e-Patient Dave
@epatientdave.bsky.social
Pinned
e-Patient Dave
@epatientdave.bsky.social
· Nov 16
Yes. Just BLOCK all stupidity. Give it no ear! Make this the place YOU want. No warning; just BLOCK it!
Reposted by e-Patient Dave
'Tis the season! During a trip to the US this week, our CEO, Rachel Dunscombe paid a visit to a very festive ePatient Dave deBronkart... 🎅
#Christmas #Holidays #HoHoHopenEHR @ukpenguin.bsky.social @epatientdave.bsky.social
#Christmas #Holidays #HoHoHopenEHR @ukpenguin.bsky.social @epatientdave.bsky.social
December 1, 2025 at 8:32 PM
'Tis the season! During a trip to the US this week, our CEO, Rachel Dunscombe paid a visit to a very festive ePatient Dave deBronkart... 🎅
#Christmas #Holidays #HoHoHopenEHR @ukpenguin.bsky.social @epatientdave.bsky.social
#Christmas #Holidays #HoHoHopenEHR @ukpenguin.bsky.social @epatientdave.bsky.social
Reposted by e-Patient Dave
Here’s the thing, emerging scientists aren’t going to flee to do science elsewhere…they just won’t do the science.
We will lose at least one, if not two generations of knowledge if we don’t get this shit sorted out immediately.
We will lose at least one, if not two generations of knowledge if we don’t get this shit sorted out immediately.
My teen, who had dreamt of being an astrophysicist, just told me he wants to go to law school because, “Science isn’t going to be a priority in the US in the future…I don’t want a job where I’ll be constantly worried my funding will be taken away.”
Gutting. How many future scientists have we lost?
Gutting. How many future scientists have we lost?
December 7, 2025 at 3:22 AM
Here’s the thing, emerging scientists aren’t going to flee to do science elsewhere…they just won’t do the science.
We will lose at least one, if not two generations of knowledge if we don’t get this shit sorted out immediately.
We will lose at least one, if not two generations of knowledge if we don’t get this shit sorted out immediately.
Reposted by e-Patient Dave
I'm delighted to say we have won the Queen Elizabeth Prize for Education with our work on OpenSAFELY, inventing new methods that let researchers analyse NHS GP data while protecting everyone's privacy, and with complete transparency, in a hugely productive platform!
www.ox.ac.uk/news/2025-11...
www.ox.ac.uk/news/2025-11...
OpenSAFELY team awarded Queen Elizabeth Prize for Higher and Further
Oxford’s OpenSAFELY team wins the prestigious Queen Elizabeth Prize for revolutionising secure NHS data research, protecting patient privacy while unlocking life-saving health insights.
www.ox.ac.uk
November 26, 2025 at 5:53 PM
I'm delighted to say we have won the Queen Elizabeth Prize for Education with our work on OpenSAFELY, inventing new methods that let researchers analyse NHS GP data while protecting everyone's privacy, and with complete transparency, in a hugely productive platform!
www.ox.ac.uk/news/2025-11...
www.ox.ac.uk/news/2025-11...
This book is superb. I have a LOT of thoughts about patient empowerment and restructuring the health system (to benefit both patients and docs), and I would have written this book, if I were able. But I don't have the skills of @crblease.bsky.social! open.substack.com/pub/patients...
To understand medicine's future you must read Dr. Bot
Charlotte Blease nails #PatientsUseAI in a beautifully composed work. Don't miss it.
open.substack.com
November 24, 2025 at 3:22 PM
This book is superb. I have a LOT of thoughts about patient empowerment and restructuring the health system (to benefit both patients and docs), and I would have written this book, if I were able. But I don't have the skills of @crblease.bsky.social! open.substack.com/pub/patients...
Reposted by e-Patient Dave
What happens when patients use chatbots for medical advice. Great @nytimes story by @teddyrosenbluth.bsky.social & @maggieastor.bsky.social. I'm quoted, along with @adamrodmanmd.bsky.social & @epatientdave.bsky.social
www.nytimes.com/2025/11/16/w...
www.nytimes.com/2025/11/16/w...
