Carrie Anna McGinn
@carriemcginn.bsky.social
3.4K followers 2.4K following 33 posts
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
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carriemcginn.bsky.social
May 12th is International #MEAwarenessDay.

Half of people with Long COVID develop #MyalgicEncephalomyelitis (ME)... including me.

Since the pandemic, millions of new people worldwide have developed #MECFS, a complex, chronic, multisystem and disabling illness with no treatments and no cure.

1/
Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Canadian COVID Forecast Aug 30 - Sep 12 2025
CANADA

High [No change]

About 1 in 65 people in Canada are CURRENTLY infected.

Compared to lowest point of pandemic in Canada:

-Infections ~7.2 higher
-Long COVID ~7.7 higher
-Hospitalizations ~10.7 higher
-Deaths ~10.9 higher
Reposted by Carrie Anna McGinn
patientled.bsky.social
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

🗓️ Register: us02web.zoom.us/webinar/regi...

#LongCOVID
infographic on the PLRF with an address to register at bit.ly/PLRF-2025 list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more
Reposted by Carrie Anna McGinn
uoftcovidrehab.bsky.social
@patientled.bsky.social is hosting a free webinar next week, where the results and latest progress from biomedical studies funded by the Patient-Led Research Fund (PLRF) will be presented!

When: Thursday July 9th, 2025 | 1PM - 5PM ET
Where: Register on Zoom us02web.zoom.us/webinar/regi...
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Prévisions de COVID pour le Canada : JUN 28-JUL 11, 2025

QUÉBEC

MODÉRÉ (stable)

Environ 1 personne sur 115 est infectée

Par rapport au point le plus bas de la pandémie au Canada :

-Infections ~5X🔺
-COVID longue ~7X🔺
-Hospitalisations ~5X🔺
-Décès ~5X🔺
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Canadian COVID Forecast Jun 28-Jul 11, 2025

CANADA

MODERATE (no change)

About 1 in every 120 people infected

Compared to lowest point of pandemic in Canada:

-Infections ~5X higher
-Long COVID ~7X higher
-Hospitalizations ~5X higher
-Deaths ~4X higher
This image describes the Canadian COVID Forecast for the fourteen-day period between Jun 28-Jul 11, 2025, which is produced by COVID-19 Resources Canada. Canada’s COVID Forecast outlook is  MODERATE (no change) with a COVID INDEX SCORE of 4.8
About 1 of every 120 people is infected.
Estimated infections this week: 230,675-301,825
What these numbers mean: MODERATE 1-5, HIGH 5-10, VERY HIGH 10-15, SEVERE >15 COMPARED TO THE LOWEST POINT IN THE COVID PANDEMIC IN CANADA
How much higher are key indicators compared to the lowest point in the COVID pandemic in Canada?
Waste water, infections: HIGH; 5.1X higher
Long COVID estimate: HIGH; 6.5X higher
Hospitalizations, ICU: HIGH; 5.1X higher
Deaths: MODERATE; 4.4X higher
HOW TO HELP:
EVERYONE:
UPDATE vaccines every 6 months
WEAR N95-type masks

Who is HIGH RISK?
People 60 and older, babies < 1 year, pregnant
ALL AGES: immunocompromised OR medically at-risk OR no vaccine or infection in the last 6 months
Recommendations are based on the COVID-19 Risk Index from the Peterborough ON Public Health Unit
COVID-19 Resources Canada is a grassroots organization of volunteer scientists supporting Canadian COVID responses. Sources, data and methods for the COVID Index are available at www.Covid19Resources.ca
Reposted by Carrie Anna McGinn
batemanhornecenter.bsky.social
How do you pace when daily tasks like showering trigger PEM?
This MERC video breaks it down—ADL tips, energy buckets, OT vs PT & more.
Watch Now: loom.ly/VeNUq7w
💙 Donate: loom.ly/KiU4n_4
@openmedf.bsky.social #MERC #MECFS #PEM #Pacing #LongCOVID
Staying within Your Energy Envelope by Modifying Tasks
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
loom.ly
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Prévisions de COVID pour le Canada : MAI 10-23, 2025

QUÉBEC

ÉLEVÉ (stable)

Environ 1 personne sur 134 est infectée

Par rapport au point le plus bas de la pandémie au Canada :

-Infections ~8X🔺
-COVID longue ~6X🔺
-Hospitalisations ~11X🔺
-Décès ~11X🔺
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Canadian COVID Forecast May 10-23, 2025

CANADA

HIGH (no change)

About 1 in every 134 people infected

Compared to lowest point of pandemic in Canada:

