SCOTT
@rrms-sucks.bsky.social
Tattooed | RRMS dx2006 | Never give up
Pinned
SCOTT
@rrms-sucks.bsky.social
· 24d
New account.... previous got messy, clean slate!
Reposted by SCOTT
Fatigue isn’t just physical in MS — it’s neurological.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
December 17, 2025 at 3:02 PM
Fatigue isn’t just physical in MS — it’s neurological.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Your brain is processing more data through damaged pathways.
That overload = exhaustion.
Reposted by SCOTT
The NEW 2024 MS Diagnostic Criteria Explained by @aaronbostermd.bsky.social RIS, kappa light chain in CSF, central vein sign, paramagnetic rim sign, anti-MOG in children, age > 50. youtu.be/HOTDtZQLo2k?...
The NEW 2024 MS Diagnostic Criteria Explained (Game-Changer!)
YouTube video by Aaron Boster MD
youtu.be
December 1, 2025 at 4:17 PM
The NEW 2024 MS Diagnostic Criteria Explained by @aaronbostermd.bsky.social RIS, kappa light chain in CSF, central vein sign, paramagnetic rim sign, anti-MOG in children, age > 50. youtu.be/HOTDtZQLo2k?...
Reposted by SCOTT
This is so deeply accurate. For those with #MS it will hit the right parts you already know exist.
www.bezzyms.com/discover/rea...
www.bezzyms.com/discover/rea...
Invisible Symptoms Don’t Have to Stay That Way
Over time, I’ve learned how invisible symptoms and silence can distance you from others. I’ve also learned what helps rebuild connection.
www.bezzyms.com
December 13, 2025 at 10:13 AM
This is so deeply accurate. For those with #MS it will hit the right parts you already know exist.
www.bezzyms.com/discover/rea...
www.bezzyms.com/discover/rea...
Reposted by SCOTT
Spinal Cord Anatomy Explained by Neurologist youtube.com/shorts/Rz4M1...
Spinal Cord Anatomy Explained by Neurologist
YouTube video by Dr. Brandon Beaber
youtube.com
December 12, 2025 at 9:06 PM
Spinal Cord Anatomy Explained by Neurologist youtube.com/shorts/Rz4M1...
December 12, 2025 at 8:23 PM
Reposted by SCOTT
"Try #walking mindfully by tuning into your surroundings, the sensation of your feet hitting the ground & your #breathing. Studies show that #mindfulness combined with #movement enhances stress reduction.": buff.ly/k7wwcJ3
via thebestbrainpossible
#StressRelief
via thebestbrainpossible
#StressRelief
Walking Your Way to Better Mental Health - The Best Brain Possible
Walking is one of the most effective and accessible ways to improve your mental well-being. Lace up your shoes and start today!
buff.ly
December 9, 2025 at 1:30 PM
"Try #walking mindfully by tuning into your surroundings, the sensation of your feet hitting the ground & your #breathing. Studies show that #mindfulness combined with #movement enhances stress reduction.": buff.ly/k7wwcJ3
via thebestbrainpossible
#StressRelief
via thebestbrainpossible
#StressRelief
Enquiry about #AHSCT, #PIRA and arriving at a #HyperbaricOxygen Chamber over the next 72hrs. Oh yeah and I'll work a little bit too! Busy week ahead with many questions and hopefully some answers as well #MS
December 7, 2025 at 9:09 PM
Enquiry about #AHSCT, #PIRA and arriving at a #HyperbaricOxygen Chamber over the next 72hrs. Oh yeah and I'll work a little bit too! Busy week ahead with many questions and hopefully some answers as well #MS
Reposted by SCOTT
THIS!
"You seem happier"
Thanks, I deleted all my emails and went to look at birds instead.
Thanks, I deleted all my emails and went to look at birds instead.
December 7, 2025 at 11:57 AM
THIS!
This is evidence, if I needed it, to get back on the ale! 🍺 2 years of no alcohol, so far, has been easy really, but I do like single malt and real ale. Thanks for sharing! 😁
Alcohol & Multiple Sclerosis: Can You Drink? youtu.be/mmDyu_GT3aI?...
Alcohol & Multiple Sclerosis: Can You Drink?
YouTube video by Dr. Brandon Beaber
youtu.be
December 4, 2025 at 5:57 PM
This is evidence, if I needed it, to get back on the ale! 🍺 2 years of no alcohol, so far, has been easy really, but I do like single malt and real ale. Thanks for sharing! 😁
#MS yearly scoring:
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
December 4, 2025 at 5:32 PM
#MS yearly scoring:
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
Just breathe slowly & deeply. Take it all in and let it go slowly. Most helpful for so many people.
A fog-clearing trick:
Stand up → roll your shoulders → inhale deeply → exhale slowly.
This increases oxygen + resets your sensory system.
Fog often lifts in under 60 seconds.
Stand up → roll your shoulders → inhale deeply → exhale slowly.
This increases oxygen + resets your sensory system.
Fog often lifts in under 60 seconds.
December 2, 2025 at 3:52 PM
Just breathe slowly & deeply. Take it all in and let it go slowly. Most helpful for so many people.
ENT moved another 2 months on. That's now almost 6 months waiting for a #dysphonia diagnosis! #MS side effects and conclusions are still waiting, I just want to be able to breathe and speak normally again!! It ain't much!! 🤦🏻♂️🤬
December 1, 2025 at 8:32 PM
ENT moved another 2 months on. That's now almost 6 months waiting for a #dysphonia diagnosis! #MS side effects and conclusions are still waiting, I just want to be able to breathe and speak normally again!! It ain't much!! 🤦🏻♂️🤬
Reposted by SCOTT
This video on effective rest was, for me, a bit of a light bulb moment. I had not divided my fatigue or rest into categories of sensory, emotional, cognitive, social. I am hoping this might be a game changer. www.youtube.com/watch?v=e8OX...
What is Rest?
YouTube video by The Audio Visual Suite
www.youtube.com
November 29, 2025 at 11:25 AM
This video on effective rest was, for me, a bit of a light bulb moment. I had not divided my fatigue or rest into categories of sensory, emotional, cognitive, social. I am hoping this might be a game changer. www.youtube.com/watch?v=e8OX...
Reposted by SCOTT
Epstein-Barr virus and multiple sclerosis: A mechanism comes into focus
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Epstein-Barr virus and multiple sclerosis: A mechanism comes into focus
Infection with Epstein-Barr virus (EBV) is associated with multiple sclerosis (MS) but the role that the virus plays in MS is not clear. Recent public…
www.sciencedirect.com
November 28, 2025 at 7:04 PM
Epstein-Barr virus and multiple sclerosis: A mechanism comes into focus
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Reposted by SCOTT
#MS_Selfie Newsletter - Bad news: another negative remyelination trial
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
Bad news: another negative remyelination trial
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them.
gavingiovannoni.substack.com
November 26, 2025 at 2:22 PM
#MS_Selfie Newsletter - Bad news: another negative remyelination trial
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
New account.... previous got messy, clean slate!
November 27, 2025 at 4:51 PM
New account.... previous got messy, clean slate!