MECFS Advocate
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mecfs-advocate.bsky.social
MECFS Advocate
@mecfs-advocate.bsky.social
29 followers 95 following 11 posts
ME/CFS patient advocating for research, medical education, treatment and support re: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Posts Replies Media Videos
Reposted by MECFS Advocate
ashleylynch.bsky.social
I owe an apology to all James Bond movies. I mocked them for having completely unrealistic, cartoonish villains that simply weren't believable.

2025 has made it impossible to levy that criticism anymore.
March 1, 2025 at 11:19 PM
Reposted by MECFS Advocate
exceedhergrasp1.bsky.social
lmao, this.
whatashrinkthinks.com Martha Crawford @whatashrinkthinks.com · Mar 1
I'm a doomer to those dissociated and pretending tragedies aren't unfolding before their very eyes.

And I'm also a Pollyanna to everyone who assumes passive nihilism
March 1, 2025 at 6:00 PM
Reposted by MECFS Advocate
bhanlon15.bsky.social
Colorado Public Radio News: 'Long COVID; The ongoing battle'

'...we look at the lasting impact of long COVID in Colorado...Dr. Sarah Jolley from the UCHealth Post-COVID Clinic discusses treatment options and the uncertain road to recovery...'

www.cpr.org/show-episode...
Long COVID; The ongoing battle | Colorado Public Radio
We look at the lasting impact of long COVID in Colorado.
www.cpr.org
March 1, 2025 at 2:17 PM
Reposted by MECFS Advocate
bhanlon15.bsky.social
The Guardian: 'Five years on from the pandemic, how has Covid changed our world?'

'Others with long Covid have lost jobs and relationships. The “return to normal” did not include everyone'

www.theguardian.com/commentisfre...
Five years on from the pandemic, how has Covid changed our world? | The panel
We asked a group of experts on politics, trade, literature, psychology, work and more: what has been the most surprising or shocking consequence of Covid-19 in your field?
www.theguardian.com
March 1, 2025 at 3:21 PM
Reposted by MECFS Advocate
batemanhornecenter.bsky.social
📣 Q&A Series: Your Questions. Our Answers. 💬
Q: What resources does Bateman Horne Center offer medical professionals?
A: BHC provides CME, webinars, and tools to improve ME/CF care. Explore & share! ⬇️ 💙
🔗 loom.ly/V7-vmXE
#MECFS #MedicalEducation #ChronicIllness @openmedf.bsky.social
Landscape slide. The top third is a pink banner with white copy that says, "Q&A SERIES: YOUR QUESTIONS. OUR ANSWERS." Under the pink banner is a dark blue banner that has two white boxes. One for the question (on top) and one for the answer (on bottom). In the question box it says, "What resources does the Bateman Horne Center offer medical professionals?" In the answer box it says, "Bateman Horne Center equips medical professionals with the tools to assess and manage ME/CFS, Long COVID and other Infection-associated Chronic Conditions. From CME courses to webinars and a comprehensive resource library, BHC supports better care."
February 26, 2025 at 5:39 PM
Reposted by MECFS Advocate
ayseneinart.bsky.social
Gang, at this point I’m too disillusioned to expect all of you to mask always (even though you should), but for the love of GOD, please at least mask at airports and on planes when you travel to events!!!
Screenshot of a Forbes headline, “Over 96% Of Airplane Flights Had Covid-19 Coronavirus In Their Wastewater”, published Jan 08, 2023.
February 20, 2025 at 2:56 PM
Reposted by MECFS Advocate
bhanlon15.bsky.social
MedPage Today: “Here's the Extent of the Fallout From Trump's HHS Purge”

— "This is exactly the way not to do it," one expert says

"chaos and confusion"

www.medpagetoday.com/special-repo...
Here's the Extent of the Fallout From Trump's HHS Purge
'This is exactly the way not to do it,' one expert says
www.medpagetoday.com
February 19, 2025 at 12:07 AM
Reposted by MECFS Advocate
tomkindlon.bsky.social
Hilda Bastian @hildabast.bsky.social "I’m using this page to keep track of what I’m posting about the Cochrane Collaboration" [& its abandoned update of the review of exercise therapy for CFS]

hildabastian.wordpress.com/cochrane-stu...
Screenshot from latest Science for ME weekly update
#MEcfs #CFS
Hilda Bastian, leader of the Independent Advisory Group appointed by Cochrane in 2020 to advise the group writing the now cancelled new review, has continued to take actions related to the cancellation. She has set up a page to record her public actions, including: "My open letter asking the Cochrane Board questions about transparency of governance and minutes." Hilda's page | Thread
February 17, 2025 at 10:57 PM
Reposted by MECFS Advocate
batemanhornecenter.bsky.social
Q: Has COVID-19 increased ME/CFS cases?
A: Before 2020, 1-3 million people in the U.S. had ME/CFS. Now, research suggests that number may be as high as 15 million due to COVID-19. We need more awareness, research, and care! 💙 #MECFS #LongCOVID #IACCs #ChronicIllness #BHC @openmedf.bsky.social
February 18, 2025 at 5:41 PM
Reposted by MECFS Advocate
batemanhornecenter.bsky.social
Why "ME/CFS 101"? Because Millions Are New to ME/CFS.
For those who've lived with it, this info may feel repetitive—but for newcomers, it’s life-changing. Let’s honor the journey of those who’ve suffered & offer support to those just starting.
Share your wisdom below! 💙 #MECFS
February 17, 2025 at 8:32 PM
mecfs-advocate.bsky.social
Hey ME/CFS patients, physicians and advocates! Starting to follow accounts very slowly since Bluesky labeled my last account “Spam”. I’m thinking it’s because I followed too many of you the first day.
February 17, 2025 at 11:58 PM