Dr Elisa Perego
@elisaperego78.bsky.social
5.8K followers 80 following 1.1K posts

#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |

Communication & Media Studies 35%
Psychology 20%
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elisaperego78.bsky.social
My new research is out

"A Case Definition of a New Disease: A Review of the US Working Definition (USG) and 2024 NASEM Definition for Long COVID"

I use two US #LongCovid case definitions as case studies for a broader discussion of SARS-CoV-2 sequelae
Review article by Elisa Perego on Long Covid and two LC case definitions in the US

elisaperego78.bsky.social
Bibliography on #LongCovid grassroots origin in 2020 e.g.

Callard and Perego 2020[2021]

Perego et al 2020a, 2020b

Turner et al 2023

Perego 2023; in press

elisaperego78.bsky.social
An estimated 400 millions had experienced #LongCovid by 2023. Collective action by such a huge number of people would put extreme pressure on policymakers. An existential threat to those who minimize SARS-CoV-2 spread and the damage which comes from unrelenting Covid spread

elisaperego78.bsky.social
Of course, #LongCovid started this way in 2020. A collective grassroots movement which spread across different countries in a few months. As mass infection dynamics took hold of pandemic responses, the number of people living with LC grew steadily.

Reposted by Julia Lynch

elisaperego78.bsky.social
A kind reminder that a strong, collective, grassroots #LongCovid movement would be an existential threat to those who pushed mass infection dynamics. Hence, the attacks on the name itself, the concept, the links between the disease and a pandemic driven by a SARS virus

elisaperego78.bsky.social
“Chest pain became respiratory discomfort, my breath dried up.”

#LongCovid experiences in the French patient community (#apresJ20)

bmchealthservres.biomedcentral.com/articles/10....
Individuals’ perceptions of Long Covid: a phenomenological approach to an online health community narratives - BMC Health Services Research
In 2023, it was estimated that at least 65 million individuals had Long Covid (LC). Yet the literature reveals a lack of knowledge on how individuals perceive and experience LC symptoms. This study aims to explore how individuals with Long Covid describe their symptoms across physical, cognitive, emotional, social, and behavioural dimensions, and to analyse these experiences through the lens of the Symptom Management Theory (SMT) using a phenomenological and netnographic approach to spontaneous patient narratives. A netnographic study was conducted on 63 selected participants in France from 19 April 2020 to 31 December 2022. Narratives were first analysed phenomenologically using TROPES software. Verbatims were then coded through content analysis with NVivo12Pro and organised according to the SMT dimensions of symptom experience. The study revealed that the testimonies of Long Covid patients are characterized by an argumentative, personal, and chronological discourse, highlighting the intensity of persistent symptoms and their significant impact on daily life. The most frequent symptoms identified include bodily pain, respiratory issues, chronic fatigue, as well as sensory and cognitive disturbances, along with significant emotional and social challenges. Our study demonstrates the profound and multidimensional impact of Long Covid on patients’ daily lives, highlighting the need for a holistic, integrated approach to its management, considering affective, cognitive, behavioural, physical, and social dimensions to improve patients’ quality of life. Understanding the lived experiences of LC patients can guide healthcare services in providing more targeted, empathetic, and effective support.
bmchealthservres.biomedcentral.com

elisaperego78.bsky.social
Both the Shanghai and the Beijing tennis tournaments have been marred by illness, withdrawals, upsets, and players collapsing or experiencing severe physical distress on court. The hot and humid weather of Shanghai has been highlighted in particular (discussed this more on X/Twitter)

elisaperego78.bsky.social
Tennis star and defending champion Jannik Sinner was forced to withdraw from Shanghai after suffering brutal cramping on court. He withdrew from the Cincinnati final in August because of a "virus" and struggled with GI issues and cramps last week in Beijing

www.ilpost.it/2025/10/06/t...
Il secondo ritiro in due mesi, per Jannik Sinner - Il Post
A causa dei crampi ha abbandonato il Masters 1000 di Shanghai, giocato in un clima caldo e afoso
www.ilpost.it

