CT Rare Advocate
73 followers
LightNews LightNews
National Organization for Rare Disorders (NORD)
National Organization for Rare Disorders (NORD)
@nordrare.bsky.social
HD Reach
HD Reach
@hdreach.bsky.social
Immunoglobulin National Society
Immunoglobulin National Society
@ignsorg.bsky.social
grumpyhobbit
grumpyhobbit
@grumpyhobbit.bsky.social
Christie
Christie
@rubylolaquin.bsky.social
Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
@engagedroadmap.bsky.social
Déjà Vu 💙
Déjà Vu 💙
@silentexistence.bsky.social
Life Science Network
Life Science Network
@lifesciencenet.bsky.social
👑Chronic Pain Princess👑
👑Chronic Pain Princess👑
@cpprincess.bsky.social
EHDN News
EHDN News
@ehdn-news.bsky.social
Datentante 🤌🏻 (Segler era - ornithology approved)
Datentante 🤌🏻 (Segler era - ornithology approved)
@datentante.bsky.social
Alex
Alex
@alexdegreine.bsky.social
LizR
LizR
@lizrbherenow.bsky.social
Restless Beehive
Restless Beehive
@restlessbeehive.bsky.social
Dominique Charron
Dominique Charron
@docharron.bsky.social
willo3.bsky.social
willo3.bsky.social
@willo3.bsky.social
JWMDRC Patient Registries
JWMDRC Patient Registries
@jwmdrc-registries.bsky.social
Marissa
Marissa
@anothermarissa.bsky.social
Disability Daily Podcast
Disability Daily Podcast
@disabilitydaily.bsky.social
CKJohnsonBK 🇺🇦🇬🇱
CKJohnsonBK 🇺🇦🇬🇱
@ckjohnsonbk.bsky.social
Angioedema News
Angioedema News
@angioedemanews.bsky.social
Marittima
Marittima
@marittima.bsky.social
RASopathies Network
RASopathies Network
@rasnet.bsky.social
Grace Talbert
Grace Talbert
@gtalbert.bsky.social
The Zebra Alliance Community
The Zebra Alliance Community
@thezebraalliance.bsky.social
healthfoodie.bsky.social
healthfoodie.bsky.social
@healthfoodie.bsky.social
Dr Simon Stones
Dr Simon Stones
@simonrstones.bsky.social
hughjb.bsky.social
hughjb.bsky.social
@hughjb.bsky.social
djdonovan8.bsky.social
djdonovan8.bsky.social
@djdonovan8.bsky.social
Stone Pathway
Stone Pathway
@gargoylemakes.bsky.social
Jennifer J Brown
Jennifer J Brown
@jjunebrown.bsky.social
Lindsey Tolman, PhD
Lindsey Tolman, PhD
@lindseytolman.bsky.social
Kutand Alkım Bayer
Kutand Alkım Bayer
@kutandalkim.bsky.social
Paul Reading
Paul Reading
@paulreading.bsky.social
RAREvolution
RAREvolution
@rarevolution.bsky.social
40:40 Recruitment - celia@4040recruitment.co.uk
40:40 Recruitment - [email protected]
@4040rec.bsky.social
TRIDENT Preclinical Trials
TRIDENT Preclinical Trials
@tridentpct.bsky.social
StarDust949
StarDust949
@stardust949.bsky.social
JS Berry
JS Berry
@jsb125.bsky.social
Maddy
Maddy
@mtc12.bsky.social
Alport UK
Alport UK
@alportuk.bsky.social
twindadct.bsky.social
twindadct.bsky.social
@twindadct.bsky.social
Cure MFM13
Cure MFM13
@curemfm13.bsky.social
Huntington's Disease Society of America
Huntington's Disease Society of America
@hdsanational.bsky.social
Alltrna
Alltrna
@alltrna.bsky.social
Load more