JessNeedstoRest
@hospmom.bsky.social
Artist & CHD mom, traversing the universe with ME/CFS
Reposted by JessNeedstoRest
Rob Reiner was an American Icon who, through his art and activism, held a mirror up to American culture. His talent, humor, activism, and patriotism will be missed. Our heart breaks at the senseless loss of our friend.
December 15, 2025 at 4:42 AM
Rob Reiner was an American Icon who, through his art and activism, held a mirror up to American culture. His talent, humor, activism, and patriotism will be missed. Our heart breaks at the senseless loss of our friend.
Reposted by JessNeedstoRest
Somehow @sepinwall.bsky.social published a beautiful eulogy for Rob Reiner overnight. I woke up saddened by the news of his passing, and this piece—celebrating his life and work—was exactly what I needed to read.
www.whatsalanwatching.com/rob-reiner-w...
www.whatsalanwatching.com/rob-reiner-w...
Rob Reiner was a master who didn't care if you noticed
A tribute to the late, great 'All in the Family' star and director of movie classics like 'This Is Spinal Tap' and 'The Princess Bride'
www.whatsalanwatching.com
December 15, 2025 at 12:29 PM
Somehow @sepinwall.bsky.social published a beautiful eulogy for Rob Reiner overnight. I woke up saddened by the news of his passing, and this piece—celebrating his life and work—was exactly what I needed to read.
www.whatsalanwatching.com/rob-reiner-w...
www.whatsalanwatching.com/rob-reiner-w...
Reposted by JessNeedstoRest
Sometimes we all need a reminder that we are kicking ass! www.bonfire.com/store/meacti...
Maybe we do not feel very kickass when we are just trying to survive but we know that takes unimaginable strength.
Thank you to @hospmom.bsky.social for this design!
#pwME #MECFS #Spoonie
Maybe we do not feel very kickass when we are just trying to survive but we know that takes unimaginable strength.
Thank you to @hospmom.bsky.social for this design!
#pwME #MECFS #Spoonie
October 23, 2025 at 1:38 AM
Sometimes we all need a reminder that we are kicking ass! www.bonfire.com/store/meacti...
Maybe we do not feel very kickass when we are just trying to survive but we know that takes unimaginable strength.
Thank you to @hospmom.bsky.social for this design!
#pwME #MECFS #Spoonie
Maybe we do not feel very kickass when we are just trying to survive but we know that takes unimaginable strength.
Thank you to @hospmom.bsky.social for this design!
#pwME #MECFS #Spoonie
Reposted by JessNeedstoRest
🌟 Your Voice Can Save ME/CFS Research! 💙
The CDC Chronic Fatigue Syndrome Program—the only federal effort dedicated to ME/CFS research and public health—is at risk of being cut. Losing it would be a devastating setback for millions of Americans living with ME/CFS.
The CDC Chronic Fatigue Syndrome Program—the only federal effort dedicated to ME/CFS research and public health—is at risk of being cut. Losing it would be a devastating setback for millions of Americans living with ME/CFS.
May 14, 2025 at 5:45 PM
🌟 Your Voice Can Save ME/CFS Research! 💙
The CDC Chronic Fatigue Syndrome Program—the only federal effort dedicated to ME/CFS research and public health—is at risk of being cut. Losing it would be a devastating setback for millions of Americans living with ME/CFS.
The CDC Chronic Fatigue Syndrome Program—the only federal effort dedicated to ME/CFS research and public health—is at risk of being cut. Losing it would be a devastating setback for millions of Americans living with ME/CFS.
Reposted by JessNeedstoRest
You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss...
#MEAction will be sounding a Disability SOS at the nation’s capitol and across social media.
#PwME
#MEAction will be sounding a Disability SOS at the nation’s capitol and across social media.
#PwME
April 28, 2025 at 4:54 PM
You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss...
#MEAction will be sounding a Disability SOS at the nation’s capitol and across social media.
#PwME
#MEAction will be sounding a Disability SOS at the nation’s capitol and across social media.
#PwME
Reposted by JessNeedstoRest
Want to join an event in-person instead? Join us in D.C. THIS THURSDAY!
