Physios For ME
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physiosforme.bsky.social
Physios For ME
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Reposted by Physios For ME
111 responses in one week. Thank you all. Responses from over 20 professions. A few professions not reached yet - Dentist, Chiropodist/podiatrist, Hearing aid practitioner,
Orthoptist, Paramedic, Radiographer. Please share widely thx @physiosforme.bsky.social

www.physiosforme.com/hcpwithmesur...
hcps with ME survey | Physiosforme
www.physiosforme.com
November 26, 2025 at 6:11 AM
Reposted by Physios For ME
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
Red Leaves and Messages of Hope @ Chester Cathedral
By Jo and Nick Greer
theredtreeandme.substack.com
November 27, 2025 at 11:35 PM
🚨New survey alert 🚨

The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME

All information can be found on the landing page here.

www.physiosforme.com/hcpwithmesur...
hcps with ME survey | Physiosforme
www.physiosforme.com
November 18, 2025 at 7:02 PM
We've had another study published 🥳

"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"

Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
Taylor & Francis Online: Peer-reviewed Journals
Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.
tandfonline.com
October 15, 2025 at 11:46 AM
Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.
September 1, 2025 at 6:00 PM
It is #SevereMEDay

Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.

We can play a key role in education of other health professionals, to advocate for safe management and care

@thecsp.bsky.social

www.physiosforme.com/severe-me
Severe ME | Physiosforme
www.physiosforme.com
August 8, 2025 at 7:18 PM
Reposted by Physios For ME
Just saw this in the physio frontline journal! All advocacy is important however small! Thanks @thecsp.bsky.social @physiosforme.bsky.social
June 29, 2025 at 8:48 PM
Reposted by Physios For ME
youtu.be/vv0pUwoF9J0?si…
Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some grea#MEME talks, well done all at the ME/CFS conference, digging deeper - Norway.
Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)
YouTube video by Norges ME-forening - Rogaland Fylkeslag
https://youtu.be/vv0pUwoF9J0?si…
June 29, 2025 at 4:03 PM
It's our six year anniversary!

To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like.

You can read a whole recap of our year in our latest blog post here
www.physiosforme.com/post/we-cele...
We celebrate our six year anniversary
It is now six years since the formation of Physios for ME, when four physiotherapists with a shared goal – to improve physiotherapy care for people with ME – got together online, gave ourselves a name...
www.physiosforme.com
June 29, 2025 at 5:03 PM
Well done for @claguenjc36.bsky.social for getting 3 abstracts accepted at @thecsp.bsky.social conference. Taking every opportunity to educate physios in the care and management of people with #ME
Pleased to have 3 abstracts accepted for the Chartered Society of Physiotherapy conference in Nov. Thanks @thecsp.bsky.social @physiosforme.bsky.social
June 3, 2025 at 6:20 AM
Reposted by Physios For ME
Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has

www.bmj.com/content/389/...

1/
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...
www.bmj.com
May 15, 2025 at 7:18 PM
You might need to try this link instead

www.physiosforme.com/onesheetprin...
May 12, 2025 at 8:34 PM
Reposted by Physios For ME
Just back from a wonderful week in Norway
for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different.
Fantastic to meet @putrinolab.bsky.social
@bmhughes.bsky.social in person along with others who I can't find to tag
...1/3
May 11, 2025 at 2:56 PM
Total pleasure to be part of the presenting line up @meforeningen.bsky.social conference in Stavanger
Excited to be here in Stavanger, Norway, to speak at @meforeningen.bsky.social conference on ME/CFS and Long Covid

Fascinating programme planned, lots of interesting presenters

#MECFS #LongCovid #pwME
May 7, 2025 at 3:20 PM
We welcome your thoughts and input.
We are planning another study which will potentially include blood tests for #pwme and #pwlc. What blood tests would you want and why? Thanks @physiosforme.bsky.social @longcovidphysio.bsky.social
April 24, 2025 at 6:04 AM
Reposted by Physios For ME
📣 1/5. The UK Government is proposing significant changes to welfare benefits.

These reforms could profoundly impact individuals with #LongCovid and #MECFS.

We've launched a survey to gather your insight. ⬇️
April 16, 2025 at 11:52 AM
Reposted by Physios For ME
5/5Endorsed by Bury&Bolton MECFS & Fibromyalgia Support Group, Hope4ME Fibro Northern Ireland, Keyworker Petition UK, 25% ME Group, MERCPAG, Supporting Healthcare Heroes UK &
@longcovidadvoc.com
@longcovidkids.bsky.social
@meactionuk.bsky.social
@physiosforme.bsky.social
@longcovidsos.bsky.social
April 16, 2025 at 11:52 AM
Reposted by Physios For ME
Proud to be part of this campaign for more strategic research funding for #ME and #longcovid

It's time to properly fund this vital research @physiosforme.bsky.social

psp-me.co.uk/campaign-str...
A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform - ME/CFS Priority Setting Partnership
A new campaign has been launched today by Action for ME, ME Research UK and the ME Association based on the work of a group of academics, practitioners, clinicians, charity representatives and people ...
psp-me.co.uk
April 22, 2025 at 6:06 PM
Reposted by Physios For ME
5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay
March 15, 2025 at 8:12 AM
New blog post published, with updates on current projects and some exciting news.

physiosforme.com/post/spring-...

Summary below 👇
Spring update from Physios for ME
It’s finally spring (ish) so we thought we would share an update on our current projects and latest activities. The majority of work for Physios for ME is done voluntarily in our spare time, and while...
physiosforme.com
March 2, 2025 at 11:45 AM
Dear
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social

We are Physios for ME and we urge you to #FundThePlan

Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below

www.facebook.com/watch/?v=166...

@thereforme.bsky.social
Redirecting...
www.facebook.com
March 2, 2025 at 11:36 AM
A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)

Please share widely - all info on our website here

www.physiosforme.com/athletessurvey
ME in Athletes Survey | Physiosforme
www.physiosforme.com
February 23, 2025 at 6:02 PM
Thank you @drjogreer.bsky.social for including us in this inspiring group of researchers/clinicians and advocates.
"The Red Tree & ME" incl. 23 responses she received from scientists, researchers, clinicians & advocates involved with #MEcfs, #LongCovid & similar

theredtreeandme.substack.com/p/the-red-tr...

theredtreeandme.substack.com/p/we-shall-h...

Image is from latest Science for ME weekly update

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January 5, 2025 at 8:48 PM