Elke Hausmann
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drelke.bsky.social
Elke Hausmann
@drelke.bsky.social
430 followers 450 following 1.2K posts
German, English, Spanish
Sociology, Medicine, General Practice
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drelke.bsky.social
Elke Hausmann @drelke.bsky.social · Jul 24
It’s a lengthy read, but that’s what we‘ll get to:

‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.

Above all, what we need is liberation from judgements.‘

#LongCovid
bjgp.bsky.social BJGP @bjgp.bsky.social · Jul 24
BJGPLife: Long Covid and the body: can we move beyond judgements?
bjgplife.com/long-co...

#GeneralPractice #PrimaryCare #FamilyMedicine
drelke.bsky.social
#LongCovid
#ME
Unter diesen Vorzeichen ist Samuels Reddit-Post kein „Abschiedsbrief", sondern ein verzweifelter Versuch, gehört zu werden - und damit letztlich ein Ausdruck von Hoffnung. Zumindest für andere Betroffene. Wenn aber ME/CFS-Betroffene erst ernstgenommen werden, wenn sie am Rande des Suizids stehen, ist das ein Armutszeugnis für unser Gesundheits- und Sozialsystem. Es darf nicht sein, dass strukturelles Wegsehen, Abwiegeln oder Zuständigkeitsverschiebungen Not zusätzlich verschlimmern. Politik und Medizin müssen rasch handeln, damit Ignoranz und mangelnde Versorgung nicht weiter zu lebensbedrohlichen Eskalationen führen.
January 30, 2026 at 3:40 PM
drelke.bsky.social
‚there is no cure (…) it‘s living with it, it’s coping with it the best you can‘.

#ME
abrokenbattery.bsky.social Adam @abrokenbattery.bsky.social · 1d
Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s. There is no treatment, no cure, just coping as best you can, and trying to create a stress free environment.

Nothing has changed.
January 30, 2026 at 3:35 PM
Reposted by Elke Hausmann
longcovidkids.bsky.social
Today is the launch of the Myth-busters: debunking #LongCovid myths and misconceptions.

We are pleased to have supported the development of these resources with The World Health Organisation.

www.who.int/europe/event...

#MythBusters #HealthSecurity #LongCovidKids #HealthInformationIntegrity #WHO
Long Covid can affect anyone who has had COVID-19, regardless of age or health. WHO logo Despite this face, myths persist that 'being young and fit protects you from Long Covid'. This is false. The phot shows a teenage girl on her paddle board in the sea. She is standing up holding a paddle, a small dog is wearing a life jacket on the back of the board. The sky shows a sunset and is shining on the water.
January 30, 2026 at 11:48 AM
Reposted by Elke Hausmann
taniaspencer.bsky.social
This is what first class #PublicHealth messaging looks like in the 7th year of an #OngoingPandemic of an injurious, #AirborneVirus.

It's not 🚀 science. It's now common sense.

Feel free to take notes, @ipaccanada.bsky.social & @cmadocs.bsky.social -
durhamhealthnc.bsky.social Durham County Department of Public Health (DCoDPH) @durhamhealthnc.bsky.social · 2d
Did you know? Anyone can develop Long COVID, and your risk increases each time you have COVID-19. Protect yourself from Long COVID by avoiding COVID-19, and talk to your doctor if you have new or long-term symptoms after having COVID-19. Learn more about Long COVID:
www.cdc.gov/long-covid/a...
Which of the following people can develop Long COVID? A. People who are old or have other health conditions. B. People who are young and have no other health conditions. C. People whose COVID-19 was mild or had no symptoms. D. People who had severe COVID-19 and were hospitalized . E. All of the above . Anyone can develop Long COVID. Avoid Long COVID by avoiding COVID-19, and talk to your doctor if you have new or long-term symptoms after having COVID-19.
January 29, 2026 at 12:49 AM
Reposted by Elke Hausmann
tomkindlon.bsky.social
The Implications and Predictability of Sleep Reversal for People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Machine Learning Approach

www.mdpi.com/2227-9032/13...

