"Living in darkness": #SeneddMEDebate shines light on Wales' "invisible" ME crisis.
#SevereME #MillionsMissing
nation.cymru/news/living-...
#SevereME #MillionsMissing
nation.cymru/news/living-...
‘Living in darkness’: Senedd shines light on Wales’ ‘invisible’ ME crisis
Joe Woods Thousands of people in Wales are “invisible” to society and living behind blackout blinds – unable to bear light, sound or touch – the Welsh Parliament has heard. Plaid Cymru’s Adam Price sh...
nation.cymru
December 12, 2025 at 12:45 PM
"Living in darkness": #SeneddMEDebate shines light on Wales' "invisible" ME crisis.
#SevereME #MillionsMissing
nation.cymru/news/living-...
#SevereME #MillionsMissing
nation.cymru/news/living-...
The Welsh Parliament debate on ME/CFS is now on YouTube. Adam Price MS led the debate, calling for better care, recognition, and support across Wales
youtu.be/akICL-DXfp8?...
Link the motion
record.senedd.wales/Motion/8884
youtu.be/akICL-DXfp8?...
Link the motion
record.senedd.wales/Motion/8884
Welsh Parliament Debate on ME/CFS December 2025
YouTube video by Broken Battery
youtu.be
December 10, 2025 at 6:52 PM
Correction. They keep updating it, and it's now paragraph 183.
🙄
record.senedd.wales/Plenary/15471
#SeneddMEDebate
🙄
record.senedd.wales/Plenary/15471
#SeneddMEDebate
Plenary 10/12/2025 - Welsh Parliament
The Welsh Parliament is the democratically elected body that represents the interests of Wales and its people.
record.senedd.wales
December 10, 2025 at 6:37 PM
Correction. They keep updating it, and it's now paragraph 183.
🙄
record.senedd.wales/Plenary/15471
#SeneddMEDebate
🙄
record.senedd.wales/Plenary/15471
#SeneddMEDebate
Jeremy Miles is now responding for the Welsh Government.
He confirms that Adferiad has been widened to include pwME.
But he says little about what they intend to do to meet the needs of those with severe and very severe ME.
#SeneddMEDebate
He confirms that Adferiad has been widened to include pwME.
But he says little about what they intend to do to meet the needs of those with severe and very severe ME.
#SeneddMEDebate
December 10, 2025 at 4:20 PM
Jeremy Miles is now responding for the Welsh Government.
He confirms that Adferiad has been widened to include pwME.
But he says little about what they intend to do to meet the needs of those with severe and very severe ME.
#SeneddMEDebate
He confirms that Adferiad has been widened to include pwME.
But he says little about what they intend to do to meet the needs of those with severe and very severe ME.
#SeneddMEDebate
December 10, 2025 at 4:02 PM
Julie Morgan MS pays tribute to ME sufferers.
She remembers the Millions Missing campaigns of the past.
[So one wonders why has it taken so long for the Senedd to consider a proper debate for action.]
#SeneddMEDebate
She remembers the Millions Missing campaigns of the past.
[So one wonders why has it taken so long for the Senedd to consider a proper debate for action.]
#SeneddMEDebate
December 10, 2025 at 4:00 PM
Julie Morgan MS pays tribute to ME sufferers.
She remembers the Millions Missing campaigns of the past.
[So one wonders why has it taken so long for the Senedd to consider a proper debate for action.]
#SeneddMEDebate
She remembers the Millions Missing campaigns of the past.
[So one wonders why has it taken so long for the Senedd to consider a proper debate for action.]
#SeneddMEDebate
Many Senedd Members are speaking about their constituents that are affected by ME - either themselves or their partners, spouses, parents, children.
Echoing the statements that NICE guidance still isn't being properly implemented in Wales, and there is no provision for #SevereME.
#SeneddMEDebate
Echoing the statements that NICE guidance still isn't being properly implemented in Wales, and there is no provision for #SevereME.
#SeneddMEDebate
December 10, 2025 at 3:52 PM
Many Senedd Members are speaking about their constituents that are affected by ME - either themselves or their partners, spouses, parents, children.
Echoing the statements that NICE guidance still isn't being properly implemented in Wales, and there is no provision for #SevereME.
