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SHARE Collaborative @shareeastlondon.bsky.social · 28d

This is a SHARE collaborative project. We are conducting a national survey to improve PrEP access for communities facing the greatest barriers, including racially minoritised women & men, queer men of colour, trans/non-binary people, sex workers, and recent migrants.

🔗 tinyurl.com/4a2kh54n

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SHARE Collaborative @shareeastlondon.bsky.social · Sep 5

We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org

Beyond the Clinic Survey | SHARE Research Collaborative

A survey to understand the breadth and scale of issues which may impact equitable implementation of CAB-LA outside of sexual health clinics in the UK.

bit.ly

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SHARE Collaborative @shareeastlondon.bsky.social · 28d

🗣️SURVEY on HIV PrEP!

National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV_...

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

shareresearch.qualtrics.com

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SHARE Collaborative @shareeastlondon.bsky.social · Sep 5

We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org

Beyond the Clinic Survey | SHARE Research Collaborative

A survey to understand the breadth and scale of issues which may impact equitable implementation of CAB-LA outside of sexual health clinics in the UK.

bit.ly

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Reposted by SHARE Collaborative

Susan Cole-Haley @susancolehaley.bsky.social · Sep 4

Positive Health broadcast on HIV & Black communities is on Mon 8 Sept. Co-host Denis Onyango & I are joined by HIV advocate & researcher Rebecca Mbewe & @drrageshri.bsky.social. Watch live 5-5.30pm on @phoenixhealthm.bsky.social YouTube youtube.com/@phoenixheal... @shareeastlondon.bsky.social

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Matthew Hodson @matthewhodson.bsky.social · Aug 20

Are you HIV+?
Living in Europe?
Currently on HIV treatment?
Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social.
We aim to ensure people with HIV have access to the best treatment and care.
Survey at: bit.ly/4m5ktRm

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UK-CAB @ukcab.bsky.social · Aug 6

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices.

Visit the page & complete the survey below

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SHARE Collaborative @shareeastlondon.bsky.social · Jul 23

Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

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BK. Titanji @boghuma.bsky.social · Aug 5

Long-acting CAB+RPV for HIV is here but what counts as virological failure or treatment discontinuation? Turns out, there's no consensus in real-world use. Our Lancet HIV study set out to fix that. What was found? 15 different failure definitions in practice.
www.sciencedirect.com/science/arti...

Establishing shared definitions of virological failure and discontinuation for long-acting injectable cabotegravir and rilpivirine therapy (the CONSENSUS-LAI Study): an international survey and Delphi...

Definitions of virological failure and treatment discontinuation for long-acting injectable (LAI) cabotegravir and rilpivirine antiretroviral therapy …

www.sciencedirect.com

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Reposted by SHARE Collaborative

Tristan J Barber @tristanjbarber.bsky.social · Jul 23

if you are in Europe (inc the UK!), living with HIV in a country where injectable ART is available, please fill in this short survey from *brilliant* @shareeastlondon.bsky.social, and circ through your networks!

#AskUs

shareresearch.org.uk/ask-us-study/

shareresearch.qualtrics.com/jfe/form/SV_...

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Reposted by SHARE Collaborative

Rosalie Hayes @rahayes92.bsky.social · Jul 23

This is a study I'm working on for
@shareeastlondon.bsky.social
- please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic

SHARE Collaborative @shareeastlondon.bsky.social · Jul 23

Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

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SHARE Collaborative @shareeastlondon.bsky.social · Jul 23

@bashhuk.bsky.social @bhiva.bsky.social @fsrh.org @drlaurajwaters.bsky.social @tristanjbarber.bsky.social @profchloeorkin.bsky.social

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SHARE Collaborative @shareeastlondon.bsky.social · Jul 23

Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

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Reposted by SHARE Collaborative

Prof Chloe Orkin @profchloeorkin.bsky.social · Jul 22

Our latest study to understand the perspective of people living with HIV in Europe is now live!

We created it together with an amazing steering group of community members from 17 countries.

Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏

SHARE Collaborative @shareeastlondon.bsky.social · Jul 22

Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART!

