#POTSawareness
LightNews LightNews
carriekellenberger.bsky.social
What POTS is...
Shortness of breath
Trouble sleeping
Brain fog
Fatigue
Nausea
Bloating
Chest pain
Heart palpitations
Headaches
Blurred vision
Shakiness
Migraines
Dizziness
Abdominal pain
Exercise intolerance
Nutrient deficiencies
Lightheadedness
Poor circulation
Muscle weakness

#POTSAwareness
What POTS actually is... Shortness of breath Trouble sleeping Brain fog Fatigue Nausea Bloating Chest pain Heart palpitations Headaches Blurred vision Shakiness Migraines Dizziness Abdominal pain Exercise intolerance Nutrient deficiencies Lightheadedness Poor circulation Muscle weakness Credit Unknown #POTSAwareness #MySeveralWorlds #Dysautonomia
January 5, 2026 at 2:29 PM
emkwithtism.bsky.social
Self-care day after 3 weeks of being out of commission. 🤧
#audhd #audhdadult #audhder #audhdcommunity #autisticadult #autistic #adhd #adhdadult #disabledcreator #disabledlife #disabled #pots #potssyndrome #potsawareness #pcos #pcoscommunity #endometriosis #endowarrior #migraine #migrainewarrior
December 3, 2025 at 11:23 PM
carriekellenberger.bsky.social
Managing #OrthostaticIntolerance

HYDRATION: 3+ liters of water daily
SALT INTAKE: 7-10 grams per day
COMPRESSION: Waist-high garments/ abdominal binders
DIET: Individualized diets based on specific symptoms/food sensitives
SLEEP: Elevate head by 3-6 inches
Via: MERC
#Dysautonomia #POTSAwareness
#POTSAwareness 👉 ❗I'm adding a disclosure for the salt recommendation as I feel this graphic is misleading slightly. The kind of salt you use is important! You must use Himalayan or Celtic Sea Salt. There are no risks with these salts and they help you hydrate appropriately. DO NOT USE IODIZED TABLE SALT. Salt is an essential element for human health via its role as an electrolyte. Celtic salt has more magnesium and moisture Himalayan salt contains more iron and potassium. Magnesium supports muscle function and hydration, while iron contributes to pink salt's hue. 💙 Managing Orthostatic Intolerance 💙 HYDRATION: Drink at least 3 liters of water daily. SALT INTAKE: 7-10 grams per day (consult with a healthcare provider). COMPRESSION GARMENTS: Waist-high garments or abdominal binders. DIETARY CONSIDERATIONS: Consider individualized diets based on specific symptoms and food sensitives. SLEEP: Elevate the head of the bed by 3-6 inches. Credit: MERC #Dysautonomia #MySeveralWorlds #POTSAwareness #ChronicIllness #OrthostaticIntolerance
November 22, 2025 at 3:43 AM
addictingally.bsky.social
Trying to explain non-restorative sleep is difficult

The best I can come up with is it's like playing Candyland and when you spin you have to move back three spaces instead of forward

Imagine going to sleep for 7-10 hours but waking up feeling worse than when you fell asleep

#POTSawareness
November 3, 2025 at 10:24 PM
longcovidcollect.bsky.social
If you know, you know. 😏

#longcovid #pots #potsawareness
Graphic titled “Life with POTS” on a beige background with brown text and the Long Covid Collective logo in the bottom right corner. The text reads: “Am I able to take a shower today? If yes, am I able to wash my hair without fainting? Should I do dishes or a load of laundry? But if I shower, will I be able to do the dishes or laundry? I will eat first and then decide. …Well, eating wrecked me and now I can’t do anything.”
October 28, 2025 at 9:38 PM
apresj20.bsky.social
💙 Aujourd’hui, pensons à toutes celles et ceux qui vivent avec le #POTS.
Leur force est immense, même quand leur corps les trahit.
Continuons à informer, soutenir, et espérer des avancées scientifiques.

