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Reposted by ME Centraal

Louise Fox 🦊 @louise-fox.bsky.social · 5d

Het is ondraaglijk. Ik wil huilen en schreeuwen vanwege deze ongerechtigheid.

Hoezo ignoreren de dokters dat er al meerdere ME/CVS patiënten zijn verhongerd?

Zijn ze ongeïnformeerd, ongeïnteresseerd of gewoon sadistisch?

Ik hoop dat het goed komt voor Sanne.

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ME Centraal @mecentraal.bsky.social · 5d

Er wordt meer waarde gehecht aan protocollen dan aan patiënten of de feiten, zoals dat er inderdaad patiënten op deze manier aan hun einde zijn gekomen. Afschuwelijk en onbegrijpelijk.

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Reposted by ME Centraal

Sigrid C. Degener @esceedee.bsky.social · 5d

Unfortunaly she is not going to get the treatment 🤬😭

bsky.app/profile/mece...

ME Centraal @mecentraal.bsky.social · 6d

www-omroephorstaandemaas-nl.translate.goog/actueel/uitg...

To our great regret, we must inform you that Sanne has lost the lawsuit filed against three hospitals and will not receive parenteral nutrition... 💔

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ME Centraal @mecentraal.bsky.social · 5d

Only you and a few others can imagine what she and her family must be going through right now...

And here it is, oddly enough not everything got translated, but most of it did; uitspraken-rechtspraak-nl.translate.goog/details?id=E...

Rechtspraak.nl - Zoeken in uitspraken

Zoeken in uitspraken

uitspraken-rechtspraak-nl.translate.goog

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Reposted by ME Centraal

Long Covid Safety Net @longcovidsafetynet.bsky.social · 6d

The state is starving people with very severe ME.

ME Centraal @mecentraal.bsky.social · 6d

www-omroephorstaandemaas-nl.translate.goog/actueel/uitg...

To our great regret, we must inform you that Sanne has lost the lawsuit filed against three hospitals and will not receive parenteral nutrition... 💔

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ME Centraal @mecentraal.bsky.social · 6d

www-omroephorstaandemaas-nl.translate.goog/actueel/uitg...

To our great regret, we must inform you that Sanne has lost the lawsuit filed against three hospitals and will not receive parenteral nutrition... 💔

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Reposted by ME Centraal

Eleanor Fielding @meownersclub.bsky.social · 12d

Sheesh - here it is again! F*cking psychiatrists!
@georgemonbiot.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne

@georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

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ME Centraal @mecentraal.bsky.social · 14d

🌍 No. 54 of the ME Global Chronicle is published!

It contains highlights from the past 3 months of ME events around the globe.

meglobalchronicle.wordpress.com/2025/09/24/f...

meglobalchronicle.wordpress.com/2025/09/24/t...

With contributions by @colleensteckel.bsky.social & many more.

#MEcfs

From the editors

Bezoek het bericht voor meer.

meglobalchronicle.wordpress.com

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Reposted by ME Centraal

Sigrid C. Degener @esceedee.bsky.social · 20d

😡😭

ME Centraal @mecentraal.bsky.social · 20d

Unfortunately she will have to wait for a judicial decision for another 2 weeks, unacceptable in this case but apparently this is how the system works 😔 @swastrosarah.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne

@georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

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ME Centraal @mecentraal.bsky.social · 19d

People are dying from ME without a specialist service, please support this important campaign! #Justice4ME

sarah boothby @swastrosarah.bsky.social · 20d

Maddened by such callous regard to family life but otherwise never better. #Justice4ME You?
Justice4me.uk

NHS care for ME now

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

Justice4me.uk

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ME Centraal @mecentraal.bsky.social · 19d

Also frustrated by everything but for ME-standards I'm not doing too bad, thanks for asking 🙂

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ME Centraal @mecentraal.bsky.social · 20d

Indeed! Thank you for caring and reaching out despite your own hardship, how are you holding up?

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ME Centraal @mecentraal.bsky.social · 20d

Unfortunately she will have to wait for a judicial decision for another 2 weeks, unacceptable in this case but apparently this is how the system works 😔 @swastrosarah.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne

@georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

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ME Centraal @mecentraal.bsky.social · 20d

We only post about Sanne, I will pass it on to her (team). So much depends on today... 🤞

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Reposted by ME Centraal

Protein and veg and fasting. @mccheapo.bsky.social · 21d

#mecfs

ME Centraal @mecentraal.bsky.social · 22d

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne

@georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

1

Reposted by ME Centraal

Adriaan @adrianusalexander.bsky.social · 22d

bsky.app/profile/mece...

