banner
drelke.bsky.social
Elke Hausmann
@drelke.bsky.social
310 followers 370 following 890 posts
German, English, Spanish Sociology, Medicine, General Practice
Posts Media Videos Starter Packs
Pinned
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · Jul 24
It’s a lengthy read, but that’s what we‘ll get to:

‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.

Above all, what we need is liberation from judgements.‘

#LongCovid
bjgp.bsky.social
BJGP @bjgp.bsky.social · Jul 24
BJGPLife: Long Covid and the body: can we move beyond judgements?
bjgplife.com/long-co...

#GeneralPractice #PrimaryCare #FamilyMedicine
2 12
Reposted by Elke Hausmann
longcovidadvoc.com
Long Covid Advocacy @longcovidadvoc.com · 19h
Media flurry about the biomarker test for ME. 🧪

It's a promising discovery stage study but what needs to be done to turn this into a validated biomarker?! 🧵
🖇️
translational-medicine.biomedcentral.com/articles/10....
Infographic titled “ME Biomarker Claims” with a header “Latest Research.” Image shows test tubes, one filled with red liquid as a pipette adds a drop, symbolizing biomedical testing. Text summarises: researchers using EpiSwitch® found immune-linked chromatin markers distinguishing ME/CFS patients from controls, but small sample size and limited validation make biomarker claims premature. Footer credits Long Covid Advocacy and cites Hunter et al., Translational Medicine (2025).
2 6 36
Reposted by Elke Hausmann
georgemonbiot.bsky.social
George Monbiot @georgemonbiot.bsky.social · 1d
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
53 580 1.4K
Reposted by Elke Hausmann
longcovidadvoc.com
Long Covid Advocacy @longcovidadvoc.com · 20h
The pressure is working. Labour MPs calling for a rapid review of JCVI's Covid vaccine eligibility

Write to your MP with CEV's easy template 👇
www.clinicallyvulnerable.org/post/labour-...
2 9 19
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 1d
In Germany, it is common now to call the severest form of LC ME/CFS. In the UK, we tend to talk about either LC or ME.

It would be very interesting to look at a cohort of LC patients - would this test be able to pick out those with PEM??

#LongCovid

www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
3
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 1d
‚This isn’t about money: it’s about how we can provide the best and safest service while struggling with too few doctors and growing demand. No matter how many times we reiterate that tinkering with access doesn’t increase capacity, it seems that no one at NHS England is listening.‘

#GP
helensalisbury.bsky.social
Helen Salisbury @helensalisbury.bsky.social · 1d
According to Wes Streeting, GPs are less convenient than hairdressers.
My latest on why goodwill has drained away as we try to provide a safe & equitable service in the teeth of a gale of nonsense from NHS England & the govt.
bmj.com/cgi/content/...
Helen Salisbury: GPs versus hairdressers? Streeting has no idea
The row about online access to GP services continues.1 In April it was agreed that GPs would keep online portals open in their core hours, but a six month delay was put in place. This was so that NHS ...
bmj.com
2 3
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 1d
Local newspaper, Germany, today.

Yes, people aged 60 and over, and those with chronic illnesses, are advised to get the yearly Covid vaccine.

#LongCovid
Wird eigentlich noch gegen Corona geimpft? Ja, auch hier gilt nach wie vor die Empfehlung der Stiko, dass sich Menschen ab 60 Jahren oder chronisch Kranke jedes Jahr im Herbst mit einem, neu an aktuelle Varianten angepassten, MRNA-Impfstoff behandeln lassen sollen. Die Nebenwirkungen nehmen durch die jährliche Wiederholung nicht zu. Falls jemand die Impfung tatsächlich sehr schlecht verträgt, muss man überlegen, ob diese unbedingt notwendig ist. Are people still being vaccinated against coronavirus? Yes, the Stiko (German Institute for Occupational Health) recommendation still applies here: people aged 60 and over, or those with chronic illnesses, should be treated every fall with an mRNA vaccine that has been newly adapted to current variants. Side effects do not increase with annual re-administration. If someone actually tolerates the vaccination very poorly, one must consider whether it is absolutely necessary.
5
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 2d
Are the people deciding who can get the Covid jab now familiar with the massive increase in people unable to work due to ill health? Are they seriously thinking there is NO connection?

#LongCovid

Stretched job centre staff struggling to get disabled people into work www.bbc.com/news/article...
A graph showing the massive increase in the category of people with no work requirements who claim Universal Credit between 2020 and 2025, with all other categories including intensive work search, working, preparing and planning for work, more or less flatlined
3 6
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 2d
People want the Covid vaccine.

Especially in a world where vaccine hesitancy is rising, that should give health agencies a pause for thought.

Are they giving out the right message here??

#LongCovid

Pharmacies facing angry patients over Covid jab confusion www.bbc.com/news/article...
Pharmacies facing angry patients over Covid jab confusion
Up to half of patients coming to some pharmacies are being turned away because they are not eligible.
www.bbc.com
1 2 7
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 2d
Yes!

