Lydia Makaroff
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makaroff.bsky.social
Lydia Makaroff
@makaroff.bsky.social
📍Cambridge, UK | she/her | Chief Executive, Multiple Sclerosis International Federation. Patient advocacy, non-profit leadership, healthcare policy, & public health 🌍. Enjoys Mars rovers 🚀, bookcrossing 📚, & birdwatching 🦜.
Got an exercise bike gathering dust? 🚴‍♀️
I’m riding 50km in May with the Indoor Pedallers to support MS research.
Every kilometre counts. No pressure.
Join us here: www.themay50k.com/fundraisers/...
#TheMay50K #IndoorCycling
April 28, 2025 at 3:57 PM
A real pleasure to meet @rohangreenland.bsky.social in London this morning, fresh off the plane from Oz 🦘. Grateful to have him on the Board of the #MultipleSclerosis International Federation as we chatted about challenges & solutions over breakfast ☕ 🌏 #MSCommunity #MSAwareness
April 17, 2025 at 11:01 AM
WELCOME TO #TheMay50K! I put on my red t-shirt for the first time, and we had our first team training day in London! Roll, walk or run 50K this May to support people living with #MultipleSclerosis 💙 themay50k.com
March 5, 2025 at 9:53 AM
I deleted my #Twitter today. 😢😡 Joined in 2008 as user #14,857,473, back when @Replies was new, #FailWhale was frequent, #iPhone3G was launched, & #ThisWeekInTech was my go-to podcast. Grateful for my 5,598 followers, but it's time. Used helloquittex.com to find friends on Bluesky. #GoodBye 👋
February 28, 2025 at 4:06 PM
Trying out a Recumbent Cross Trainer, which helps people with #MultipleSclerosis stay active with low-impact exercise. It’s designed to improve strength, balance, & health. The Italian MS Society is publishing important research on the best rehab approaches. Grateful to learn from them! #MSRehab
February 28, 2025 at 9:38 AM
The Italian MS Society’s #SentiComeMiSento workshops help us all understand invisible MS symptoms. Tools include TENS machines for tremors, scratched glasses for optic neuritis, gloves for sensory loss, and weights for fatigue. These simulations build awareness of MS challenges. #MSAwareness
February 25, 2025 at 7:49 PM
👟 Visiting the Associazione Italiana Sclerosi Multipla (Italian MS Society) today, I was able to hold a pair of The SMeakers - sneakers that share the words of Cristina, Federico, and Rachele, who all live with MS.

“Movement is life, even when it takes unexpected paths.”

💙 #MSAwareness
February 24, 2025 at 4:24 PM
Flashback to when we met this magnificent great horned owl in Vancouver Canada in 2007. #superbowl
February 9, 2025 at 2:22 PM
Winter gnats (Trichocera annulata) have a lifecycle evolved for the cold. Adults males dance in winter to woo females who then lay eggs in damp soil. By spring, larvae hatch & feed on decaying matter, then pupate & metamorphose through autumn, then emerge in the next winter #BugLife #CambridgeUK
February 2, 2025 at 3:06 PM
A splash of gold in the chill 🌼 Winter aconites (Eranthis hyemalis) are blooming in our garden. One of the first flowers each year, they are native to Southern France & Italy, and provide early nectar for waking pollinators 🌱✨🐝 #WinterAconite #PollinatorFriendly #NatureInWinter #WinterBlooms
January 31, 2025 at 1:30 PM
Obsessed with my new Mars Rover manicure! 💫 Now I’ve got space robots on my fingertips! 🤖 Johanna’s talent is out of this world 💅 check out her work: www.instagram.com/johanna4nails/ #MarsRover #NailArt #SpaceExploration #OutOfThisWorld #NailInspo #NailAddict #ArtOnNails #CustomNails
January 25, 2025 at 10:27 AM
Bluesky now has over 10 million users, and I was #251,163.
September 29, 2024 at 6:22 AM
I'm not sure who I love more: Irrepressible Thoughts of Death Barbie, or Weird Barbie handing out Birkenstocks.
August 17, 2023 at 1:15 PM
Skeet images of four of your favourite characters and let people assume things about you.
July 5, 2023 at 3:51 PM
I am trying to explain to my cat that she is lactose intolerant and cannot eat cheese.
July 5, 2023 at 3:30 PM
Reflecting on the Fight Bladder Cancer Meeting at #GMB23 Congress. Grateful to have shared the stage with people like Dorothy. We addressed bladder cancer at work and discussed crucial steps towards awareness & support. https://fightbladdercancer.co.uk/blog/fight-bladder-cancer-gmb-congress-2023
July 5, 2023 at 3:18 PM