-Infections ~8X higher
-Long COVID ~6X higher
-Hospitalizations ~11X higher
-Deaths ~11X higher
This image describes the Canadian COVID Forecast for the fourteen-day period between May 10-23, 2025, which is produced by COVID-19 Resources Canada. Canada’s COVID Forecast outlook is  HIGH (no change) with a COVID INDEX SCORE of 10.0
About 1 of every 134 people is infected.
Estimated infections this week: 207,450-323,400
What these numbers mean: MODERATE 1-5, HIGH 5-10, VERY HIGH 10-15, SEVERE >15 COMPARED TO THE LOWEST POINT IN THE COVID PANDEMIC IN CANADA
How much higher are key indicators compared to the lowest point in the COVID pandemic in Canada?
Waste water, infections: HIGH; 8.1X higher
Long COVID estimate: HIGH; 5.9X higher
Hospitalizations, ICU: VERY HIGH; 11.1X higher
Deaths: VERY HIGH; 11.2X higher
HOW TO HELP:
EVERYONE:
UPDATE vaccines every 6 months
WEAR N95-type masks

Who is HIGH RISK?
People 60 and older, babies < 1 year, pregnant
ALL AGES: immunocompromised OR medically at-risk OR no vaccine or infection in the last 6 months
Recommendations are based on the COVID-19 Risk Index from the Peterborough ON Public Health Unit
COVID-19 Resources Canada is a grassroots organization of volunteer scientists supporting Canadian COVID responses. Sources, data and methods for the COVID Index are available at www.Covid19Resources.ca
carriemcginn.bsky.social
🆘 Save Our Support Systems 👫
🆘 Save Our Science 🔬
🆘 Save Our Society 🌍

I am in solidarity with meactnet.bluesky.social protestors in DC & #pwME at home for #MillionsMissing 2025.

There are #NoTreatmentsNoCures for #MyalgicEncephalomyelitis & #LongCovid.

#DisabilitySOS #MECFS #MECFSAwarenessDay
Illustration of the Statue of Liberty drowning underwater. It's written: "#MEAction #MillionsMissing SOS. I am one of the 2025 #MillionsMissing. Save our Support Systems, Save our Science, Save our Society."
Reposted by Carrie Anna McGinn
apresj20.bsky.social
💔 Des centaines de milliers de personnes atteintes d’#EM (Encéphalomyélite Myalgique), mais aucune reconnaissance, aucun traitement adapté.

🫥Des malades alités, oubliés, invisibles.

#JournéeMondialeEMSFC
#12Mai
Reposted by Carrie Anna McGinn
openmedf.bsky.social
From the OMF-supported Medical Education Resource Center (MERC) at @batemanhornecenter.bsky.social :

The Clinical Care Guide is Here: Managing ME/CFS, Long COVID & Infection-Associated Chronic Conditions (IACCs). Download it. Share it. Use it. 👉 loom.ly/VeoxR7Y

#MECFS #LongCOVID
On the left side is a person in a white lab coat holds a dark blue stethoscope, on the right side is a blue background with text reading, "CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs.
Reposted by Carrie Anna McGinn
openmedf.bsky.social
Today, on International ME/CFS Awareness Day (May 12), we stand together to honor every person living with #MECFS —a disabling, life-altering disease that still lacks a diagnostic test, effective treatments, and a cure.

Help us fund urgent research: www.omf.ngo?form=donatenow 💙
This image is a visual for International ME/CFS Awareness Day. It features a large blue awareness ribbon on the left side, symbolizing support for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On the right side, the text reads: INTERNATIONAL ME/CFS AWARENESS DAY
Reposted by Carrie Anna McGinn
guusontheinternet.bsky.social
A lot of people with #LongCovid meet the criteria of ME/CFS, so do I.

ME/CFS is a living nightmare. Before I got ill, I would never have been able to imagine a disease this cruel, with such low quality of life that is also so stigmatised and neglected as ME…
Reposted by Carrie Anna McGinn
Reposted by Carrie Anna McGinn
aqem.bsky.social
🔬 En cette journée de sensibilisation à l' #EMSFC, partageons et diffusons de l'information pour améliorer la compréhension et la reconnaissance et plaidons pour plus de recherche de qualité afin de trouver des traitements et une cure.

3/
Au milieu de l'illustration, il est écrit "12 mai. Journée internationale de sensibilisation à l'EM." Un ruban bleu clair est affiché sur un fond sarcelle avec le logo de l'Association québécoise de l'encéphalomyélite myalgique (AQEM) dans le coin inférieur gauche.
Reposted by Carrie Anna McGinn
aqem.bsky.social
🗓️ Aujourd'hui, 12 mai, marque la Journée internationale de sensibilisation à l' #EncéphalomyéliteMyalgique (EM).

👫 Aujourd'hui, nous amplifions la voix des millions de personnes dans le monde qui vivent avec cette maladie chronique invalidante associée aux infections.