As a minimum, all patients coming through Long Covid clinics should be tested there for POTS as standard.

#LongCovid
CONCLUSIONS: In this cohort of predominantly younger women with highly symptomatic long COVID, POTS is common and presents with overlapping symptoms between POTS and non-POTS patients. Long COVID POTS confers lower physical activity and capacity compared with non-POTS long COVID and should be systematically assessed in this condition.
2
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 3d
‚Not eligible‘?

Does this include people who are immunocompromised (one of the criteria for getting the vaccine) due to living with #LongCovid (T-cell dysfunction etc), but that not being recognised by government and pharmacies?

We should be eligible, on the basis of their own criteria!
cvcev.bsky.social
Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 3d
The MILLIONS of people who were denied vaccines are suddenly realising.

@rthonwesstreeting.bsky.social this was a terrible idea.

Not only will the NHS struggle this autumn / winter, but people will suffer and die unnecessarily.

It isn't too late for a U-turn!
Community Pharmacy England Q Pharmacy teams have reported major issues to us over the last two days related to large numbers of patients booking COVID-19 vaccinations via the National Booking System (NBS) who are not eligible for the vaccine this winter. We are working with NHS England to try to address this unacceptable situation and to get more NHS communications issued to help people understand whether they are eligible for the vaccine. In the meantime, we have created three posters that pharmacy teams can use to help explain about vaccine eligibility this winter:
1 1 3
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 3d
Did I miss it? The mention of Covid??

I think I didn’t. They actually managed another article without mentioning Covid.

Surprised? No. But disappointed and angry. Helpless. Hopeless.

#LongCovid

Late nights and packed lectures - why freshers' flu is so hard to dodge www.bbc.com/news/article...
Freshers' flu: Why is it so hard for students to dodge?
It's not the actual flu, and it's rarely serious, but when thousands of students arrive on campus they bring a cocktail of viruses.
www.bbc.com
1 2 7
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 4d
Everybody should read his letter.

This affects school children, teachers, and their families.

Anybody who works in schools. Anybody who meets socially or professionally with people who work in schools or who have children.

Not many people are untouched by what happens in schools.

#LongCovid
taniaspencer.bsky.social
Tania J. Spencer @taniaspencer.bsky.social · 4d
A letter from a "Concerned Dad
Former Headteacher" to a British MP. This letter could have been written by a concerned parent and/or teacher to a politician in any other country, all united in their willful denial of an #OngoingPandemic, now in its 6th year -
binitakane.bsky.social
Binita Kane @binitakane.bsky.social · 6d
Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.

stevebheadteacher.wordpress.com/2025/09/30/d...
1 5
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 4d
Always the same s****. And they always get their letters published 🤯
3
Reposted by Elke Hausmann
stefanhemler.bsky.social
Stefan Hemler @stefanhemler.bsky.social · 5d
In #München ist am letzten Wochenende des Oktoberfests die #Wiesnwelle unübersehbar🍻
Legt man die von @rv-enigma.bsky.social ermittelte Dunkelziffer zugrunde, erreicht die Corona-7-Tagesinzidenz fast 1000🦠🤧🤒
Auch die Abwasserwerte steigen📈
Sie sind aber derzeit noch geringer als in den Vorjahren🙏
2 17 36
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 5d
Case in point ☹️

Nothing about testing, nothing about #LongCovid

Have some chicken soup!

www.bbc.co.uk/news/article...
1 5 25
Reposted by Elke Hausmann
bhanlon15.bsky.social
Billy Hanlon @bhanlon15.bsky.social · 6d
BBC: ''Since having Covid my life has completely changed'

'Others, like 16-year-old Molly from Weymouth, said they were still experiencing symptoms of Long Covid...'

"Too often children like me have felt abandoned and failed..."

www.bbc.com/news/article...
Covid Inquiry: 'Since having Covid my life's completely changed'
A teenager has told the Covid-19 inquiry she often feels "left out" after missing so much school.
www.bbc.com
15 48
Reposted by Elke Hausmann
rfh1955.bsky.social
Royal Free 1955 @rfh1955.bsky.social · 6d
English translation - Two social courts have ruled that social security offices may not classify #LongCovid and #MECFS as mental illnesses - those affected have been granted the opportunity to have their disability recognized.
martinruecker.bsky.social
Martin Rücker @martinruecker.bsky.social · 6d
Gleich zwei Sozialgerichte urteilen, Versorgungsämter dürfen #LongCovid und #MECFS nicht als psychische Erkrankung einstufen - Betroffenen wurde die Tür zur Anerkennung einer Schwerbehinderung geöffnet www.riffreporter.de/de/gesellsch... @riffreporter.bsky.social
Gerichtsurteile: Long Covid ist keine psychische Erkrankung
Wegweisende Sozialgerichtsurteile stufen Long Covid und ME/CFS als körperliche Erkrankungen ein - und öffnen die Tür zur Anerkennung als Schwerbehinderung.
www.riffreporter.de
3 13
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 6d
Sehr guter Artikel 👏👏👏

