Rheumatoid Patient
@rheumpatient.bsky.social
Patient with rheumatoid arthritis. Interested in rheumatology and patient involvement.
Merry Christmas everyone!
December 23, 2025 at 3:37 PM
Merry Christmas everyone!
Reposted by Rheumatoid Patient
🤔 What if the key to a stronger #NHS isn't a new technology but human connection?
In our latest blog, @jtaylor001.bsky.social explores how a lasting relationship between patients & GPs:
✅ improves patient health
👛 lowers system-wide costs
😀 makes the GP job more satisfying
#ContinuityOfCare
In our latest blog, @jtaylor001.bsky.social explores how a lasting relationship between patients & GPs:
✅ improves patient health
👛 lowers system-wide costs
😀 makes the GP job more satisfying
#ContinuityOfCare
The Human Connection: Why Relational Continuity Matters in General Practice
Strong, lasting relationships between patients and their clinicians can improve outcomes, reduce costs, and strengthen the NHS. Here, our Workforce and Learning Research Group explores the evidence be...
www.phc.ox.ac.uk
October 16, 2025 at 9:22 AM
🤔 What if the key to a stronger #NHS isn't a new technology but human connection?
In our latest blog, @jtaylor001.bsky.social explores how a lasting relationship between patients & GPs:
✅ improves patient health
👛 lowers system-wide costs
😀 makes the GP job more satisfying
#ContinuityOfCare
In our latest blog, @jtaylor001.bsky.social explores how a lasting relationship between patients & GPs:
✅ improves patient health
👛 lowers system-wide costs
😀 makes the GP job more satisfying
#ContinuityOfCare
Reposted by Rheumatoid Patient
New #scoping review of 137 reviews across 47 conditions shows oral 💊 #glucocorticoids are widely used across numerous specialities.
Our collaborative research aims to explore how they affect quality of life and how to minimise harms.
Read more 👉 doi.org/10.1002/pds....
Our collaborative research aims to explore how they affect quality of life and how to minimise harms.
Read more 👉 doi.org/10.1002/pds....
Mapping Use of High Dose or Long‐Term Oral Glucocorticoids and Steroid‐Sparing Strategies in Adults With Chronic Conditions: A Rapid Scoping Review of Reviews
Purpose Oral glucocorticoids (OGCs) have a broad range of uses and are effective in treating numerous conditions. However, it is commonly acknowledged that OGCs at high doses or over long periods ha...
doi.org
October 15, 2025 at 4:31 PM
New #scoping review of 137 reviews across 47 conditions shows oral 💊 #glucocorticoids are widely used across numerous specialities.
Our collaborative research aims to explore how they affect quality of life and how to minimise harms.
Read more 👉 doi.org/10.1002/pds....
Our collaborative research aims to explore how they affect quality of life and how to minimise harms.
Read more 👉 doi.org/10.1002/pds....
Reposted by Rheumatoid Patient
Our paper about GP access is out now (TLDR patients and receptionists are engaged in a quest to get the prize of an appointment but are thwarted by digital barriers and practice systems) doi.org/10.1111/1467...
#NIHR @oxprimarycare.bsky.social
#NIHR @oxprimarycare.bsky.social
Bugbears in the Waiting Room: Revisiting Arber and Sawyer's Classic Study of GP Reception Work Using Ethnography in Eight English General Practices
In 1985, Arber and Sawyer described the discretionary rationing power of general practice receptionists. Our paper revisits this territory. Much has changed in the intervening decades. Digitalisation...
doi.org
October 14, 2025 at 3:46 PM
Our paper about GP access is out now (TLDR patients and receptionists are engaged in a quest to get the prize of an appointment but are thwarted by digital barriers and practice systems) doi.org/10.1111/1467...
#NIHR @oxprimarycare.bsky.social
#NIHR @oxprimarycare.bsky.social
Reposted by Rheumatoid Patient
🚫New RCT highlights what not to do in clinical practice. Using a fancy HandScan to guide therapy was less effective than standard care.
🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
HandScan criteria versus ACR/EULAR Boolean remission as treatment target in early rheumatoid arthritis: results of a randomized controlled trial
AbstractObjectives. The HandScan is a novel method to quickly and objectively quantify RA disease activity using optical spectral transmission in hands and
doi.org
October 6, 2025 at 12:24 PM
🚫New RCT highlights what not to do in clinical practice. Using a fancy HandScan to guide therapy was less effective than standard care.
🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
Reposted by Rheumatoid Patient
Reposted by Rheumatoid Patient
AI and NLP analysed >8,400 patient-written free-text symptom descriptions.
Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.
This may reduce misdiagnosis and support earlier triage.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.
This may reduce misdiagnosis and support earlier triage.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
Let’s ask the patient: disease prediction based on patients’ symptom descriptions in free text
AbstractObjective. This study evaluates the value self-reported free-text symptom descriptions for supporting diagnostic decisions in osteoarthritis (OA),
academic.oup.com
September 30, 2025 at 5:37 PM
AI and NLP analysed >8,400 patient-written free-text symptom descriptions.
Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.
This may reduce misdiagnosis and support earlier triage.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.
This may reduce misdiagnosis and support earlier triage.
@rheumjnl.bsky.social doi.org/10.1093/rap/...
Reposted by Rheumatoid Patient
Why aren't we doing cutting edge emergency stroke care (thrombectomy)? We asked healthcare professionals. bmjopen.bmj.com/content/15/9...