Screenshot from January AMMES newsletter

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Somebody lying in bed with their arms over their eyes (looks like they are probably distressed) The Implications and Predictability of Sleep Reversal for People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Machine Learning Approach Our study provides evidence that sleep reversal identifies a more impaired subgroup within the population of individuals with ME/CFS. Based on previous research findings that increased levels of pro-inflammatory cytokines contribute to more impaired sleep patterns, it is possible that significant inflammation may be an underlying cause of sleep reversal. Studies suggest that inflammation may relate to a majority of the predictive variables in our study. Additionally, as prior research indicates a relationship between low cortisol levels and circadian rhythm misalignment. Read more here>>
January 29, 2026 at 1:33 AM
Reposted by Elke Hausmann
langzeitc.bsky.social
"Ohne ihn [Freund] und meine Freundinnen wäre ich vermutlich nicht mehr am Leben." Margarete Stockowski @marga_owski gibt berührende Einblicke in ein Leben mit #MECFS. Niemand von uns hat vorher gewusst, dass man so schwer erkranken kann. Tragt konsequent Maske!! 😷
www.brigitte.de/gesund/gesun...
Margarete Stokowski: "Ohne meinen Partner und meine Freundinnen wäre ich vermutlich nicht mehr am Leben"
Viele kennen Margarete Stokowski (39) aus ihren Kolumnen oder von Bestseller-Büchern wie "Untenrum frei". Seit einer Covid-Infektion verbringt die Journalistin einen großen Teil des Tages liegend. Den...
www.brigitte.de
January 28, 2026 at 7:17 PM
drelke.bsky.social
Danke.

Es müssen endlich alle über PEM Bescheid wissen!!

#LongCovid
#ME
Im Herbst 2022 verschlechterte sich mein Zustand zunehmend: Zu den kognitiven Problemen entwickelten sich Mus-kelschwäche, Herzprobleme und ein übermäßig hoher Puls. Ich kannte damals das Konzept des "Pacing" noch nicht und bemühte mich, aktiv zu bleiben. So habe ich mich im Endeffekt selbst nach und nach heruntergewirtschaftet. Solche Überforderungssituationen hatte ich mehrfach: Eine Kardiologin, bei der ich war, hat mir Sport empfohlen. Das war natürlich fatal. Im Frühjahr 2023 hat ein anderer Kardiologe ein Belastungs-EKG angeordnet. Diese Untersuchung hat mich total zurückgeworfen. Danach hatte ich eine solche Erschöpfung, dass ich Monate brauchte, um wieder einigermaßen auf die Beine zu kommen. Im Sommer 2023 bewarb ich mich für eine Reha-Studie bei der Charité, wurde aber abgelehnt, weil mein Zustand zu schlecht war. Doch in dem Rahmen wurde schließlich ME/CFS diagnostiziert. Da habe ich erst erfahren, wie wichtig gezieltes Pacing ist, um meinen Zustand nicht weiter zu verschlimmern. Von da an begann ich, mich umfassend in das Krankheitsbild einzulesen und meinen Alltag entsprechend anzupassen.
January 28, 2026 at 8:44 PM
Reposted by Elke Hausmann
marshfamilysongs.bsky.social
We hope the good people of #SanFrancisco will forgive us for adapting a song about their city in 1967 to address the shocking and tragic events in #Minnesota in recent weeks. This is dedicated to Renée Good and Alex Pretti, and in solidarity. Our version is called "Minnesota" ❤️

youtu.be/BRHxXHZmVAM
"Minnesota" - Marsh Family adaptation of "San Francisco (Be Sure to Wear Some Flowers in Your Hair)"
YouTube video by Marsh Family
youtu.be
January 28, 2026 at 12:21 AM
Reposted by Elke Hausmann
covidmemorialwall.bsky.social
For those who have started following us recently, you may not be aware that we have an online tribute site where you can upload photos of your loved ones and leave a dedication to them - here's the link. ❤️
The National Covid Memorial Wall
Each hand-painted heart represents someone who was loved. Someone who was lost too soon to Covid. Leave a dedication on this page in memory to your loved one, as together we commemorate victims of the...
nationalcovidmemorialwall.dedicationpage.org
January 28, 2026 at 11:44 AM
Reposted by Elke Hausmann
brucespringsteen.net
I wrote this song on Saturday, recorded it yesterday and released it to you today in response to the state terror being visited on the city of Minneapolis. It’s dedicated to the people of Minneapolis, our innocent immigrant neighbors and in memory of Alex Pretti and Renee Good.

Stay free
Bruce Springsteen - Streets Of Minneapolis (Official Audio)
YouTube video by Bruce Springsteen
youtu.be
January 28, 2026 at 5:02 PM
drelke.bsky.social
Just because we have no biomedical cure for LC and ME yet - anybody who promises that is overpromising, we cannot allow ‚alternative healing‘ methods to step into that gap, because they are doing the same thing - overpromising.

