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Reposted by María Richardson

Wilhelmina Jenkins @wilhelminaj.bsky.social · 14h

An excellent article by Laurie Jones, executive director of @meaction-mi.bsky.social, about the difficulties that proposed Medicaid work requirements would cause the ME/CFS community.

MedPage Today @medpagetoday.com · 17h

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities

ME/CFS and long COVID patients must qualify as 'medically frail'

www.medpagetoday.com

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heather @heatherfeather.bsky.social · 10h

one of the biggest names in trans healthcare discrimination is also one of the biggest names in ME/CFS healthcare discrimination (Simon Wessely) & as a trans person with ME/CFS i'm begging all of us to make this intercommunity connection

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Katie Klocksin, by the wayside @katieklocksin.bsky.social · 10h

Great thread from the British journalist who coined the phrase #GreatestMEdicalScandal referring to myalgic encephelomyelitis or ME/CFS. #JohnVsJonVsME

George Monbiot @georgemonbiot.bsky.social · 1d

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

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María Richardson @diatoma.bsky.social · 11h

I remember and appreciate that self! And also the work you do now 🙏🏻

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María Richardson @diatoma.bsky.social · 11h

Been meaning to read Saunders :)

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Dara Lind @daralind.bsky.social · 5d

Anyway, this is your regular reminder that my Signal is available in my bio, and that if you have something you want publicly known I'm happy to chat with you about it and come up with a plan.

Not so that I can break it -- breaking news isn't my profession anymore! -- but so it can get out there.

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Jacob Soboroff @jacobsoboroff.bsky.social · 19h

here’s a GoFundMe set up by Samantha for her mom, who remains in ICE detention: gofund.me/a3149b169

Donate to Help Bring Maricela Home, organized by Rosa Rojas

As you all may know the Cicero/Berwyn area has been filled with ICE agents. Well my mom, Maricela … Rosa Rojas needs your support for Help Bring Maricela Home

gofund.me

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Emma @inneiennyfas.bsky.social · 20h

... without suffering for it afterward. I still work part-time from my bed, but that's basically all I can manage, and with my health being so fragile, I live in constant fear of becoming even worse or losing my sick pay and not having the energy to fight for it. The disease is...

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Emma @inneiennyfas.bsky.social · 20h

Thank you so much for writing about this 🌸 I became ill in early 2020, and my life has been destroyed. I worked full-time
at the university, enjoyed my social life, did all kinds of sports, and had many other hobbies too. I'm housebound now, and can't even shower or walk around inside the house...

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HenryKöhler @henry1967.bsky.social · 1d

Got this illness back in 1990, and it took a huge amount of energy to fight scepticism , energy that you needed just to cope with this condition.
I truly hope that this will change for real this time. Its truly devestating for all the #MeCfs sufferers as it is now & have been for decades.

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Lizzy @hopefullizzy.bsky.social · 22h

I long to study, to work, to go out, to help others, to contribute to society, to hike, and look out at the views.
Instead I cried this morning because I am so exhausted that digesting my feed through my feeding tube had taken all my energy.

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María Richardson @diatoma.bsky.social · 18h

Gracias again for this important essay @lauralew105.bsky.social ❤️
Have you written about the history of IACC, specifically ME? (@georgemonbiot.bsky.social calls it #GreatestMEdicalScandal of 21st century).
At @johnvsjonvsme.bsky.social we're trying to get more media to cover it-
www.johnvsjon.com

JohnVsJonVsME

The race to see who will cover "the greatest medical scandal of the 21st century" -George Monbiot Check out our latest op-ed in The Sick Times about how & why we started #JohnVsJonVsME People with Mya...

www.johnvsjon.com

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Laura Weiss @lauralew105.bsky.social · 18h

Apropos of nothing, here's my essay for @newrepublic.com from earlier this year about Covid's continued influence on our lives, whether we like it or not:
newrepublic.com/article/1927...
(Thanks again to @dceiver.bsky.social for letting me write it.)

The Pandemic Never Ended

Five years after Covid arrived on these shores, many believe the anxieties of the plague years are in the rearview mirror. But the threat is far from over.

newrepublic.com

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María Richardson @diatoma.bsky.social · Aug 14

I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal

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Emma Doty @emmadoty.bsky.social · 22h

www.spiked-online.com/2002/05/23/w...
Obviously aged like milk now that first responders have been dying for the last 24 years

World Trade Centre syndrome

We are healthier than ever - but fear is making us ill.

www.spiked-online.com

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María Richardson @diatoma.bsky.social · 20h

Gracias for your voice & clarity, querido @georgemonbiot.bsky.social. Any thoughts on why it’s so hard to get more people to care about #GreatestMEdicalScandal? At @johnvsjonvsme.bsky.social we’ve been trying to get @weeklyshowpodcast.bsky.social @lastweektonight.com to cover it.
www.johnvsjon.com

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María Richardson @diatoma.bsky.social · 20h

Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
I’ve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social

George Monbiot @georgemonbiot.bsky.social · 1d

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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María Richardson @diatoma.bsky.social · 20h

Still dreaming Jon Stewart will look into Wessely’s malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com

Emma Doty @emmadoty.bsky.social · 22h

www.spiked-online.com/2002/05/23/w...
Obviously aged like milk now that first responders have been dying for the last 24 years

World Trade Centre syndrome

We are healthier than ever - but fear is making us ill.

www.spiked-online.com

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Emma Doty @emmadoty.bsky.social · 23h

Fellow Americans who may be reading this: If you’ve never heard of Simon Wessely, he wrote an article in 2002 arguing that illnesses caused by exposures on 9/11 are just psychosomatic.

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Carole Bruce @cabruce.bsky.social · 1d

Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help

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Richard Vallée @richardvallee.bsky.social · 22h

The appearance of saving money, anyway.

It would have actually saved money to solve the problem. The costs incurred would have been turned into income years ago. In addition to the misery toll.

Quacks like Wessely save governments money the same way Musk's DOGE does: not at all.

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Long Covid Advocacy @longcovidadvoc.com · 1d

Thank you George for your advocacy 🙏

Wessely is wheeled out ad infinitum by governments to save them money.

In 1989 he was a founder member of 'The Campaign Against Health Fraud' that opposed unnecessary treatments for 'non-existent diseases'.

It's devastating to see neurodiverse people targeted

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George Monbiot @georgemonbiot.bsky.social · 1d

The thread on one page: skywriter.blue/pages/did:pl...

Page by George Monbiot | @georgemonbiot.bsky.social

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have bee...

skywriter.blue

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George Monbiot @georgemonbiot.bsky.social · 1d

On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue.

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George Monbiot @georgemonbiot.bsky.social · 1d

To rub salt into their wounds, these patients have watched as the man many see as their tormentor-in-chief has been garlanded with honours, including a knighthood. His latest appointment is yet another blow.

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