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~ Subset of individuals with ME have anatomic abnormalities such as Chiari malformation, cranio-cervical instability (CCI), Atlanto axial instability (AAI), spinal stenosis & tethered cord syndromes

#myalgicencephalomyelitis
#Chiari #CCI #Tetheredcord #spinalstenosis

Hard to believe it’s been six years since my neurosurgery for a rare disease. I often think about how differently things could have turned out — and I’m endlessly grateful to still be able to walk, even when it’s difficult, and to work in DC doing what I love. #TetheredCord #RareDisease #ChronicPain

Dr. Clair Francomano explains 3 lesser-known neurological complications linked to #EhlersDanlosSyndrome (EDS): #Craniocervicalsyndrome, #tetheredcord, and #smallfiberneuropathy. youtu.be/K11wNtPn128?...

One child through spinal surgery for #tetheredcord. Second one March 14th. Thank God I no longer work for the government. I don’t think I could go into the office with this…

😱 sowas geht auch?! Einmal reicht doch! Ich hab ganz unten mit Tetheredcord. Das wurde einmal operiert. Hat nur semi geholfen, mehr kann man nicht machen. Ja, diese Verspannungen... Mä... Die Badewanne ist mein bester Freund.
Heute Morgen scheint mein Magen etwas entspannter zu sein. 🥳

It’s been a rough few days. After my #hEDS diagnosis, I knew there were associated syndromes, but I wasn’t expecting to fill the entire #EDS bingo card. Even harder being a medical provider with #heds. I know too much. #disability #NEISvoid #CCI #AAI #tetheredcord #POTS #MCAS

I feel like I spend my life with icepacks wrapped around my head, and walking on tiptoes to relieve the 'squashed brain' feeling. Urg. #MEcfs #MEspine #TetheredCord #CCI

Welcome new followers!

We look forward to sharing #EhlersDanlosSyndrome #EDS #Hypermobility #hEDS #HSD and related info with you. Including:

#MCAS #MCD #Mastocytosis #Masto #POTS #Dysautonomia #CCI #TetheredCord #Fibro #Zebras #NEISvoid #MedEd #MedSky #Genetics #Doctors and more.

#Tetheredcord syndrome is a type of #SpinaBifida
The canadian medical system is very frustrating, my daughter has this diagnosis. She has been a guest at children's hospital on and off since she was 4 weeks old. Yet we do not qualify for the disability child tax, because she is doing well.

^ the author is my tethered cord surgeon btw, if you’re looking for an expert I highly recommend Petra Klinge at Rhode Island Hospital

#TetheredCord #EDS #MECFS #MEspine #LongCovid #POTS #MCAS