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We are so honored to share this powerful TedX talk with you from #MEAction GA’s Maggie Boxey! Maggie is a person with ME, Navy veteran, and published author. She shared her story in her recent TedX talk, "I Am One of the Millions Missing.” www.meaction.net/2025/04/21/m...
#pwME #MECFS #TedX
#pwME #MECFS #TedX
#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience...
www.meaction.net
April 22, 2025 at 4:59 PM
We are so honored to share this powerful TedX talk with you from #MEAction GA’s Maggie Boxey! Maggie is a person with ME, Navy veteran, and published author. She shared her story in her recent TedX talk, "I Am One of the Millions Missing.” www.meaction.net/2025/04/21/m...
#pwME #MECFS #TedX
#pwME #MECFS #TedX
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On Earth Day and every day, we ground ourselves in the knowledge that our struggles are deeply connected. The fight for Long COVID justice is intertwined with our struggles for #disabilityjustice, #climatejustice, #racialjustice, and so much more.
April 22, 2025 at 6:38 PM
On Earth Day and every day, we ground ourselves in the knowledge that our struggles are deeply connected. The fight for Long COVID justice is intertwined with our struggles for #disabilityjustice, #climatejustice, #racialjustice, and so much more.
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We’re excited to share more details about the panelists for Breathing for Justice @breathing4justice.bsky.social, a special event focused on #LongCOVID & #DisabilityJustice, this Wednesday 4/23.
Learn more & register at www.tiny.cc/b4j-info (All registrants will receive the recording & resources!)
Learn more & register at www.tiny.cc/b4j-info (All registrants will receive the recording & resources!)
April 21, 2025 at 10:18 PM
We’re excited to share more details about the panelists for Breathing for Justice @breathing4justice.bsky.social, a special event focused on #LongCOVID & #DisabilityJustice, this Wednesday 4/23.
Learn more & register at www.tiny.cc/b4j-info (All registrants will receive the recording & resources!)
Learn more & register at www.tiny.cc/b4j-info (All registrants will receive the recording & resources!)
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Storytelling training for #MIllionsMissing! Expert storyteller, Kirsten Ferrell, will lead our community in a storytelling training that will enable us to share our stories in a way that leads to change on April 27th at 12pm PT/3pm ET. Register here: www.eventbrite.com/e/millionsmi...
#pwME
#pwME
April 18, 2025 at 4:51 PM
Storytelling training for #MIllionsMissing! Expert storyteller, Kirsten Ferrell, will lead our community in a storytelling training that will enable us to share our stories in a way that leads to change on April 27th at 12pm PT/3pm ET. Register here: www.eventbrite.com/e/millionsmi...
#pwME
#pwME
Reposted
Calling all Long Covid, ME/CFS and Post-Treatment Lyme patients in the Boston area! This PolyBio-supported study is now seeking participants.
Participants must be able to attend an in-person visit at Brigham & Women’s hospital in Boston to participate.
Email [email protected] if interested
Participants must be able to attend an in-person visit at Brigham & Women’s hospital in Boston to participate.
Email [email protected] if interested
April 18, 2025 at 6:09 PM
Calling all Long Covid, ME/CFS and Post-Treatment Lyme patients in the Boston area! This PolyBio-supported study is now seeking participants.
Participants must be able to attend an in-person visit at Brigham & Women’s hospital in Boston to participate.
Email [email protected] if interested
Participants must be able to attend an in-person visit at Brigham & Women’s hospital in Boston to participate.
Email [email protected] if interested
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Tuning into Los Angeles County Public Health's 'Public Health Virtual Town Hall on Long COVID' tonight
April 18, 2025 at 1:38 AM
Tuning into Los Angeles County Public Health's 'Public Health Virtual Town Hall on Long COVID' tonight
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The Trump administration recently canceled $11 billion in CDC grants to state and local health agencies. The Sick Times has identified specific #LongCOVID programs impacted, including state-level research, outreach, partnerships with community organizations, and more. bit.ly/4jjeAzi
April 15, 2025 at 3:21 PM
The Trump administration recently canceled $11 billion in CDC grants to state and local health agencies. The Sick Times has identified specific #LongCOVID programs impacted, including state-level research, outreach, partnerships with community organizations, and more. bit.ly/4jjeAzi
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PolyBio: 'Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program'
'Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in LC tissue, including therapies..'
polybio.org/chan-soon-sh...
'Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in LC tissue, including therapies..'
polybio.org/chan-soon-sh...
Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program - PolyBio Research Foundation
Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in...
polybio.org
April 15, 2025 at 7:55 PM
PolyBio: 'Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program'
'Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in LC tissue, including therapies..'
polybio.org/chan-soon-sh...
'Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in LC tissue, including therapies..'
polybio.org/chan-soon-sh...
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“My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.” via @thesicktimes.bsky.social
thesicktimes.org/2024/12/10/m...
thesicktimes.org/2024/12/10/m...
My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. - The Sick Times
Dear Mom, Thirty years later, I finally understand. Do you remember the year 1994? You got sick when I was a child, and you weren’t ever the same again. At first, it was a cough and congestion But as ...
thesicktimes.org
December 28, 2024 at 4:22 AM
“My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.” via @thesicktimes.bsky.social
thesicktimes.org/2024/12/10/m...
thesicktimes.org/2024/12/10/m...
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Powerful story about how a daughter didn’t understand her mother’s ME and all of the gaslighting until she found herself with Long Covid, decades later.
#pwME #pwLC
#pwME #pwLC
Today @thesicktimes.bsky.social: Jacquie Luciano describes how her experience with Long COVID led her to better understand her mother’s experience with ME decades earlier.
This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...
This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...
My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. - The Sick Times
Dear Mom, Thirty years later, I finally understand. Do you remember the year 1994? You got sick when I was a child, and you weren’t ever the same again. At first, it was a cough and congestion But as ...
thesicktimes.org
December 11, 2024 at 9:23 AM
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Today @thesicktimes.bsky.social: Jacquie Luciano describes how her experience with Long COVID led her to better understand her mother’s experience with ME decades earlier.
This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...
This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...
My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. - The Sick Times
Dear Mom, Thirty years later, I finally understand. Do you remember the year 1994? You got sick when I was a child, and you weren’t ever the same again. At first, it was a cough and congestion But as ...
thesicktimes.org
December 10, 2024 at 9:58 PM
Today @thesicktimes.bsky.social: Jacquie Luciano describes how her experience with Long COVID led her to better understand her mother’s experience with ME decades earlier.
This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...
This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...
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Working Americans (many of them disabled) pay into Social Security for their entire career out of recognition that these protections are what we owe one another, especially our disabled and aging neighbors. Making SSA harder to access is theft from those who've paid into SSA to protect their future.
April 2, 2025 at 10:51 PM
Working Americans (many of them disabled) pay into Social Security for their entire career out of recognition that these protections are what we owe one another, especially our disabled and aging neighbors. Making SSA harder to access is theft from those who've paid into SSA to protect their future.
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Disabled Americans deserve a functioning Social Security system, and are already suffering from these changes. Should DOGE be allowed to carry out Elon Musk's plan to reduce SSA capacity by more than 50%, it will harm and kill countless disabled people.
April 2, 2025 at 10:51 PM
Disabled Americans deserve a functioning Social Security system, and are already suffering from these changes. Should DOGE be allowed to carry out Elon Musk's plan to reduce SSA capacity by more than 50%, it will harm and kill countless disabled people.
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Breaking: We just filed a lawsuit in federal court against the Social Security Administration (SSA), SSA Acting Commissioner Dudek, the "Department of Government Efficiency" (DOGE), DOGE Administrator Gleason, and de-facto head of DOGE, Elon Musk 🧵:
www.aapd.com/aapd-sues-ss...
www.aapd.com/aapd-sues-ss...
AAPD and Disability Advocates Sue Social Security Administration and DOGE to Stop Unlawful Cuts to Social Security Services - AAPD
For Immediate Release: April 2, 2025 Contact: Jess Davidson at [email protected]; 202-465-5528 WASHINGTON, D.C. – The American Association of People with Disabilities (AAPD), the National Federatio...
www.aapd.com
April 2, 2025 at 10:51 PM
Breaking: We just filed a lawsuit in federal court against the Social Security Administration (SSA), SSA Acting Commissioner Dudek, the "Department of Government Efficiency" (DOGE), DOGE Administrator Gleason, and de-facto head of DOGE, Elon Musk 🧵:
www.aapd.com/aapd-sues-ss...
www.aapd.com/aapd-sues-ss...
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Announcing #MillionsMissing 2025 on May 12th!
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
www.meaction.net
April 3, 2025 at 4:37 PM
Announcing #MillionsMissing 2025 on May 12th!
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
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Join us for Breathing for Justice (@breathing4justice.bsky.social), a special event exploring how the intersections of #LongCOVID and disability justice affect individuals & communities, with a focus on inclusive health research & public history. www.tiny.cc/Breathing4Justice 🧵
April 10, 2025 at 1:15 PM
Join us for Breathing for Justice (@breathing4justice.bsky.social), a special event exploring how the intersections of #LongCOVID and disability justice affect individuals & communities, with a focus on inclusive health research & public history. www.tiny.cc/Breathing4Justice 🧵