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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 8d

Our Senior Research Fellow in Anthropology, Dr Kirsten Bell reflects on how labelling research disciplines influences how we think about them.

Read more at @bristolbrc.bsky.social blog👇

Should qualitative health researchers call themselves ‘qualitative health researchers’? - Bristol Biomedical Research Centre

Dr Kirsten Bell is a Senior Research Fellow in Anthropology at Imperial College’s Patient Experience Research Centre. She’s also a member of the BRC Qualitative Social and Behavioural Research Network...

www.bristolbrc.nihr.ac.uk

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 20d

💛 PERC at W12 Together Festival 💛

We keep it real and relevant — bringing research that speaks to our audience and the people it will impact most.
#W12Together #PeopleFirst #HealthResearch #CommunityEngagement

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 21d

Are you an experienced #PublicInvolvement professional & passionate about engaging with underrepresented communities? Join us to support @imperialbrc.bsky.social
health research.

👇Find out more and apply by 13 October 2025.
lnkd.in/d88Ttg_p

@imperialmed.bsky.social @imperialcollegeldn.bsky.social

Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 26d

The @imperialbrc.bsky.social proudly recognises the exceptional public involvement in research across @imperialcollegeldn.bsky.social. Our Public Involvement in Research Competition 2025 is now officially open.

Apply by 12 October 2025 👉 tin.al/jG1dq

@imperialmed.bsky.social @nihr.bsky.social

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Sep 4

🌈 Our PI Officer had an amazing time volunteering at the @wlqp.bsky.social street party!

💌 Big thanks to our colleagues at @westlondonnhs.bsky.social for helping hand out flyers, and to the brilliant folks from @goodgym.bsky.social and @dkms-uk.bsky.social we met along the way. #WLQP #LGBTQ

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Reposted by Imperial Patient Experience Research Centre (PERC)

Imperial Medicine @imperialmed.bsky.social · Aug 6

Millions signed up to @imperialcollegeldn.bsky.social's REACT study during the #COVID19 pandemic.

Now, that same cohort could help accelerate #dementia research – through a new partnership with HDR UK, @ukdri.ac.uk & Inuvi.

Faster trials = faster treatments 🧠 www.imperial.ac.uk/news/267013/...

REACT study to help boost UK dementia research | Imperial News | Imperial College London

Imperial’s REACT study will collaborate with a leading national dementia programme to help boost recruitment for clinical trials.

www.imperial.ac.uk

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Reposted by Imperial Patient Experience Research Centre (PERC)

Helen Ward @profhelenward.bsky.social · Jul 11

A quick update from me on the REACT study which continues to follow the health impacts of the pandemic. @longcovidsupport.bsky.social @imperialperc.bsky.social @imperialsph.bsky.social

MRC Centre for Global Infectious Disease Analysis @mrc-outbreak.bsky.social · Jul 11

NEW EPISODE #ScienceInContext! This week @eonore.bsky.social speaks with @profhelenward.bsky.social about the REACT study & the most important findings from the past five years & the next big questions👇
@imperialcollegeldn.bsky.social @imperialsph.bsky.social @ukhsa.bsky.social
youtu.be/RoIUiTVqHMI

youtu.be

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Reposted by Imperial Patient Experience Research Centre (PERC)

Viveka Guzmán @vivekaguzman.bsky.social · Jun 26

🤒How do older people make-sense of persistent COVID symptoms?

🤔 How does this influence their behaviors & outcomes?

📝 I'm presenting findings from the REACT study at the #BSG2025 conference, let's have a chat! 🗨️

@imperialsph.bsky.social @imperialperc.bsky.social @britishgerontology.bsky.social

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Reposted by Imperial Patient Experience Research Centre (PERC)

NIHR Imperial BRC @imperialbrc.bsky.social · Jun 9

Event 🚨

Title: NIHR Research Inclusion Training Event
Date: 25 June
Time: 12:00-16:00
Venue: Hybrid

To register or know more- imperial.eu.qualtrics.com/jfe/form/SV_...