Frustrated by the Medical System, Patients Turn to A.I.
www.nytimes.com
November 17, 2025 at 5:40 AM
What happens when patients use chatbots for medical advice. Great @nytimes story by @teddyrosenbluth.bsky.social & @maggieastor.bsky.social. I'm quoted, along with @adamrodmanmd.bsky.social & @epatientdave.bsky.social
www.nytimes.com/2025/11/16/w...
www.nytimes.com/2025/11/16/w...
Honest question: WTAF is the rationale for eliminating a safety rule on an amputating device?
The Consumer Product Safety Commission just scrapped a table saw safety rule that could have prevented amputation injuries and saved over $2B in healthcare costs a year.
This comes months after Trump fired all three Democratic CPSC members.
"Make America Safe Again."
This comes months after Trump fired all three Democratic CPSC members.
"Make America Safe Again."
The GOP Is Fine With You Getting Your Fingers Chopped Off
Donald Trump’s yes-men at the Consumer Product Safety Commission are withdrawing a series of proposed safety rules, incl
jacobin.com
October 27, 2025 at 10:13 PM
Honest question: WTAF is the rationale for eliminating a safety rule on an amputating device?
This is what happened with my family… A comment on another excellent post from @susannahrfox.bsky.social
Honest question: does the place where you go for care actually care about care?
Add your story, good or bad, in another comment.
Honest question: does the place where you go for care actually care about care?
Add your story, good or bad, in another comment.
"Question: what HAPPENS when you stand your ground and tell the hospital it’s not safe for my father to be sent home? The forces pushing for discharge can be economic, and that’s a spine-stiffener for some hospitals." - @epatientdave.bsky.social susannahfox.com/2025/10/22/c...
Caregiver Survival Guide
susannahfox.com
October 23, 2025 at 3:16 PM
This is what happened with my family… A comment on another excellent post from @susannahrfox.bsky.social
Honest question: does the place where you go for care actually care about care?
Add your story, good or bad, in another comment.
Honest question: does the place where you go for care actually care about care?
Add your story, good or bad, in another comment.
Reposted by e-Patient Dave
Here’s What Happened When ProPublica Reporters Tried to Find Out Where a Popular Prescription Drug Was Made
Here’s What Happened When ProPublica Reporters Tried to Find Out Where a Popular Prescription Drug Was Made
We wanted to know where a widely used prescription drug that treats high cholesterol was manufactured and whether the factory had quality issues. The search led to a labyrinth of company names and dat...
www.propublica.org
October 23, 2025 at 3:13 PM
Here’s What Happened When ProPublica Reporters Tried to Find Out Where a Popular Prescription Drug Was Made
Reposted by e-Patient Dave
I look forward to moderating a panel, co-hosted by JoPM/@jmirpub.bsky.social/ @s4pm.bsky.social on e-patients & evolving use of tech over time. Join @epatientdave.bsky.social @gfry.bsky.social @denisesilber.bsky.social @amyprice.bsky.social and me. landingpage.jmirpublications.com/how-digital-...
October 19, 2025 at 12:03 AM
I look forward to moderating a panel, co-hosted by JoPM/@jmirpub.bsky.social/ @s4pm.bsky.social on e-patients & evolving use of tech over time. Join @epatientdave.bsky.social @gfry.bsky.social @denisesilber.bsky.social @amyprice.bsky.social and me. landingpage.jmirpublications.com/how-digital-...
Reposted by e-Patient Dave
"There is no climate of fear without capitulation." Fight.
This is perceptive and urgent.
In another era (this morning), I wrote about how institutions are again doing the hard work of validating the administration’s intimidation tactics. www.pbump.net/o/the-climat...
September 11, 2025 at 1:13 PM
"There is no climate of fear without capitulation." Fight.
Reposted by e-Patient Dave
It was a meeting of the minds last week at @harvard.edu!
@cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement.
Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH
#medsky
@cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement.
Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH
#medsky
June 30, 2025 at 3:45 PM
It was a meeting of the minds last week at @harvard.edu!
@cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement.
Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH
#medsky
@cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement.
Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH
#medsky
This was the most intelligent, perceptive discussion I've ever had about patient empowerment with someone who's not primarily *in* healthcare. And that's a significant sign: I've always said that the more we "liberate" access to tools and data, the more healthcare will become what we want
In Ep. 3 of “The AI Revolution in Medicine, Revisited,” guests @epatientdave.bsky.social and Christina Farr discuss the growing role of AI in supporting more engaged patients and the evolving relationship between technology, clinicians, and consumers: msft.it/6010SBJ2n
April 18, 2025 at 3:30 PM
This was the most intelligent, perceptive discussion I've ever had about patient empowerment with someone who's not primarily *in* healthcare. And that's a significant sign: I've always said that the more we "liberate" access to tools and data, the more healthcare will become what we want
Woohoo! Fabulous episode!