elisaperego78.bsky.social
The Covid pandemic hasn't ended by the way

elisaperego78.bsky.social
SARS-CoV-2 is airborne. It spreads and can linger in the air, a bit like cigarette smoke. High quality masks/respirators are critical to prevent infection from this dangerous SARS virus and other airborne pathogens

elisaperego78.bsky.social
Thanks very much for sharing. Will have a look asap

Reposted by Elisa Perego

dfourtune.bsky.social
Très heureux de vous présenter le nouveau site de @winslowsp.bsky.social , plus beau et plus efficace pour comprendre que le #COVID N'EST PAS FINI et qu'il faut mettre en place une politique de santé publique inclusive, équitable et fondée sur la science 👇
winslow.fr
Winslow Santé Publique - Accueil
Winslow Santé Publique est une association qui lutte contre l’invisibilisation de l’épidémie de COVID et de ses conséquences délétères sur la santé publique.
winslow.fr

Reposted by Elisa Perego

longcovidkids.bsky.social
Long COVID exhibition co-produced with community opens:

“One of the key findings of our research was that people who are living with Long COVID want to raise awareness of this ongoing public health crisis, especially as COVID continues to circulate,”

bit.ly/46TKbm8

@longcovidsupport.bsky.social

elisaperego78.bsky.social
(More / will continue to update on X/Twitter)

elisaperego78.bsky.social
Medjedovic suffered from multiple health setbacks during his match, taking several medical timeouts (up to fourteen minutes of interruptions in total) from apparent injuries to malaise, before withdrawing. Comesana collapsed on court, possibly because of the heat

sport.sky.it/tennis/video...
Che caldo a Shanghai! Malore per Comesana: Musetti lo aiuta così. VIDEO
L'episodio non è passato inosservato
sport.sky.it

elisaperego78.bsky.social
Shanghai is also proving challenging for many players, with the hot and humid conditions cited as a factor in withdrawals and illness. Several top players have withdrawn with injury or lost unexpectedly in the first rounds

elisaperego78.bsky.social
The whole Beijing tennis tournament has been marred with injuries and illness on both the male and female sides, with several players including major stars withdrawing just before or during their matches

www.thetennisgazette.com/news/the-chi...
The China Open suffers disastrous day midway through the tournament as fans seriously lose out
It has been far from ideal for the tournament...
www.thetennisgazette.com

elisaperego78.bsky.social
Former World number 1 D. Medvedev withdrew from Beijing suffering with dizziness, nausea and cramping during his match with L.Tien. Medvedev had won his prior match with top Zverev, apparently struggling with back pain (Medvedev has now won in Shanghai)

www.letsplaytennis.co.uk/daniil-medve...
Medvedev's sudden match retirement drama
Daniil Medvedev shaking Learner Tien's hand.
www.letsplaytennis.co.uk

elisaperego78.bsky.social
World number 2 Jannik Sinner, who eliminated Atmane in Beijing, reported gastrointestinal problems, cramping and drops in form during matches, although he managed to win Beijing in the end. He withdrew from Cincinnati due to a "virus" a few weeks ago

www.puntodebreak.com/en/2025/09/3...
Sinner reassures: "I had diarrhea the past few days and lost some liquid, nothing serious"
Jannik Sinner, world number two, reveals in a press conference that he is feeling well despite experiencing discomfort in the past few days.
www.puntodebreak.com

elisaperego78.bsky.social
"I was trembling. I couldn't breathe. I didn't remember where I was"

Rising tennis star T. Atmane withdraws from Shanghai after collapsing on court. He last played a few days ago in Beijing, a tournament plagued with injuries, illness and withdrawals /

www.tennisworlditalia.com/tennis/news/...
Malore Terence Atmane a Shanghai: "Tremavo e non riuscivo a respirare"
La storia pubblicata su Instagram dal tennista francese dopo il ritiro a Shanghai
www.tennisworlditalia.com