That’s right, we’re taking our fight to #ProtectMedicaid right to the steps of the Capitol! go.caringacross.org/a/protect-me...
That’s right, we’re taking our fight to #ProtectMedicaid right to the steps of the Capitol! go.caringacross.org/a/protect-me...
April 8, 2025 at 6:40 PM
Want to join an event in-person instead? Join us in D.C. THIS THURSDAY!
That’s right, we’re taking our fight to #ProtectMedicaid right to the steps of the Capitol! go.caringacross.org/a/protect-me...
That’s right, we’re taking our fight to #ProtectMedicaid right to the steps of the Capitol! go.caringacross.org/a/protect-me...
Reposted by JessNeedstoRest
Announcing #MillionsMissing 2025 on May 12th!
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
www.meaction.net
April 3, 2025 at 4:37 PM
Announcing #MillionsMissing 2025 on May 12th!
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
Reposted by JessNeedstoRest
I don't have words for the fear these images conjure up, only that when I look at these images I know what I am looking at — and it is the most direct route to hell that humanity is capable of taking.
April 9, 2025 at 11:52 PM
I don't have words for the fear these images conjure up, only that when I look at these images I know what I am looking at — and it is the most direct route to hell that humanity is capable of taking.
Reposted by JessNeedstoRest
The death of due process is the most egregious assault on human rights protections in any democracy. Without it, democracy simply does not exist. Call your senators, call your reps. Call the governor, call your HOA for all I care, but please make noise for the people they're trying to disappear.
April 8, 2025 at 9:17 PM
The death of due process is the most egregious assault on human rights protections in any democracy. Without it, democracy simply does not exist. Call your senators, call your reps. Call the governor, call your HOA for all I care, but please make noise for the people they're trying to disappear.
Reposted by JessNeedstoRest
"The implication...is that not only noncitizens but also U.S. citizens could be taken off the streets, forced onto planes, and confined to foreign prisons with no opportunity for redress if judicial review is denied unlawfully before removal. History is no stranger to such lawless regimes..."
#BREAKING: 5-4 Court, with Barrett joining the three Dem. appointees in dissent *vacates* Chief Judge Boasberg’s temporary restraining orders in the Alien Enemy Act cases. Judicial review must be available, Court holds, but has to come through habeas petitions:
www.supremecourt.gov/opinions/24p...
www.supremecourt.gov/opinions/24p...
www.supremecourt.gov
April 7, 2025 at 11:07 PM
"The implication...is that not only noncitizens but also U.S. citizens could be taken off the streets, forced onto planes, and confined to foreign prisons with no opportunity for redress if judicial review is denied unlawfully before removal. History is no stranger to such lawless regimes..."
Reposted by JessNeedstoRest
"When print outlets bury one of the largest nationwide protests in recent memory, they’re not being neutral arbiters. They’re making a political choice about what deserves attention and what doesn’t."
Print Media to Mass Protests: “Please Turn to Page 18” newrepublic.com/article/1936...
Print Media to Mass Protests: “Please Turn to Page 18” newrepublic.com/article/1936...
Print Media to Mass Protests: “Please Turn to Page 18”
Here’s how newspapers across America minimized one of the largest demonstrations since Trump’s return to power.
newrepublic.com
April 8, 2025 at 2:12 AM
"When print outlets bury one of the largest nationwide protests in recent memory, they’re not being neutral arbiters. They’re making a political choice about what deserves attention and what doesn’t."
Print Media to Mass Protests: “Please Turn to Page 18” newrepublic.com/article/1936...
Print Media to Mass Protests: “Please Turn to Page 18” newrepublic.com/article/1936...
Reposted by JessNeedstoRest
March 28, 2025 at 5:33 PM
Reposted by JessNeedstoRest
March 28, 2025 at 10:08 PM
Reposted by JessNeedstoRest
US Senator Dave McCormick of Pennsylvania, who doesn't live in Pennsylvania, is on a book tour, and this is his email address. Why don't we all reach out and say hello. 😀 [email protected]
March 25, 2025 at 1:57 AM
US Senator Dave McCormick of Pennsylvania, who doesn't live in Pennsylvania, is on a book tour, and this is his email address. Why don't we all reach out and say hello. 😀 [email protected]
Reposted by JessNeedstoRest
We invite you to join in by sharing women that you see power in in our community and/or what is powerful about our community together.