#LongCovid
Prof. Schomerus, ME/CFS, das auch bei Long-Covid auftritt, ist eine tückische Erkrankung: Sobald sich die Betroffenen auch nur leicht überlasten, erleiden sie einen „Crash": eine extreme Verschlimmerung der Symptome. Mehr noch, mit jedem Crash kann sich die Krankheit nachhaltig verschlimmern. Das A und O ist darum, sehr, sehr konsequent auf die eigenen Belastungsgrenzen zu achten. In der Medizin spricht man von „Pacing". Das Problem ist: Die Grenzen sind für die Betroffenen gar nicht so richtig spürbar. Sobald es ihnen etwas besser geht, belasten sie sich zu stark. Das kann schon ein Spaziergang sein oder ein Gespräch. Und dann landen sie ein oder zwei Tage später in einem Crash. Für die Betroffenen ist das sehr frustrierend. Gerade für Menschen, die eigentlich optimistisch, engagiert und tatkräftig sind, ist das eine enorme Herausforderung. ME/CFS ist eine ganz furchtbare Erfahrung, davon macht man sich keinen Begriff, wenn man den Menschen nicht zuhört oder es miterlebt hat.
6
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 7d
‚Scientists have linked the impact of living in an unequal society to structural changes in the brains of children – regardless of individual wealth – for the first time.‘

That’s in the brains of ALL children - rich or poor.

ALL are worse off.

www.theguardian.com/science/2025...
Study links greater inequality to structural changes in children’s brains
Researchers say findings show inequality creates toxic environment and reducing it is ‘a public health imperative’
www.theguardian.com
1 2
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 7d
‚But a wealth tax is not only about revenue. It’s about democracy. Extreme wealth is not just an economic problem - it’s a political one.‘

Such a fundamental point.

graceblakeley.substack.com/p/why-we-nee...
Why We Need Wealth Taxes
Extreme wealth undermines equality, justice, and democracy.
graceblakeley.substack.com
1
Reposted by Elke Hausmann
drrachelclarke.com
Dr Rachel Clarke @drrachelclarke.com · 7d
Here I am in 2020 in the flimsiest, most pitful PPE - like so many other NHS staff, some of whom died from the Covid they caught in their hospitals.

Tory peer Michelle Mone - who today lost her legal case & must repay the govt £122m - dares to claim she’s been ‘scapegoated’.

What, Michelle? 🧵
Rachel wearing very flimsy looking apron, mask and visor in NHS setting
140 1.2K 3K
Reposted by Elke Hausmann
chrischirp.bsky.social
Prof Christina Pagel @chrischirp.bsky.social · 7d
this study highlights that Long Covid remains a risk with every Covid infection, including for children and adolescents.

Particularly relevant as the Children's module opens for the UK Inquiry.

It's nonsense to say that children are and were at no risk from Covid.
brendancrabb.bsky.social
Prof Brendan Crabb AC @brendancrabb.bsky.social · 8d
“These findings add to previous evidence linking paediatric long COVID to multisystem effects and highlight the need to promote vaccination in younger populations...”

Time to reconsider our approach to kids and COVID/long COVID.

www.thelancet.com/journals/lan...
Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study
Children and adolescents face a significantly higher risk of various PASC outcomes after reinfection with SARS-CoV-2. These findings add to previous evidence linking paediatric long COVID to multisyst...
www.thelancet.com
7 100 170
Reposted by Elke Hausmann
longcovidsos.bsky.social
Long Covid SOS @longcovidsos.bsky.social · 7d
October is #DysautonomiaAwarenessMonth

For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more

We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October

#POTS #Dysautonomia #invisibleillness
Turquoise background with overlapping blue circles. In the centre, a simple illustration of a person with turquoise hair. Text around the person reads: “Dysautonomia Awareness Month.” Circles highlight symptoms: gastrointestinal issues, PoTS, heart palpitations, fatigue, shortness of breath, dizziness, cognitive issues, temperature dysregulation. Fainter circles in the background say and many many many more Long Covid SOS logo at the bottom left in white
3 21 26
drelke.bsky.social
Elke Hausmann @drelke.bsky.social · 7d
‚While there are fewer new cases of long Covid among both adults and children than at the pandemic’s height, doctors say they continue to see new patients.‘

They continue to see new patients.

This is not over.

#LongCovid
torres-amy.bsky.social
Amy Torres @torres-amy.bsky.social · 7d
The New York Times published a piece yesterday discussing this study as well. Thank you @pambelluck.bsky.social

Here is a gift article.
www.nytimes.com/2025/09/30/h...

#LongCovidKids
#pwLC
#PedSky
1 8
Reposted by Elke Hausmann
bhanlon15.bsky.social
Billy Hanlon @bhanlon15.bsky.social · 8d
New York Times: “Long Covid Risk for Children Doubles After a Second Infection, Study Finds”

‘The new research provides evidence that Covid reinfections can increase the risk of long-term health consequences’

www.nytimes.com/2025/09/30/h...
Long Covid Risk for Children Doubles After a Second Infection, Study Finds
www.nytimes.com
9 240 400