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Reposted by Janet Dafoe

valebodi.bsky.social @valebodi.bsky.social · 10d

med.stanford.edu/sgtc/researc...
#ME/CFS #ItaconateShunt
@openmedf.bsky.social @janetdafoe.bsky.social

Research Projects

Publications and Patents of Ron W. Davis, Stanford Genome Technology Center

med.stanford.edu

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Reposted by Janet Dafoe

ME/CFS Science @mecfsskeptic.bsky.social · 1d

1) During the Stanford Community Symposium, Dr. Randall Peterson explained how his team at the University of Utah has recreated the Itaconate shunt model of ME/CFS in zebrafish.

They found that these fish swim less and have reduced oxygen consumption.

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · Aug 27

My Jtube broke and I have to go to the hospital and I’m feeling stressed...
It is so hard seeing the real world and feeling it and then coming back to my room and closing all the doors...

Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

Remembering What Real Life Is Like

My Jtube broke finally and I have to go to the hospital tomorrow and I’m feeling stressed...It is so hard seeing the real world and really feeling it and then coming back to my room and closing all th...

www.whitneydafoe.com

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Janet Dafoe @janetdafoe.bsky.social · Aug 21

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Janet Dafoe @janetdafoe.bsky.social · Aug 21

From Ron Davis:

m.facebook.com/story.php?st...

Log in or sign up to view

See posts, photos and more on Facebook.

m.facebook.com

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Janet Dafoe @janetdafoe.bsky.social · Aug 18

Yes

Janet Dafoe @janetdafoe.bsky.social · Aug 14

Community Symposium on the Molecular Basis of ME/CFS returns Sept 5 on zoom! 8am-1pm PST Attendance limited to 5,000. Registration required and can’t be shared. Registration link: stanford.zoom.us/webinar/regist…
See photo below:

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Reposted by Janet Dafoe

ME/CFS Science @mecfsskeptic.bsky.social · Aug 7

1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.

The Manhattan plot below shows the genes and chromosomes involved.

Let’s unpack the results 🧵

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Janet Dafoe @janetdafoe.bsky.social · Jul 9

@lawrenceodonnell.msnbc.com I love your show and I agree with your points but really, you’re kind of ranting for 27 minutes about the White House press corp.

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Janet Dafoe @janetdafoe.bsky.social · Jul 5

To our European friends: this is what a hamburger looks like, cooked by Ronald Davis! On a very sad Fourth of July.

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · Jun 11

I’ve done most of my "growing up" here in bed. And lately I’ve realized that "growing up" hasn’t been about figuring out the whole universe, but a process of acceptance of myself not “knowing it all”…

Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

Growing Up With ME/CFS

I’ve done most of my "growing up" here in bed. And lately I’ve realized that "growing up" hasn’t been about figuring out the whole universe, but a process of acceptance - accepting that I don’t have ...

www.whitneydafoe.com

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · Jun 5

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this world.

Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...

Dear Healthy People

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this wo...

www.whitneydafoe.com

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · May 28

I'm sick of ME/CFS being compared to a never-ending flu. This ain’t no f*ing flu. I feel like every system in my body is broken and in pieces…But even if you have a very severe flu and are bed bound, the never-ending part is a huge deal…

www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

This Ain't No F*ing Flu

I'm sick of ME/CFS being compared to a never-ending flu. This ain’t no f*ing flu. I feel like *every* system in my body is broken and in pieces. I am mentally and physically 1% as alive as I used to ...

www.whitneydafoe.com

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · May 22

There is so much in me begging to get out! I want to work, sweat, toil and exhaust myself working towards dreams and goals and see them become real in front of me!

Oh, but I forgot, I don't want any of that, you're right Simon Wessely I love this, please repress me more.

#MECFSAwarenessMonth

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · May 22

I’d love to compare my to do list with Simon Wessely’s. Bring it! 🔥 I mean if Simon insists on reducing people to this kind of “quantified desire for life” theory then how about we see how an ME/CFS patient compares to Simon on his own BS terms. Direct challenge 👊

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · May 9

This is ME/CFS. Unrelenting. Unforgiving. Never ending. You fight and fight for crumbs of life that most muggles throw away. Crumbs that are not even good enough for the dogs.

#MECFS #MECFSAwarenessDay

New post on my blog:
www.whitneydafoe.com/mecfs/?post=...

You can also support me using these services:

https://whitneydafoe.com/mecfs/?post=th…

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Reposted by Janet Dafoe

Something Chronic @somethingchronic.bsky.social · May 21

Will ‘reframing my beliefs’ cure the muscle atrophy that #severeME has caused? Will it help me get downstairs in my home again after 2 years? Will it help Karen Gordon & @whitneydafoe.bsky.social? Why ignore 1000s of studies with irrefutable evidence #MECFS is physiological? @tessamunt.bsky.social

Picture of bare legs with socks just visible. The legs have significant muscle atrophy due to severe ME/CFS.

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Reposted by Janet Dafoe

Irish ME/CFS Association @irishmecfsassoc.bsky.social · May 11

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth

Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others

www.youtube.com/watch?v=9_Hw...

Day11

#PwME #SevereME
#mecfs @janetdafoe.bsky.social

Invisible Illness - Stories of Chronic Fatigue Syndrome

YouTube video by Palo Alto Online

www.youtube.com

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Janet Dafoe @janetdafoe.bsky.social · May 11

Happy Mother’s Day! So proud to be the mother of these two amazing beings!

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Reposted by Janet Dafoe

Elly Brosius, MS @ellybrosius.bsky.social · May 6

New! Clinical Care Guide for #MECFS, Long COVID, & IACCs—a practical, evidence-based guide for healthcare providers drops May 9 by
@batemanhornecenter.bsky.social

Real-world insights from expert clinicians for improving diagnosis & care!

Reserve a copy: batemanhornecenter.org/clinical-care-guide/

batemanhornecenter.org

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Janet Dafoe @janetdafoe.bsky.social · Apr 21

Happy Easter! 🐇

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Janet Dafoe @janetdafoe.bsky.social · Apr 17

Happy Easter week!

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Reposted by Janet Dafoe

Whitney Dafoe @whitneydafoe.bsky.social · Apr 7

Sometimes I feel like a broken machine that I wake up to everyday and just keep desperately trying to make work. I'm tired of trying to make myself work and I'm tired of feeling broken. I want to live in some other dimension where I shine like a being of light.
#MECFS #LongCovid

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Reposted by Janet Dafoe

Science Magazine @science.org · Apr 2

Breaking news: A new lawsuit seeks to challenge the National Institutes of Health’s decisions to abruptly terminate hundreds of grants, totaling more than $2.4 billion, over the past month. scim.ag/3DZnylL

Lawsuit aims to broadly overturn NIH’s grant terminations

Multiple groups and NIH-funded scientists challenge agency’s decision as arbitrary and capricious

scim.ag

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Janet Dafoe @janetdafoe.bsky.social · Mar 21

Tea party with cobalt china tea set that my Uncle Ralph brought back from Germany in WWII for my mom.

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