Malwsmefys
@malwsmefys.bsky.social
Welsh, arty, crafty, cat lover 😻 Humanist and Terry Pratchett disciple. Disabled with ME/CFS #pwME
Reposted by Malwsmefys
I’m George Takei and I approve of this message.
February 19, 2025 at 3:47 PM
I’m George Takei and I approve of this message.
The irony of receiving a pen with my Action for ME magazine that ran out after writing 12 words is not lost on me 😂😂😂😂😂
February 10, 2025 at 9:29 AM
The irony of receiving a pen with my Action for ME magazine that ran out after writing 12 words is not lost on me 😂😂😂😂😂
Reposted by Malwsmefys
Timeline cleanse
Exciting news! We’re thrilled to announce that tapir Yuna gave birth to a rare and endangered Malayan tapir calf Sunday night. The newborn, covered in distinctive white spots and stripes resembling a fuzzy walking watermelon, is only the second tapir born in our 120-year history.
February 4, 2025 at 10:49 PM
Timeline cleanse
Reposted by Malwsmefys
Reposted by Malwsmefys
"As a medical practitioner myself, I thought that those working in healthcare were mostly understanding, empathetic and equipped to help their patients. ... I have experienced a lack of understanding, interest and care"
It shatters the illusion, but its not just ME and Long Covid.
It shatters the illusion, but its not just ME and Long Covid.
We've got a great #ThereForME post today from Rebecca Logan.
Rebecca is a former nurse who shares her experiences of #LongCovid, learning about ME and her work campaigning with Hope 4 ME & Fibro NI
www.thereforme.uk/p/too-ill-to...
Rebecca is a former nurse who shares her experiences of #LongCovid, learning about ME and her work campaigning with Hope 4 ME & Fibro NI
www.thereforme.uk/p/too-ill-to...
Too ill to treat?
A former nurse shares her experiences campaigning for better care in Northern Ireland
www.thereforme.uk
February 4, 2025 at 9:20 AM
"As a medical practitioner myself, I thought that those working in healthcare were mostly understanding, empathetic and equipped to help their patients. ... I have experienced a lack of understanding, interest and care"
It shatters the illusion, but its not just ME and Long Covid.
It shatters the illusion, but its not just ME and Long Covid.
Reposted by Malwsmefys
Reposted by Malwsmefys
From @meresearchuk.bsky.social
Recently we reported on a study suggesting endothelial dysfunction could play a role in orthostatic intolerance in ME/CFS. Read a summary of other ME Research UK articles related to endothelial dysfunction in ME/CFS - bit.ly/3Ej9sv8
#MECFS #myalgicencephalomyelitis
Recently we reported on a study suggesting endothelial dysfunction could play a role in orthostatic intolerance in ME/CFS. Read a summary of other ME Research UK articles related to endothelial dysfunction in ME/CFS - bit.ly/3Ej9sv8
#MECFS #myalgicencephalomyelitis
February 3, 2025 at 3:58 PM
From @meresearchuk.bsky.social
Recently we reported on a study suggesting endothelial dysfunction could play a role in orthostatic intolerance in ME/CFS. Read a summary of other ME Research UK articles related to endothelial dysfunction in ME/CFS - bit.ly/3Ej9sv8
#MECFS #myalgicencephalomyelitis
Recently we reported on a study suggesting endothelial dysfunction could play a role in orthostatic intolerance in ME/CFS. Read a summary of other ME Research UK articles related to endothelial dysfunction in ME/CFS - bit.ly/3Ej9sv8
#MECFS #myalgicencephalomyelitis
Reposted by Malwsmefys
Just something nice for your timeline
Butterfly (Scada zibia), Tatama National Park, Colombia
Butterfly (Scada zibia), Tatama National Park, Colombia
February 2, 2025 at 5:04 PM
Just something nice for your timeline
Butterfly (Scada zibia), Tatama National Park, Colombia
Butterfly (Scada zibia), Tatama National Park, Colombia
Reposted by Malwsmefys
This absolutely terrifies me.
I feel like I have to prepare somehow. I've been looking into proofreading & editing courses. Gosh they're expensive. But I feel I have no choice.
Disabled people are terrified right now. We won't survive. And that's their plan!
www.independent.co.uk/news/uk/poli...
I feel like I have to prepare somehow. I've been looking into proofreading & editing courses. Gosh they're expensive. But I feel I have no choice.
Disabled people are terrified right now. We won't survive. And that's their plan!
www.independent.co.uk/news/uk/poli...
Long-term sick to lose benefits and need to search for work in DWP overhaul
Liz Kendall wants to make the biggest change to the welfare system in a decade
www.independent.co.uk
February 1, 2025 at 11:15 AM
This absolutely terrifies me.
I feel like I have to prepare somehow. I've been looking into proofreading & editing courses. Gosh they're expensive. But I feel I have no choice.
Disabled people are terrified right now. We won't survive. And that's their plan!
www.independent.co.uk/news/uk/poli...
I feel like I have to prepare somehow. I've been looking into proofreading & editing courses. Gosh they're expensive. But I feel I have no choice.
Disabled people are terrified right now. We won't survive. And that's their plan!
www.independent.co.uk/news/uk/poli...
Reposted by Malwsmefys
#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes
October 18, 2024 at 1:13 PM
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A reminder,
None of your problems come from me being chronically ill and bedbound.
None of your problems come from me being chronically ill and bedbound.
January 27, 2025 at 3:23 PM
A reminder,
None of your problems come from me being chronically ill and bedbound.
