Steve Fifield
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp
Pinned
Steve Fifield
@stevefifield.bsky.social
· Oct 17
If you are ME/CFS community, please find useful information in below posts 💙❤️🫂
Reposted by Steve Fifield
The Hamilton Spectator, Canada. 28th November 1991.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 28, 2025 at 9:40 AM
The Hamilton Spectator, Canada. 28th November 1991.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
Reposted by Steve Fifield
❤️ The Greens taking the spin out of Labour messaging 👇
November 28, 2025 at 8:48 AM
❤️ The Greens taking the spin out of Labour messaging 👇
Reposted by Steve Fifield
It's normal in the UK
They funded specialist NHS CFS services without any longitudinal studies. Ever.
Billions £££ wasted.
Part of 'our' productivity problem.
They funded specialist NHS CFS services without any longitudinal studies. Ever.
Billions £££ wasted.
Part of 'our' productivity problem.
November 24, 2025 at 6:35 PM
It's normal in the UK
They funded specialist NHS CFS services without any longitudinal studies. Ever.
Billions £££ wasted.
Part of 'our' productivity problem.
They funded specialist NHS CFS services without any longitudinal studies. Ever.
Billions £££ wasted.
Part of 'our' productivity problem.
Reposted by Steve Fifield
"There is no ongoing funding for longer term follow-up of the existing cohort studies."
Read that again.
There are no long-term cohort (longitudinal) studies for Long Covid in the UK.
That is a shocking omission. UK Government / medical research bodies should be ashamed.
Read that again.
There are no long-term cohort (longitudinal) studies for Long Covid in the UK.
That is a shocking omission. UK Government / medical research bodies should be ashamed.
This paragraph from Brightling and Evans' report is very concerning.
The government stopped the long-term follow-up of cohort studies in 2021. 🤦
The government stopped the long-term follow-up of cohort studies in 2021. 🤦
![5.10. It is our opinion, shared with many of the participants of the National Long Covid research group, that there has been a lack of progression in research funding from mid-2021. Further discussion of current and future research, along with potential gaps are described in M3. Overall, there is no ongoing funding for longer term follow-up of the existing cohort studies [Routen A 2022], the CIS [Covid Infection Survey] through ONS was stopped in March 2023, and no precision medicine studies were funded including no funding for mechanistic studies as part of Stimulate-lCP. The latter means that Stimulate-I GP may not be able to identify any variability in response to treatments that would inform next steps. There remains a substantial number of people suffering from Long Covid and there remain unanswered questions about causes, diagnostic tests and any specific treatments. In contrast, the UK's early response to Long Covid during the pandemic in terms of research was better than compared with other countries for example the National Institute of Health Recover initiative started in February 2021 (albeit a sizeable investment of over $1 billion) with awards being made in summer 2021 and 2022 [recovercovid.org] The crisis we faced due to acute Covid has subsided and correctly health priorities have been reset to address other acute and long-term conditions. However, Long Covid is now amongst these important long-term conditions and requires support commensurate to the scale of the problem i.e., research funding should be similar to other long-term conditions with a similar burden of symptoms and impact on quality of life.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:idf6m3amxguxiftesf7y24hd/bafkreifcehvjcyhnwfgsmyefbsm22u3ef6ef2jwxz3yrlegfqwqxchds3y@jpeg)
November 24, 2025 at 6:23 PM
"There is no ongoing funding for longer term follow-up of the existing cohort studies."
Read that again.
There are no long-term cohort (longitudinal) studies for Long Covid in the UK.
That is a shocking omission. UK Government / medical research bodies should be ashamed.
Read that again.
There are no long-term cohort (longitudinal) studies for Long Covid in the UK.
That is a shocking omission. UK Government / medical research bodies should be ashamed.
Reposted by Steve Fifield
I'd give it years. Researchers have repeatedly mischaracterised or oversimplified PEM for many years, so it is worth taking time.