(part of #NIHR Optimist/SPEEDY trial)
@oxprimarycare.bsky.social
@exeter.ac.uk
@newcastleuni.bsky.social
@ouhospitals.bsky.social
@rdm.ox.ac.uk
(part of #NIHR Optimist/SPEEDY trial)
@oxprimarycare.bsky.social
@exeter.ac.uk
@newcastleuni.bsky.social
@ouhospitals.bsky.social
@rdm.ox.ac.uk
10 years on from the landmark stroke thrombectomy trials, where are we now? A qualitative study examining professional views on the implementation of endovascular treatment for ischaemic stroke in Eng...
Objective To explore multiprofessional views about system-wide factors influencing (impeding or facilitating) the delivery of stroke mechanical thrombectomy (MT) services and/or improvements to this p...
bmjopen.bmj.com
September 25, 2025 at 1:19 PM
Why aren't we doing cutting edge emergency stroke care (thrombectomy)? We asked healthcare professionals. bmjopen.bmj.com/content/15/9...
(part of #NIHR Optimist/SPEEDY trial)
@oxprimarycare.bsky.social
@exeter.ac.uk
@newcastleuni.bsky.social
@ouhospitals.bsky.social
@rdm.ox.ac.uk
(part of #NIHR Optimist/SPEEDY trial)
@oxprimarycare.bsky.social
@exeter.ac.uk
@newcastleuni.bsky.social
@ouhospitals.bsky.social
@rdm.ox.ac.uk
Reposted by Rheumatoid Patient
Ooh - my new paper on case study is out! What’s a case study, how do you do one, how do you spot a good one? Includes niche examples like the REF impact case study (though it’s mainly about research case studies).
Calling all researchers and educators📣 This new RMR by @trishgreenhalgh.bsky.social on how to conduct effective case studies, offers guidance for using them for learning & decision-making.
Essential reading for robust research!
https://bit.ly/47PL01l
Essential reading for robust research!
https://bit.ly/47PL01l
September 24, 2025 at 5:33 PM
Ooh - my new paper on case study is out! What’s a case study, how do you do one, how do you spot a good one? Includes niche examples like the REF impact case study (though it’s mainly about research case studies).
Reposted by Rheumatoid Patient
I took paracetamol in both my pregnancies for minor joint troubles. I had a better pregnancy experience because I wasn't in pain. Neither of my kids is autistic. The high-quality studies and reviews confirm there is NO evidence that paracetamol taken by the mother causes autism in the child. 🧪
September 22, 2025 at 7:40 AM
I took paracetamol in both my pregnancies for minor joint troubles. I had a better pregnancy experience because I wasn't in pain. Neither of my kids is autistic. The high-quality studies and reviews confirm there is NO evidence that paracetamol taken by the mother causes autism in the child. 🧪
Reposted by Rheumatoid Patient
Please know that this is Trump scaremongering.
There is no good scientific evidence linking paracetamol (Tylenol) to autism.
A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...
There is no good scientific evidence linking paracetamol (Tylenol) to autism.
A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...
Trump attacks Tylenol as officials unveil highly contentious conclusions on autism
President says acetaminophen – also known as paracetamol - increases risk when taken by pregnant women, assertion contradicted by research
www.theguardian.com
September 23, 2025 at 6:04 AM
Please know that this is Trump scaremongering.
There is no good scientific evidence linking paracetamol (Tylenol) to autism.
A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...
There is no good scientific evidence linking paracetamol (Tylenol) to autism.
A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...
Reposted by Rheumatoid Patient
Big advantages of JAK inhibitors for children include...
- effective
- safe
- fast acting
- oral (no injections!)
- no need to take methotrexate at the same time
Thanks to Prof Ramanan for sharing the results of so many trials so clearly. #BSR25
- effective
- safe
- fast acting
- oral (no injections!)
- no need to take methotrexate at the same time
Thanks to Prof Ramanan for sharing the results of so many trials so clearly. #BSR25
April 29, 2025 at 8:47 AM
Big advantages of JAK inhibitors for children include...
- effective
- safe
- fast acting
- oral (no injections!)
- no need to take methotrexate at the same time
Thanks to Prof Ramanan for sharing the results of so many trials so clearly. #BSR25
- effective
- safe
- fast acting
- oral (no injections!)
- no need to take methotrexate at the same time
Thanks to Prof Ramanan for sharing the results of so many trials so clearly. #BSR25
Reposted by Rheumatoid Patient
Think patients cannot inform evidence synthesis? Think again
Young people with musculoskeletal fatigue co-designed a scoping review, shaping search terms, flagging gaps and making findings relevant
Excellent talk by Katie Fishpool at #BSR25 @chcr-uwe.bsky.social
Abstract: doi.org/10.1093/rheu...
Young people with musculoskeletal fatigue co-designed a scoping review, shaping search terms, flagging gaps and making findings relevant
Excellent talk by Katie Fishpool at #BSR25 @chcr-uwe.bsky.social
Abstract: doi.org/10.1093/rheu...
April 29, 2025 at 4:13 PM
Think patients cannot inform evidence synthesis? Think again
Young people with musculoskeletal fatigue co-designed a scoping review, shaping search terms, flagging gaps and making findings relevant
Excellent talk by Katie Fishpool at #BSR25 @chcr-uwe.bsky.social
Abstract: doi.org/10.1093/rheu...
Young people with musculoskeletal fatigue co-designed a scoping review, shaping search terms, flagging gaps and making findings relevant
Excellent talk by Katie Fishpool at #BSR25 @chcr-uwe.bsky.social
Abstract: doi.org/10.1093/rheu...
Hi All! I've moved over from X (Twitter) to see what life is like on on the other side.
November 20, 2024 at 10:21 AM
Hi All! I've moved over from X (Twitter) to see what life is like on on the other side.