#LongCovid
#ME
January 28, 2026 at 4:51 PM
drelke.bsky.social
#LongCovid
Nur ein Beispiel: In den frühesten Tagen der Pandemie habe ich in meiner Praxis in Heidelberg gerade eine Patientin ver-abschiedet. Nach einer langen Begleitung war bei ihr alles geordnet und sor-tiert, ihr Leben aufgeräumt. Bei unserem letzten Termin hustete sie sehr stark und konnte kaum noch die Treppe hochkom-men. Es stellte sich heraus, dass sie sich mit dem Wildtyp, dieser allerersten CO-VID-19-Variante angesteckt hatte. Weder beim Lungenarzt noch beim Kardiologen ergab sich ein erklärender Befund. So wurde sie ständig wieder zu mir zu-rückgeschickt. Dabei wusste ich sehr klar, dass bei ihr psychisch alles völlig stabil ist. Aus einer psychosomatischen Reha kam sie dann praktisch als "Wrack" zu-rück. Heute hat sie einen Pflegegrad 5 - ein klassisches Beispiel für Fehlsteuerung durch ein falsches Verständnis der Krankheit.
January 28, 2026 at 4:29 PM
drelke.bsky.social
#LongCovid
#ME
Kira Stoops has found that while many specialists understand their patients' conditions, too many build up hope for families seeking answers and treatments that simply don't exist. There aren't any widely accepted biomarkers for ME; there isn't a single drug approved to treat it. Many patients are in a cycle of seeking help, feeling grateful to be heard, and benefitting from small improvements like a new diagnosis or medication to slightly improve quality of life — and yet they still can't return to work or their previous lives. "We're grateful for incremental changes because that's what we can get," Stoops said. "But that isn't how practices [like Metrodora] are being marketed." The former Metrodora employee said they learned a lot from their underserved patients, and that for a while, the institute offered a beacon of hope. "I really wish it would've worked out," they said. "Its presence and the idea of it will be missed." Rachel Graves said Metrodora's mission to cure complex chronic conditions was simply unattainable. "The dream of Metrodora was never possible because they promised something that was ahead of the science, " she added. "Telling us they could help us was either incredibly naive or a lie."
January 28, 2026 at 3:23 PM
drelke.bsky.social
For anyone who has read Miranda Hart‘s book ‚I haven’t been entirely honest with you‘ and thought that she is just recounting her personal story - this is an excellent analysis putting her story into context.

#LongCovid
#ME

www.longcovidadvoc.com/post/dear-mi...
Dear Miranda,
Tales of the Unexpected: A letter reaching out to Miranda Hart to discuss her book and approaches to ME, Long Covid and Lyme.
www.longcovidadvoc.com
January 28, 2026 at 1:46 PM
Reposted by Elke Hausmann
privilegienschreck.bsky.social
Nochmal zu sekundärer Psychologisierung: D.h., dass psychologische Faktoren bei der Krankheitsentstehung oder -aufrechterhaltung überbetont werden. Psychosomatische Medizin selbst charakterisiert Krankheiten wie Long Covid oder ME/CFS heute nicht direkt als psychogen oder "eingebildet".

ABER:
1/
January 28, 2026 at 10:50 AM
drelke.bsky.social
No exercise? Not drinking alcohol?

Has anybody thought that this might have something to do with #LongCovid (post-exertional malaise, alcohol intolerance)…
Other striking statistics revealed by the survey included that 27% of adults were inactive by participating in less than 30 minutes of exercise a week, 46% of adults had at least one longstanding illness or condition, and 10% currently used e-cigarettes or vapes. The Department of Health and Social Care has been approached for comment.
January 27, 2026 at 6:59 PM
Reposted by Elke Hausmann
longcovidadvoc.com
1/ A new study from Brigham and Women’s Faulkner Hospital, led by prominent researchers Peter Novak, David Systrom, and colleagues, compared 143 Long Covid, 170 ME/CFS, 73 healthy controls, and 290 hEDS patients to map shared autonomic and neurovascular dysfunction. 🧵
An informational graphic titled "SHARED AUTONOMIC & NEUROVASCULAR DYSFUNCTION" under the categories "LATEST RESEARCH" and "ME/LONG COVID." The center features a photo of two researchers in a laboratory wearing white coats, hairnets, and blue gloves, carefully examining a blue liquid in a test tube. Below the image, text reads: "This study shows that Long COVID and ME/CFS share a common autonomic and neurovascular profile, including reduced cerebral blood flow, autonomic dysfunction, and small fiber neuropathy, supporting a shared underlying pathophysiology rather than distinct diseases." The bottom right attributes the source to "Novak et al, 2026, Plos One," and the bottom center features the "LONG COVID ADVOCACY" logo.
January 27, 2026 at 5:46 PM
Reposted by Elke Hausmann
vmatthiesboon.bsky.social
Vielleicht sollte ich das klarer formulieren: Das #biopsychosoziale Modell ist kein wissenschaftliches Modell. Es versäumt es nicht nur, die Konzepte richtig zu definieren, sondern unterscheidet auch nicht zwischen kausalen, korrelativen und falschen Korrelationsbeziehungen. 1/4
vmatthiesboon.bsky.social Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social · 6d
Ich stelle die fehlerhafte philosophische Logik dieser Psychologisierung, ihre unethischen Folgen dar und plädiere für eine postinfektiöse Ethik. 3/3
January 26, 2026 at 8:49 PM
Reposted by Elke Hausmann
blomechristine.bsky.social
Diese Korrelationen(!) mögen ja sogar korrekt gemessen sein. Aber m.E. ist das Framing im Paper nicht: Dies sind die (nachvollziehbaren) Folgen einer körperlichen Erkrankung, die uns zeigen, dass Long COVID bessere Behandlung braucht. Sondern: Bitte positiv denken & weniger um sich selbst kreisen!
January 27, 2026 at 1:35 PM
drelke.bsky.social
This is how many people with #LongCovid and #ME live.

