Elke Hausmann
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drelke.bsky.social
Elke Hausmann
@drelke.bsky.social
German, English, Spanish
Sociology, Medicine, General Practice
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It’s a lengthy read, but that’s what we‘ll get to:

‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.

Above all, what we need is liberation from judgements.‘

#LongCovid
BJGPLife: Long Covid and the body: can we move beyond judgements?
bjgplife.com/long-co...

#GeneralPractice #PrimaryCare #FamilyMedicine
Reposted by Elke Hausmann
🧵1️⃣ It’s UK Budget Day - so here’s a budget #RachelReeves hasn’t announced: a proper Long Covid Budget. We've estimated the real economic burden of Long Covid at £12-15 BILLION A YEAR.

At a £ a minute that puts us back in 26,500 BC - the Late Upper Paleolithic 😳
#Budget2026
November 26, 2025 at 11:18 AM
No, #LongCovid is not AIDS.

But…

Musings from a patient’s perspective.

1/3
November 26, 2025 at 8:18 AM
Reposted by Elke Hausmann
🧵#CLoCK Update
New paper released on #longcovid paediatric fatigue that demonstrates UK research culture has not made the vital steps needed to meet need or understand the disease.
Let's critically assess the issues:
/1
November 25, 2025 at 8:01 PM
November 25, 2025 at 2:46 PM
November 25, 2025 at 5:20 AM
Reposted by Elke Hausmann
I wrote recently about my experience with post-exertional malaise #PEM. Last year, I tried graded exercise therapy and it put me into a #PEMCrash that lasted for months. The physical therapist that “has worked with many #LongCovid #MECFS patients” had this mindset.

substack.com/home/post/p-...
November 24, 2025 at 11:30 PM
Reposted by Elke Hausmann
Schaden entsteht nicht durch Inhalt (Post COVID, ME/CFS = „psychosomatisch“), sondern durch:
systemische Wiederholung,
selektive Wahrnehmung,
Ausschluss realer Evidenz,
Abwertung von Erlebten,
Normierung der Deutung,
Immunisierung gegen Kritik,
mediale Macht,
institutionelle Abstützung

+ Schweigen.
November 24, 2025 at 9:07 AM
Reposted by Elke Hausmann
Thirty-one years ago today. The Evening Telegraph, Derby, England. 23rd November 1994.

"Mrs Duval said: "The damage these people do is profound - they upset sufferers and their families by choosing to ignore all the evidence"".

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 23, 2025 at 7:49 AM
Reposted by Elke Hausmann
1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.

They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.

November 22, 2025 at 8:39 AM
Reposted by Elke Hausmann
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
November 22, 2025 at 6:15 PM
Reposted by Elke Hausmann
🧵 Thread: The Economic Cost of Long Covid – new 2025 study in Nature

1/ A new paper has modelled the economic burden of Long Covid in the U.S. and globally. Spoiler: it’s massive. Here’s a breakdown. 👇
November 22, 2025 at 5:08 PM
Reposted by Elke Hausmann
Reposted by Elke Hausmann
1/8
Auftaktveranstaltung der
„Allianz postinfektiöse Erkrankungen: #LongCOVID,
#MECFS“,
eingeladen vom
@bmg-bund.bsky.social und BMFTR .

Ein historischer Schritt:
Mit rund 50 Mio. Euro jährlich (insgs ½ Milliarde) wird nun erstmals eine Dekade biomedizinischer #MECFS #PAIS
Forschung möglich.
November 21, 2025 at 5:54 AM
Good idea!

#LongCovid
Deadline: 12 December. If everyone who lost a job or knows someone who lost a job in the #NHS to #LongCovid responded, maybe the NHS could rethink exposing its workers to #Covid with no PPE. Roughly 1 in 3 people losing jobs as a result of having Long Covid are health or social care workers.
The #NHSProductivityCommission Call for Evidence is a chance for you to share your ideas about how productivity could be improved across hospital care, primary care, community care and mental health.

More information and guidance for responding ⬇️

https://bit.ly/4oHG9UY
November 21, 2025 at 1:36 PM
Reposted by Elke Hausmann
From 5:27, listen to #LongCovid lived experience from Jade, Laura about daughter Molly, and Martin.
BBC: 'UK Covid Inquiry: Response 'too little, too late'

'We get more details from our reporter and hear from people who suffered from long Covid symptoms.'

www.bbc.com/audio/play/w...
BBC Audio | BBC OS | UK Covid Inquiry: Response 'too little, too late'
The report says a mandatory lockdown could have been avoided
www.bbc.com
November 20, 2025 at 10:00 PM
Reposted by Elke Hausmann
Today, as the #CovidInquiry releases its module 2 report, we are thinking especially of everyone who will have to relive the trauma of that time, who will have to hear of the government failings that led to their loved ones' deaths. 

We will never forget our beloved dead. ❤️
November 20, 2025 at 10:20 AM
Reposted by Elke Hausmann
UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support.

@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
November 20, 2025 at 5:37 PM
Reposted by Elke Hausmann
1/ The Covid Inquiry's Module 2 report confirms critical failures at the highest levels of government, failures that have left millions with Long Covid and inadequate support.

We've drafted a press release in response:

www.longcovid.org/impact/news/...
Long Covid Support
To learn more visit LongCovid.org
www.longcovid.org
November 20, 2025 at 6:21 PM
‚And here’s the part the government still refuses to face: Long Covid was not considered at all. Not in early planning, not in risk assessments, not in public communication. /5‘

#LongCovid
The UK Covid-19 Inquiry confirms what our communities have lived for years: the government’s pandemic response wasn’t just a failure - it was a historic abandonment. “Too little, too late” doesn’t capture the scale of the harm. /1
November 20, 2025 at 6:15 PM
November 20, 2025 at 8:52 AM
Reposted by Elke Hausmann
There should be infinitely more interest in this medical mystery.

How many doctors can even name the phenomenon described below?

I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)

#MedSky
November 20, 2025 at 8:13 AM
Reposted by Elke Hausmann
M.E. = Myalgic Encephalomyelitis

ME Essential is the magazine for members of the (UK) ME Association

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 19, 2025 at 10:47 PM
Reposted by Elke Hausmann
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
November 20, 2025 at 7:04 AM
Reposted by Elke Hausmann
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.
November 19, 2025 at 7:01 PM
Reposted by Elke Hausmann
@ashleydaltonmp.bsky.social response to the ME debate at Westminster Hall called by @tessamunt.bsky.social

There was heartfelt testimony from MPs & repeated calls for a:
👉 commissioned NHS service for severe ME
👉 UK equivalent of the German National Decade of Research
November 19, 2025 at 6:00 PM