1/
Au milieu de l'illustration, il est écrit "12 mai. Journée internationale de sensibilisation à l'EM." Un ruban bleu clair est affiché sur un fond sarcelle avec le logo de l'Association québécoise de l'encéphalomyélite myalgique (AQEM) dans le coin inférieur gauche.
carriemcginn.bsky.social
#MEAwareness #MEAwarenessDay #MEAwarenessMonth #MECFSAwareness #MECFSAwarenessDay #MECFSAwarenessMonth #MEAwarenessDay2025 #MECFSAwarenessDay2025 #MyalgicEncephalomyelitis #MECFS #pwME

3/
Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
carriemcginn.bsky.social
People with #MECFS need better clinical care and high-quality research to find treatments and cures and to get back to our full lives we miss so much.

Please mask up to avoid infections which put you at high risk of joining the #MillionsMissing from their lives due to ME.

2/
Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
carriemcginn.bsky.social
May 12th is International #MEAwarenessDay.

Half of people with Long COVID develop #MyalgicEncephalomyelitis (ME)... including me.

Since the pandemic, millions of new people worldwide have developed #MECFS, a complex, chronic, multisystem and disabling illness with no treatments and no cure.

1/
Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
Reposted by Carrie Anna McGinn
meactnet.bsky.social
You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss...

#MEAction will be sounding a Disability SOS at the nation’s capitol and across social media.

#PwME
Cartoon protest art with detailed, dark lines depicting the Statue of Liberty sinking to her crown in bright red liquid. She holds her torch high above an ocean of red next to the words "#Millions Missing SOS". Text in the image reads "May 12, 2025 protest in Washington D.C. and from home."
Reposted by Carrie Anna McGinn
meactnet.bsky.social
The final date to upload your photo to be at the DC #MillionsMissing action is Monday, May 5th. Turn it in here: airtable.com/appvOnNOiTgI...

We have so many ways to join in! Everything you need to know can be found by typing in millionsmissing.org.

#PwME #DisabilitySOS #MECFS #LongCovid
: Simple graphic with a screenshot on a mobile phone of the form to fill in to send in your photo. Text beside the phone: "2025 #MillionsMissing. Upload your photo.  Please feel free to upload a photo with a few words to represent you at DC’s SOS #MIllionsMissing" An arrow points from the wording to the phone.
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Prévisions de COVID pour le Canada : AVR 26-MAI 9, 2025

QUÉBEC

TRÈS ÉLEVÉ (stable)

Environ 1 personne sur 142 est infectée

Par rapport au point le plus bas de la pandémie au Canada :

-Infections ~12X🔺
-COVID longue ~10X🔺
-Hospitalisations ~15X🔺
-Décès ~14X🔺
Reposted by Carrie Anna McGinn
moriartylab.bsky.social
Canadian COVID Forecast Apr 26-May 9, 2025

CANADA

VERY HIGH (no change)

About 1 in every 142 people infected

Compared to lowest point of pandemic in Canada:

-Infections ~11X higher
-Long COVID ~10X higher
-Hospitalizations ~15X higher
-Deaths ~14X higher
This image describes the Canadian COVID Forecast for the seven day period between Apr 26-May 9, 2025, which is produced by COVID-19 Resources Canada. Canada’s COVID Forecast outlook is VERY HIGH (no change) with a COVID INDEX SCORE of 13.1
About 1 of every 142 people is infected.
Estimated infections this week: 207,275-342,125
What these numbers mean: MODERATE 1-5, HIGH 5-10, VERY HIGH 10-15, SEVERE >15 COMPARED TO THE LOWEST POINT IN THE COVID PANDEMIC IN CANADA
How much higher are key indicators compared to the lowest point in the COVID pandemic in Canada?
Waste water, infections: VERY HIGH; 11.3X higher
Long COVID estimate: HIGH; 9.9X higher
Hospitalizations, ICU: VERY HIGH; 14.6X higher
Deaths: VERY HIGH; 14.3X higher
HOW TO HELP:
EVERYONE:
UPDATE vaccines every 6 months
WEAR N95-type masks
AVOID indoor social gatherings
AVOID crowded non-essential places

Who is HIGH RISK?
People 60 and older, babies < 1 year, pregnant
ALL AGES: immunocompromised OR medically at-risk OR no vaccine or infection in the last 6 months
Recommendations are based on the COVID-19 Risk Index from the Peterborough ON Public Health Unit
COVID-19 Resources Canada is a grassroots organization of volunteer scientists supporting Canadian COVID responses. Sources, data and methods for the COVID Index are available at www.Covid19Resources.ca
Reposted by Carrie Anna McGinn
uoftcovidrehab.bsky.social
Simon Décary’s #KeyMessages from the #COVIDRehab forum:

📌 Quebec implemented a 15-site integrated care model, delivering care to thousands of Long COVID patients from 2020-2025