Please share widely across your networks in Europe and the UK.

bit.ly/4m5ktRm

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Ask Us Europe

This survey aims to gather insights from the perspective of people living with HIV on discussions with HIV healthcare provider about new HIV treatments.

bit.ly

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Reposted by SHARE Collaborative

Matthew Hodson @matthewhodson.bsky.social · Jul 22

Do you live with HIV?
Are you in Europe and currently on treatment?
Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV.
I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV.
Please share. 🙏

Flyer for the Ask Us Europe study, including a QR code. I will add the link to the survey in a post that I will thread to this one.

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SHARE Collaborative @shareeastlondon.bsky.social · Jul 22

@iasociety.bsky.social @bhiva.bsky.social @eacsociety.bsky.social

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SHARE Collaborative @shareeastlondon.bsky.social · Jul 22

We developed the study together with 17 amazing community members reflecting experiences from 17 European countries.
The wonderful @angelinanamiba.bsky.social
co-chaired the co-design process and the brilliant
@matthewhodson.bsky.social
was our external scrutineer.

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SHARE Collaborative @shareeastlondon.bsky.social · Jul 22

Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART!

Please share widely across your networks in Europe and the UK.

bit.ly/4m5ktRm

/1

Ask Us Europe

This survey aims to gather insights from the perspective of people living with HIV on discussions with HIV healthcare provider about new HIV treatments.

bit.ly

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SHARE Collaborative @shareeastlondon.bsky.social · Jun 27

We’re pleased to be collaborating with @thelovetankcic.bsky.social
on the Queer Health Survey, and they are currently recruiting!

📌 Role: Programme Coordinator
🕒 17.5 hours/week | 12-month contract
📅 Deadline: Midday, 9 July 2025
🔗 Full details: www.thelovetank.info/vacancies/qhs

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Reposted by SHARE Collaborative

Barts Charity @bartscharity.bsky.social · Jun 5

Happy #Pride Month! 🏳️‍🌈🏳️‍⚧️ We're committed to making healthcare in East London more inclusive. And according to @england.nhs.uk LGBTQ+ people face disproportionately worse health outcomes. See how we're making healthcare more inclusive with the help of @shareeastlondon.bsky.social bit.ly/4dMDJ38

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Dr Rageshri Dhairyawan @drrageshri.bsky.social · May 26

Thank you @susancolehaley.bsky.social for your barnstorming talk at the start of the #AIDSImpact conference and for shouting out @shareeastlondon.bsky.social and my book #Unheard!

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SHARE Collaborative @shareeastlondon.bsky.social · Apr 28

Hear @sarapaparini.bsky.social and Dr Renee West talk about the power of collaboration and community research in reducing inequitable health outcomes. @shareeastlondon.bsky.social have been fortunate to work with @positiveeast.bsky.social on many projects.

www.youtube.com/watch?v=ti0p...

Queen Mary research partnerships in East London - Positive East

YouTube video by QMULOfficial

www.youtube.com

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Phoenix Health Movement @phoenixhealthm.bsky.social · Apr 10

Welcome to Phoenix Health Movement! We're dedicated to addressing health inequities affecting Black women & other marginalized communities. Out Co-Founders @susancolehaley.bsky.social & Dr Vanessa Apea from @shareeastlondon.bsky.social share more about us in our first video on Bluesky!

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Prof Chloe Orkin @profchloeorkin.bsky.social · Feb 27

Here is a blog by Vanessa Apea and I
describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak.
The paper has been published in PLOS Global Public Health

eur01.safelinks.protection.outlook.com?url=https%3A...

Behind the Paper: International Healthcare Workers’ Experiences and Perceptions of the 2022 Mpox Outbreak

PLOS Global Public Health was a natural home for our study due to its commitment to open-access publishing and its focus on amplifying research from diverse and resource-limited settings. Given the gl...

eur01.safelinks.protection.outlook.com

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Prof Chloe Orkin @profchloeorkin.bsky.social · Feb 16

In these unthinkably dark days for global public health I’m proud to share the results of this international survey which describes the challenging and distressing experiences of clinicians in 12 countries during the 2022/23 #mpox pandemic.

eur01.safelinks.protection.outlook.com?url=https%3A...

International healthcare workers’ experiences and perceptions of the 2022 multi-country mpox outbreak

In May 2022, the most widespread outbreak of sustained transmission of mpox outside of countries historically affected countries in Western and Central Africa occurred. We aimed to examine the persona...

eur01.safelinks.protection.outlook.com

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