#SeneddMEDebate
Echoing the statements that NICE guidance still isn't being properly implemented in Wales, and there is no provision for #SevereME.
#SeneddMEDebate
Adam Price asks the Welsh Government to respond formally to the Coroner's Prevention of Future Deaths report.
And to extend the capability of Adferiad to cover those with severe ME.
#SeneddMEDebate
And to extend the capability of Adferiad to cover those with severe ME.
#SeneddMEDebate
December 10, 2025 at 3:40 PM
Adam Price asks the Welsh Government to respond formally to the Coroner's Prevention of Future Deaths report.
And to extend the capability of Adferiad to cover those with severe ME.
#SeneddMEDebate
And to extend the capability of Adferiad to cover those with severe ME.
#SeneddMEDebate
#SeneddMEDebate
Adam Price introduces the debate on ME.
63,000 people live with ME in Wales.
Watch here: www.senedd.tv/Meeting/Live...
Adam Price introduces the debate on ME.
63,000 people live with ME in Wales.
Watch here: www.senedd.tv/Meeting/Live...
Live-Plenary-10/12/2025
The Senedd is the democratically elected body that represents the interests of Wales and its people, makes laws for Wales, agrees Welsh taxes and holds the Welsh Government to account.
www.senedd.tv
December 10, 2025 at 3:31 PM
#SeneddMEDebate
Adam Price introduces the debate on ME.
63,000 people live with ME in Wales.
Watch here: www.senedd.tv/Meeting/Live...
Adam Price introduces the debate on ME.
63,000 people live with ME in Wales.
Watch here: www.senedd.tv/Meeting/Live...
Looks like the Plenary session is running a bit behind.
#SeneddMEDebate is due to start at 3.25pm, but they're still on the Topical Questions.
business.senedd.wales/ieListDocume...
#SeneddMEDebate is due to start at 3.25pm, but they're still on the Topical Questions.
business.senedd.wales/ieListDocume...
Agenda for Plenary on Wednesday, 10 December 2025, 13.30 | Senedd
All published information, including reports, for Agenda for Plenary on Wednesday, 10 December 2025, 13.30
business.senedd.wales
December 10, 2025 at 3:23 PM
Looks like the Plenary session is running a bit behind.
#SeneddMEDebate is due to start at 3.25pm, but they're still on the Topical Questions.
business.senedd.wales/ieListDocume...
#SeneddMEDebate is due to start at 3.25pm, but they're still on the Topical Questions.
business.senedd.wales/ieListDocume...
The Senedd.TV link for the Plenary session on Wednesday 10 December (starts 1.30pm) is here: www.senedd.tv/Meeting/Live...
#SeneddMEDebate
#SeneddMEDebate
Live-Plenary-10/12/2025
The Senedd is the democratically elected body that represents the interests of Wales and its people, makes laws for Wales, agrees Welsh taxes and holds the Welsh Government to account.
www.senedd.tv
December 10, 2025 at 11:16 AM
The Senedd.TV link for the Plenary session on Wednesday 10 December (starts 1.30pm) is here: www.senedd.tv/Meeting/Live...
#SeneddMEDebate
#SeneddMEDebate
Amendment added:
"To develop a strategic approach to research by supporting Wales to host one of the five proposed UK hubs for collaborative translational research into pathological mechanisms that cause ME, long COVID and related post-acute infection conditions."
#SeneddMEDebate
"To develop a strategic approach to research by supporting Wales to host one of the five proposed UK hubs for collaborative translational research into pathological mechanisms that cause ME, long COVID and related post-acute infection conditions."
#SeneddMEDebate
Agenda for Plenary on Wednesday, 10 December 2025, 13.30 | Senedd
All published information, including reports, for Agenda for Plenary on Wednesday, 10 December 2025, 13.30
business.senedd.wales
December 10, 2025 at 10:52 AM
Amendment added:
"To develop a strategic approach to research by supporting Wales to host one of the five proposed UK hubs for collaborative translational research into pathological mechanisms that cause ME, long COVID and related post-acute infection conditions."
#SeneddMEDebate
"To develop a strategic approach to research by supporting Wales to host one of the five proposed UK hubs for collaborative translational research into pathological mechanisms that cause ME, long COVID and related post-acute infection conditions."
#SeneddMEDebate