@imperialmed.bsky.social @imperialnhli.bsky.social @imperialsci.bsky.social @imperialcollegeldn.bsky.social

Online Survey Software | Qualtrics Survey Solutions

Qualtrics sophisticated online survey software solutions make creating online surveys easy. Learn more about Research Suite and get a free account today.

imperial.eu.qualtrics.com

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Reposted by Imperial Patient Experience Research Centre (PERC)

Sarindi Aryasinghe @sarindiary.bsky.social · Jun 7

🚨New blog: Break the Barriers!🚨

For my PhD, my lived experience partners & I are co-producing research to address #racism in maternity care for Black families in NW London, and we want to share our journey!

🔗 First post + subscribe: bit.ly/3Hw2If4

#BlackMaternalHealth #coproduction #healthequity

Introducing Break the Barriers

Co-producing better maternity care with and for Black, African, Caribbean, and mixed-Black families—grounded in lived experience, advocacy, and research.

open.substack.com

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Jun 3

It was a pleasure hosting @menkaloomba.bsky.social as an @imperialcollegeldn.bsky.social Global Development Fund Fellow. This blog reflects her #communityengagement across #NorthWestLondon & feedback on her #PhD in #periodontalhealth & #Type2diabetes blogs.imperial.ac.uk/perc/2025/06...

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Reposted by Imperial Patient Experience Research Centre (PERC)

jennycrow.bsky.social @jennycrow.bsky.social · May 29

Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · May 23

We are delighted to share that our Director, @profhelenward.bsky.social, has been elected a Fellow of the Academy of Medical Sciences @acmedsci.bsky.social.

Huge congratulations, @profhelenward.bsky.social 🎉

Al McCartney @almccartney.bsky.social · May 22

Huge congrats to Profs @cchiu.bsky.social, Cristina Lo Celso, Guy Rutter, Sejal Saglani, Dame Molly Stevens, & @profhelenward.bsky.social on their election as Fellows of @acmedsci.bsky.social! 👏🏻👏🏻👏🏻

www.imperial.ac.uk/news/264314/...

Six Imperial professors elected Fellows of the Academy of Medical Sciences | Imperial News | Imperial College London

Imperial scientists from fields including infectious disease, childhood asthma, and public health are among those recognised.

www.imperial.ac.uk

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Reposted by Imperial Patient Experience Research Centre (PERC)

Dr Gemma Clunie @gemmaclunie.bsky.social · May 13

New paper alert! A Core Outcome Set for intervention studies in Airway Stenosis.

Thanks @imperialbrc.bsky.social for infrastructure support & @nihr.bsky.social for funding

@imperialmed.bsky.social @drjustinroe.bsky.social @amyfreeman.bsky.social @imperialperc.bsky.social

doi.org/10.1002/lary...

Development of a Core Outcome Set for Intervention Studies in Adults With Laryngotracheal Stenosis

We used a rigorous two round Delphi process informed by multiple stakeholder groups to gain consensus on seven core outcomes for inclusion in future research relating to adults with laryngotracheal s...

doi.org

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Reposted by Imperial Patient Experience Research Centre (PERC)

Vas @vas-papa.bsky.social · May 12

📢New paper now available: rdcu.be/elqhD

We outline how we trained & supported people living with HIV to conduct & analyse online interviews during the COVID-19 pandemic.

Huge thanks to our amazing community partner
@positivelyuk.bsky.social, staff @imperialperc.bsky.social & co-researchers ✨

Co-production in HIV research: a case study from the COVID-19 pandemic

rdcu.be

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Apr 29

🎉 Discover Kimberley Foley’s @kafoley.bsky.social inspiring blog on the Public Involvement work Kim led at the Ealing Community Involvement in Research event 👏
This blog was co-authored with a community member. Visit the link below:

tinyurl.com/2avat9rb and let us know your thoughts!

