Huntington's Disease Foundation
@hdfcures.bsky.social
The mission of the Huntington's Disease Foundation is to fund transformative research to find treatments, and ultimately a cure, for Huntington's disease.
Learn more about us: HDFoundation.org
Learn more about us: HDFoundation.org
November 25, 2025 at 4:09 PM
Our latest webinar featuring HDF-funded Young Investigators is available to watch anytime - on our website or YouTube channel. hdfoundation.org/2025-webinar... #cureHD #HuntingtonsDisease
November 24, 2025 at 11:06 PM
Our latest webinar featuring HDF-funded Young Investigators is available to watch anytime - on our website or YouTube channel. hdfoundation.org/2025-webinar... #cureHD #HuntingtonsDisease
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
November 21, 2025 at 4:07 PM
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Bright, young stars of Huntington's disease research are joining us TOMORROW, Tuesday, 11/18, 12-1pm ET, to discuss their work on strategies that could lead to therapeutics for HD. REGISTER NOW to hear more: tinyurl.com/Nov-2025-web...
November 17, 2025 at 7:33 PM
Bright, young stars of Huntington's disease research are joining us TOMORROW, Tuesday, 11/18, 12-1pm ET, to discuss their work on strategies that could lead to therapeutics for HD. REGISTER NOW to hear more: tinyurl.com/Nov-2025-web...
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
November 14, 2025 at 4:31 PM
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
Three promising Young Investigators are in the spotlight
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
November 10, 2025 at 5:02 PM
Three promising Young Investigators are in the spotlight
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
HDF-funded Young Investigators are diving into therapeutic delivery strategies, targeting disease modifiers, & researching protein clumping. Results may lead to new breakthroughs in HD science. REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
November 4, 2025 at 4:47 PM
HDF-funded Young Investigators are diving into therapeutic delivery strategies, targeting disease modifiers, & researching protein clumping. Results may lead to new breakthroughs in HD science. REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
HD research is moving faster than ever. Each step we’ve taken...is taking us to the top of the mountain...it will still take time, teamwork, & persistence...every step forward brings us one step closer to treatments that change lives.
en.hdbuzz.net/additional-c...
en.hdbuzz.net/additional-c...
Additional Clarity: What We Know 4 Weeks After the uniQure News – HDBuzz
en.hdbuzz.net
October 24, 2025 at 4:30 PM
HD research is moving faster than ever. Each step we’ve taken...is taking us to the top of the mountain...it will still take time, teamwork, & persistence...every step forward brings us one step closer to treatments that change lives.
en.hdbuzz.net/additional-c...
en.hdbuzz.net/additional-c...
Great news! Leslie Thompson, UC Irvine neuroscientist & HDF Scientific Advisory Board Chair, was awarded over $2m by CA’s stem cell agency to probe one of medicine’s most baffling mysteries: why HD devastates some brain cells while sparing others. @ucirvine.bsky.social
news.uci.edu/2025/10/08/c...
news.uci.edu/2025/10/08/c...
CIRM awards UC Irvine neuroscientist another $2 million for Huntington's disease research
Goal is to determine why the fatal condition destroys some brain cells but spares others
news.uci.edu
October 22, 2025 at 5:45 PM
Great news! Leslie Thompson, UC Irvine neuroscientist & HDF Scientific Advisory Board Chair, was awarded over $2m by CA’s stem cell agency to probe one of medicine’s most baffling mysteries: why HD devastates some brain cells while sparing others. @ucirvine.bsky.social
news.uci.edu/2025/10/08/c...
news.uci.edu/2025/10/08/c...
Researchers Ai Yamamoto & Katherine Croce examine in HD mice the ALFY gene that slows HD's onset by up to 23 years, making it one of the most potent disease onset modifiers & an attractive therapeutic target. Congrats to the team!
Read the full article here: www.sciencedirect.com/science/arti...
Read the full article here: www.sciencedirect.com/science/arti...
A rare genetic variant confers resistance to neurodegeneration across multiple neurological disorders by augmenting selective autophagy
The study of disease modifiers is a powerful way to identify patho-mechanisms associated with disease. Using the strong genetic traits of Huntington’s…
www.sciencedirect.com
October 10, 2025 at 3:44 PM
Researchers Ai Yamamoto & Katherine Croce examine in HD mice the ALFY gene that slows HD's onset by up to 23 years, making it one of the most potent disease onset modifiers & an attractive therapeutic target. Congrats to the team!
