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Something Chronic

@somethingchronic.bsky.social

760 followers 1.6K following 740 posts

Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness

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Something Chronic @somethingchronic.bsky.social · May 21

Will ‘reframing my beliefs’ cure the muscle atrophy that #severeME has caused? Will it help me get downstairs in my home again after 2 years? Will it help Karen Gordon & @whitneydafoe.bsky.social? Why ignore 1000s of studies with irrefutable evidence #MECFS is physiological? @tessamunt.bsky.social

Picture of bare legs with socks just visible. The legs have significant muscle atrophy due to severe ME/CFS.

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Adam Fare 🖤🤍💜 @adamfare1996.bsky.social · 2h

Disability benefits processes, “reforms”, and cuts kill people.

They kill disabled people through poverty.
They kill disabled people through fear.

And all the current rhetoric, hate, and misinformation kills more.

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Something Chronic @somethingchronic.bsky.social · 4h

I think #PhysicsGirl said it really helped her

Something Chronic @somethingchronic.bsky.social · 4h

Hey! I don’t know if they’re representative as I’m really out of the loop on music (am ill & haven’t been able to listen to any for yrs - gutting!) but I checked my Spotify & I’ve got lots of songs saved from: 1989, Red, Reputation & Evermore. Evermore is more recent – I remember really liking it! ㋡

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GylesNaMopaleen @gylesnamopaleen.bsky.social · 5d

Dear Diary. The opening day spech I wrote for Kemi went really well. Javier sent a lovely bouquet of flowers in thanks for my tips on how to fix the Argentine economy and Nigel Farage smiled at me. Popping to Paris today. New PM needed. Mange Tout! Eurostar ahoy!

liz truss sitting at a desk writing something into a book.

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EuropeanPowell @europeanpowell.bsky.social · 5d

Reminder - Palantir has 24 contracts with key UK institutions, the NHS, the Ministry of Defence, the Cabinet Office, the police force, and the DLUHC.
23 of the contracts were given by the Tories.
The most recent contract given to Palantir was to Coventry City Council by Keir Starmer in April 2025.

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Peter Jukes @peterjukes.bsky.social · 21h

Most people seem to have missed who retweeted this picture of Farage in Gill’s office a few days after Gill began receiving his first bribes from Oleh Voloshyn (Oleg Voloshin). None other than…

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Declassified UK @declassifieduk.org · 23h

Pearson Engineering is owned by the Israeli government. Now, it has hired a lobbying firm run by the husband of Hollie Ridley, Labour’s general secretary.

www.declassifieduk.org/top-labour-o...

Top Labour official married to lobbyist for Israeli arms firm

Pearson Engineering is owned by the Israeli government. Now, it has hired a lobbying firm run by the husband of Hollie Ridley, Labour’s general secretary.

www.declassifieduk.org

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Mark Chadbourn @chadbourn.bsky.social · 23h

Someone made a lot of money through insider trading. On the international betting site Polymarket, the eventual winner of the Nobel Peace Prize Maria Corina Machado went from rank outsider to 70% favourite in the early hours of Friday before the award was announced.

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Something Chronic @somethingchronic.bsky.social · 20h

Definitely!!

Something Chronic @somethingchronic.bsky.social · 20h

It’s weird how hard the word sorry is for a lot of people!

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The Sick Times @thesicktimes.org · 1d

A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5

A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White."

"For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants
Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White

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Something Chronic @somethingchronic.bsky.social · 1d

💙💞

Something Chronic @somethingchronic.bsky.social · 1d

Please donate to David Tuller’s crowdfund if you’re able!

Most people with #MEcfs or #LongCovid already know how important DT’s work & advocacy has been in advancing help for us

… For anyone who doesn’t yet, he’s basically our Superman! 🦸‍♂️

(It’s also his birthday today so it’d be rude not to 😜🥳)

David Tuller @davetuller1.bsky.social · 3d

Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

Something Chronic @somethingchronic.bsky.social · 1d

Happy Birthday!!✨🥳✨

Something Chronic @somethingchronic.bsky.social · 1d

It makes me so mad because he’s capable of understanding the nuance but he’d rather espouse bigoted views because it keeps him in the public eye and he gets paid far more to be a bully. It’s so sad because he could help people instead of harm them. I’ll never understand choosing profit over people.

