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fatiguedfrog.bsky.social
@fatiguedfrog.bsky.social
35 followers 170 following 1 posts
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Reposted
indivisible.org
🚨 TODAY: The House will vote on a resolution that would pump the breaks on Trump's march to war with Venezuela. Tell your representative to vote YES on war powers legislation to stop Trump from dragging us into war:
indivisible.org/resource/cal...
An image of Trump’s tweet from September 2013: “I predict that President Obama will at some point attack Iran in order to save face!” “Obama” is crossed out and replaced with Trump, and “Iran in order to save face!” is crossed out and replaced with Venezuela to distract from the Epstein files.
December 17, 2025 at 6:12 PM
Reposted
decodemestudy.bsky.social
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population.
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Summary of our results: shorturl.at/pgsjk
Check out our full preprint paper: shorturl.at/VwN3s
DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says ‘We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.
August 6, 2025 at 6:24 PM
Reposted
5calls.org
🚨 By a vote of 52-48, the Senate has confirmed RFK Jr. All Democrats and Independents, along with former Majority Leader Mitch McConnell (R-KY) opposed his nomination. Call your Senator and express your outrage about this confirmation.

🔥📞🔥 Updated CALL BACK script here: 5calls.org/issue/robert...
February 13, 2025 at 6:14 PM
Reposted
gregpak.net
Woke up mad! So I folded the laundry, did the dishes, and added more helpful links to my gregpak.link old school directory page. Check it out!
gregpak.link : old school links to make 2025 better
An old-school directory of helpful links to make 2025 better. All human, no 'A.i.' Leaning towards local and indepedent.
gregpak.link
February 16, 2025 at 3:45 PM
Reposted
pronounced-ing.bsky.social
Here is a script you can use for any issue. Find your reps' # at reps.fyi or 5calls.org. Every time you see a news story that horrifies you: call, or something else about it. It matters to say what you believe. You are setting a norm.
Hi, my name is [NAME], I'm a constituent in [ZIP CODE]. I'm calling because I saw that [TERRIBLE THING] is happening. I think this is appalling. [PERSONAL STORY, if you have one.] I want you to do everything you can to stop this. I will remember your actions when I cast my next vote. Thank you.
February 8, 2025 at 3:13 PM
fatiguedfrog.bsky.social
@lastweektonight.com & Jon Stewart @weeklyshowpodcast.bsky.social for #valentinesday I would love it if you could cover the #GreatestMEdicalScandal! Myself like many #pwME would love it if we could go back to work and to our lives, which have been stolen by lack of research & psychologizing ME.
February 14, 2025 at 11:50 PM
Reposted
tomkindlon.bsky.social
New review by US authors

Cerebral Blood Flow in Orthostatic Intolerance

www.ahajournals.org/doi/10.1161/...

Has subsections on ME/CFS & long Covid

#MEcfs #LongCovid
Figure 4. Methods for CBF measurement. Ultrasound is used to assess blood flow velocity to the head either at the middle cerebral artery using TCD ultrasound or at the external carotid artery via extracranial ultrasound. NIRS supplies an index of oxygen saturation of the frontal lobe with oximetry by shining near‐infrared light at the forehead. In‐ear pulse‐wave analysis is an emerging technique to remotely measure blood flow to the head using infrared light to the posterior auricular branch of the external carotid artery. CBF indicates cerebral blood flow; NIRS, near‐infrared spectroscopy; and TCD, transcranial Doppler.
February 3, 2025 at 6:03 PM
Reposted
tomkindlon.bsky.social
‪2/‬

‪"Because of the poor sensitivity of diagnostic criteria relying on heart rate and BP such as that of POTS and OH, we recommend the incorporation of CBF [cerebral blood flow] monitoring as the core diagnostic criteria of cerebral autoregulatory abnormality."‬
February 12, 2025 at 3:24 PM
Reposted
d2p.bsky.social
"our computational analysis identified several significant causal genes for #LongCOVID, supported by existing literature"

"our model revealed potential network driver genes, highlighting factors such as TP53, CREBBP, EP300, YWHAG, SMAD3, and GRB2 that may play crucial roles in network control."

🧬👀
medrxivpreprint.bsky.social medRxivpreprint @medrxivpreprint.bsky.social · Feb 12
Integrative Multi-Omics Framework for Causal Gene Discovery in Long COVID https://www.medrxiv.org/content/10.1101/2025.02.09.25321751v1
February 13, 2025 at 4:26 AM
Reposted
gregpak.net
I put this into a post. Please feel free to share. Call your R reps and tell them "I DIDN'T VOTE FOR CANCER!" - and demand they restore funding to the N.I.H. now. 202-224-3121

gregpak.net/2025/02/08/c...
Call your Republican reps and tell them "I DIDN'T VOTE FOR CANCER!" - gregpak.net
Folks often say they have Republican reps so there’s no point in calling them. Well, today’s your day to shine! Under Trump and Musk, the National Institutes of Heath just announced that they’re cutti...
gregpak.net
February 8, 2025 at 4:14 PM
Reposted
katha1970.bsky.social
The amazing #JohnVsJonVsME campaign to get John Oliver and Jon Stewart to cover #MECFS and the #GreatestMEdicalScandal is launching a special edition on Valentine's Day. If you can, please participate by spreading the word, making own memes or boosting other posts 🙏

Details in the thread below.
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · Feb 9
#JohnVsJonVsME is back! #ValentinesDay edition! Which late-night great John Oliver @lastweektonight.com or Jon Stewart @weeklyshowpodcast.bsky.social will be first to win our hearts & cover the #GreatestMEdicalScandal! #pwME (MEme c/o @diatoma.bsky.social )

Here’s how you can join the LoveFest🧵
a MEme of personified cartoon flowers with the faces of Jon Stewart and John Oliver on them holding balloons that say “All you need is love” “& funding for biomedical research & care” on them. Above them “Invite your friends & Valentines to join!” Below “February 14th starting at: 7pm Sydney/9 am Berlin/3 am EST/12 am PST (join when you’re awake!)” and then “#Greatest MEdical Scandal #John Vs Jon Vs ME Valentine’s Edition Love Fest”
February 9, 2025 at 1:31 AM
Reposted
cppedsa.bsky.social
Check out our listicle of Documentary Films about the Ehlers-Danlos Syndromes and more here:

https://buff.ly/4dTrBfZ

#EDS #hEDS #Hypermobility #HSD #Spoonies #NEISvoid #Zebras #Film #Medicine #POTS #MCAS #Disability #MedEd #Doctors #Diagnostics #Genetics #RareDiseases #MedSky
Documentary Films on Ehlers-Danlos Syndrome – EDSAwareness.com
Over the last year, the Ehlers-Danlos Syndromes have been increasingly present in media. Several films have depicted different aspects of the lived experience of families with Ehlers-Danlos Syndromes…
buff.ly
January 14, 2025 at 3:14 PM
Reposted
davetuller1.bsky.social
excellent response from @domsalisbury.bsky.social to unwarranted recommendations in new review from @bmj.com of treatments for Long Covid. www.bmj.com/content/387/...
Heterogeneity in long COVID and inadequate assessment of post-exertional malaise contribute to issues of indirectness in trials with high risk of bias
www.bmj.com
December 9, 2024 at 2:41 AM