@akanegg3.bsky.social
Reposted
Some good news for 🇨🇦Canadians living with #LongCOVID - Canada is in the process of developing a (long overdue) registry of patients with Long COVID -
Why is this important?
Because what a government doesn't measure, it doesn't have to manage.
So, baby steps 👇
bmjopen.bmj.com/content/15/1...
Why is this important?
Because what a government doesn't measure, it doesn't have to manage.
So, baby steps 👇
bmjopen.bmj.com/content/15/1...
Developing a minimum dataset for a national patient registry on Long COVID in Canada: a Delphi consensus-based study
Objectives To develop survey items for a national patient registry on Long COVID using a modified Delphi process.
Design This study was based on a modified Delphi process involving three rounds of an...
bmjopen.bmj.com
January 9, 2026 at 4:55 PM
Some good news for 🇨🇦Canadians living with #LongCOVID - Canada is in the process of developing a (long overdue) registry of patients with Long COVID -
Why is this important?
Because what a government doesn't measure, it doesn't have to manage.
So, baby steps 👇
bmjopen.bmj.com/content/15/1...
Why is this important?
Because what a government doesn't measure, it doesn't have to manage.
So, baby steps 👇
bmjopen.bmj.com/content/15/1...
Reposted
Long COVID clinics are quietly closing, leaving thousands of patients without specialized care via @scienceline.org
scienceline.org/2026/01/long...
Thank you to the people living with Long COVID who shared their stories and to the healthcare providers and advocates for sharing their insights.
scienceline.org/2026/01/long...
Thank you to the people living with Long COVID who shared their stories and to the healthcare providers and advocates for sharing their insights.
Long COVID clinics are quietly closing, leaving thousands of patients without specialized care - Scienceline
Long COVID clinics began opening in swaths across the country in 2020 to provide specialty care for patients living with this chronic condition, which occurs following a COVID infection. As of March 2...
scienceline.org
January 9, 2026 at 8:30 PM
Long COVID clinics are quietly closing, leaving thousands of patients without specialized care via @scienceline.org
scienceline.org/2026/01/long...
Thank you to the people living with Long COVID who shared their stories and to the healthcare providers and advocates for sharing their insights.
scienceline.org/2026/01/long...
Thank you to the people living with Long COVID who shared their stories and to the healthcare providers and advocates for sharing their insights.
Reposted
If you’re chronically ill and flaring, consider the news as a possible source.
Our nervous systems were not designed to see people being murdered in cold blood.
They weren’t designed to cope with the constant stream of threats, bad news and suffering.
It’s ok to take a break & protect your spoons
Our nervous systems were not designed to see people being murdered in cold blood.
They weren’t designed to cope with the constant stream of threats, bad news and suffering.
It’s ok to take a break & protect your spoons
January 10, 2026 at 5:13 AM
If you’re chronically ill and flaring, consider the news as a possible source.
Our nervous systems were not designed to see people being murdered in cold blood.
They weren’t designed to cope with the constant stream of threats, bad news and suffering.
It’s ok to take a break & protect your spoons
Our nervous systems were not designed to see people being murdered in cold blood.
They weren’t designed to cope with the constant stream of threats, bad news and suffering.
It’s ok to take a break & protect your spoons
Reposted
Glad she realized the importance of punctuation. 😆
December 6, 2025 at 12:26 AM
Glad she realized the importance of punctuation. 😆
Reposted
BREAKING: We won!
Today the 3rd Circuit Court ordered the @post-gazette.com to restore our contract it illegally tore up 5 years ago. That’s our health care, PTO, right to a 40-hr. work week, short-term disability and so much more we’ve struck for 3+ years.
pghguild.com/2025/11/10/p...
Today the 3rd Circuit Court ordered the @post-gazette.com to restore our contract it illegally tore up 5 years ago. That’s our health care, PTO, right to a 40-hr. work week, short-term disability and so much more we’ve struck for 3+ years.
pghguild.com/2025/11/10/p...
