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drmoranlove.bsky.social
@drmoranlove.bsky.social
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eyedoctorsirl.bsky.social
We're looking forward to a great day of #clinicaleducation & #eyecare service delivery discussion at #EyeCareinFocus25 View programme eyedoctors.ie/eyecareinfoc... #myopia #glaucoma #cataract #eyecareteam #optometrist #optometry #eyenurse #GP #orthoptist #orthoptics #eyedoctor #ophthalmology
September 16, 2025 at 1:10 PM
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retinaint.bsky.social
Are you a young person living with a retinal condition? Register today for the Retina International Youth World Conference! Saturday, September 27 at 4pm CET> us06web.zoom.us/meeting/regi... #Conference #Science #Retina #RetinaYouth
September 9, 2025 at 8:08 AM
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fightblindness.bsky.social
Save the date! United in Vision 2026 combines the VISIONS Conference & Retina International World Congress. Join us June 10-13, 2026, in Fort Worth, TX, for collaboration, innovation & hope. 💙

Learn more: www.FightingBlindness.org/VISIONS2026
VISIONS 2026: United in Vision
The United in Vision 2026 conference unites two prestigious events—the Foundation Fighting Blindness VISIONS conference and the Retinal International World Congress—into one extraordinary global gathering. Scheduled from Wednesday, June 10, to Saturday, June 13, 2026, at the Omni Fort Worth Hotel and Fort Worth Convention Center in Fort Worth, Texas.
www.FightingBlindness.org
April 1, 2025 at 6:04 PM
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retinaint.bsky.social
Another fantastic #EducationHub session: We discussed the role of patients in research & regulation, with expert insights from NCPE & @ema.europa.eu. Patients are not just participants - they’re decision-makers.

More: shorturl.at/QK1mG

#RetinaInternational #PatientAdvocacy #HTA #RegulatoryAffairs
A virtual meeting screenshot from Retina International's Education Hub. The title slide reads, “Regulation and regulatory bodies: what is involved and how can patients make a difference.” Various speakers, including Avril Daly, Joan O’Callaghan, and Russell Wheeler, are visible in the session. A screenshot from the Education Hub event. The slide from the European Medicines Agency (EMA) titled “Who we are” is displayed, explaining different committees. Participants, including Kaisa Immonen and Dr. Jane Moseley, are highlighted in the Zoom call. A mix of presentation slides and speaker views. One slide from the NCPE outlines the HTA (Health Technology Assessment) process, showing the connection between NCPE, HTA, and payers. The session features discussions on patient involvement in regulatory decisions.
March 18, 2025 at 12:22 PM
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retinaint.bsky.social
Retina International stands with @eurordis.bsky.social and @eupatientsforum.bsky.social. Weakening patient representation in CHMP & PRAC is a step backwards for patient-centred healthcare. EU Member States must uphold meaningful patient involvement. Full statement: www.eurordis.org/epf-eurordis...
Patient organisations warn against EU rollback on patient involvement in medicines regulation - EURORDIS
EURORDIS and the European Patients' Forum issue a joint statement.
www.eurordis.org
March 13, 2025 at 12:45 PM
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retinaint.bsky.social
We're hiring a Postdoc Researcher to lead groundbreaking studies on mental health and vision loss due to retinal degenerative diseases. This is a unique opportunity to contribute to patient-centred research that drives real-world impact. Learn more:
www.linkedin.com/jobs/view/41...
#RetinalResearch
Retina International hiring Postdoctoral Researcher in Dublin, County Dublin, Ireland | LinkedIn
Posted 4:17:43 PM. About Retina InternationalRetina International is a global, patient-led membership organization…See this and similar jobs on LinkedIn.
www.linkedin.com
March 12, 2025 at 1:41 PM
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madhupai.bsky.social
Studies that touch on LGBT+ health, gender identity and DEI in the biomedical workforce could be terminate