None of your problems come from me being chronically ill and bedbound.
Reposted by Malwsmefys
Reposted by Malwsmefys
January 26, 2025 at 6:16 PM
Reposted by Malwsmefys
Reposted by Malwsmefys
Today, January 27th is Holocaust Memorial Day 🕯️
May we never ever forget all that has happened 🕯️ 🕊️
#HolocaustMemorialDay
#HMD2025
#LightTheDarkness
May we never ever forget all that has happened 🕯️ 🕊️
#HolocaustMemorialDay
#HMD2025
#LightTheDarkness
January 27, 2025 at 12:07 AM
Today, January 27th is Holocaust Memorial Day 🕯️
May we never ever forget all that has happened 🕯️ 🕊️
#HolocaustMemorialDay
#HMD2025
#LightTheDarkness
May we never ever forget all that has happened 🕯️ 🕊️
#HolocaustMemorialDay
#HMD2025
#LightTheDarkness
Reposted by Malwsmefys
I’m an introvert. I like being alone. I distance myself from time to time for my own personal reasons that have nothing to do with me acting funny or being upset about anything. I need space and peace of mind. People can be overwhelming at times…
January 25, 2025 at 10:35 PM
I’m an introvert. I like being alone. I distance myself from time to time for my own personal reasons that have nothing to do with me acting funny or being upset about anything. I need space and peace of mind. People can be overwhelming at times…
Reposted by Malwsmefys
#mecfs #mecfsawareness #mecfswarrior ##fibro #fibromyalgia #fibrowarrior #chronicillness #chronicillnessandme #chronicillnessawareness #neurodivergent #adhd #adhdawareness
#MyalgicE #MEcfs #pwME
#SevereME #MillionsMissing
#EndMEcfs #MillionsMissingSpeakOut #MillionsMore #MyalgicEncephalomyelitis
#MyalgicE #MEcfs #pwME
#SevereME #MillionsMissing
#EndMEcfs #MillionsMissingSpeakOut #MillionsMore #MyalgicEncephalomyelitis
January 25, 2025 at 8:40 PM
Reposted by Malwsmefys
Living with siblings.. 😅
January 20, 2025 at 7:45 PM
Living with siblings.. 😅
Reposted by Malwsmefys
It’s a pity this article doesn’t discuss more of the reasons why the existing review is flawed such as the almost complete lack of reporting of objective measures as Michiel Tack, I & others highlighted in our formal comments on the review.
#MEcfs #CFS
#MEcfs #CFS
Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome
@dalmeet.bsky.social reports
@dalmeet.bsky.social reports
Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome
The decision to abandon a process to re-evaluate a review recommending exercise therapy for chronic fatigue syndrome (ME/CFS) has reignited calls for the article to be withdrawn. The 2019 ver…
retractionwatch.com
January 24, 2025 at 8:17 PM
Reposted by Malwsmefys
Did you know…
In Elgin in the 17th century, the reformed Kirk was so anti-Christmas that magistrates banned Yuletide footballing, snowballing, piping, dancing and carol-singing!
And one minister took it upon himself to search people’s kitchens for the “superstitious goose”!
In Elgin in the 17th century, the reformed Kirk was so anti-Christmas that magistrates banned Yuletide footballing, snowballing, piping, dancing and carol-singing!
And one minister took it upon himself to search people’s kitchens for the “superstitious goose”!
January 22, 2025 at 12:27 PM
Did you know…
In Elgin in the 17th century, the reformed Kirk was so anti-Christmas that magistrates banned Yuletide footballing, snowballing, piping, dancing and carol-singing!
And one minister took it upon himself to search people’s kitchens for the “superstitious goose”!
In Elgin in the 17th century, the reformed Kirk was so anti-Christmas that magistrates banned Yuletide footballing, snowballing, piping, dancing and carol-singing!
And one minister took it upon himself to search people’s kitchens for the “superstitious goose”!
Reposted by Malwsmefys
Remember folks,
January 22, 2025 at 12:16 PM
Remember folks,
Reposted by Malwsmefys
BSky habits need to be different from [that site] habits...
Remember: ‘liking’ a post has no effect on its visibility here (unlike on Twitter).
To help good or informative posts get seen by other people, you have you repost them.
This feels like a big part of why it can often feel so quite here.
To help good or informative posts get seen by other people, you have you repost them.
This feels like a big part of why it can often feel so quite here.
January 22, 2025 at 1:06 PM
BSky habits need to be different from [that site] habits...
#pwME can anyone recommend a specialist who can write a report about me/my condition and my care needs? I live in south Wales. There are none that I know of in Wales and the neurologist who diagnosed me has retired.
January 21, 2025 at 9:56 PM
#pwME can anyone recommend a specialist who can write a report about me/my condition and my care needs? I live in south Wales. There are none that I know of in Wales and the neurologist who diagnosed me has retired.
So my compliance interview with the DWP for my universal credit has revealed that I have been reported for benefit fraud 🫨🤯 I've just had an 1hr long phonecall answering questions about ludicrous allegations. I know who made the 'anonymous' call. It'll take 'many months' for a decision to be made! 🤯
January 21, 2025 at 12:49 PM
So my compliance interview with the DWP for my universal credit has revealed that I have been reported for benefit fraud 🫨🤯 I've just had an 1hr long phonecall answering questions about ludicrous allegations. I know who made the 'anonymous' call. It'll take 'many months' for a decision to be made! 🤯