November 26, 2025 at 12:35 PM
I'd give it years. Researchers have repeatedly mischaracterised or oversimplified PEM for many years, so it is worth taking time.
Reposted by Steve Fifield
I would use a multi phase approach trying different qualitative research methods and asking participants on an ongoing basis whether the conclusions are reasonable or not. All of that before I'd even start to decide whether a survey/scale is even capable of capturing the range of experiences.
November 26, 2025 at 6:56 AM
I would use a multi phase approach trying different qualitative research methods and asking participants on an ongoing basis whether the conclusions are reasonable or not. All of that before I'd even start to decide whether a survey/scale is even capable of capturing the range of experiences.
Reposted by Steve Fifield
👀💼 The govt will deliver its new #Budget2025 today at 12:30.
With so many policy announcements expected, and so much spin, it can be hard to know what it all means.
So, let us help you cut through the noise with our live reaction. Just keep you eyes on this thread 👇 1/???
With so many policy announcements expected, and so much spin, it can be hard to know what it all means.
So, let us help you cut through the noise with our live reaction. Just keep you eyes on this thread 👇 1/???
November 26, 2025 at 10:54 AM
👀💼 The govt will deliver its new #Budget2025 today at 12:30.
With so many policy announcements expected, and so much spin, it can be hard to know what it all means.
So, let us help you cut through the noise with our live reaction. Just keep you eyes on this thread 👇 1/???
With so many policy announcements expected, and so much spin, it can be hard to know what it all means.
So, let us help you cut through the noise with our live reaction. Just keep you eyes on this thread 👇 1/???
Reposted by Steve Fifield
Introducing “Energy Limiting
Conditions”
The Emergence and Evolution of a New Impairment
Concept
Catherine Hale
Independent Researcher, UK
Dr Anna Ruddock
Independent Researcher, UK
Ana Bê
Senior Lecturer in Disability Studies, Liverpool Hope University, Liverpool, UK
#ME/CFS #LongCOVID
Conditions”
The Emergence and Evolution of a New Impairment
Concept
Catherine Hale
Independent Researcher, UK
Dr Anna Ruddock
Independent Researcher, UK
Ana Bê
Senior Lecturer in Disability Studies, Liverpool Hope University, Liverpool, UK
#ME/CFS #LongCOVID
www.scienceopen.com
November 24, 2025 at 6:15 PM
Introducing “Energy Limiting
Conditions”
The Emergence and Evolution of a New Impairment
Concept
Catherine Hale
Independent Researcher, UK
Dr Anna Ruddock
Independent Researcher, UK
Ana Bê
Senior Lecturer in Disability Studies, Liverpool Hope University, Liverpool, UK
#ME/CFS #LongCOVID
Conditions”
The Emergence and Evolution of a New Impairment
Concept
Catherine Hale
Independent Researcher, UK
Dr Anna Ruddock
Independent Researcher, UK
Ana Bê
Senior Lecturer in Disability Studies, Liverpool Hope University, Liverpool, UK
#ME/CFS #LongCOVID
Reposted by Steve Fifield
Zack Polanski: billionaire owned media have, “a vested interest in trying to discredit any idea or story that challenges the status quo”
“The status quo isn’t working. It’s broken. We need a complete clear out of that broken politics. We need something new and hopeful, and that’s what I’m offering.
“The status quo isn’t working. It’s broken. We need a complete clear out of that broken politics. We need something new and hopeful, and that’s what I’m offering.
November 25, 2025 at 8:48 AM
Zack Polanski: billionaire owned media have, “a vested interest in trying to discredit any idea or story that challenges the status quo”
“The status quo isn’t working. It’s broken. We need a complete clear out of that broken politics. We need something new and hopeful, and that’s what I’m offering.
“The status quo isn’t working. It’s broken. We need a complete clear out of that broken politics. We need something new and hopeful, and that’s what I’m offering.
Reposted by Steve Fifield
Novo Nordisk's semaglutide fails to slow disease progression in two large Alzheimer's trials.
