Tiff
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creativetiff78.bsky.social
Tiff
@creativetiff78.bsky.social
5.4K followers 4.5K following 930 posts
I'm in N. California, 47 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) retired LCSW, disabled #artist #knitter #witch #advocate #writer Bi 🌈🧙‍♀️🦥🥄🧶🎨🌻💙🌊 https://linktr.ee/CreativeTiff78
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I enjoy chatting with folks.
BUT- I'm happily married and not looking, I'm disabled so hitting me up for money isn't going to work, and I've been chatting online since chatting online was a thing, so I can spot scammers a mile away.
#JustKeepingItReal
The pomegranate tree is very happy this year. #gardening #NorCal
This is my kind of sunflower. 😁
I'm struggling. But then there's this sweet girlie snoozing, curled up against my legs, and things seem to be a bit brighter.
Dogs are amazing.
#dogsofbluesky #labrador #rescuedog #dogsky
Reposted by Tiff
What we are witnessing is an outright abuse of power.

This administration is attacking critics and using fear as a weapon to silence anyone who would speak out. Media corporations — from television networks to newspapers — are capitulating to these threats.
Reposted by Tiff
Disney/ABC have a responsibility to refuse to participate in corruption.

Kimmel must be reinstated. If Disney/ABC agree to this extortion then perhaps creatives + workers should consider collective action to push back. Same w/buying park + cruise tickets if they bow.

People have power. Ask Target
When you're chronically ill and crafty. 😏 IV poles can have multiple uses!

#chronicillness #chronicpain #spooniesky #disabledsky #chronicillnesshumor #creativewhilesick
Reposted by Tiff
Today's #garden harvest. And we still have tomatoes ripening on the vines.

#gardening #NorCal
6/

Compared to last summer which had many more days of higher temps, we're actually paying a bit more this August than we did last August.

I feel like I'm beating my head against the wall.

*sigh*

#energy #energycrisis #chronicillness
5/

I recieved the bill this morning and it's close to $600.

That's WITH the medical baseline program.

I budget $400/month for our energy costs, because that's about what we average when it's said and done, but it feels like every time I turn around, the cost of energy has increased.
4/

We've had a relatively mild summer, but we had a heatwave at the end of August/beginning of September. Given we have to keep the house at a certain temp for my health stuff, the AC was running around the clock. (And I was still incredibly sick.)
3/

... the medical baseline program let's us get 10 kW at $.01 before jumping to the next tier.

Our energy company, PG&E, has been raising the rates over the last few years, including passing on the cost of wildfires started by lack of maintenence of their equipment.

It's frustrating.
2/

Because of my medical stuff, I'm on a "Medical Baseline" program.

This means we get more electricity (kW) at the lowest cost before it jumps to the next tier. Easy example, if the average house gets the first 5 kW at $.01 kW (not the actual cost) and everything after it's $.02 kW...
I live in N. California. I was born here, my family is here, this is home.

I love many, many things about California.

I'm also #chronicallyill. One of my conditions- a couple of forms of #dysautonomia- means I have to keep the house a certain temperature.

1/
Thanks. 💜 I'm doing better today.
11/

#dysautonomia "episode" (for lack of a better term).

And that's just another piece on the equation to answering the "rate your pain" question.

Math was never a favorite subject, bit I'm being forced to do Chronic Illness Calculus my whole life.
10/

It's not like my pain level defaults to the lowest common denominator... nor does it necessarily automatically go with the high score. I handle different types of pain differently. I can cope with high levels of muscle pain much better than I can handle a generalized pain spike after...
9/

It's the pain and fatigue of #mecfs. It's the muscle spasms and joint laxity of #hEDS. It's the fact that everything had the volume cracked to 11 after this dental procedure.

(My kidneys have also been pissed off at me, which doesn't help.)
8/

Like, "It's just #fibromyalgia." "It's just #SmallFiberNeuropathy." "It's just #hEDS." "It's just #migraine."

No. It's all of it, plus the pain of #dysautonomia ( #coathangerpain ) and the pain spikes from the flares. It's the systemic nerve stuff of #SmallFiberNeuropathy.
7/

This topic is coming up for me because I have a pain appt tomorrow and I'm flaring something awful, and I want to have a conversation with my doc about how frustrating it is that my pain seems to be thrown into the "it's just..." category.
6/

I'm not entirely sure what the answer is.

(Although, I once color coded one of those "show me on the body where you hurt" charts with the different types and different levels of pain only to be told their scanner only scans things in B&W.)