November 10, 2025 at 5:48 PM
BREAKING: We won!
Today the 3rd Circuit Court ordered the @post-gazette.com to restore our contract it illegally tore up 5 years ago. That’s our health care, PTO, right to a 40-hr. work week, short-term disability and so much more we’ve struck for 3+ years.
pghguild.com/2025/11/10/p...
Today the 3rd Circuit Court ordered the @post-gazette.com to restore our contract it illegally tore up 5 years ago. That’s our health care, PTO, right to a 40-hr. work week, short-term disability and so much more we’ve struck for 3+ years.
pghguild.com/2025/11/10/p...
Reposted
✨ Fireside Chat Ep 24 ✨
📅 Wed 17 Sept | 18:00 BST | YouTube Live
'Muscle & Movement: Rethinking Long Covid & ME/CFS'
Dr Rob Wust and @binitakane.bsky.social on why PEM is nothing like deconditioning and what research reveals about muscle changes in these conditons.
www.youtube.com/watch?v=8i4i...
📅 Wed 17 Sept | 18:00 BST | YouTube Live
'Muscle & Movement: Rethinking Long Covid & ME/CFS'
Dr Rob Wust and @binitakane.bsky.social on why PEM is nothing like deconditioning and what research reveals about muscle changes in these conditons.
www.youtube.com/watch?v=8i4i...
Fireside Chat Series | Episode 24 | #Mitochondria & #Muscle: Rethinking Long COVID and #ME/CFS
YouTube video by The Long Covid Clinic: What You CAN Do
www.youtube.com
September 12, 2025 at 10:26 AM
✨ Fireside Chat Ep 24 ✨
📅 Wed 17 Sept | 18:00 BST | YouTube Live
'Muscle & Movement: Rethinking Long Covid & ME/CFS'
Dr Rob Wust and @binitakane.bsky.social on why PEM is nothing like deconditioning and what research reveals about muscle changes in these conditons.
www.youtube.com/watch?v=8i4i...
📅 Wed 17 Sept | 18:00 BST | YouTube Live
'Muscle & Movement: Rethinking Long Covid & ME/CFS'
Dr Rob Wust and @binitakane.bsky.social on why PEM is nothing like deconditioning and what research reveals about muscle changes in these conditons.
www.youtube.com/watch?v=8i4i...
Reposted
Stop the Stigma of Chronic Illness
by sharing your story.
I was greatly affected first 2 years of Long Covid & most was self-inflicted because I grew up with:
“They” should try harder
“They” are faking
“They” are milking the system.
“They” is me.
And no, I’m not.
Disability can happen to anyone.
by sharing your story.
I was greatly affected first 2 years of Long Covid & most was self-inflicted because I grew up with:
“They” should try harder
“They” are faking
“They” are milking the system.
“They” is me.
And no, I’m not.
Disability can happen to anyone.
Univ. of Alberta: 'Stigma slows long COVID recovery: study'
'Univ. of Alberta research study reports that long COVID patients..face persistent stigma also experience worsening symptoms..poor quality of life..increased risk of not being able to rejoin the workforce'
www.ualberta.ca/en/news/spot...
'Univ. of Alberta research study reports that long COVID patients..face persistent stigma also experience worsening symptoms..poor quality of life..increased risk of not being able to rejoin the workforce'
www.ualberta.ca/en/news/spot...
Stigma slows long COVID recovery: study
A U of A research team followed 99 patients diagnosed with long COVID and found that those who faced more stigma also had worse symptoms, poorer quality of life, and higher risk for depression and an ...
www.ualberta.ca
October 29, 2025 at 9:50 PM
Stop the Stigma of Chronic Illness
by sharing your story.
I was greatly affected first 2 years of Long Covid & most was self-inflicted because I grew up with:
“They” should try harder
“They” are faking
“They” are milking the system.
“They” is me.
