Something Chronic
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Thanks Sarah, we truly appreciate it & he says hi back! I genuinely wouldnt be alive without him so I wholeheartedly agree! 💙
That said, some of my family are GPs who believe ME is psychological – they took actions that put us in danger, which has also affected care access & is why I’m anon here.
That said, some of my family are GPs who believe ME is psychological – they took actions that put us in danger, which has also affected care access & is why I’m anon here.
January 13, 2026 at 8:45 PM
Thanks Sarah, we truly appreciate it & he says hi back! I genuinely wouldnt be alive without him so I wholeheartedly agree! 💙
That said, some of my family are GPs who believe ME is psychological – they took actions that put us in danger, which has also affected care access & is why I’m anon here.
That said, some of my family are GPs who believe ME is psychological – they took actions that put us in danger, which has also affected care access & is why I’m anon here.
Reposted by Something Chronic
It has indeed. In my case to 38years of chronic disabling illness; my academic career, my psychotherapy career, my very young daughter and my marriage were all irredeemably damaged by medics who were either ignorant or just plain cruel.
And I’m one of the lucky ones who didn’t end up dying.
And I’m one of the lucky ones who didn’t end up dying.
January 9, 2026 at 6:22 PM
It has indeed. In my case to 38years of chronic disabling illness; my academic career, my psychotherapy career, my very young daughter and my marriage were all irredeemably damaged by medics who were either ignorant or just plain cruel.
And I’m one of the lucky ones who didn’t end up dying.
And I’m one of the lucky ones who didn’t end up dying.
… misunderstanding ME & seeing things like my unwashed hair etc as neglect rather than me preserving energy and ensuring I can still get to the toilet. We just can’t risk extra involvement unfortunately. Thank you for the #JusticeForME campaign, it gives me a lot of hope it won’t always be this way!
January 10, 2026 at 3:25 PM
… misunderstanding ME & seeing things like my unwashed hair etc as neglect rather than me preserving energy and ensuring I can still get to the toilet. We just can’t risk extra involvement unfortunately. Thank you for the #JusticeForME campaign, it gives me a lot of hope it won’t always be this way!
Thanks Sarah, I appreciate it! We’re working on it – current landlords insinuated they thought my (amazing!) husband was abusing me because they hadn’t seen me for years so it’s probably better we move in the long run. It’s a catch-22 because council help would be great but we run the risk of them…
January 10, 2026 at 3:25 PM
Thanks Sarah, I appreciate it! We’re working on it – current landlords insinuated they thought my (amazing!) husband was abusing me because they hadn’t seen me for years so it’s probably better we move in the long run. It’s a catch-22 because council help would be great but we run the risk of them…
The government ignored UN warnings about the extreme harm to disabled people the ‘welfare’ bill would cause so I don’t hold out much hope they’ll show humanity here. Thank you for speaking out.
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
January 10, 2026 at 2:57 PM
The government ignored UN warnings about the extreme harm to disabled people the ‘welfare’ bill would cause so I don’t hold out much hope they’ll show humanity here. Thank you for speaking out.
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
Thanks @swastrosarah.bsky.social & @murtoz.bsky.social sorry for late reply – not in a good way at mo as landlords have evicted my husband and I as they want to sell. They know I’m bedbound & moving me could be detrimental but refuse any more time than the 2 months they legally have to give us. 💙
January 10, 2026 at 2:37 PM
Thanks @swastrosarah.bsky.social & @murtoz.bsky.social sorry for late reply – not in a good way at mo as landlords have evicted my husband and I as they want to sell. They know I’m bedbound & moving me could be detrimental but refuse any more time than the 2 months they legally have to give us. 💙
@swastrosarah.bsky.social do you think Streeting can be trusted to listen? It massively concerns me he’s appointed Wessely because surely he knows the issues with him from #pwME? Sorry if I’m getting it wrong and you haven’t spoken to him before re: #SevereME – I thought you had so figured I’d ask!
December 29, 2025 at 12:53 PM
@swastrosarah.bsky.social do you think Streeting can be trusted to listen? It massively concerns me he’s appointed Wessely because surely he knows the issues with him from #pwME? Sorry if I’m getting it wrong and you haven’t spoken to him before re: #SevereME – I thought you had so figured I’d ask!
Reposted by Something Chronic
Next time you see an article quoting a transphobe from one of the fauxminist ‘gender critical’ transphobic hate groups - email/ tag the journalist and ask them why they’ve not asked @nionwomen.bsky.social for a quote - as they’re MUCH more representative of UK women!
notinourname.org.uk
notinourname.org.uk
Home - Not in our name
Not In our Name: Women in support of the trans+community
notinourname.org.uk
December 29, 2025 at 11:03 AM
Next time you see an article quoting a transphobe from one of the fauxminist ‘gender critical’ transphobic hate groups - email/ tag the journalist and ask them why they’ve not asked @nionwomen.bsky.social for a quote - as they’re MUCH more representative of UK women!
notinourname.org.uk
notinourname.org.uk