#PatientsUseAI
Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.
#PatientsUseAI
Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.
April 17, 2025 at 11:42 PM
Woohoo! Fabulous episode!
#PatientsUseAI
Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.
#PatientsUseAI
Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.
Reposted by e-Patient Dave
Reposted by e-Patient Dave
Over the past several weeks, ProPublica has identified dozens of people who worked for DOGE.
#ICYMI: We just added 20 names to our tracker, bringing the total to 66.
#ICYMI: We just added 20 names to our tracker, bringing the total to 66.
Elon Musk’s Demolition Crew
Elon Musk, the world’s richest man, has been unleashed on federal agencies. ProPublica is attempting to document who is working with him and what they are doing.
propub.li
March 17, 2025 at 1:45 AM
Over the past several weeks, ProPublica has identified dozens of people who worked for DOGE.
#ICYMI: We just added 20 names to our tracker, bringing the total to 66.
#ICYMI: We just added 20 names to our tracker, bringing the total to 66.
Reposted by e-Patient Dave
Man who self-describes as "happens to have two cancers" says this about #PatientsUseAI.
Hey @burtrosen.bsky.social - I've been thinking (for real) - would you call this "DIY healthcare" or "DTC" (direct to consumer) or "patient autonomy" or what? (Legit question - been pondering this on LinkedIn)
Hey @burtrosen.bsky.social - I've been thinking (for real) - would you call this "DIY healthcare" or "DTC" (direct to consumer) or "patient autonomy" or what? (Legit question - been pondering this on LinkedIn)
I’m kind of obsessed. It might be the greatest patient health care tool ever!
March 14, 2025 at 5:13 PM
Man who self-describes as "happens to have two cancers" says this about #PatientsUseAI.
Hey @burtrosen.bsky.social - I've been thinking (for real) - would you call this "DIY healthcare" or "DTC" (direct to consumer) or "patient autonomy" or what? (Legit question - been pondering this on LinkedIn)
Hey @burtrosen.bsky.social - I've been thinking (for real) - would you call this "DIY healthcare" or "DTC" (direct to consumer) or "patient autonomy" or what? (Legit question - been pondering this on LinkedIn)
@burtrosen.bsky.social Me LETTING you be part of it?? Hahahaha ... you're just a RANDOM BLINKIN' EXEMPLAR, dude! You just DO what everyone SHOULD be doing, because we can!
Send an update of your latest self-empowered shenAInigans so we can update your history!
Send an update of your latest self-empowered shenAInigans so we can update your history!
Yet again @epatientdave.bsky.social leads a patient revolution in healthcare and AI. Thanks for letting me be a part of it!
March 14, 2025 at 5:10 PM
@burtrosen.bsky.social Me LETTING you be part of it?? Hahahaha ... you're just a RANDOM BLINKIN' EXEMPLAR, dude! You just DO what everyone SHOULD be doing, because we can!
Send an update of your latest self-empowered shenAInigans so we can update your history!
Send an update of your latest self-empowered shenAInigans so we can update your history!
Reposted by e-Patient Dave
“#AI is my helper now.”
@epatientdave.bsky.social @burtrosen.bsky.social
Two amazing “hunks” of the ‘patient-led revolution’ make it to Men’s Health.
Love this. 👏🏽👏🏽👏🏽👏🏽👏🏽
#pinksocks #hcldr
@epatientdave.bsky.social @burtrosen.bsky.social
Two amazing “hunks” of the ‘patient-led revolution’ make it to Men’s Health.
Love this. 👏🏽👏🏽👏🏽👏🏽👏🏽
#pinksocks #hcldr
Yet again @epatientdave.bsky.social leads a patient revolution in healthcare and AI. Thanks for letting me be a part of it!
March 11, 2025 at 8:35 PM
“#AI is my helper now.”
@epatientdave.bsky.social @burtrosen.bsky.social
Two amazing “hunks” of the ‘patient-led revolution’ make it to Men’s Health.