Read the full article here: www.sciencedirect.com/science/arti...
Read the full article here: www.sciencedirect.com/science/arti...
Watch anytime! Our $1m Transformative Research Award recipients are pursuing innovative strategies to target the triggers of HD & open new pathways for potential treatments. Learn more: hdfoundation.org/webinars-eve...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta
October 8, 2025 at 2:22 PM
Watch anytime! Our $1m Transformative Research Award recipients are pursuing innovative strategies to target the triggers of HD & open new pathways for potential treatments. Learn more: hdfoundation.org/webinars-eve...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta
September 25, 2025 at 3:04 PM
"Congratulations to the global Huntington's disease community. This result belongs to everyone." @profwild.bsky.social #curehd
www.youtube.com/watch?v=bhEx...
www.youtube.com/watch?v=bhEx...
Huntington's disease successfully treated for first time | BBC News
YouTube video by BBC News
www.youtube.com
September 24, 2025 at 8:42 PM
"Congratulations to the global Huntington's disease community. This result belongs to everyone." @profwild.bsky.social #curehd
www.youtube.com/watch?v=bhEx...
www.youtube.com/watch?v=bhEx...
We are thrilled to celebrate this morning's historic announcement from uniQure showing positive results in their gene therapy trial for #Huntingtonsdisease, the first time any drug has been shown to alter the course of HD in a clinical trial. #curehd
uniqure.gcs-web.com/news-release...
uniqure.gcs-web.com/news-release...
uniQure Announces Positive Topline Results from Pivotal Phase I/II Study of AMT-130 in Patients with Huntington’s Disease | uniqure BV
The Investor Relations website contains information about uniqure BV's business for stockholders, potential investors, and financial analysts.
uniqure.gcs-web.com
September 24, 2025 at 7:00 PM
We are thrilled to celebrate this morning's historic announcement from uniQure showing positive results in their gene therapy trial for #Huntingtonsdisease, the first time any drug has been shown to alter the course of HD in a clinical trial. #curehd
uniqure.gcs-web.com/news-release...
uniqure.gcs-web.com/news-release...
Researchers have discovered genetic "messages" that may appear only when HD is active. Would silencing these messages stop HD? Learn more on Wed, 9/17, 12-1pm ET. Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
September 15, 2025 at 6:32 PM
Researchers have discovered genetic "messages" that may appear only when HD is active. Would silencing these messages stop HD? Learn more on Wed, 9/17, 12-1pm ET. Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
HDF 2024 Transformative Research Award winners uncovered 2 genetic clues only in people with HD with treatment potential. Learn more on Wed, 9/17, 12-1pm ET.
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
September 12, 2025 at 4:24 PM
HDF 2024 Transformative Research Award winners uncovered 2 genetic clues only in people with HD with treatment potential. Learn more on Wed, 9/17, 12-1pm ET.
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Reposted by Huntington's Disease Foundation
Excited to announce the publication of a special issue on "Glia and non-neuronal cells in Huntington’s disease" that I co-edited with Dr. Asa Petersen in the Journal of Huntington's Disease (Volume 14, Issue 3)!
journals.sagepub.com/toc/huna/14/3
1/3
journals.sagepub.com/toc/huna/14/3
1/3
August 8, 2025 at 12:54 AM
Excited to announce the publication of a special issue on "Glia and non-neuronal cells in Huntington’s disease" that I co-edited with Dr. Asa Petersen in the Journal of Huntington's Disease (Volume 14, Issue 3)!
journals.sagepub.com/toc/huna/14/3
1/3
journals.sagepub.com/toc/huna/14/3
1/3
Congrats @jcarroll42.bsky.social, 2025 recipient of the Leslie Gehry Prize for Innovation in Science! Jeff's personal connection to #Huntingtonsdisease has fueled an impactful scientific career and an unwavering commitment to the HD community. We're so proud!
Learn more: tinyurl.com/2025-Gehry-P...
Learn more: tinyurl.com/2025-Gehry-P...
September 10, 2025 at 3:13 PM
Congrats @jcarroll42.bsky.social, 2025 recipient of the Leslie Gehry Prize for Innovation in Science! Jeff's personal connection to #Huntingtonsdisease has fueled an impactful scientific career and an unwavering commitment to the HD community. We're so proud!
Learn more: tinyurl.com/2025-Gehry-P...
