@philipanini.bsky.social
Primary Care Clinical Pharmacist-frailty polypharmacy. FND sufferer. Christian
Rejoined social media from a 10 year silence anonymously (easy to find) to find evidence based answer on FND to combat the primary care “eye role” towards all things functional.
Rejoined social media from a 10 year silence anonymously (easy to find) to find evidence based answer on FND to combat the primary care “eye role” towards all things functional.
Reposted
Functional Neurological Disorder does not mean:
* you’re faking
* you’re responsible for becoming ill
* you could stop it if you wanted
* it’s “just anxiety”
* that you don’t really have a disability
* that there’s no hope
* you’re faking
* you’re responsible for becoming ill
* you could stop it if you wanted
* it’s “just anxiety”
* that you don’t really have a disability
* that there’s no hope
November 10, 2025 at 11:19 PM
Functional Neurological Disorder does not mean:
* you’re faking
* you’re responsible for becoming ill
* you could stop it if you wanted
* it’s “just anxiety”
* that you don’t really have a disability
* that there’s no hope
* you’re faking
* you’re responsible for becoming ill
* you could stop it if you wanted
* it’s “just anxiety”
* that you don’t really have a disability
* that there’s no hope
Reposted
Latest attempt to try and define predictive brain mechanism in #FND in the simplest terms -
A disconnect in the brain where -
Beliefs/expectations + prior experiences
Outweigh
Incoming sensory input from present reality
Does that seem accurate? Any thoughts appreciated 🙏
A disconnect in the brain where -
Beliefs/expectations + prior experiences
Outweigh
Incoming sensory input from present reality
Does that seem accurate? Any thoughts appreciated 🙏
August 19, 2025 at 11:16 AM
Latest attempt to try and define predictive brain mechanism in #FND in the simplest terms -
A disconnect in the brain where -
Beliefs/expectations + prior experiences
Outweigh
Incoming sensory input from present reality
Does that seem accurate? Any thoughts appreciated 🙏
A disconnect in the brain where -
Beliefs/expectations + prior experiences
Outweigh
Incoming sensory input from present reality
Does that seem accurate? Any thoughts appreciated 🙏
Reposted
New NHS England Neurology Service specification.
✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.
This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/
t.co/XvGo0NIryA
✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.
This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/
t.co/XvGo0NIryA
September 21, 2025 at 1:04 PM
New NHS England Neurology Service specification.
✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.
This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/
t.co/XvGo0NIryA
✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.
This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/
t.co/XvGo0NIryA
Reposted
Our conclusions. @fndhope.bsky.social, FND action and @fndsociety.bsky.social
October 1, 2025 at 2:03 PM
Our conclusions. @fndhope.bsky.social, FND action and @fndsociety.bsky.social
Reposted
FND treatment is multidisciplinary, but there are barriers to care. Here are some thoughts on those. 5/
October 1, 2025 at 2:03 PM
FND treatment is multidisciplinary, but there are barriers to care. Here are some thoughts on those. 5/
Reposted
Physio for functional movement disorder has important differences to physio for other conditions in neurological practice
Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications
4/
Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications
4/
October 1, 2025 at 2:03 PM
Physio for functional movement disorder has important differences to physio for other conditions in neurological practice
Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications
4/
Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications
4/
Reposted
Dont just diagnose - formulate.
An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/
jnnp-bmj-com.eux.idm.oclc.org/content/83/9...
An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/
jnnp-bmj-com.eux.idm.oclc.org/content/83/9...
October 1, 2025 at 2:03 PM
Dont just diagnose - formulate.
An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/
jnnp-bmj-com.eux.idm.oclc.org/content/83/9...
An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/
jnnp-bmj-com.eux.idm.oclc.org/content/83/9...
Reposted
Some ideas for communication and explanation of functional movement disorder 2/
October 1, 2025 at 2:03 PM
Some ideas for communication and explanation of functional movement disorder 2/
Reposted
Time to get the facts straight. 🙌
Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.
Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.
"Inside FND" - a new short film about FND
A film that draws on evidence from patients, clinicians and research to counter common misconceptions about Functional Neurological Disorder (FND). 🧵
www.youtube.com/watch?v=KDAv...
A film that draws on evidence from patients, clinicians and research to counter common misconceptions about Functional Neurological Disorder (FND). 🧵
www.youtube.com/watch?v=KDAv...
Inside FND
YouTube video by Jon Stone
www.youtube.com
June 4, 2025 at 2:50 PM
Time to get the facts straight. 🙌
Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.
Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.
Reposted
Why do people develop #FND? It’s complex and there isn't just one factor.
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
April 21, 2025 at 5:20 PM
Why do people develop #FND? It’s complex and there isn't just one factor.
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support
FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd
Reposted
Reposted
✨ It’s UK FND Awareness Day! ✨
I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful!
#FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT
I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful!
#FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT
Living well with Functional Neurological Disorders (FND): How Psychological Therapy Can Empower You
YouTube video by Dr Charlie Tyack - Clinical Psychologist
youtu.be
March 25, 2025 at 9:00 PM
✨ It’s UK FND Awareness Day! ✨
I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful!
#FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT
I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful!
#FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT
Reposted
I’m a neuropsychologist who works with people living with FND.
I was told recently that no one in the UK with #FND falls through the cracks anymore.