The latest in a series of drugs that appear promising from observational data that fail when put to the test in trials.
beingpatient.com/glp-1-diabet...
The latest in a series of drugs that appear promising from observational data that fail when put to the test in trials.
beingpatient.com/glp-1-diabet...
Blockbuster GLP-1 Diabetes and Weight Loss Drugs Fails in Alzheimer's Trial
Novo Nordisk, took a longshot gamble, and lost. Its GLP-1 drug semaglutide failed to treat Alzheimer’s in a trial that was halted.
beingpatient.com
November 24, 2025 at 6:46 PM
Novo Nordisk's semaglutide fails to slow disease progression in two large Alzheimer's trials.
The latest in a series of drugs that appear promising from observational data that fail when put to the test in trials.
beingpatient.com/glp-1-diabet...
The latest in a series of drugs that appear promising from observational data that fail when put to the test in trials.
beingpatient.com/glp-1-diabet...
Reposted by Steve Fifield
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
November 23, 2025 at 9:40 AM
“My NHS colleagues and I weren’t willing to let the bodies pile high in their thousands. Johnson no longer mentions them at all.”
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Hard hitting and necessary on the government’s covid complacency from @drrachelclarke.com
observer.co.uk/news/...
Gene therapy first for a rare and debilitating disease - Maybe we can seek something similar for #pwME once underlying mechanisms are identified?
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.co.uk
November 24, 2025 at 8:01 AM
Gene therapy first for a rare and debilitating disease - Maybe we can seek something similar for #pwME once underlying mechanisms are identified?
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
November 23, 2025 at 12:35 PM
Reposted by Steve Fifield
Reposted by Steve Fifield
There’s some very bad news hidden in the Ofgem price cap for January announced yesterday: the electricity to gas price ratio has jumped to 4.67, its highest level since before the energy crisis.
This is a big barrier to households adopting heat pumps in Britain, and threatens our climate goals
This is a big barrier to households adopting heat pumps in Britain, and threatens our climate goals
November 22, 2025 at 7:51 AM
There’s some very bad news hidden in the Ofgem price cap for January announced yesterday: the electricity to gas price ratio has jumped to 4.67, its highest level since before the energy crisis.
This is a big barrier to households adopting heat pumps in Britain, and threatens our climate goals
This is a big barrier to households adopting heat pumps in Britain, and threatens our climate goals
Reposted by Steve Fifield
#gulfwarillness research showed improvement in migraines/ headaches by avoiding glutamate. I think this likely applies to #MyalgicEncephalomyelitis as well.
I get horrendous headaches from Monosodium Glutamate (MSG).
www.eurekalert.org/news-release...
I get horrendous headaches from Monosodium Glutamate (MSG).
www.eurekalert.org/news-release...
Low-glutamate diet linked to brain changes and migraine relief in veterans with Gulf War Illness
Veterans with Gulf War Illness experienced significant improvement in migraine symptoms after following a diet low in glutamate, a component of flavor enhancing food additives commonly found in proces...
www.eurekalert.org
November 22, 2025 at 4:14 PM
#gulfwarillness research showed improvement in migraines/ headaches by avoiding glutamate. I think this likely applies to #MyalgicEncephalomyelitis as well.
I get horrendous headaches from Monosodium Glutamate (MSG).
www.eurekalert.org/news-release...
I get horrendous headaches from Monosodium Glutamate (MSG).
www.eurekalert.org/news-release...
Reposted by Steve Fifield
Yes. MPs referred to ‘stigma’ but when will someone call the BPSM what IT IS?
The BPS model is careerist-psychiatrists with a ridiculous belief in ‘infectious ideas’ calling seriously ill people malingerers+continuing to do that for decades IN THE FACE OF CONFOUNDING EVIDENCE AND ONGOING DEATHS
The BPS model is careerist-psychiatrists with a ridiculous belief in ‘infectious ideas’ calling seriously ill people malingerers+continuing to do that for decades IN THE FACE OF CONFOUNDING EVIDENCE AND ONGOING DEATHS
November 20, 2025 at 11:43 PM
Yes. MPs referred to ‘stigma’ but when will someone call the BPSM what IT IS?