Learn more: tinyurl.com/2025-Gehry-P...
Our $1m Transformative Research Award winners think beyond the htt gene by targeting new molecules that may drive the disease. Learn more on Wed, 9/17, 12-1pm ET.
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
September 8, 2025 at 6:01 PM
Our $1m Transformative Research Award winners think beyond the htt gene by targeting new molecules that may drive the disease. Learn more on Wed, 9/17, 12-1pm ET.
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Register: tinyurl.com/9-2025-webinar
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Reposted by Huntington's Disease Foundation
We’re proud to announce Nicolo Zarotti as a 2025 HDBuzz Prize winner! He covers a case study shows that Acceptance & Commitment Therapy (ACT) can lift mood, improve quality of life for people with HD, and offer real support for caregivers too.
en.hdbuzz.net/2025-hdbuzz-...
en.hdbuzz.net/2025-hdbuzz-...
2025 HDBuzz Prize: ACTing on HD: Exploring Acceptance and Commitment Therapy to Improve Mental Health in People with Huntington’s Disease and Their Caregiver – HDBuzz
en.hdbuzz.net
September 8, 2025 at 5:34 PM
We’re proud to announce Nicolo Zarotti as a 2025 HDBuzz Prize winner! He covers a case study shows that Acceptance & Commitment Therapy (ACT) can lift mood, improve quality of life for people with HD, and offer real support for caregivers too.
en.hdbuzz.net/2025-hdbuzz-...
en.hdbuzz.net/2025-hdbuzz-...
Can we treat HD by targeting its triggers? Join us on Wed, 9/17, 12-1pm ET to find out!
Webinar with Drs. Andrew Yoo & Osama Al Dalahmah. Live Q&A to follow.
Register: us06web.zoom.us/.../651.../W...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Webinar with Drs. Andrew Yoo & Osama Al Dalahmah. Live Q&A to follow.
Register: us06web.zoom.us/.../651.../W...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
September 3, 2025 at 9:53 PM
Can we treat HD by targeting its triggers? Join us on Wed, 9/17, 12-1pm ET to find out!
Webinar with Drs. Andrew Yoo & Osama Al Dalahmah. Live Q&A to follow.
Register: us06web.zoom.us/.../651.../W...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Webinar with Drs. Andrew Yoo & Osama Al Dalahmah. Live Q&A to follow.
Register: us06web.zoom.us/.../651.../W...
Thanks to our sponsors, #IonisPharmaceuticals #ClevelandClinic #Novartis #Rgenta #researchspotlight
Congratulations to HDF Scientific Advisory Board member Gillian Bates FRS, on being is awarded the prestigious 2025 Ferrier Medal from the Royal Society royalsociety.org/medals-and-p...
Ferrier Medal and Lecture | Royal Society
This prize lecture is given on a subject relating to the structure and function of the nervous system.
royalsociety.org
August 21, 2025 at 1:22 PM
Congratulations to HDF Scientific Advisory Board member Gillian Bates FRS, on being is awarded the prestigious 2025 Ferrier Medal from the Royal Society royalsociety.org/medals-and-p...
An article from the lab of HDF Scientific Advisory Board Chair Dr. Leslie Thompson garners the cover of the prestigious journal Neuron. This new study takes a deep dive using cutting-edge single-cell and spatial genomics into how Huntington’s disease changes the brain over time.
August 20, 2025 at 7:15 PM
An article from the lab of HDF Scientific Advisory Board Chair Dr. Leslie Thompson garners the cover of the prestigious journal Neuron. This new study takes a deep dive using cutting-edge single-cell and spatial genomics into how Huntington’s disease changes the brain over time.
We are pleased to announce Christopher E. Pearson, PhD, from the Hospital for Sick Children (SickKids), Toronto, Canada, as the recipient of our $1 Million 2025 Transformative Research Award. @sickkidsto.bsky.social @utoronto.ca
Read the full press release: hdfoundation.org/2025-transfo...
Read the full press release: hdfoundation.org/2025-transfo...
July 23, 2025 at 4:00 PM
We are pleased to announce Christopher E. Pearson, PhD, from the Hospital for Sick Children (SickKids), Toronto, Canada, as the recipient of our $1 Million 2025 Transformative Research Award. @sickkidsto.bsky.social @utoronto.ca
Read the full press release: hdfoundation.org/2025-transfo...
Read the full press release: hdfoundation.org/2025-transfo...