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Reposted by Sarah Walter

Jace D. Flatt, PhD, MPH (They/He) @jaceflatt.bsky.social · Mar 20

Current list of terminated grants by NIH. taggs.hhs.gov/Content/Data...

taggs.hhs.gov

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Reposted by Sarah Walter

Meade Krosby @meadekrosby.bsky.social · Mar 8

Affected in any way by recent federal science cuts? Please fill out and share a new survey to track impacts.👇

I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.

IMPACTS @fedscienceimpacts.bsky.social · Mar 8

🚨 America Needs Your Voice. 🚨

Federal science cuts hurt jobs, security & innovation. The IMPACTS Survey tracks the consequences—because policy affects us all.

📢 Impacted? Share your story.

🔗 Take the survey: bit.ly/SnTIMPACTS

📢 More at fedscienceimpacts.org

#IMPACTSSurvey #AmericaNeedsYourVoice

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Sarah Walter @sarahmwalter.bsky.social · Mar 4

This was fantastic, thanks for sharing!

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Eric Topol @erictopol.bsky.social · Mar 1

Francis Collins, the NIH Director for 12 years, led the Human Genome Project and other NIH efforts for 32 years, resigned today. Key words from his resignation letter
www.nytimes.com/2025/03/01/u...

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Sarah Walter @sarahmwalter.bsky.social · Mar 1

This is critical research. Cancelled.

Jace D. Flatt, PhD, MPH (They/He) @jaceflatt.bsky.social · Mar 1

Just received notice that our grant was terminated. 5R24AG066599-03
TheRiseRegistry.org

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Sarah Walter @sarahmwalter.bsky.social · Mar 1

Thank you for sharing this, Jace. I hope the researcher is able to appeal.

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Reposted by Sarah Walter

Dr. Donna Wilcock @wilcocklab.bsky.social · Feb 8

Please see a collective response from an esteemed group of leaders in the dementia field to the NYT article and book “doctored” by Charles Piller. www.nytimes.com/2025/01/24/o...

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Sarah Walter @sarahmwalter.bsky.social · Feb 7

A scientist and dear friend wrote this response to misleading accusations of fraud in #Alzheimers research. www.nytimes.com/2025/02/06/o...

Opinion | The Price of Fraud in Alzheimer’s Research

Readers worry that fraud may tarnish the field and slow the race for a cure. Also: Charles Blow’s farewell; treatment for addiction; the Gulf of America; Socrates and Donald Trump.

www.nytimes.com

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Sarah Walter @sarahmwalter.bsky.social · Feb 6

As a mom of a young teenage girl, I want to thank these researchers for this beautiful work! What a powerful example of good science and intentional co-production! #socialscience #inclusion #womenshealth

Dr Lucy Foulkes @lucyfoulkes.bsky.social · Feb 5

NEW PAPER: What do teenage girls think is causing the rise in depression & anxiety in their demographic?

I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔

Well done to Ola on her thoughtful leadership here

Ola Demkowicz @olademk.bsky.social · Feb 5

We talk a lot about why adolescent girls report more low mood and anxiety, and why this might be getting worse.

But what do girls themselves think might explain this? As you might have guessed, we don’t really know.

So, we asked them: doi.org/10.1186/s129...

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Sarah Walter @sarahmwalter.bsky.social · Feb 5

Go Oanh go!!

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Crystal M. Glover, Ph.D. @cgster.bsky.social · Feb 5

Y’all, @alzdemjournals.bsky.social Behavior & Socioeconomics of Aging (BSEA) has reached an important milestone ALREADY! 3 peer-reviewed research papers: PUBLISHED! Read and share: alz-journals.onlinelibrary.wiley.com/journal/2997...

Alzheimer's & Dementia: Behavior & Socioeconomics of Aging

Click on the title to browse this journal

alz-journals.onlinelibrary.wiley.com

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Sarah Walter @sarahmwalter.bsky.social · Feb 4

So glad you are here!!

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Reposted by Sarah Walter

PxP (For Patients, By Patients) @pxphub.bsky.social · Feb 4

⭐Webinar reminder! Join us tomorrow, February 5th.

Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.

#PatientEngagement #PatientPartners #PPI #PxP25

PxP (For Patients, By Patients) @pxphub.bsky.social · Jan 10

Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.

📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration

#PatientEngagement #PxP

2025 Webinar Series. Webinar 4: Patient Partner Perspectives on Barriers and Facilitators to Patient Engagement in Research. With Alex Haagaard, Francine Buchanan, Linda Niksic, and Jim Mann. February 5, 2025 5:30-7:00 PM ET

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Sarah Walter @sarahmwalter.bsky.social · Feb 4

Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch

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Sarah Walter @sarahmwalter.bsky.social · Jan 17

This is unacceptable, clear disparity in diagnosis which will impact these individuals and families in enormous ways!

Nsikan Akpan @monscience.bsky.social · Jan 17

A new study of 340k residents in Nueces County, Texas finds 85% of Mexican Americans with dementia are unaware of their diagnosis. 👀

Journal of General Internal Medicine: https://rdcu.be/d6BDm

Screenshot of the title and authorship section of a research article titled "Dementia Diagnosis Unawareness and Caregiver Burden in a Multi-ethnic Cohort." The authors listed include Josh Martins-Caufield, BS, Roshanak Mehdipanah, PhD, Emily M. Briceño, PhD, and others, with affiliations primarily at the University of Michigan.

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Reposted by Sarah Walter

Jen Woodard, MD @jwoodardmd.bsky.social · Jan 15

UW Madison seeks a visionary and transformative leader for Division Chief, Geriatrics and Gerontology. This is an exceptional opportunity to expand research on aging, guide the professional development of faculty and shape the next gen of medical professionals. To apply: lnkd.in/gWp23jDN

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Reposted by Sarah Walter

Louca-Mai Brady @louca-mai.bsky.social · Jan 17

UK #PublicInvolvement #PPI news:
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE

NIHR to increase commitment to Public Partnerships and Research Impact with new Coordinating Centre contract

www.nihr.ac.uk

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Involve North East @involvene.bsky.social · Jan 16

It's so important to listen to patients! 👇

#PatientInvolvement #PatientEngagment #Listen

James Munro @jamesfm55.bsky.social · Jan 16

The evidence base for the significance of patient narratives *as an intervention* continues to grow. This 2024 US paper shows that sharing patient stories widely with staff can improve the experiences of future patients.

journals.lww.com/hcmrjournal/...

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Well Beings | Mental Health, Caregiving & Health Resources @wellbeingsorg.bsky.social · Jan 8

When speaking to (or about) someone living with a #mentalhealth condition, it’s best to use person-first language that focuses on the individual, not the illness.

You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide

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Reposted by Sarah Walter

Dr. Lucky Tran @luckytran.com · Jan 14

All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!

N95 Masks are Available at all Los Angeles Public Library Locations

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Sarah Walter @sarahmwalter.bsky.social · Jan 5

So wonderful to have the evidence that both researchers and community members benefit when we partner! Important learning —> community members value quality of relationship and a focus on #prevention #dementia #ppi researchinvolvement.biomedcentral.com/articles/10....

Engaging older adults in the process of aging research: a multimethod study evaluating the experience and efficacy of a citizen advisory group for a dementia risk reduction program - Research Involvem...

Background Collaborative research with end-users is an effective way to generate meaningful research applications and support greater impact on practice and knowledge exchange. To address these needs,...

researchinvolvement.biomedcentral.com

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Louca-Mai Brady @louca-mai.bsky.social · Jan 4

Happy new year #PublicInvolvement people 🎊
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow

Louca-Mai Brady @louca-mai.bsky.social · Nov 17

#PublicInvolvement (#PPI #PPIE), #Coproduction and #ParticipatoryResearch in health and care research starter pack: go.bsky.app/PWEAnFR

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Reposted by Sarah Walter

Dementia Community @dementiacommunity.bsky.social · Jan 1

TIDE (Together In Dementia Everyday) has been awarded a grant by the Dementia Trust to begin some peer support groups for carers of people with young onset dementia (YOD) in conjunction with the Alzheimer's Society
(@alzheimerssoc.bsky.social).

Read More: buff.ly/3ZZa8gl

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Sarah Walter @sarahmwalter.bsky.social · Jan 1

It was a research and development year- next year will be production…

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Reposted by Sarah Walter

Liesbeth Corens @onslies.bsky.social · Dec 31

31 December 1995. Still the perfect goodbye.

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