www.nature.com/articles/d41...
Exclusive: NIH to terminate hundreds of active research grants
Studies that touch on LGBT+ health, gender identity and DEI in the biomedical workforce could be terminated, according to documents obtained by Nature.
www.nature.com
March 6, 2025 at 2:52 AM
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retinaint.bsky.social
Retina International are delighted to announce our latest publication in Frontiers Medicine #RIWC24 #Patient #Value #UnmetNeeds #Therapies www.frontiersin.org/journals/med...
March 4, 2025 at 4:00 PM
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hrci.bsky.social
Today we celebrate #RareDiseaseDay!
HRCI is proud to count many rare disease focused charities amongst our members and is committed to improving all aspects of rare disease research. Learn more about how we support the rare disease community here hrci.ie/about-us/our...
February 28, 2025 at 9:45 AM
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retinaint.bsky.social
🚨 We’re Hiring! 🚨 Postdoctoral Researcher – Retina International www.linkedin.com/jobs/view/41... #Postdoc #ResearchJobs #MedicalResearch #Retina #JoinOurTeam
Retina International hiring Postdoctoral Researcher – Retina International in Dublin, County Dublin, Ireland | LinkedIn
Posted 11:49:24 AM. 🚨 We’re Hiring! 🚨Postdoctoral Researcher – Retina International📍 Location: Dublin (Hybrid) | 📅…See this and similar jobs on LinkedIn.
www.linkedin.com
February 24, 2025 at 12:08 PM
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retinaint.bsky.social
Friday, February 28th is Rare Disease Day and RI will mark the day with a Webinar focusing on the issue of Mental Health and Rare Eye Disease, Friday Feb 21 at 12PM CET Register by emailing [email protected] #RareDiseaseDay #RareEyeDisease #MentalHealth #Policy #Diagnostics
February 11, 2025 at 3:16 PM
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retinaint.bsky.social
The RI Education Hub continued today with two excellent presentations on Patient Registries from Russell Wheeler and Todd Durham @fightblindness.bsky.social. Thanks to our speakers and participants for their participation and engagement #IRD #Genetics #GeneticTesting #Registries #ClinicalTrials
The image is a screenshot of a zoom session with a powerpoint slide on the left and participants on the right hand side.
February 7, 2025 at 1:05 PM
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drclairek.bsky.social
Hey I am recruiting a research programme manager on my team @ the Irish Cancer Society to cover mat leave, great opportunity to help manage our cancer research portfolio tinyurl.com/mssnkej4
Careers
We hire people who not only have the skills required for the job, but who also exhibit business acumen and determination.
tinyurl.com
February 4, 2025 at 2:03 PM
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retinaint.bsky.social
This year, ARVO has accepted Avril Daly's and Dr. Nabin Paudel's abstracts; we are excited to announce that they will be flying out this year to Salt Lake City this May to present studies on GA burden and treatment expectations & AI generated responses to patient queries on AMD #GA #AI #ChatGPT
ID: It is a darkgray background with decorative shapes with RI's logo colours. The ARVO 2025 Logo and the RI logo are on top. On the left there is Avril Daly's B&W picture with her name and work title below; she is smiling with her blonde hair up. Next to her, is Nabin's B&W picture with his name and work title below; He is smiling with his arms crossed, wearing a white button up shirt. Below that text are the titles of the abstracts in white; Nabin's abstract title reads: Accuracy and Readability of ChatGPT-4o Generated Responses to queries on Age-related Macular Degeneration for Patient Education and Counselling Avril's abstract title reads: Burden of geographic atrophy and treatment expectations of therapies: perspectives from patient driven research funding and support organizations
January 15, 2025 at 12:29 PM
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retinaint.bsky.social
🚨Final Reminder: Job Application Deadline for Financial Accountant Role🚨The clock is ticking! ⏳Applications close on 20 January 2025 at 5pm. www.activelink.ie/vacancies/co... for full details and to submit your application. #JobOpportunity #Hiring #FinancialAccountant #CharityJobs #PurposeDrivenWork
Retina International: Financial Accountant (Part Time)
Retina International is seeking a part-time Finance Manager (17.5 hours / 2.5 days per week). The role holder will provide timely, accurate, financial information for Budget Holders, Project Funders, ...
www.activelink.ie
January 16, 2025 at 10:34 AM
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retinaint.bsky.social
Our recent publication on the burden of AMD has been featured by Deborah Ungerleider of MedPage Today. Read our original article for free: lnkd.in/ejqbNJKP
MedPage Today coverage: lnkd.in/eTWihCBZ #AMD #EconomicBurden #Clinical #Ophthalmology #Optometry #Retina #Burden #Mentalhealth
LinkedIn
This link will take you to a page that’s not on LinkedIn
lnkd.in
January 13, 2025 at 11:41 AM
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samillingworth.com
🧩Around 1 in 127 people globally is on the autism spectrum

A new global analysis from @thelancet.bsky.social reveals that an estimated 61.8 million people in 2021 were autistic -equivalent to 1 in every 127 individuals.

🔗 www.thelancet.com/journals/lan...

#SciComm 🧪 #autism #ADHD #auDHD
The global epidemiology and health burden of the autism spectrum: findings from the Global Burden of Disease Study 2021
The high prevalence and high rank for non-fatal health burden of autism spectrum disorder in people younger than 20 years underscore the importance of early detection and support to autistic young people and their caregivers globally. Work to improve the precision and global representation of our findings is required, starting with better global coverage of epidemiological data so that geographical variations can be better ascertained. The work presented here can guide future research efforts, and importantly, decisions concerning allocation of health services that better address the needs of all autistic individuals.
www.thelancet.com
December 20, 2024 at 6:05 AM
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retinaint.bsky.social
🚨 We’re Hiring! 🚨
We are excited to announce an opportunity to join Retina International as a Financial Accountant part time!
www.activelink.ie/vacancies/co... #Hiring #JobOpportunity #JoinOurTeam #Hybrid #Parttime
Retina International: Financial Accountant (Part Time)
Retina International is seeking a part-time Finance Manager (17.5 hours / 2.5 days per week). The role holder will provide timely, accurate, financial information for Budget Holders, Project Funders, ...
www.activelink.ie
December 17, 2024 at 1:04 PM
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ushercoalition.bsky.social
Sepul Bio announced the first patient dosing in the LUNA Phase 2b trial of ultevursen, an mRNA gene therapy for Usher syndrome type 2A and non-syndromic retinitis pigmentosa linked to exon 13 variants in the USH2A gene.

Read more here: sepulbio.com/2024/12/12/s...
Sepul Bio, Doses First Participant in Phase 2b Clinical Trial of ultevursen for USH2A-associated retinitispigmentosa. - Théa
Sepul Bio
sepulbio.com
December 13, 2024 at 2:42 AM
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retinaint.bsky.social
Retina International supports this International Universal Health Coverage Day and urges decision makers around the world to protect people from financial hardship when accessing health services #HealthForAll #UniversalHealthCoverage #UHCDay #equity #UHC
A graphic promoting Universal Health Coverage Day by Retina International. The black background features the silhouette of a person's profile filled with colourful icons representing health, sustainability, and community, such as a white dove, a doctor and patient, a person riding a bike, and a blooming flower. To the left is text in bold white letters that reads: "For too many people around the world, the cost of accessing healthcare and medicines is too high. Governments, this #UHCDay, we call on you to make good on your promises and protect people from impoverishing health spending." At the top are the Universal Health Coverage Day umbrella logo and Retina International logo
December 12, 2024 at 12:02 PM