And no, I’m not.
Disability can happen to anyone.
by sharing your story.
I was greatly affected first 2 years of Long Covid & most was self-inflicted because I grew up with:
“They” should try harder
“They” are faking
“They” are milking the system.
“They” is me.
And no, I’m not.
Disability can happen to anyone.
Reposted
A portion of a human skull that was found in eastern Indiana this summer has been determined to be more than 4,200 years old, the authorities said. Officials are working to determine what regional Indigenous population the person may have belonged to.
Part of a 4,200-Year-Old Human Skull Is Found Along an Indiana Riverbank
The bone fragment, found in June, “is a powerful and humbling reminder that people have walked this land, our home in Fayette County, for millennia,” the county’s coroner said.
nyti.ms
October 15, 2025 at 9:40 PM
A portion of a human skull that was found in eastern Indiana this summer has been determined to be more than 4,200 years old, the authorities said. Officials are working to determine what regional Indigenous population the person may have belonged to.
Reposted
8/6/25, Mayo Clinic General Internal Medicine - Dr. Stephanie Grach
"Every day I'm encountering someone who, it's the first time they've had a clinician say, we understand you. What you're going through, what you have is real. That's one of my favorite parts.."
www.youtube.com/watch?v=D4gB...
"Every day I'm encountering someone who, it's the first time they've had a clinician say, we understand you. What you're going through, what you have is real. That's one of my favorite parts.."
www.youtube.com/watch?v=D4gB...
Mayo Clinic General Internal Medicine - Dr. Stephanie Grach
YouTube video by Mayo Clinic
www.youtube.com
October 14, 2025 at 10:10 PM
8/6/25, Mayo Clinic General Internal Medicine - Dr. Stephanie Grach
"Every day I'm encountering someone who, it's the first time they've had a clinician say, we understand you. What you're going through, what you have is real. That's one of my favorite parts.."
www.youtube.com/watch?v=D4gB...
"Every day I'm encountering someone who, it's the first time they've had a clinician say, we understand you. What you're going through, what you have is real. That's one of my favorite parts.."
www.youtube.com/watch?v=D4gB...
Reposted
Belgium will recognize a Palestinian state at this month’s UN General Assembly, the country’s foreign minister announced on Tuesday. The recognition, which was conditioned on the release of hostages by Hamas, follows similar moves by other countries as they try to push Israel to end the war in Gaza.
Belgium to Recognize Palestinian State, Joining Pressure on Israel
The recognition was conditioned on the release of hostages by Hamas. It comes after similar moves by other countries as they try to push Israel to end the war in Gaza.
nyti.ms
September 2, 2025 at 1:10 PM
Belgium will recognize a Palestinian state at this month’s UN General Assembly, the country’s foreign minister announced on Tuesday. The recognition, which was conditioned on the release of hostages by Hamas, follows similar moves by other countries as they try to push Israel to end the war in Gaza.
Reposted
Reposted
Updates on the pharmacy vaccine situation today: CVS is now requiring a prescription in 13 states and not offering shots at all in three others; Walgreens appears to be requiring prescriptions in 16 states, but not all the same ones as CVS. The lists of states are in the article. Gift link:
CVS and Walgreens Clamp Down on Covid Vaccines in Many States
www.nytimes.com
August 29, 2025 at 4:02 PM
Updates on the pharmacy vaccine situation today: CVS is now requiring a prescription in 13 states and not offering shots at all in three others; Walgreens appears to be requiring prescriptions in 16 states, but not all the same ones as CVS. The lists of states are in the article. Gift link:
Reposted
"Pat, why do you carry that ridiculous 600mm lens on long hikes?"
Buddy, I can see mountains reflected in the eyes of a trailside pika.
Buddy, I can see mountains reflected in the eyes of a trailside pika.
August 28, 2025 at 4:18 PM
"Pat, why do you carry that ridiculous 600mm lens on long hikes?"