Researchers and community members working together to shape research on respiratory infections in young children - Patient Experience Research Centre

This entry is part 1 of 1 in the series Ealing Community Involvement in Research Event 2024Ealing Community Involvement in Research Event 2024Researchers and community members working together to shap...

tinyurl.com

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Reposted by Imperial Patient Experience Research Centre (PERC)

Cancer Screening & Prevention Research Group @imperial-csprg.bsky.social · Apr 24

Post doc Dr Rhea Harewood sharing #BowelCancerAwareness at a community outreach event with the Harrow THCOGIC church.

The group discussed how #BowelCancer is caused, how we can screen to find it earlier and how to improve public involvement in bowel cancer research

#EDI #CancerResearch

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Reposted by Imperial Patient Experience Research Centre (PERC)

Helen Ward @profhelenward.bsky.social · Apr 15

Pre-print from REACT . 60 interviews with diverse group
- all reported persistent symptoms after COVID
- many "invisible" as not using clinical care or support groups
- some didn't identify with category Long Covid
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@longcovidsupport.bsky.social @imperialperc.bsky.social

doi.org/10.1101/2025...

Challenges of visibility and inclusion in Long COVID: a population-based interview study

Introduction People with Long Covid report a wide range of symptoms and inconsistent responses when seeking clinical diagnosis and support. Much of the qualitative research on Long Covid has been base...

doi.org

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Apr 7

On this #WorldHealthDay the @who.int focuses on the health of mothers and babies. Our 2024 Public Involvement in Research Competition Winner, @sarindiary.bsky.social, followed a co-production approach to address ethnic inequities in maternity care for Black women in West London.

👉 shorturl.at/bvVBO

Helen Ward, Carole and Sarindi Aryasinghe holding the 2024 BRC Public Involvement in Research trophy after their presentation at the NIHR Imperial BRC Annual Event.

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Reposted by Imperial Patient Experience Research Centre (PERC)

NIHR Imperial BRC @imperialbrc.bsky.social · Mar 26

BRC Public Involvement in Research Competition winner 24 receives the trophy 🏆 at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women.

@profhelenward.bsky.social @imperialmed.bsky.social

imperialbrc.nihr.ac.uk/2024/12/10/w...

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Dr Gemma Clunie @gemmaclunie.bsky.social · Mar 25

Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Mar 17

🎥 Discover how we are collaborating with the Latin American community in London to promote health awareness and public involvement!
A huge thank you to LA United UK and The Invention Rooms for making this possible. 🌟
#HealthAwareness #PublicInvolvement #LatinAmericanCommunity #ImperialCollegeLondon

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Dec 20

Don’t miss our final blog of 2024! 💫 Featuring @emmaaaaa8.bsky.social Emma Alexander's amazing Public Involvement work in the Paediatric Intensive Care Unit research. Please find it here: blogs.imperial.ac.uk/perc/2024/12...

Let us know your thoughts in the comments!

Having an Impact with PPIE in Paediatric Intensive Care Research

By Emma Alexander As a doctor who works in children’s intensive care, I have always been interested in research, especially in research that matters to parents and young children

blogs.imperial.ac.uk

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Dec 10

Congratulations to @sarindiary.bsky.social on winning the @imperialbrc.bsky.social 2024 #publicinvolvement competition! Read more about her coproduced #maternitycare in #NorthWestLondon here. tinyurl.com/2fyt492b @imperialcollegeldn.bsky.social #academicsky #medsky #matexp #coproduction

Winner announced for the BRC Public Involvement in Research Competition 2024 – NIHR Imperial Biomedical Research Centre

<p>The winner of the NIHR Imperial BRC Public Involvement in Research Competition 2024 was announced early this month.</p>

tinyurl.com

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Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · Dec 4

@imperialbrc.bsky.social