But the stories I hear tell a different truth.
This #FNDAwarenessDay, I’m not just raising awareness.
I’m amplifying voices.
I was told recently that no one in the UK with #FND falls through the cracks anymore.
But the stories I hear tell a different truth.
This #FNDAwarenessDay, I’m not just raising awareness.
I’m amplifying voices.
March 25, 2025 at 8:16 AM
I’m a neuropsychologist who works with people living with FND.
I was told recently that no one in the UK with #FND falls through the cracks anymore.
But the stories I hear tell a different truth.
This #FNDAwarenessDay, I’m not just raising awareness.
I’m amplifying voices.
I was told recently that no one in the UK with #FND falls through the cracks anymore.
But the stories I hear tell a different truth.
This #FNDAwarenessDay, I’m not just raising awareness.
I’m amplifying voices.
Reposted
Reposted
Functional neurological disorder (FND) is the second most common neurological condition.
This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary.
👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps
This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary.
👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps
March 25, 2025 at 12:26 PM
Functional neurological disorder (FND) is the second most common neurological condition.
This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary.
👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps
This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary.
👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps
www.nhsinform.scot/illnesses-an...
It’s FND awareness day.
It’s the most common reason for a neurology referral second to headache.
Why has no one heard of it?
Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.
It’s FND awareness day.
It’s the most common reason for a neurology referral second to headache.
Why has no one heard of it?
Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.
Functional neurological disorder
Information about functional neurological disorder (FND), including the symptoms, causes, and treatments of this condition. For patients in Scotland.
www.nhsinform.scot
March 25, 2025 at 7:02 AM
www.nhsinform.scot/illnesses-an...
It’s FND awareness day.
It’s the most common reason for a neurology referral second to headache.
Why has no one heard of it?
Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.
It’s FND awareness day.
It’s the most common reason for a neurology referral second to headache.
Why has no one heard of it?
Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.
It’s FND awareness day, please take a minute to learn about this challenging condition. 🙏
cks.nice.org.uk/topics/funct...
cks.nice.org.uk/topics/funct...
March 25, 2025 at 5:50 AM
It’s FND awareness day, please take a minute to learn about this challenging condition. 🙏
cks.nice.org.uk/topics/funct...
cks.nice.org.uk/topics/funct...
Reposted
Hi all!
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
A Patients Guide to FND
On Overview of Functional Neurological Disorder from a Patient's Perspective
open.substack.com
March 19, 2025 at 1:54 PM
Hi all!
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.
Check it out!
#fnd #fndawareness #disabilityawareness #chronicillness
Reposted
Please support FND Dimensions by sharing/attending this event celebrating the resilience of people with Functional Neurological Disorder: Stage and Screen - A Musical Concert, Friday 28th March 2025 - University Hall, NTU City Campus, Nottingham #FND 🧠🎵💪
March 21, 2025 at 12:38 PM
Please support FND Dimensions by sharing/attending this event celebrating the resilience of people with Functional Neurological Disorder: Stage and Screen - A Musical Concert, Friday 28th March 2025 - University Hall, NTU City Campus, Nottingham #FND 🧠🎵💪
Reposted
🧠 Help Us Understand Pain Perception in FND! 🧠
Looking for volunteers with & without #FND for a study in London @kingsioppn.bsky.social. Single lab visit testing pain perception with electrical stimulation.
Interested? Please message me: [email protected] ✉️
Thanks for sharing!
Looking for volunteers with & without #FND for a study in London @kingsioppn.bsky.social. Single lab visit testing pain perception with electrical stimulation.
Interested? Please message me: [email protected] ✉️
Thanks for sharing!
March 7, 2025 at 2:13 PM
🧠 Help Us Understand Pain Perception in FND! 🧠
Looking for volunteers with & without #FND for a study in London @kingsioppn.bsky.social. Single lab visit testing pain perception with electrical stimulation.
Interested? Please message me: [email protected] ✉️
Thanks for sharing!
Looking for volunteers with & without #FND for a study in London @kingsioppn.bsky.social. Single lab visit testing pain perception with electrical stimulation.
Interested? Please message me: [email protected] ✉️
Thanks for sharing!
Reposted
It's a little thing but getting added to group chats for my tennis clubs' league team especially after being told a few years back that I'd never compete again due to my FND is wild
Got diagnosed, "retired" from tournaments, came back two years later in better health, now I'm playing for my club
Got diagnosed, "retired" from tournaments, came back two years later in better health, now I'm playing for my club
March 16, 2025 at 9:26 PM
It's a little thing but getting added to group chats for my tennis clubs' league team especially after being told a few years back that I'd never compete again due to my FND is wild
Got diagnosed, "retired" from tournaments, came back two years later in better health, now I'm playing for my club
Got diagnosed, "retired" from tournaments, came back two years later in better health, now I'm playing for my club
Reposted
1/Recently I’ve been wondering if #FND is a disease of modern living, the brain hasn’t evolved much in the last 40,000 years, and in terms of human history, civilisation is a recent invention, approximately 6000 years old.
March 18, 2025 at 2:09 PM
1/Recently I’ve been wondering if #FND is a disease of modern living, the brain hasn’t evolved much in the last 40,000 years, and in terms of human history, civilisation is a recent invention, approximately 6000 years old.