The BPS model is careerist-psychiatrists with a ridiculous belief in ‘infectious ideas’ calling seriously ill people malingerers+continuing to do that for decades IN THE FACE OF CONFOUNDING EVIDENCE AND ONGOING DEATHS
The BPS model is careerist-psychiatrists with a ridiculous belief in ‘infectious ideas’ calling seriously ill people malingerers+continuing to do that for decades IN THE FACE OF CONFOUNDING EVIDENCE AND ONGOING DEATHS
Reposted by Steve Fifield
BREAKING: Nathan Gill is sentenced to 10 & a half years in prison after pleading guilty to eight charges of bribery from a Russian agent.
The "ultimate source" of the funds came from "a close friend of Vladimir Putin," said Mrs Justice Cheema-Grubb.
The "ultimate source" of the funds came from "a close friend of Vladimir Putin," said Mrs Justice Cheema-Grubb.
November 21, 2025 at 12:52 PM
BREAKING: Nathan Gill is sentenced to 10 & a half years in prison after pleading guilty to eight charges of bribery from a Russian agent.
The "ultimate source" of the funds came from "a close friend of Vladimir Putin," said Mrs Justice Cheema-Grubb.
The "ultimate source" of the funds came from "a close friend of Vladimir Putin," said Mrs Justice Cheema-Grubb.
Reposted by Steve Fifield
The sentencing hearing of Nathan Gill has begun.
Follow @thenerve.news for updates throughout the day.
1/
Follow @thenerve.news for updates throughout the day.
1/
November 21, 2025 at 10:41 AM
The sentencing hearing of Nathan Gill has begun.
Follow @thenerve.news for updates throughout the day.
1/
Follow @thenerve.news for updates throughout the day.
1/
Reposted by Steve Fifield
Reposted by Steve Fifield
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
November 20, 2025 at 4:49 PM
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
Reposted by Steve Fifield
Tessa Munt MP calls for urgent action to accelerate #MECFS research. The UK has spent just £10 million over 12 years — about 60p per patient/year. Four times more went on a helicopter for a former PM, 12 times more on a bat tunnel for HS2. Why isn’t ME a strategic research priority?
November 20, 2025 at 9:09 PM
Tessa Munt MP calls for urgent action to accelerate #MECFS research. The UK has spent just £10 million over 12 years — about 60p per patient/year. Four times more went on a helicopter for a former PM, 12 times more on a bat tunnel for HS2. Why isn’t ME a strategic research priority?
Reposted by Steve Fifield
Reading about today's UK #CovidInquiry report and it's bringing out of me a range of emotions.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
November 20, 2025 at 6:54 PM
Reading about today's UK #CovidInquiry report and it's bringing out of me a range of emotions.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
Reposted by Steve Fifield
👩⚕️👨🚒🤵 Doctors, firefighters, even the super-rich themselves can see it… so why can’t Rachel Reeves?
It’s time to tax the super‑rich & invest in our collective future.
Yesterday, we delivered over 700,000 signatures demanding that the govt delivers #TaxJustice at the budget.
It’s time to tax the super‑rich & invest in our collective future.
Yesterday, we delivered over 700,000 signatures demanding that the govt delivers #TaxJustice at the budget.
November 20, 2025 at 10:12 AM
👩⚕️👨🚒🤵 Doctors, firefighters, even the super-rich themselves can see it… so why can’t Rachel Reeves?
It’s time to tax the super‑rich & invest in our collective future.
Yesterday, we delivered over 700,000 signatures demanding that the govt delivers #TaxJustice at the budget.
It’s time to tax the super‑rich & invest in our collective future.
Yesterday, we delivered over 700,000 signatures demanding that the govt delivers #TaxJustice at the budget.
Reposted by Steve Fifield
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...