Maureen Smith 🇨🇦
@maureenchats.bsky.social
140 followers 93 following 10 posts
Passionate about patient/citizen engagement, teacher @ heart, rare disease advocate, Adjunct Professor, U of Toronto DLSPH, Canada’s Drug Agency Board member, INFORM RARE, McMaster Health Forum Citizen Partner, IMPaCT Trials, SPOR Evidence Alliance
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maureenchats.bsky.social
Great to see this update has added perspectives « It builds up on a 2014 scoping review by our team and aims to enhance the usability, completeness, and transparency of NMA reporting for diverse audiences, including patients and the public. » @sporalliance.bsky.social
maureenchats.bsky.social
It’s never too late to join the fun! Ranking top 5 is up next.
thepeoplesreview.ie
📣 Stage 2 of #ThePeoplesReview is paused (for now)!

✅193 people voted in Round 1 🙌
🔜Next up: YOU’ll rank the top 5 questions to decide our final review question

🎥 Find out why we use two rounds: buff.ly/ApRsclN

Sign up to #ThePeoplesReview here:
👉 buff.ly/avtkBZ4
Reposted by Maureen Smith 🇨🇦
dawnrichards.bsky.social
It's International #ClinicalTrials Day. Thanks to everyone who contributes to clinical trials 🙏.

And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social
How do patients feel about research ethics review? - Healthy Debate
Research ethics reviews in Canada have come under the media spotlight, with claims the process is exploitative and calls for innovation or reform.
healthydebate.ca
maureenchats.bsky.social
How about making it a family project? Kids doing The Kid’s Trial and adult family members doing thepeoplesreview.ir Great dinner table conversations!
maureenchats.bsky.social
Did you ever wonder what goes into conducting and sharing a systematic review? Everyone is welcome to this one! Topic: to be determined by the people!
thepeoplesreview.ie
🌍 Want to help shape health research? Join #ThePeoplesReview – a systematic review, powered by the public

✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
maureenchats.bsky.social
thepeoplesreview.ie
🚀 THE PEOPLE'S REVIEW IS OPEN NOW 🚀
We are excited to launch Stage 1 of #ThePeoplesReview

✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews

Join now ➡️ buff.ly/WAnKUYa
maureenchats.bsky.social
Please consider joining us - evidence synthesis is for everyone! We’d love to hear your perspectives. @sevenworldscollide.bsky.social
evidencecomm.bsky.social
Register now for a webinar series hosted by ESIC for citizen-serving and citizen-led NGOs and for citizen leaders to share insights in how we can better learn from others around the world surveys.mcmaster.ca/limesurvey/i...
Person at a laptop
Reposted by Maureen Smith 🇨🇦
maureenchats.bsky.social
All the credit goes to INFORM RARE’s amazing youth advisory group! We are so proud to collaborate with them. I’m the lucky adult who had the honour of submitting it. Available in English & French on informrare.ca
Reposted by Maureen Smith 🇨🇦
sporalliance.bsky.social
New publication!

The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.

Read more: www.jclinepi.com/article/S089...

@andreatricco.bsky.social @ktprogram.bsky.social
Graphic promoting the publication, 'Cobuilding Patient and Public Capacity in Knowledge Synthesis: Designed and Delivered by Patient and Public Partners for Patient and Public Partners.'
maureenchats.bsky.social
Thanks Laurie. I hope you’re feeling better now. Looking forward to connecting in 2025! Sorry it’s taken so long to respond .. trying to figure out LinkedIn and Bluesky has done me in.
maureenchats.bsky.social
Happy news to share! I’m honoured. It’s wonderful to see people with lived experience at the governance table of our Canada Drug Agency.
maureenchats.bsky.social
Thank you Stuart. I’m honoured. It’s great to see people with lived experience at the governance table.
Reposted by Maureen Smith 🇨🇦
ferprogram.bsky.social
"When Life Happens: Being Vulnerable About Your Reality as a Research Partner" by Rae Martens explores the often-unspoken challenges faced by patients and caregivers engaged in research partnerships. Rae candidly reflects on the realities of living with illness or caring for others, including /1
Two hands reaching out across the background of the sky.
Reposted by Maureen Smith 🇨🇦
drmroz.bsky.social
@stirlingbryan.bsky.social Stirling is on BlueSky! So far the only SPOR Unit on is @absporu.bsky.social - Alberta SPOR SUPPORT Unit. Let's get the rest on here!
Reposted by Maureen Smith 🇨🇦
thepeoplesreview.ie
Hello Bluesky 👋 #ThePeoplesReview is a citizen science project inviting the public to get involved in a systematic review about health!

Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE
What is The People's Review?
YouTube video by The People's Review
youtu.be