Mentioned above @hospmom.bsky.social and @exceedhergrasp1.bsky.social
#MECFS #MyalgicEncephalomyelitis #MECFS #LongCovid
Mentioned above @hospmom.bsky.social and @exceedhergrasp1.bsky.social
#MECFS #MyalgicEncephalomyelitis #MECFS #LongCovid
March 28, 2025 at 5:31 PM
We invite you to join in by sharing women that you see power in in our community and/or what is powerful about our community together.
Mentioned above @hospmom.bsky.social and @exceedhergrasp1.bsky.social
#MECFS #MyalgicEncephalomyelitis #MECFS #LongCovid
Mentioned above @hospmom.bsky.social and @exceedhergrasp1.bsky.social
#MECFS #MyalgicEncephalomyelitis #MECFS #LongCovid
Reposted by JessNeedstoRest
@hospmom.bsky.social shared her amazing sketch and about why she chose to focus on Jaime Seltzer, our Scientific Director. youtube.com/shorts/aeN-a...
Jessica shares about Jaime Seltzer for Women's History Month!
YouTube video by The ME Action Network
youtube.com
March 28, 2025 at 6:42 PM
@hospmom.bsky.social shared her amazing sketch and about why she chose to focus on Jaime Seltzer, our Scientific Director. youtube.com/shorts/aeN-a...
I got a head nod and an approving half smile from a goth teenager last night.
Feels like I could take over the world.
#nosmallfeat #goth4ever #lovegenz #thelittlethings
Feels like I could take over the world.
#nosmallfeat #goth4ever #lovegenz #thelittlethings
March 23, 2025 at 11:04 AM
I got a head nod and an approving half smile from a goth teenager last night.
Feels like I could take over the world.
#nosmallfeat #goth4ever #lovegenz #thelittlethings
Feels like I could take over the world.
#nosmallfeat #goth4ever #lovegenz #thelittlethings
The ultimate goal is to remove special needs children and poor people from educational spaces. We need to occupy spaces. #education #disabilityrights
www.npr.org/2025/03/21/n...
www.npr.org/2025/03/21/n...
Trump says Education Department will no longer oversee student loans, 'special needs'
The president said federal student loans would move to the Small Business Administration, and hinted that the Department of Health and Human Services would take over special education oversight.
www.npr.org
March 22, 2025 at 10:24 PM
The ultimate goal is to remove special needs children and poor people from educational spaces. We need to occupy spaces. #education #disabilityrights
www.npr.org/2025/03/21/n...
www.npr.org/2025/03/21/n...
Reposted by JessNeedstoRest
Starting now, folks!
Hey, folks! I'm going to be giving a talk this Thursday, March 20 on Improving Care and Quality of Life in #MECFS. Join us! 🧪
us06web.zoom.us/j/8609689010...
us06web.zoom.us/j/8609689010...
March 20, 2025 at 6:02 PM
Starting now, folks!
Reposted by JessNeedstoRest
Trump signed an executive order that he said would “begin eliminating the federal Department of Education once and for all,” although the agency cannot be closed without the approval of Congress.
March 20, 2025 at 9:15 PM
Trump signed an executive order that he said would “begin eliminating the federal Department of Education once and for all,” although the agency cannot be closed without the approval of Congress.
Reposted by JessNeedstoRest
We should stop filing our taxes…
March 15, 2025 at 2:01 PM
We should stop filing our taxes…
Reposted by JessNeedstoRest
Don't forget that tomorrow is the economic blackout!
February 28, 2025 at 3:36 AM
Don't forget that tomorrow is the economic blackout!
Reposted by JessNeedstoRest
No shopping, no gas, no fast food. Will you join today’s economic blackout?
Companies Who Abandoned Their DEI Programs
Which Companies Are Retreating on Inclusion?
www.newsletter.samuel-warde.com
February 28, 2025 at 4:06 PM
No shopping, no gas, no fast food. Will you join today’s economic blackout?