Buddy, I can see mountains reflected in the eyes of a trailside pika.
Buddy, I can see mountains reflected in the eyes of a trailside pika.
Reposted
At this point, I am ready to become a dedicated patron to brands and businesses that have a principled stand against pushing AI as part of their offerings and vocally commit to smooth, lean/unbloated, pleasant basic customer experience.
As Adobe rolls out more generative AI features for the PDF, the era of chatbot-less software is firmly a thing of the past.
The AI-Powered PDF Marks the End of an Era
As Adobe rolls out more generative AI features for the PDF, the era of chatbot-less software is firmly a thing of the past.
wrd.cm
August 20, 2025 at 3:12 PM
At this point, I am ready to become a dedicated patron to brands and businesses that have a principled stand against pushing AI as part of their offerings and vocally commit to smooth, lean/unbloated, pleasant basic customer experience.
Reposted
"Here is your AI summary:"
"AI comes pre-installed"
"Use new AI mode"
"AI Assistant"
nonconsensual computing
"AI comes pre-installed"
"Use new AI mode"
"AI Assistant"
nonconsensual computing
August 19, 2025 at 8:53 PM
"Here is your AI summary:"
"AI comes pre-installed"
"Use new AI mode"
"AI Assistant"
nonconsensual computing
"AI comes pre-installed"
"Use new AI mode"
"AI Assistant"
nonconsensual computing
Reposted
So worst case scenario happened. One of my cats got out while I was away at a con. Slipped out behind the cat sitter. Kind of a mess rn. Anyone have any tips? I’m going to call local vets and shelters and I’m posted in local groups
August 11, 2025 at 2:47 AM
So worst case scenario happened. One of my cats got out while I was away at a con. Slipped out behind the cat sitter. Kind of a mess rn. Anyone have any tips? I’m going to call local vets and shelters and I’m posted in local groups
Reposted
Reposted
Reposted
Health Rising: “Turning the Pain up in Fibromyalgia (and ME/CFS?): The Antibody-Mast Cell Connection”
www.healthrising.org/blog/2025/07...
www.healthrising.org/blog/2025/07...
Turning the Pain up in Fibromyalgia (and ME/CFS?): The Antibody-Mast Cell Connection - Health Rising
A study suggests that mast cell activation may be a key driver of chronic pain in fibromyalgia. Treatments are suggested.
www.healthrising.org
July 29, 2025 at 11:34 PM
Health Rising: “Turning the Pain up in Fibromyalgia (and ME/CFS?): The Antibody-Mast Cell Connection”
www.healthrising.org/blog/2025/07...
www.healthrising.org/blog/2025/07...
Reposted
I can never get enough of this magnificent dinosaur bird the Shoebill… 🐦 ❤️
July 28, 2025 at 2:03 PM
I can never get enough of this magnificent dinosaur bird the Shoebill… 🐦 ❤️
Reposted
Mourners gathered in Ozzy Osbourne’s hometown of Birmingham, England, to pay tribute to the heavy metal singer, who died at 76 on Tuesday. https://trib.al/FB4I8FQ
July 23, 2025 at 7:56 PM
Mourners gathered in Ozzy Osbourne’s hometown of Birmingham, England, to pay tribute to the heavy metal singer, who died at 76 on Tuesday. https://trib.al/FB4I8FQ
Reposted
Visited the UK’s oldest standing stone circle today up near Keswick in the Lake District. 4500 years old. The 360 degree views of the surrounding fells and valleys were breathtaking.
July 16, 2025 at 6:03 PM
Visited the UK’s oldest standing stone circle today up near Keswick in the Lake District. 4500 years old. The 360 degree views of the surrounding fells and valleys were breathtaking.
Reposted
Okay it’s pretty impressive that they wore the boots
Apparently there was a joke event in Peru where all the jockeys raced each other instead of their horses
July 13, 2025 at 12:39 AM
Okay it’s pretty impressive that they wore the boots