Basics Following Feed Preferences Thread Preferences My Saved Feeds Languages A screenshot showing the Dark mode in settings Settings + Add account Accessibility Require alt text before posting Appearance System Light Dark (selected) Dark theme Dim Dark (selected) Basics Following Feed Preferences Thread Preferences My Saved Feeds Languages
February 27, 2024 at 9:58 PM
kurumu.bsky.social
As someone who has a rare illness, and a bundle of others, I support Rare Disease Day. #IH #HSD #hEDS #AuADHD #Autism #ADHD #Fibromyalgia #Fibro #Migraines #POTS #POTS/IO #Idiopathichypersomnia
February 26, 2024 at 11:43 PM
Reposted by Kurumu 🏳️‍🌈💜🇭🇲
tomkindlon.bsky.social
Association between fatigue, peripheral serotonin, & L-carnitine in #hypothyroidism & in #ChronicFatigueSyndrome
Abstract only:
www.frontiersin.org/journals/end...
Comment: I have found 3000mg/day l-carnitine appears to help me. Initially tried following a US trial with this dosage
#MEcfs #CFS #PwME
Background: Fatigue of unknown origin is a hallmark symptom in chronic fatigue syndrome (CFS) and is also found in 20% of hypothyroidism patients despite appropriate levothyroxine treatment. Here, we suggest that in these disorders, peripheral serotonin levels are low, and elevating them to normal range with L-carnitine is accompanied with reduced fatigue. Methods: We conducted a retrospective analysis of follow-up clinical data (CFS N=12; hypothyroidism with fatigue N=40) where serum serotonin and fatigue levels were compared before vs. after 7 weeks of oral L-carnitine supplementation. Results: After L-carnitine, serotonin increased (8-fold in CFS, Sig. = 0.002, 6-fold in hypothyroidism, Sig. < 0.001) whereas fatigue decreased (2-fold in both CFS and hypothyroidism, Sig. = 0.002 for CFS, Sig. < 0.001 for hypothyroidism). There was a negative correlation between serotonin level and fatigue (for CFS, rho = -0.49 before and -0.67 after L-carnitine; for hypothyroidism, rho = -0.24 before
February 26, 2024 at 7:20 PM