ME Centraal @mecentraal.bsky.social · 22d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

Is Sanne going to be the Dutch Maeve Boothby-O’Neill?

ME patient Sanne (38) denied life-saving treatment ⚖️ Lawyers are taking action this week. Your help is also needed! 38-year-old Sanne van Enckevort from Hegelsom (Limburg, The Netherlands) is seri…

meglobalchronicle.wordpress.com

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ME Centraal @mecentraal.bsky.social · 22d

Thank you so much 💙

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ME Centraal @mecentraal.bsky.social · 22d

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne

@georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

ME Centraal @mecentraal.bsky.social · 22d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

Is Sanne going to be the Dutch Maeve Boothby-O’Neill?

ME patient Sanne (38) denied life-saving treatment ⚖️ Lawyers are taking action this week. Your help is also needed! 38-year-old Sanne van Enckevort from Hegelsom (Limburg, The Netherlands) is seri…

meglobalchronicle.wordpress.com

17 21

ME Centraal @mecentraal.bsky.social · 22d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

Is Sanne going to be the Dutch Maeve Boothby-O’Neill?

ME patient Sanne (38) denied life-saving treatment ⚖️ Lawyers are taking action this week. Your help is also needed! 38-year-old Sanne van Enckevort from Hegelsom (Limburg, The Netherlands) is seri…

meglobalchronicle.wordpress.com

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ME Centraal @mecentraal.bsky.social · 22d

Hi Sarah! We were active on here for a while, but got so few reposts that we gave up. We could maybe use this account for English posts on occassion only, when it's about something important such as this.

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Reposted by ME Centraal

Litsa Dremousis @litsadremousis.bsky.social · 22d

Let’s mobilize.

#MyalgicEncephalomyelitis #pwME

ME Centraal @mecentraal.bsky.social · 22d

International ME community:
ME patient Sanne (38) is denied life-saving treatment.

Sanne has no time left. Only TPN could save her life, but it is being denied.

Read our website to find out what you can do 👇
& Please read 🧵

mecentraal-wordpress-com.translate.goog/2025/09/16/m...

ME-patiënte Sanne (38) wordt levensreddende behandeling geweigerd

⚖️ Advocaten komen deze week in actie. Jouw hulp is ook nodig!De 38-jarige Sanne van Enckevort uit Hegelsom (Limburg) is ernstig ziek. Ze heeft ME en een daardoor veroorzaakte gastroparese, en daar…

mecentraal-wordpress-com.translate.goog

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ME Centraal @mecentraal.bsky.social · 22d

@georgemonbiot.bsky.social 🙏

ME Centraal @mecentraal.bsky.social · 22d

International ME community:
ME patient Sanne (38) is denied life-saving treatment.

Sanne has no time left. Only TPN could save her life, but it is being denied.

Read our website to find out what you can do 👇
& Please read 🧵

mecentraal-wordpress-com.translate.goog/2025/09/16/m...

ME-patiënte Sanne (38) wordt levensreddende behandeling geweigerd

⚖️ Advocaten komen deze week in actie. Jouw hulp is ook nodig!De 38-jarige Sanne van Enckevort uit Hegelsom (Limburg) is ernstig ziek. Ze heeft ME en een daardoor veroorzaakte gastroparese, en daar…

mecentraal-wordpress-com.translate.goog

3

ME Centraal @mecentraal.bsky.social · 22d

Thanks Steve! I just sent her a message too.

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ME Centraal @mecentraal.bsky.social · 22d

We noticed your reply swastrosarah.bsky.social, thank you so much 🙏 Would it be possible to contact us @ [email protected] ? bsky.app/profile/nele...

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ME Centraal @mecentraal.bsky.social · 22d

Do you know Helen Baxter (25% ME Group), Nigel Speight (pediatrician), or William Weir (physician, UK National Health Service), the authors of the article "Life-Threatening Malnutrition in Very Severe ME/CFS" (Healthcare, 2021)? Then put them in touch with ME Centraal (here or [email protected])

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