Andrew Gifford
@andrewgiffordphoto.bsky.social
2.9K followers 1.2K following 2.9K posts
Hello, welcome :) This Invisible Illness: my first long form documentary photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
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andrewgiffordphoto.bsky.social
Here but not here - from my ME/CFS photo project

glass.photo/andrewgiffor...

ALT: Colour photo of a caucasian adult male's head just about visible through foggy blue-grey glass, as he peers in through the murk

#DocumentaryPhotography #pwME #MECFS #LongCovid
Here but not here:
Andrew Gifford on Glass
glass.photo
andrewgiffordphoto.bsky.social
Thanks John, for continuing to cover this shit show.
Reposted by Andrew Gifford
jameskennedy.bsky.social
I agree, Stop The Boats

Bloody oligarchs coming over 'ere on their mega yachts, stealing our public assets, influencing our government, exploiting our work force, dumping their waste into our rivers & expecting the tax payer to foot the bill for their billion pound government contracts & bail outs
Reposted by Andrew Gifford
abrokenbattery.bsky.social
New article from the disability news service mentions Wessely’s appointment
Reposted by Andrew Gifford
germainehypher.bsky.social
My reflexologist knows how I surround myself with items from the outside world as much as possible & brought round some feathers for me. I felt inspired to have a go at drawing one of them using soft pastels - here’s the result.

#art #drawing #pastel #chronicillness #me/cfs #mecfs #nature 🪶
A drawing, using soft pastels on black paper, of a pigeon feather.
Reposted by Andrew Gifford
jasonhazeley.bsky.social
It’s dispiriting that this is what getting a COVID vaccination now looks like to this chronic asthmatic.
andrewgiffordphoto.bsky.social
I've no idea, but maybe one of you lovely lot have a hunch?

#Mitodicure. At least, the name sounds promising!
tomkindlon.bsky.social
ME/CFS: Is there a comprehensive explanation for this long-misunderstood illness?

www.irishtimes.com/health/your-...

From the October 2025 AMMES Newsletter

#MEcfs #CFS #PwME
ME/CFS: Is there a comprehensive explanation for this long-misunderstood illness?
Wirth and Scheibenbogen’s unifying model hypothesis considers a key role for autoantibodies against blood flow-related cellular receptors in skeletal muscle and the brain.
The refinement of Wirth and Scheibenbogen’s unifying model hypothesis has led to a therapeutic concept: a drug called Mitodicure, which is “a novel molecule to treat patients with exertional intolerance and post-exertional malaise (PEM)”. Steps are under way to attract funding for clinical trials.
Read more here>>
Reposted by Andrew Gifford
tomkindlon.bsky.social
Please Help David Tuller @davetuller1.bsky.social , Our Champion!

crowdfund.berkeley.edu/project/47768

From the October 2025 AMMES Newsletter

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
Please Help David Tuller, Our Champion!

Photo of David Tuller  

Last spring, David successfully raised money through Crowdrise in order to continue investigating and blogging about the PACE trial. The funds went to the School of Public Health at the University of California, Berkeley, which created a position for David to continue his investigative work. Now the funds have run out, and Tuller has to depend on the generosity of our community to continue his work.
Reposted by Andrew Gifford
heykidsshop.bsky.social
NEW! from heykidsrocknroll.etsy.com
My Little PLAGUE DOCTOR!
It's Octoberrific fun!
A paper model of a plague doctor. He is dressed in black with a long-nosed white mask and a white satin ribbon on the end of a cocktail stick cane The same model but on a red background with some atmospheric fairy lights
Reposted by Andrew Gifford
andrewgiffordphoto.bsky.social
It's a bit soppy, but just about keeps it within my emotionally stunted threshold.
Reposted by Andrew Gifford
kacheston.bsky.social
This year, I've been lucky enough to work with @actionforme.bsky.social, as part of a collaboration between Action for ME and @durhamimh.bsky.social. (More on this soon!)

For now, this reflective post explains my motivations - and what I believe a collaborative, cross-sector approach can achieve.
Reposted by Andrew Gifford
chrischirp.bsky.social
We found that the UK’s top scientific institutions, from the Met Office to the UK Health Security Agency, have inadequate institutional defences.

If an incoming government wanted to weaken the role of science and evidence in policy making, it could do so shockingly fast. 2/11
andrewgiffordphoto.bsky.social
Ah, sorry to hear that re sensitivity Ella. Fwiw I gather the Oxalo firm is quite responsive to questions, so may have some pointers re tapering in. Took me three ish weeks to see the first improvements in cognition and capacity, at three capsules daily. You may need to go slower, but I'm no expert.
andrewgiffordphoto.bsky.social
I take this, plus LDN and a palmful of mitochondrial energy/function supplements daily. Breath holds also key. I'd now not want to be without any of them, but how unique this is to me I of course don't know. I'd love to hear how you/others find it, if you do give it a go.
andrewgiffordphoto.bsky.social
Hi Ella, I'm about three months in and it is really helping, so far. Taken me from upper to mid Moderate severity. My ME is mitochondrial in nature (it seems), so I seem a prime candidate. I take three capsules daily, more is better but then heartburn. There is a discount code, if you search online.
Reposted by Andrew Gifford
davetuller1.bsky.social
Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
Reposted by Andrew Gifford
heatherfeather.bsky.social
one of the biggest names in trans healthcare discrimination is also one of the biggest names in ME/CFS healthcare discrimination (Simon Wessely) & as a trans person with ME/CFS i'm begging all of us to make this intercommunity connection
andrewgiffordphoto.bsky.social
I have zero respect for his 'science' or his character. His association with any initiative is for me a reliable indicator of a vulnerable group of people about to be further exploited.