#POTSawarenessDay #POTSawareness #Dysautonomia #Apresj20 #CovidLong
October 25, 2025 at 4:59 PM
apresj20.bsky.social
Aujourd’hui, c’est la journée mondiale de sensibilisation au #POTS = Syndrome de Tachycardie Orthostatique Posturale.
Un trouble du système nerveux autonome qui rend difficile la régulation de la circulation sanguine en position debout.
#POTSawareness #Dysautonomie #STOP
October 25, 2025 at 4:59 PM
mefelag.bsky.social
Vissir þú að...
það er til hópur á Facebook sem heitir POTS Íslendingar?
buff.ly/NKP37I9

#PotsAwareness #ME #MyalgicEncephalomyelitis #MEAwareness #LongCovid #LongCovidAwareness
October 23, 2025 at 4:04 PM
emkwithtism.bsky.social
🪻Favorite cups🪻
•○☆♡☆○•
#pots #potssyndrome #potsawareness #migraine #chronicmigraine #chronicmigraines #chronicmigrainewarrior #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicpain #chronicillnessadvocate #disabledcreator #disabled #disabllityadvocate #cup #cups
August 14, 2025 at 6:16 PM
emkwithtism.bsky.social
🪻Another thing that helps me with managing my POTs symptoms is using mobility aids like a cane, walker, or wheelchair. It helps me to conserve energy & feel more balanced.🪻
•○☆♡☆○•
#pots #potssyndrome #potsawareness #chronicillness #spoonie #disabled #disabledcreator ##audhdcreator
July 11, 2025 at 11:53 PM
beccarourick.bsky.social
I've been dealing with p.o.t.s symptoms since I was in kindergarten. I'm 25 and just now working on getting diagnosed. But it's so discouraging when I have a bad episode at work and co-workers or higher-ups think I'm faking just cause I'm 25 and don't look disabled. #potsawareness
June 29, 2025 at 11:10 PM
saltshakerannie.bsky.social
#POTS #invisibledisabilities #dysautonomia #potsawareness
June 21, 2025 at 10:32 AM
lynkplaysgames.bsky.social
LET'S MAKE THESE INVISIBLE ILLNESSES VISIBLE! 🤟🏻❤️
#invisibleillnesssucks #invisiblediseases #invisibleillness #invisibledisability #copdawareness #copd #potsawareness #POTS #Diabetes #ehlersdanlossyndrome #ehlersdanlos #eoe #eoeawareness #endowarrior #endometriosis #addisondisease
#ibdawareness
June 7, 2025 at 10:19 PM
lynkplaysgames.bsky.social
Invisible illnesses suck! I'm trying to make invisible illnesses visible. If you or anyone you know struggles with any check out my redbubble account!
#copdawareness #copd #pots #potsawareness #invisibleillness #invisiblediseases #invisibledisability #diabetesawareness #type1warrior #type2diabetes
June 5, 2025 at 5:19 PM
saltshakerannie.bsky.social
Lots of folks think being disabled means you need a walker or wheelchair. There are invisible disabilities. #POTS #Potsies #potsawareness #invisibledisabilities
June 3, 2025 at 8:36 PM
ryan-digital.bsky.social
#mecfswarrior #MECFS #mecfsawarenessmonth #invisibleillness #pots #potsawareness #potssyndrome #longcovid #longcovidawareness #longcovidrecovery #volunteer #volunteering #community #givebacktothecommunity #giveback #dontgiveup
May 31, 2025 at 2:10 PM
memewitch.bsky.social
I updated my throne wishlist for more P.O.T.S. stuff for those who don’t know I was recently diagnosed and at this time can’t afford to get things to help manage it ☹️🩷 thank you!

#potsawareness
May 24, 2025 at 8:58 PM
slowestuffreviews.bsky.social
I thought it was just a fun little thing, this foot scrubber mat, but it is sorta genius! #shower #showertok #showerroutine #footscrubber #pots #potssyndrome #potsawareness #showersafety
May 16, 2025 at 3:01 PM
therebelspoonie.bsky.social
POTS is fun! This was after sitting for a few minutes before coming indoors from standing to separate my strawberry plants. It had been around 200 BPM. #posturalorthostatictachycardiasyndrome #potsawareness #longcovid
March 24, 2025 at 1:11 PM
saltshakerannie.bsky.social
#pots #chronicillness #invisibleillness ##potsawareness #dysautonomia #mysteryillnesses
chronicillness.bsky.social Chronic Illness Humor @chronicillness.bsky.social · Mar 17
Chronic illness is...
itsachronicthing_ chronic illness is trying to work out how many things you will have to skip to be able to do that thing you really have to do in 2 weeks time but also ensuring that you will have time to recover after that thing before you have to do the next thing source: itsachronicthing on Insta
March 17, 2025 at 1:25 PM