The daily calculations and struggles.

There is not much scope for actively changing your ‚lifestyle‘, when you are constantly in reactive mode to what your body needs you and allows you to do.

Thank you for such a clear description 🙏
kristinwrites.bsky.social Kristin Houlihan, Writer @kristinwrites.bsky.social · 4d
An #MECFS calculation — we do this countless times a day:

I am hungry for a substantial meal, with protein. My caregiver is unavailable to prepare me food. My teen is unavailable to stand in. Remaining children too young. I feel like I could go to the kitchen and make a grilled ham and cheese. BUT
January 27, 2026 at 12:23 PM
Reposted by Elke Hausmann
auschwitzmemorial.bsky.social
Auschwitz was at the end of a process. We must remember that it did not start from gas chambers.

This hatred gradually developed: from ideas, words, stereotypes & prejudice through legal exclusion, dehumanization & escalating violence... to systematic and industrial murder.

Auschwitz took time.
A bird's-eye view of a former Auschwitz II-Birkenau camp showing a wide dirt pathway flanked by parallel rows of barbed-wire fences. Groups of visitors walk along the path, surrounded by the remnants of brick structures and barracks, now reduced to foundations. Green grass contrasts with the somber history of the site, as the path leads toward a guard tower in the distance.
January 27, 2026 at 11:00 AM
drelke.bsky.social
Thanks @michaeltikus.bsky.social for highlighting this interesting anthropology paper relevant to #LongCovid

1/n

www.tandfonline.com/doi/full/10....
A call for a critical medical anthropology of the COVID-19 pandemic
This paper is a call for a renewed critical medical anthropology (CMA) of the COVID-19 pandemic, one that attends not only to the pandemic’s acute phase but also to its enduring afterlife. We argue...
www.tandfonline.com
January 27, 2026 at 10:58 AM
Reposted by Elke Hausmann
luckytran.com
The UK has lost its measles elimination status, the World Health Organization has announced.

Vaccine disinformation is a worldwide pandemic that is killing us.
UK loses measles elimination status
Decision made after outbreaks in 2024, when there were nearly 3,000 cases in England and Wales.
www.bbc.com
January 27, 2026 at 5:23 AM
Reposted by Elke Hausmann
tomkindlon.bsky.social
ME Research UK:

Independent researchers Mark Vink (also a person with ME/CFS) and Alexandra Vink-Niese, have published a paper in the Journal of Clinical Medicine entitled “An Overview of Severe Myalgic Encephalomyelitis”.

Read more: tinyurl.com/4bmymtvc

#severeME #mecfs #cfs #pwme
Severe M E/CFS "In its most severe form, it [ME/CFS] is more disabling than many other diseases patients are bedbound 24/7, dependent on carers, and spend their days in dark and quiet rooms." "Even the soft sound of a human voice can lead to further deterioration." Awymmi_ Vink and Vink-Niese, Journal of WI a RESEARCH Clinical Medicine (2026) UK INFORM. INFLUENCE. INVEST. SCO36942
January 26, 2026 at 5:41 PM
Reposted by Elke Hausmann
tomkindlon.bsky.social
ME Research UK is delighted to announce that we have awarded funding to Prof. Chris Ponting @cgatist.bsky.social at the University of Edinburgh for a new study investigating the use of blood-based markers to help in the diagnosis of ME/CFS. tinyurl.com/y5bk5w9h

#MEcfs #CFS #PwME
Photo of Prof Chris Ponting
January 26, 2026 at 5:45 PM