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fatigatioev.bsky.social
#HumanRightsDay #TagDerMenschenrechte #DignityForAll #HealthEquity #EuropeanMEAlliance #EMEA #Fatigatio
@europeanmealliance.bsky.social
December 10, 2025 at 12:59 PM
europeanmealliance.bsky.social
10 Dec #HumanRightsDay
Human rights mean recognising suffering, and acting to end neglect

𝙏𝙝𝙞𝙨 𝙘𝙖𝙣𝙣𝙤𝙩 𝙟𝙪𝙨𝙩 𝙗𝙚 𝙬𝙤𝙧𝙙𝙨

They must be 𝒕𝒓𝒂𝒏𝒔𝒇𝒐𝒓𝒎𝒆𝒅 into actions for people with #mecfs, and their carers

europeanmealliance.org/humanrightsd...
#DignityForAll
#HealthEquity
#EuropeanMEAlliance
International Day of Human Rights - an image marking this day with a quote from EMEA from its article highlighting what EMEA is doing to make progress in research and treatment of ME
December 10, 2025 at 7:34 AM
europeanmealliance.bsky.social
EMEA questions to European Commission on ME

Grateful to MEP Romana Jerković @JerkovicRomana for her support in raising our comments on ME progress in the European Parliament

www.europeanmealliance.org/news-Q42025-... #MECFS #EuropeanMEAlliance

#MECFS #EuropeanMEAlliance
EU stars next to European ME Alliance logo
December 5, 2025 at 8:11 PM
onaalbizu.bsky.social
"ME is devastating. It affects people of all ages, including older adults, who face even greater vulnerability.
()Life is so limited that requests for euthanasia are far higher than the general population."
#EuropeanMEAlliance Ageing is living. WHO
#RC75CPH
www.europeanmealliance.org/emea-news-wh...
www.europeanmealliance.org
November 1, 2025 at 1:13 PM
onaalbizu.bsky.social
"The European ME Alliance will be pleased to work with WHO Europe Member States in establishing collaborative Centres of Excellence for ME throughout Europe."

EMEA #EuropeanMEAlliance at WHO #RC75CPH
#MyalgicEncephalomyelitis
www.europeanmealliance.org/emea-news-wh...
www.europeanmealliance.org
November 1, 2025 at 1:13 PM
onaalbizu.bsky.social
"We call on WHO for investment in a coordinated, collaborative European strategy of biomedical research to produce an infrastructure with the capacity to understand the disease, support patients, and develop effective treatments."

EMEA #EuropeanMEAlliance at WHO #RC75CPH
#MyalgicEncephalomyelitis
November 1, 2025 at 1:13 PM
onaalbizu.bsky.social
"We call on WHO and its Member States to ensure early recognition, home-based care, tailored education, family-centred support, and legal protection for children and adolescents with ME."
#EuropeanMEAlliance
#RC75CPH
#MyalgicEncephalomyelitis
www.europeanmealliance.org/emea-news-wh...
www.europeanmealliance.org
November 1, 2025 at 1:13 PM
europeanmealliance.bsky.social
European ME Alliance statements at the 75th session of the World Health Organisation Committee for Europe in Copenhagen

www.europeanmealliance.org/emea-news-wh...
#rc75cph #mecfs #EuropeanMEalliance
October 30, 2025 at 2:23 PM
onaalbizu.bsky.social
Tomorrow will be an important day for #MyalgicEncephalomyelitis at #WHOEUROPE #RC75CPH

#EuropeanMEAlliance will be there talking about ME at Ageing, Child and adolescents, and Innovation.

To follow on line
www.who.int/europe/about...
75th session of the WHO Regional Committee for Europe
28–30 October 2025, Copenhagen, Denmark
www.who.int
October 29, 2025 at 2:04 PM
onaalbizu.bsky.social
Vamos!!!
#EncefalomielitisMiálgica tiene voz está semana en la OMS.
DIFUNDE!!

#MyalgicEncephalomyelitis is been heard at WHO EUROPE #RC75CPH by #EuropeanMEalliance
europeanmealliance.bsky.social European ME Alliance @europeanmealliance.bsky.social · Oct 28
This week EMEA is participating in 𝟳𝟱𝘁𝗵 𝘀𝗲𝘀𝘀𝗶𝗼𝗻 𝗼𝗳 𝗪𝗛𝗢 𝗥𝗲𝗴𝗶𝗼𝗻𝗮𝗹 𝗖𝗼𝗺𝗺𝗶𝘁𝘁𝗲𝗲 𝗳𝗼𝗿 𝗘𝘂𝗿𝗼𝗽𝗲 in Copenhagen with ‘ official Non-State Actor accredited’ status
Last year EMEA met with Dr Hans Kluge WHO Regional Director for Europe, to discuss ME and EMEA's plans and strategy euro-me.org/emea-news-wh...
#mecfs
#mecfs | European ME Alliance
𝗧𝗵𝗶𝘀 𝘄𝗲𝗲𝗸 𝗘𝗠𝗘𝗔 𝘄𝗶𝗹𝗹 𝗯𝗲 𝗽𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝘁𝗶𝗻𝗴 𝗶𝗻 𝘁𝗵𝗲 𝟳𝟱𝘁𝗵 𝘀𝗲𝘀𝘀𝗶𝗼𝗻 𝗼𝗳 𝘁𝗵𝗲 𝗪𝗛𝗢 𝗥𝗲𝗴𝗶𝗼𝗻𝗮𝗹 𝗖𝗼𝗺𝗺𝗶𝘁𝘁𝗲𝗲 𝗳𝗼𝗿 𝗘𝘂𝗿𝗼𝗽𝗲 Organised for 28–30 October 2025 in Copenhagen, Denmark EMEA will be putting forward statements to th...
www.linkedin.com
October 29, 2025 at 12:34 PM
europeanmealliance.bsky.social
Postural Orthostatic Tachycardia Syndrome (PoTS) - Awareness Day 25th October and its frequent co-existence with Myalgic Encephalomyelitis #mecfs

www.europeanmealliance.org/news-Q32025-...
#PoTSAwarenessDay #research #EuropeanMEAlliance
On PoTS Awareness Day, we highlight Postural Orthostatic Tachycardia Syndrome (PoTS) and its frequent co-existence with Myalgic Encephalomyelitis (ME)
October 25, 2025 at 7:37 AM
valebodi.bsky.social
The @europeanmealliance.bsky.social calls for its inclusion and universal recognition by the UN among all the other NCD. Recognition of such a disabling neuro immuno metabolic disease is just the first step.
#ME/CFS #UNHLM4 #EuropeanMEAlliance #DisabilityRights #ICDG93.3
September 24, 2025 at 3:23 PM
europeanmealliance.bsky.social
Switzerland is putting in place one of Europe’s first national strategies specifically dedicated to improving care and research for ME/CFS and Long Covid
www.europeanmealliance.org/news-Q32025-...
#mecfs #Longcovid #EuropeanMEalliance
Banner with Swiss flag and red background
September 21, 2025 at 2:06 PM