Firstname Lastname #FuckTrump
@notunpackedyet.bsky.social
1.1K followers 650 following 1.8K posts
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
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notunpackedyet.bsky.social
This is a playbook for modern times, it seems.
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peterjukes.bsky.social
For more on Nadia Sass/Borodi's role at the heart of a pan-European Russian influence machine, read more here

desk-russie.eu/2024/09/08/n...
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robertscotthorton.bsky.social
Trump said he deserved a cut for brokering the TikTok deal, and at once there was agreement that his son Baron would have a top executive slot... though he hasn't asked for it, and has no apparent qualifications to hold it. This is how Trump 2.0 works. www.telegraph.co.uk/us/news/2025...
Barron Trump tipped for top TikTok job
US president’s 19-year-old son could be appointed to the app’s board
www.telegraph.co.uk
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markhamillofficial.bsky.social
ONE WEEK FROM TODAY: Make your voices heard. Join us in a peaceful protest across our country against the most corrupt, deceitful & criminal Administration in U.S. History. We say NO KINGS, NO CROOKS, NO SPRAY-TAN CONMAN! 👎

Check for a location near you at: www.nokings.org

#BeThere 👍
No Kings
As the president escalates his authoritarian power grab, the NO KINGS non-violent movement continues to rise stronger. We are united once again to remind the world: America has No Kings and the power ...
www.nokings.org
notunpackedyet.bsky.social
Quick Google suggests it's a myasthenia gravis drug, which is interesting given benefits of Mestinon to LC, ME POTS etc etc.
thesicktimes.org
A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5
A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White." "For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants
 Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White
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chrischirp.bsky.social
After a long pause, I've just done another England Covid & NHS update as we head into the autumn/winter season.

TLDR: we're in a significant Covid wave now, the NHS is stretched, get boosted if you're eligible.

christinapagel.substack.com/p/england-is...
England is now experiencing a significant Covid wave, after 10 months of relative quiet
The latest Covid situation in England and a look at where NHS services are as we head into winter
christinapagel.substack.com
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greenpeaceuk.bsky.social
For the first time, renewable energy has OVERTAKEN coal in global electricity production!!

BAD NEWS for the fossil fuel industry, BRILLIANT news for the planet! 🌍
Renewables produced more electricity than coal for the first time on record in the first half of 2025. Line graph compares global generation in TWh from Jan-Jun of each year, from 2019 to 2025. Renewables has steadily increased and now overtaken coal in 2025. 
 Source: Monthly electricity data, Ember
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greenpeace.org
🥩 High steaks for the Amazon 🔥 A Greenpeace Brazil investigation shows cattle raised illegally inside Indigenous land ended up linked to JBS supply chains. Governments must act now, profit can’t come before life 👉 cookingtheplanet.org #RespectTheAmazon #StopBigAg
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jeremysmith.bsky.social
The Met keeping us safe from serious crime.
aaliyahxx.bsky.social
Watch | A man was arrested in London for holding up The New World magazine, featuring the "sign of the times" with the words:

"I oppose genocide. I support Palestine Action"
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davetuller1.bsky.social
Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
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ottoenglish.bsky.social
Twelve Jobs Nigel has earned over £1 million in additional income since the general election.

To understand the scale of it, since the July 2024 election he's earned roughly £100k more as a brand ambassador for Direct Bullion than Starmer gets as PM.

www.mirror.co.uk/news/uk-news...
Nigel Farage earns over £1m from 12 'second jobs' - check how much your MP earns
The Reform UK leader's most lucrative second jobs include hosting on GB News, serving as a brand ambassador for Direct Bullion and recording videos for Cameo
www.mirror.co.uk
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jessothomson.co.uk
It cannot be made clearer.

If you continue to support the Harry Potter franchise in any way, you are directly funding the removal of trans people's human rights in the UK.
JK Rowling pledges to keep up fight against SNP trans policies

Author vows to bankroll campaigners after Scottish government fails to pay group's legal fees in Supreme Court equality case
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whstancil.bsky.social
Just openly cheering the destruction of any representation of gay people in public space. They think their power is totally unrestricted, and the entire country will support them rolling back society to the 1950s, or maybe the 1850s
notunpackedyet.bsky.social
Thanks v much - and omg. So much of this is sick and twisted. Tells us so much about how we got here.
notunpackedyet.bsky.social
Ooooooh holy cow! Don't suppose you can remember the title, so I can search and bookmark that? That's shockingly awful.
notunpackedyet.bsky.social
2, definitivamente. Made me stop and think.
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newseye.bsky.social
If you had written this as a fake news headline a year ago, you would be called hysterical.

Reuters today. Fascism.
Reuters story headlines:

Trunp calls for jailing Democratic leaders as troops prepare for Chicago deployment
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greenparty.org.uk
As revealed by Channel 4 News’ documentary, UK arms exports to Israel have hit record highs — £408,000 in June and £316,000 in September.

The government says it’s restricting sales, but the data says otherwise.

The UK must end all arms sales to Israel now.
A bold black-and-white Green Party graphic with the slogan “REAL HOPE. REAL CHANGE.” at the top. The main message in large capital letters reads “END ALL ARMS SALES,” with “END” highlighted in green and underlined. The Green Party logo and name appear at the bottom.
notunpackedyet.bsky.social
Whilst I am heartbroken at what a tool Streeting is, my hope lies in the science. I hate the hang up on having a diagnostic test but, once we have this, it's v hard to say it's psychosomatic and to talk about over diagnosis. It becomes firmer ground for benefits and demanding research funding.
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
notunpackedyet.bsky.social
Yup, read a linkedin post by someone who's had MS for a decade. Terrible as MS is, this person was going on about having run 3 marathons in that time and all these career things. Like, #MEcfs, hello? I'd rather have MS because I'd live more, doctors would listen and there are medications.
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georgemonbiot.bsky.social
On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.
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georgemonbiot.bsky.social
This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.
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georgemonbiot.bsky.social
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
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georgemonbiot.bsky.social
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?