Love this. 👏🏽👏🏽👏🏽👏🏽👏🏽
#pinksocks #hcldr
@epatientdave.bsky.social @burtrosen.bsky.social
Two amazing “hunks” of the ‘patient-led revolution’ make it to Men’s Health.
Love this. 👏🏽👏🏽👏🏽👏🏽👏🏽
#pinksocks #hcldr
Reposted by e-Patient Dave
I am happy to say the "Followers only" reply setting is getting implemented. We're also adding a way to set default reply settings
If you want your posts to default to "Followers only," that'll become an option
If you want your posts to default to "Followers only," that'll become an option
February 6, 2025 at 9:34 PM
I am happy to say the "Followers only" reply setting is getting implemented. We're also adding a way to set default reply settings
If you want your posts to default to "Followers only," that'll become an option
If you want your posts to default to "Followers only," that'll become an option
@Lygeia is here too! @lygeia-r.bsky.social
I can't be on the #HITSM chat at noon ET today 1/31, but here are the details. @healthcareittoday.com Tag them to get on their BSky HIT list - the place to be!
Love to be seeing the smooooth writing of John Lynn @techguy.healthcareittoday.com again!
I can't be on the #HITSM chat at noon ET today 1/31, but here are the details. @healthcareittoday.com Tag them to get on their BSky HIT list - the place to be!
Love to be seeing the smooooth writing of John Lynn @techguy.healthcareittoday.com again!
I just dropped everything to join Bluesky when I saw there was an #HITSM chat tomorrow. I miss my peeps! 🥰
@healthcareittoday.com
@healthcareittoday.com
January 31, 2025 at 2:30 PM
@Lygeia is here too! @lygeia-r.bsky.social
I can't be on the #HITSM chat at noon ET today 1/31, but here are the details. @healthcareittoday.com Tag them to get on their BSky HIT list - the place to be!
Love to be seeing the smooooth writing of John Lynn @techguy.healthcareittoday.com again!
I can't be on the #HITSM chat at noon ET today 1/31, but here are the details. @healthcareittoday.com Tag them to get on their BSky HIT list - the place to be!
Love to be seeing the smooooth writing of John Lynn @techguy.healthcareittoday.com again!
Reposted by e-Patient Dave
Who's going to join us tomorrow for the first ever #HITsm chat on Bluesky?
Details: http://dlvr.it/THh4fB
Invite your friends. #HITsm
Details: http://dlvr.it/THh4fB
Invite your friends. #HITsm
January 30, 2025 at 10:03 PM
Who's going to join us tomorrow for the first ever #HITsm chat on Bluesky?
Details: http://dlvr.it/THh4fB
Invite your friends. #HITsm
Details: http://dlvr.it/THh4fB
Invite your friends. #HITsm
Reposted by e-Patient Dave
I just dropped everything to join Bluesky when I saw there was an #HITSM chat tomorrow. I miss my peeps! 🥰
@healthcareittoday.com
@healthcareittoday.com
January 30, 2025 at 10:18 PM
I just dropped everything to join Bluesky when I saw there was an #HITSM chat tomorrow. I miss my peeps! 🥰
@healthcareittoday.com
@healthcareittoday.com
Reposted by e-Patient Dave
Can private sector serve up sufficient #healthmedia to compensate for public sector gaps? Reflections on repeated #404Error messages from #publichealth govt websites on #CDC #NIH & WhiteHouse.gov (looking for a Jill Biden speech on #womenshealth at #JPM2025)
bit.ly/3Q0cZ4h
#hcsm #healthliteracy
bit.ly/3Q0cZ4h
#hcsm #healthliteracy
Can the Private Sector Serve Up Sufficient Health Media to Compensate for Public Sector Gaps? - HealthPopuli.com
In researching several .gov websites from last Monday 20th January 2025, I had an ongoing frustrating user experience in being faced with “404 Error” messages like this one from WhiteHouse.gov. “Presi...
bit.ly
January 30, 2025 at 8:54 PM
Can private sector serve up sufficient #healthmedia to compensate for public sector gaps? Reflections on repeated #404Error messages from #publichealth govt websites on #CDC #NIH & WhiteHouse.gov (looking for a Jill Biden speech on #womenshealth at #JPM2025)
bit.ly/3Q0cZ4h
#hcsm #healthliteracy
bit.ly/3Q0cZ4h
#hcsm #healthliteracy