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Natasha Devon @natashadevon.bsky.social · 1d

Has anyone noticed or cared that it’s World Mental Health Day today? (Apparently, the theme is ‘access to services’).

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Something Chronic @somethingchronic.bsky.social · 1d

www.disabilitynewsservice.com/alarm-over-g...

Alarm over government’s choices to lead ‘over-diagnosis’ review that could help ministers cut benefits

The government’s decision to commission a review of alleged “over-diagnosis” of mental health conditions and neurodivergence has caused alarm among many disabled people, with fears that it will all…

www.disabilitynewsservice.com

Something Chronic @somethingchronic.bsky.social · 1d

The painful irony of the theme being ‘access to services’ when Labour just appointed Wessely (of all people) vice chair of a review into ‘overdiagnosis’ of mental health & neurodivergence.

Perhaps they could consider it’s long-awaited recognition not overdiagnosis, but no that would cost too much.

George Monbiot @georgemonbiot.bsky.social · 4d

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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Something Chronic @somethingchronic.bsky.social · 1d

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… further public funding so that necessary therapeutic trials can be conducted and drugs can be approved.

Something Chronic @somethingchronic.bsky.social · 1d

English translation:

The Tagesspiegel newspaper has named Prof. Dr. Carmen Scheibenbogen one of the 100 most important minds in Berlin's science community in 2025 for her commitment to #MECFS and #LongCOVID. In a short video, Prof. Dr. Scheibenbogen presents her research and advocates for…
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Dt. Ges. für ME/CFS @dgmecfs.bsky.social · 1d

🎥 Der Tagesspiegel hat Prof. Dr. Carmen Scheibenbogen als eine der 100 wichtigsten Köpfe der Berliner Wissenschaft 2025 für ihr Engagement für #MECFS und #LongCOVID ausgezeichnet. In einem Kurzvideo stellt Prof. Dr. Scheibenbogen ihre Forschungsarbeit vor und

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www.youtube.com/watch?v=ENTC...

Sie forscht an Medikamenten gegen Long Covid – doch das Geld fehlt

YouTube video by Tagesspiegel

www.youtube.com

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Prem Sikka @premnsikka.bsky.social · 1d

Labour Party deputy leader contest.

I won't vote for Bridget Phillipson or Lucy Powell.

Both are right-wing.
Supported two-child benefit cap, disability benefit cuts.
Snooping on benefit claimants' bank accounts.

In the words of Billy Connolly, “Don't vote, it only encourages them.”

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Adam Fare 🖤🤍💜 @adamfare1996.bsky.social · 2d

You shouldn't only care about the rights of disabled people because it may be you one day.

You should care because it's the right thing to do, for other humans who deserve life, love, and support.

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Something Chronic @somethingchronic.bsky.social · 1d

Absolutely disgusting.

The real questions are:

What makes Fiona so special she feels she can openly discriminate and hate disabled people without consequence?

And what makes billionaires so special they don’t have to pay all of their taxes?

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Otto English @ottoenglish.bsky.social · 2d

Twelve Jobs Nigel has earned over £1 million in additional income since the general election.

To understand the scale of it, since the July 2024 election he's earned roughly £100k more as a brand ambassador for Direct Bullion than Starmer gets as PM.

www.mirror.co.uk/news/uk-news...

Nigel Farage earns over £1m from 12 'second jobs' - check how much your MP earns

The Reform UK leader's most lucrative second jobs include hosting on GB News, serving as a brand ambassador for Direct Bullion and recording videos for Cameo

www.mirror.co.uk

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 2d

OK so I read through this study, and here are my conclusions:
- What a cool tech to examine epigenetic factors so closely!
- This is a small study
- This only differentiates severe-presenting patients from healthy controls; hasn't been used to diagnose ME/CFS *versus* other inflammatory illness. 🧪

Billy Hanlon @bhanlon15.bsky.social · 3d

Open Access Government: 'UEA develops blood test for ME/CFS with 96% accuracy'

'A groundbreaking blood test from UEA can diagnose ME/CFS with 96% accuracy, offering hope for patients and new insights into chronic fatigue syndrome'

www.openaccessgovernment.org/uea-develops...

UEA develops blood test for ME/CFS with 96% accuracy

A blood test from UEA can diagnose ME/CFS with 96% accuracy, offering hope for patients and new insights into chronic fatigue syndrome

www.openaccessgovernment.org

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